Amyloidosis Research Consortium
@amyloidosis.bsky.social
ARC is accelerating the development of and access to new and innovative treatments for systemic #amyloidosis
The Amyloidosis Research Consortium (ARC) is Shining a Light on #amyloidosis — driving discovery, supporting patients and their families, and investing in the future of expert care.
With your support we can do even more: arci.org/givenow
With your support we can do even more: arci.org/givenow
November 13, 2025 at 10:40 PM
The Amyloidosis Research Consortium (ARC) is Shining a Light on #amyloidosis — driving discovery, supporting patients and their families, and investing in the future of expert care.
With your support we can do even more: arci.org/givenow
With your support we can do even more: arci.org/givenow
10 years ago, ARC was founded to improve and extend the lives of people living with #amyloidosis.
Thank you to everyone whose support sustains our work and helps drive progress in care and research.
See your impact at work: arci.org/ImpactAtWork2025
Thank you to everyone whose support sustains our work and helps drive progress in care and research.
See your impact at work: arci.org/ImpactAtWork2025
November 6, 2025 at 6:55 PM
10 years ago, ARC was founded to improve and extend the lives of people living with #amyloidosis.
Thank you to everyone whose support sustains our work and helps drive progress in care and research.
See your impact at work: arci.org/ImpactAtWork2025
Thank you to everyone whose support sustains our work and helps drive progress in care and research.
See your impact at work: arci.org/ImpactAtWork2025
Thank you to our supporters who have made this annual meeting possible!
October 22, 2025 at 2:06 PM
Thank you to our supporters who have made this annual meeting possible!
Good morning! Are you ready to hear from clinicians, drug developers, and regulatory members discuss the most important topics facing #amyloidosis?
Tune in to the #AmyloidosisForum online any time between 8-4 today for some important conversations! amyloidosisforum.org/2025-meeting/
Tune in to the #AmyloidosisForum online any time between 8-4 today for some important conversations! amyloidosisforum.org/2025-meeting/
October 22, 2025 at 2:06 PM
Good morning! Are you ready to hear from clinicians, drug developers, and regulatory members discuss the most important topics facing #amyloidosis?
Tune in to the #AmyloidosisForum online any time between 8-4 today for some important conversations! amyloidosisforum.org/2025-meeting/
Tune in to the #AmyloidosisForum online any time between 8-4 today for some important conversations! amyloidosisforum.org/2025-meeting/
Don't miss a special ARC Talks webinar for #Caregivers & #CarePartners, Oct 15 at Noon ET!
Hear practical advice, self-care tips, and real-life strategies to help make daily life a little easier for both you and the person you care about.
Register today: us02web.zoom.us/webinar/regi...
Hear practical advice, self-care tips, and real-life strategies to help make daily life a little easier for both you and the person you care about.
Register today: us02web.zoom.us/webinar/regi...
October 8, 2025 at 4:53 PM
Don't miss a special ARC Talks webinar for #Caregivers & #CarePartners, Oct 15 at Noon ET!
Hear practical advice, self-care tips, and real-life strategies to help make daily life a little easier for both you and the person you care about.
Register today: us02web.zoom.us/webinar/regi...
Hear practical advice, self-care tips, and real-life strategies to help make daily life a little easier for both you and the person you care about.
Register today: us02web.zoom.us/webinar/regi...
Know an #amyloidosis patient who could benefit from connecting with those who know what they're going through?
Our PEER Link program connects people with trained peer mentors for 1:1 guidance and encouragement.
Connect your patients to a PEER Today: arci.org/peer-link
Our PEER Link program connects people with trained peer mentors for 1:1 guidance and encouragement.
Connect your patients to a PEER Today: arci.org/peer-link
August 20, 2025 at 5:13 PM
Know an #amyloidosis patient who could benefit from connecting with those who know what they're going through?
Our PEER Link program connects people with trained peer mentors for 1:1 guidance and encouragement.
Connect your patients to a PEER Today: arci.org/peer-link
Our PEER Link program connects people with trained peer mentors for 1:1 guidance and encouragement.
