Right now, there are people living with ME—the same illness I have—who can’t even roll over in bed, speak, or tolerate light or sound. Their entire existence is a never-ending agonizing hell. There are children missing out on their childhoods.

But if this is as good as my health gets? I will do my very best to live a fulfilling life in the body I have. After all, we really only have one life to live. So many are robbed of the opportunity altogether.

I’ve made peace with my life and my body. It’s not the life I envisioned, and it’s not the one I ever would have chosen, but it is the life I have. And in accepting that, I’ve learned and gained a lot. I hold on to hope every day that I will continue to recover.

Through these hardships I’ve come to realize that the thrill of life at its fullest can never truly be replicated, though you can try. I’ve still had many wonderful moments since becoming sick, but it’s hard to live a truly fulfilling life when you live with something like ME.

The moment I fell ill, I lost a piece of myself, and I know I’ll never get it back. Many of my memories from before I got sick have faded, blending together into a blurry haze. Yet, I can still remember the distinct sensations of doing the things I loved the most—the rush of truly living.

I’ve been isolated from the world in almost every sense. That thought carries a weight that sits heavy on me—like a rock in my stomach and pressure on my shoulders. Most of the time, I carry it quietly, just as I do with many of my symptoms. Grief is simply another symptom.

Ew. Thanks for bringing awareness to this- reported and blocked

In his statement he wrote “I will continue to closely support the ME community, as I have always done.” Which is funny because he called us all keyboard warriors, told us to basically get out of bed, and then refused to issue a real apology and made people with Severe ME fight him. 💀…

I hear you on this so much.

I hope you will carefully consider this feedback and act in the best interests of British Columbians.

Sincerely,

[Your Name]

I believe it is in BC Ferries’ best interest to explore partnerships with Canadian or more neutral international providers who do not pose potential political or economic risks to our nation.

Should BC Ferries proceed with a contract with Starlink, I will take my business to alternative providers such as Hullo Ferries whenever possible. [cont]

Starlink. Supporting a company led by an individual who has expressed hostility toward our country does not align with the values of a publicly funded transportation service that should prioritize Canadian interests.

Given the looming tariffs on Canada by the Trump administration and Elon Musk’s increasingly problematic stance toward Canada—including discussions around annexation and questioning our great country's legitimacy—it is deeply concerning to see BC Ferries entertain a business relationship with

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Dear BC Ferries,

As a resident of Vancouver, I rely on BC Ferries as an essential mode of transportation. I was recently made aware of BC Ferries’ consideration of Starlink as an onboard internet provider, and I strongly urge you to reconsider this decision.

Can you explain more about why you feel I'm over thinking? I don't think that including disabled people in the conversation is necessarily overthinking if that's what you're getting at?

Importantly, we must factor in and include that many house and bed bound people rely on these platforms to have a social life. Many people have built up networks and social circles on these apps and don't have the energy to start over somewhere else.