ANE International
aneinternational.bsky.social
ANE International
@aneinternational.bsky.social
We aim to raise awareness, provide information & support families with #AcuteNecrotizingEncephalopathy. A devastating disease that affects the brain & is typically triggered by influenza & other viruses. www.aneinternational.org
👶Jasper was a happy, thriving 11 month old.
Then, an unknown virus triggered ANE.
📖 In this new story, Jasper's mother shares their experience & captures the devastating speed & impact of #AcuteNecrotizingEncephalopathy.
Read Here➡️ aneinternational.org/jasper/
#PedsICU #medicalemergency #virus
August 15, 2025 at 5:00 AM
📌 We’ve laid out the facts. Now, we share another experience with #AcuteNecrotizingEncephalopathy (ANE)—because no two journeys are the same.

📖 One name. Many paths. Here's one more.
Read here ➡️ aneinternational.org/meredith/

#ANEawareness #i̇nfluenza #covid #RSV #virus #acquiredbraininjury #HHSV
August 5, 2025 at 7:58 AM
#AcuteNecrotizingEncephalopathy (ANE) may be the shared diagnosis—but every story unfolds uniquely.
🫶❤️📖 By sharing these diverse paths, we deepen awareness. One story at a time.

#ANEawareness #i̇nfluenza #VaccinePreventableDisease #virus #acquiredbraininury

aneinternational.org/stories/aust...
August 4, 2025 at 9:49 AM
📋 We've shared the facts. Now, it’s time to meet the voices of lived reality.
#AcuteNecrotizingEncephalopathy isn’t just numbers—it’s real people, real families, and stories that deserve to be heard.

#ANEawareness #i̇nfluenza #RSV #covid #VPD

Video ➡️ aneinternational.org/grayson/
August 3, 2025 at 6:28 AM
#AcuteNecrotizingEncephalopathy

The impact of #influenza assoc ANE - www.aneinternational.org

"No one saw this coming. All of his symptoms were masked by “regular” flu symptoms. All we were told by every Dr from then on was to pray & hope for a miracle”.
aneinternational.org/jesse-3/ #braininjury
August 2, 2025 at 7:45 AM
Please help us raise awareness of this devastating complication from influenza and other common viruses seen in healthy kids. Acute Necrotizing Encephalopathy- ANE. Our awareness day is today, July 31st. #ANEawareness #influenza www.aneinternational.org
July 31, 2025 at 6:53 AM
Please help us raise awareness of this devastating complication from influenza and other common viruses seen in healthy kids. Acute Necrotizing Encephalopathy- ANE. Our awareness day is today, July 31st. #ANEawareness www.aneinternational.org
July 31, 2025 at 6:48 AM
⚡️ANE can strike without warning in anyone, at any age.
Read more: aneinternational.org/thestrongfam...
#influenza #braininjury #acutenecrotizingencephalopathy
July 30, 2025 at 7:07 AM
🦠Influenza, RSV, chicken pox, measles, roseola and covid19 are all common viruses.
All are associated with ANE.

👨‍👩‍👧‍👦Together, we raise awareness.
👨‍👩‍👧‍👦Together, we save lives.

📚What is ANE?

You can also learn more on our website - aneinternational.org/acute-necrot...
#ANEawareness #abi #influenza
July 29, 2025 at 10:00 AM
Acute Necrotizing Encephalopathy is a rare type of brain disease that occurs following a viral infection such as #influenza. It typically affects previously healthy children.
Learn more - www.aneinternational.org
June 29, 2025 at 10:42 AM
#RareDiseaseDay is a globally coordinated movement dedicated to rare diseases, striving for equity in social opportunities, healthcare, & access to diagnosis and therapies for people living with a rare disease.
#AcuteNecrotizingEncephalopathy
February 28, 2025 at 4:07 AM
It's Rare Disease Day tomorrow.
Rare Disease Day is the opportunity to advocate for rare diseases as a human rights priority at local, national and international level as we work towards a more inclusive society.
#rarediseaseday #Acutenecrotizingencephalopathy
#ANEawareness
www.aneinternational.org
February 27, 2025 at 5:52 AM
The reality of #influenza associated #AcuteNecrotizingEncephalopathy . The only protection from this heartbreaking disease is vaccination. We know. #ANEandUs #ANEawareness www.aneinternational.org
February 18, 2025 at 11:25 PM
#AcuteNecrotizingEncephalopathy occurs following a viral infection such as #influenza & can sometimes be fatal. In children with severe ANE, seizures may occur & there may be a rapid progression to a comatose state within 24–72 hours from the onset of symptoms.

aneinternational.org
February 18, 2025 at 1:14 AM
#AcuteNecrotizingEncephalopathy.
The worst complication of #influenza you can ever imagine. Jesse's family share their story.
aneinternational.org/jesse-3/
February 16, 2025 at 4:24 AM
How has your family been affected by #Influenza? Our community members suffered severe neurological complications resulting in brain injury or death. #whywevax #acutenecrotizingencephalopathy
January 13, 2025 at 1:17 AM
We are seeing more cases of ANE.
What should you watch out for if your child has #influenza or another respiratory virus.
#acutenecrotizingencephalopathy
January 10, 2025 at 5:12 AM
December 10, 2024 at 4:40 AM