Connect your patients to a PEER Today: arci.org/peer-link
🎉 ARC is 10!
We’ve helped support thousands of #amyloidosis patients, educated HCPs, and helped spur progress in drug development.
Thanks to everyone we’ve partnered with over our first 10 years!
See our impact & support the next decade: arci.org/anniversary/
#ARC10Years
We’ve helped support thousands of #amyloidosis patients, educated HCPs, and helped spur progress in drug development.
Thanks to everyone we’ve partnered with over our first 10 years!
See our impact & support the next decade: arci.org/anniversary/
#ARC10Years
August 5, 2025 at 2:49 PM
🎉 ARC is 10!
We’ve helped support thousands of #amyloidosis patients, educated HCPs, and helped spur progress in drug development.
Thanks to everyone we’ve partnered with over our first 10 years!
See our impact & support the next decade: arci.org/anniversary/
#ARC10Years
We’ve helped support thousands of #amyloidosis patients, educated HCPs, and helped spur progress in drug development.
Thanks to everyone we’ve partnered with over our first 10 years!
See our impact & support the next decade: arci.org/anniversary/
#ARC10Years
Join ARC + the American Association for Hand Surgery for a CME webinar Aug 5 at 8PM ET.
Hear from Dr. Schulman, diagnosed after a carpal tunnel biopsy, plus experts on when to biopsy & what to watch for.
👉 us06web.zoom.us/meeting/regi...
#CME #RareDisease
Hear from Dr. Schulman, diagnosed after a carpal tunnel biopsy, plus experts on when to biopsy & what to watch for.
👉 us06web.zoom.us/meeting/regi...
#CME #RareDisease
July 25, 2025 at 9:16 PM
Join ARC + the American Association for Hand Surgery for a CME webinar Aug 5 at 8PM ET.
Hear from Dr. Schulman, diagnosed after a carpal tunnel biopsy, plus experts on when to biopsy & what to watch for.
👉 us06web.zoom.us/meeting/regi...
#CME #RareDisease
Hear from Dr. Schulman, diagnosed after a carpal tunnel biopsy, plus experts on when to biopsy & what to watch for.
👉 us06web.zoom.us/meeting/regi...
#CME #RareDisease
📢 Don't miss our #ARCTALKS webinar next week!
ARC’s Kristen Hsu will share the latest updates on the #ATTR #amyloidosis clinical trial landscape, plus what’s ahead for research in the area.
🗓️ Register now: us02web.zoom.us/webinar/regi...
#ClinicalTrials #RareDisease
ARC’s Kristen Hsu will share the latest updates on the #ATTR #amyloidosis clinical trial landscape, plus what’s ahead for research in the area.
🗓️ Register now: us02web.zoom.us/webinar/regi...
#ClinicalTrials #RareDisease
July 23, 2025 at 7:04 PM
📢 Don't miss our #ARCTALKS webinar next week!
ARC’s Kristen Hsu will share the latest updates on the #ATTR #amyloidosis clinical trial landscape, plus what’s ahead for research in the area.
🗓️ Register now: us02web.zoom.us/webinar/regi...
#ClinicalTrials #RareDisease
ARC’s Kristen Hsu will share the latest updates on the #ATTR #amyloidosis clinical trial landscape, plus what’s ahead for research in the area.
🗓️ Register now: us02web.zoom.us/webinar/regi...
#ClinicalTrials #RareDisease
🎉 Congrats to the first ARC #ClinicalFellowship awardees! Thank you for helping shape the next generation of #amyloidosis experts. Together, we're building a brighter future for patients. 💙
Learn more: arci.org/fellowship/
Learn more: arci.org/fellowship/
July 22, 2025 at 5:52 PM
🎉 Congrats to the first ARC #ClinicalFellowship awardees! Thank you for helping shape the next generation of #amyloidosis experts. Together, we're building a brighter future for patients. 💙
Learn more: arci.org/fellowship/
Learn more: arci.org/fellowship/
Can #AI help uncover #CardiacAmyloidosis earlier?
A new white paper is out now featuring insights from experts across medicine, AI, & advocacy.
