Nice rebrand for NEALS!

I was delighted to have another opportunity to speak with @RepMikeQuigley today about the reauthorization of the #ACTforALS.

Stay tuned for more to come on this important piece of #ALS legislation.

What a great meeting!! I’m honored to be on the ALL #ALS Steering Committee and delighted to see the progress and innovations this natural history study is making.

Learn more at all-als.org

In honor and memory of all those we have lost to #ALS this #2025MemorialDay.

Join us Feb 5 at 7 pm ET through the Everything ALS Expert Talk Series to learn about a new ALS research program, ALL ALS, and how you can get involved.

www.everythingals.org/events

"Excited to announce that I’ll be speaking alongside ALS program leaders at the EverythingALS Expert Talk Series on Feb 5, 2025 at 7 pm ET- "Revolutionizing ALS Research:
AMP ALS, ALL ALS & You!".
Looking forward to connecting with the community!
Register today:
www.everythingals.org/futureevents

We lost this beauty 15 years ago today and not a day goes by that I don’t think of her. Miss you, Mom.
#CureALS

Oh @EvyReviers, I’m so sorry to hear of your father’s passing. I remember Danny’s kindness and tenacity and know how hard he fought for the ALS cause. Holding you and your family close. ❤️

Fantastic kickoff to the #alsmndsymp from @caulfieldtim.bsky.social of @scienceupfirst.bsky.social about how to spot misinformation in healthcare and science and most importantly, how to counteract it.

Congratulations to Dr. Jonathan Glass of Emory University for being recognized as a co-honoree of the Forbes Norris Award! #alsmndsymp

Bonjour Montreal! It’s my 10th international symposium, and I’m still awestruck every time I hear the latest in ALS and MND basic science and clinical research from around the world. And, I’m honored to participate in this field in my own way.

And here is the powerful panel.

Powerful presentation from those who know #ALS #MND firsthand the best. #alsmndwithoutborders

Congratulations to long time ALS/MND advocate, Evy Reviers, for receiving the Humanitarian Award from the International Alliance of ALS /MND Associations! Well deserved, Evy!

So delighted to see my friend, Steve Saling, who has lived with ALS for 20 years, continue to do such remarkable work at the Leonard Florence Center in Boston. If you haven’t checked out the ALS Residences, you should!

Great turnout -largest Alliance meeting I’ve seen in 10 years!

I’m grateful for this community. #HappyThanksgiving