Congratulations to Andy Baghurst: he's been re-appointed in a vote of our members to be a trustee for another term.

How about you joining him on the Board of Aniridia Network?
Find more at aniridia.org.uk/trustee/

Our free online #aniridia conference is on at 1pm Saturday, 1 November UK time.
Don't miss the talks, chance to ask questions, AGM and conversation afterwards
Get details at aniridia.org.uk/conference/

'you have been invited to vote in the election "Aniridia Network trustee election 2025"'
That's the subject of the 21 September email to members, with your ballot on re-appointing Andy as one of our trustees.
Check your spam folder or ask us to resend it to you.
Polling closes at the end of today!

AFTER PARTY: Stick around after our conference this Saturday afternoon for informal chat with patients and parents affected by #aniridia.
The event starts at 1pm Saturday 1 November.
Get details at aniridia.org.uk/conference/ #ANUKconf

AGM: Our annual general meeting is this weekend.
Come to hear the charity's annual report and quiz its leaders.
Trustee election online voting deadline is Friday.
Conference starts: 1pm Saturday 1 November.
Sign up at aniridia.org.uk/conference/ #aniridia #ANUKconf

"Train station maps for visually impaired people" - an online lightning talk by Emily Nash, a person with aniridia studying at @CovUni, is part of our Conference & AGM grom: 1pm 1 November.
Details and sign up at aniridia.org.uk/conference/ #aniridia #ANUKconf

WEBINAR: "Exploring PAX6 related gene regulatory networks & its role in the developing brain" by Samuel Heczko & Dr Calvin Chan, @EdinburghUniversity
Part of our Conference & AGM from: 1pm Saturday 1 November.
Book a spot and time in your diary at aniridia.org.uk/conference/ #aniridia #ANUKconf

WEBINAR: "Privilege, Protest. Power" by Elliott Lee, a 25-year-old with aniridia.
Part of our conference from: 1pm Saturday 1 November.
Sign up to take part at aniridia.org.uk/conference/ #aniridia #ANUKconf

Q&A about aniridia, particularly together with glaucoma, with Mr John Brookes, @Moorfields Eye Hospital.
From: 1pm Saturday 1 November. Register for a place and to submit your queries at aniridia.org.uk/conference/ #aniridia #ANUKconf

TALK: "How PAX6 gene deficiency affects your body" by consultant ophthalmologist in genetic eye disease, Professor Mariya Moosajee @mariyamoosajee, Moorfields Eye Hospital @Moorfields & @UCLeye.
From: 1pm 1 November aniridia.org.uk/conference/ #aniridia #ANUKconf

At the @EngineRoomTottenhamHale community centre/church there’s an artwork by @GraemeEvelyn where the centre is reminiscent of an eye with the rare visual impairment aniridia.
Its a contemporary, hand carved, painted relief sculpture 5x3 metres.
More details at graemeevelyn.com/new-major-pr...

A big thank you to Lyn for raising £150 for our charity by opening her beautiful garden to visitors for a day.

To mark Aniridia Day, Vision For Tomorrow Foundation in the USA have launched an amazing map of doctors in America who experience with aniridia that people there can contribute to.
visionfortomorrow.org/aniridia-car...
visionfortomorrow.org/aniri…
Want this in the UK+Ireland? Who'd you recommend?

Guide the development of online station maps for people with sight loss!
A member is seeking VI testers of examples from around the UK.
​You'll need to have a 90 minute recorded Teams call and view maps with your assistive technology.​
For details contact Emily: nashe5@uni.coventry.ac.uk

Let's get in on the meme of using AI to generated action figure representative of us.
What do you think?

We've been scouting venues for our next conference.
Where would you like us to hold our events?
What kind of speakers would you want to hear from?
Hhow aout you?! What's your story that you could tell?

It is #RareDiseaseDay: about raising awareness and generating change for the 3.5 million people living with a rare condition in the UK, their families & carers. Help raise awareness, amplify the voices of the rare community. Share your experience of living with a rare condition such aniridia!

#RareDiseaseDay 28 February is almost here!
Genetic Alliance UK will be sharing #MoreThanYouCanImagine: an anthology of rare experiences’, a collection of creative work that represents a wide range of experiences from the genetic, rare and undiagnosed communities.
https://buff.ly/4i4qk7u

Question from a recent online quiz:
"A ring shaped muscle in your iris decides how much light to let into your eye.
That's called the pupillary WHAT?"