Download Here: arci.org/aipapermay2025
#AI #Amyloidosis #RareDisease
A new white paper is out now featuring insights from experts across medicine, AI, & advocacy.
Download Here: arci.org/aipapermay2025
#AI #Amyloidosis #RareDisease
June 23, 2025 at 6:21 PM
Can #AI help uncover #CardiacAmyloidosis earlier?
A new white paper is out now featuring insights from experts across medicine, AI, & advocacy.
Download Here: arci.org/aipapermay2025
#AI #Amyloidosis #RareDisease
A new white paper is out now featuring insights from experts across medicine, AI, & advocacy.
Download Here: arci.org/aipapermay2025
#AI #Amyloidosis #RareDisease
Thanks to everyone who visited ARC's exhibit booth during the AAHFN 21st Annual Meeting last week!
Spreading awareness of #amyloidosis and ARC's programs and resources is a critical piece of improving the lives of those affected by amyloidosis. #AAHFN2025
Spreading awareness of #amyloidosis and ARC's programs and resources is a critical piece of improving the lives of those affected by amyloidosis. #AAHFN2025
June 17, 2025 at 7:37 PM
Thanks to everyone who visited ARC's exhibit booth during the AAHFN 21st Annual Meeting last week!
Spreading awareness of #amyloidosis and ARC's programs and resources is a critical piece of improving the lives of those affected by amyloidosis. #AAHFN2025
Spreading awareness of #amyloidosis and ARC's programs and resources is a critical piece of improving the lives of those affected by amyloidosis. #AAHFN2025
New in JAHA: ASPIRE + expert collaborators outline how #AI could help detect #CardiacAmyloidosis earlier. Strong science. Real-world urgency.
Read more: www.ahajournals.org/doi/10.1161/...
#Amyloidosis #RareDisease #JAHA_AHA
Read more: www.ahajournals.org/doi/10.1161/...
#Amyloidosis #RareDisease #JAHA_AHA
June 11, 2025 at 6:00 PM
New in JAHA: ASPIRE + expert collaborators outline how #AI could help detect #CardiacAmyloidosis earlier. Strong science. Real-world urgency.
Read more: www.ahajournals.org/doi/10.1161/...
#Amyloidosis #RareDisease #JAHA_AHA
Read more: www.ahajournals.org/doi/10.1161/...
#Amyloidosis #RareDisease #JAHA_AHA
📆 📷 June 10 | 12PM ET | #ARCTalks Webinar: #ATTR Cardiac Treatments
Hear Jan Griffin, #amyloidosis cardiologist at the Medical University of South Carolina, discuss how ATTR affects the heart and explore the evolution of treatments for ATTR-CM.
Register Today: us02web.zoom.us/webinar/regi...
Hear Jan Griffin, #amyloidosis cardiologist at the Medical University of South Carolina, discuss how ATTR affects the heart and explore the evolution of treatments for ATTR-CM.
Register Today: us02web.zoom.us/webinar/regi...
June 9, 2025 at 2:20 PM
📆 📷 June 10 | 12PM ET | #ARCTalks Webinar: #ATTR Cardiac Treatments
Hear Jan Griffin, #amyloidosis cardiologist at the Medical University of South Carolina, discuss how ATTR affects the heart and explore the evolution of treatments for ATTR-CM.
Register Today: us02web.zoom.us/webinar/regi...
Hear Jan Griffin, #amyloidosis cardiologist at the Medical University of South Carolina, discuss how ATTR affects the heart and explore the evolution of treatments for ATTR-CM.
Register Today: us02web.zoom.us/webinar/regi...
Would you like support from someone who understands?
ARC’s Patient Education & Empowerment Resource (PEER) Link is a one-to-one program connecting #amyloidosis patients and caregivers with a trained peer mentor around shared experiences.
Apply today: arci.org/peer-link/
ARC’s Patient Education & Empowerment Resource (PEER) Link is a one-to-one program connecting #amyloidosis patients and caregivers with a trained peer mentor around shared experiences.
