ALS United Greater New York
@alsofgny.bsky.social
We provide local, on-the-ground services to patients and families living with ALS throughout the Greater New York area, including New York City, Long Island, lower and mid-Hudson Valley, and northern and central New Jersey. als-ny.org
The NYS ALS Registry bill has passed the legislature & awaits @GovKathyHochul's signature. With CDC’s #ALS Registry at risk in the federal budget, NY is taking action! Huge thanks to @Sen. Scarcella-Spanton & Asm. Stern & all advocates!
June 10, 2025 at 9:26 PM
The NYS ALS Registry bill has passed the legislature & awaits @GovKathyHochul's signature. With CDC’s #ALS Registry at risk in the federal budget, NY is taking action! Huge thanks to @Sen. Scarcella-Spanton & Asm. Stern & all advocates!
🏳️🌈 10 years ago, marriage equality became law thanks to Jim Obergefell & John Arthur who were partners for 20+ years. After John’s ALS diagnosis, they married in Maryland in 2013. They fought for spousal recognition, and Jim took the case to SCOTUS—and won. John died 3 months later. #ALS #LoveIsLove
June 2, 2025 at 2:32 PM
🏳️🌈 10 years ago, marriage equality became law thanks to Jim Obergefell & John Arthur who were partners for 20+ years. After John’s ALS diagnosis, they married in Maryland in 2013. They fought for spousal recognition, and Jim took the case to SCOTUS—and won. John died 3 months later. #ALS #LoveIsLove
May is #ALSAwarenessMonth a time to honor resilience, fuel progress, and stand united. This month, we shine a light on those living with the disease, their caregivers & families, and push forward with urgency toward better treatments & a cure. Together, We End ALS! #ALS
May 1, 2025 at 5:05 PM
May is #ALSAwarenessMonth a time to honor resilience, fuel progress, and stand united. This month, we shine a light on those living with the disease, their caregivers & families, and push forward with urgency toward better treatments & a cure. Together, We End ALS! #ALS
URGENT: Protect #ALS Research Funding! Congress may slash CDMRP funding in the CR, halting critical ALS research. ALS cases could rise 70% by 2030, & veterans face 2x the risk. We must act NOW! Tell your Senators to protect funding! als-ny.org/the-threat-t... #ALSResearch
March 13, 2025 at 4:58 PM
URGENT: Protect #ALS Research Funding! Congress may slash CDMRP funding in the CR, halting critical ALS research. ALS cases could rise 70% by 2030, & veterans face 2x the risk. We must act NOW! Tell your Senators to protect funding! als-ny.org/the-threat-t... #ALSResearch
Musicians United for ALS – Concert Supporting ALS United Greater NY 4/15 #PattySmyth, #PaulShaffer, #RobThomas and more!* Hosted by: #VincentPastore. In honor of Wayne Warnecke, acclaimed music producer battling ALS. Proceeds go 2 ALS United Greater NY bit.ly/MusiciansUni... *Artist subject 2 change
March 5, 2025 at 5:11 PM
Musicians United for ALS – Concert Supporting ALS United Greater NY 4/15 #PattySmyth, #PaulShaffer, #RobThomas and more!* Hosted by: #VincentPastore. In honor of Wayne Warnecke, acclaimed music producer battling ALS. Proceeds go 2 ALS United Greater NY bit.ly/MusiciansUni... *Artist subject 2 change
In May @iamals.bsky.social plants 6,000 flags on the Mall. Each flag represents someone affected by #ALS —those living with the disease, carrying a gene associated with it, or whom we have lost. Proud to be a community sponsor of this event. Add your or your loved one's name ➡ bit.ly/IAMALSFlags
February 26, 2025 at 6:08 PM
In May @iamals.bsky.social plants 6,000 flags on the Mall. Each flag represents someone affected by #ALS —those living with the disease, carrying a gene associated with it, or whom we have lost. Proud to be a community sponsor of this event. Add your or your loved one's name ➡ bit.ly/IAMALSFlags
Walk ALS is the no. 1 way to unite and fundraise for those living with ALS. Each year, fundraising through our Walk ALS program drives bold and urgent innovation as we march together toward a cure for #ALS. Join us this spring in NYC, Westchester, or North Jersey! ➡ als-ny.org/get-involved...
January 31, 2025 at 6:03 PM
Walk ALS is the no. 1 way to unite and fundraise for those living with ALS. Each year, fundraising through our Walk ALS program drives bold and urgent innovation as we march together toward a cure for #ALS. Join us this spring in NYC, Westchester, or North Jersey! ➡ als-ny.org/get-involved...
Yesterday, President Biden signed the Senator Elizabeth Dole 21st Century Veterans Healthcare and Benefits Improvement Act, into law. This package of bills will assist veterans living with #ALS. Your advocacy works! Sign up to be an advocate in 2025 at als-ny.org/advocacy/bec...
January 3, 2025 at 3:11 PM
Yesterday, President Biden signed the Senator Elizabeth Dole 21st Century Veterans Healthcare and Benefits Improvement Act, into law. This package of bills will assist veterans living with #ALS. Your advocacy works! Sign up to be an advocate in 2025 at als-ny.org/advocacy/bec...
U.S. Veterans are 2x more likely to develop ALS than non-veterans. This bill expanding caregiver benefits & home-based care has passed Congress and awaits the President's signature. Thank you to all the advocates & elected officials who worked to make this happen! #ALS #Veterans
December 17, 2024 at 3:43 PM
It’s #GivingTuesday! All donations fuel critical research, local compassionate care, and our fight for a cure. Give & Share! Together, we can make a difference! Donate Now ➡ bit.ly/ALSUGNYGiveTues - After you give, tag 5 friends and challenge them to do the same! #ALSUnited #ALS #TogetherWeEndALS
December 3, 2024 at 4:27 PM
It’s #GivingTuesday! All donations fuel critical research, local compassionate care, and our fight for a cure. Give & Share! Together, we can make a difference! Donate Now ➡ bit.ly/ALSUGNYGiveTues - After you give, tag 5 friends and challenge them to do the same! #ALSUnited #ALS #TogetherWeEndALS
Your advocacy matters! The bipartisan Senator Elizabeth Dole 21st Century Veterans Healthcare and Benefits Improvement Act has officially passed the House! It's time for the Senate to pass this crucial legislation to ensure veterans receive the care and support they deserve. #ALS #Veterans
November 19, 2024 at 1:00 AM