Apply today: arci.org/peer-link/
June 4, 2025 at 5:48 PM
Would you like support from someone who understands?
ARC’s Patient Education & Empowerment Resource (PEER) Link is a one-to-one program connecting #amyloidosis patients and caregivers with a trained peer mentor around shared experiences.
Apply today: arci.org/peer-link/
ARC’s Patient Education & Empowerment Resource (PEER) Link is a one-to-one program connecting #amyloidosis patients and caregivers with a trained peer mentor around shared experiences.
Apply today: arci.org/peer-link/
At the #ASSH2024 conference, we found hand surgeons very interested in understanding the connection between #amyloidosis and #CarpalTunnel.
If you're a hand surgeon looking to know more, ARC is here to support you: arci.org/carpaltunnel/
If you're a hand surgeon looking to know more, ARC is here to support you: arci.org/carpaltunnel/
April 23, 2025 at 2:43 PM
At the #ASSH2024 conference, we found hand surgeons very interested in understanding the connection between #amyloidosis and #CarpalTunnel.
If you're a hand surgeon looking to know more, ARC is here to support you: arci.org/carpaltunnel/
If you're a hand surgeon looking to know more, ARC is here to support you: arci.org/carpaltunnel/
📆 📷 Apr 15 | 12PM ET | #ARCTalks Webinar: AL Amyloidosis Clinical Trial Updates
ARC's Executive Director of Research, Kristen Hsu, will present current updates for #AL amyloidosis clinical trials, as well as the direction of future research.
Register Today: us02web.zoom.us/webinar/regi...
ARC's Executive Director of Research, Kristen Hsu, will present current updates for #AL amyloidosis clinical trials, as well as the direction of future research.
Register Today: us02web.zoom.us/webinar/regi...
April 10, 2025 at 1:18 PM
📆 📷 Apr 15 | 12PM ET | #ARCTalks Webinar: AL Amyloidosis Clinical Trial Updates
ARC's Executive Director of Research, Kristen Hsu, will present current updates for #AL amyloidosis clinical trials, as well as the direction of future research.
Register Today: us02web.zoom.us/webinar/regi...
ARC's Executive Director of Research, Kristen Hsu, will present current updates for #AL amyloidosis clinical trials, as well as the direction of future research.
Register Today: us02web.zoom.us/webinar/regi...
📆 📷 Mar 19 | 12PM ET | #ARCTalks Webinar: Emotional Aspects of Amyloidosis
Hear Meghan Beier PhD, psychologist at the Rowan Center For Behavorial Medicine, discuss mental health issues in #amyloidosis and present strategies for coping.
Register Today: us02web.zoom.us/webinar/regi...
Hear Meghan Beier PhD, psychologist at the Rowan Center For Behavorial Medicine, discuss mental health issues in #amyloidosis and present strategies for coping.
Register Today: us02web.zoom.us/webinar/regi...
March 11, 2025 at 4:56 PM
📆 📷 Mar 19 | 12PM ET | #ARCTalks Webinar: Emotional Aspects of Amyloidosis
Hear Meghan Beier PhD, psychologist at the Rowan Center For Behavorial Medicine, discuss mental health issues in #amyloidosis and present strategies for coping.
Register Today: us02web.zoom.us/webinar/regi...
Hear Meghan Beier PhD, psychologist at the Rowan Center For Behavorial Medicine, discuss mental health issues in #amyloidosis and present strategies for coping.
Register Today: us02web.zoom.us/webinar/regi...
So long sunny San Diego! The future looks bright for #AL #amyloidosis at #ASH24, with a number of programs recruiting or moving into development in 2025.
Collaboration will be key as we help advance these new therapies quickly and improve outcomes for patients.
Collaboration will be key as we help advance these new therapies quickly and improve outcomes for patients.
December 9, 2024 at 6:43 PM
So long sunny San Diego! The future looks bright for #AL #amyloidosis at #ASH24, with a number of programs recruiting or moving into development in 2025.
Collaboration will be key as we help advance these new therapies quickly and improve outcomes for patients.
Collaboration will be key as we help advance these new therapies quickly and improve outcomes for patients.