ALS News Today
@alsnewstoday.bsky.social
Your source for all things ALS.
January 11, 2026 at 11:02 PM
Families living with ALS learn to manage fear, love, and responsibility all at once. It takes a community’s support, along with immense love and strength.
#ALS
#ALS
January 11, 2026 at 9:30 PM
Families living with ALS learn to manage fear, love, and responsibility all at once. It takes a community’s support, along with immense love and strength.
#ALS
#ALS
January 11, 2026 at 7:02 PM
Your body is carrying something far heavier than most people understand. This community acknowledges every hurdle you're going through.
#ChronicIllness
#ChronicIllness
January 11, 2026 at 6:31 PM
Your body is carrying something far heavier than most people understand. This community acknowledges every hurdle you're going through.
#ChronicIllness
#ChronicIllness
January 10, 2026 at 9:30 PM
January 10, 2026 at 9:02 PM
Read her story: https://bit.ly/3KuRGbZ
Anita reflects on the emotional landscape of life after her husband’s death from ALS:
the empty house, the lingering instinct to care, and the effort it takes to rebuild a sense of normal.
#ALS #ALSCommunity #ALSGriefJourney #ALSNewsToday #Bionews
Anita reflects on the emotional landscape of life after her husband’s death from ALS:
the empty house, the lingering instinct to care, and the effort it takes to rebuild a sense of normal.
#ALS #ALSCommunity #ALSGriefJourney #ALSNewsToday #Bionews
January 9, 2026 at 11:02 PM
Read her story: https://bit.ly/3KuRGbZ
Anita reflects on the emotional landscape of life after her husband’s death from ALS:
the empty house, the lingering instinct to care, and the effort it takes to rebuild a sense of normal.
#ALS #ALSCommunity #ALSGriefJourney #ALSNewsToday #Bionews
Anita reflects on the emotional landscape of life after her husband’s death from ALS:
the empty house, the lingering instinct to care, and the effort it takes to rebuild a sense of normal.
#ALS #ALSCommunity #ALSGriefJourney #ALSNewsToday #Bionews
January 9, 2026 at 9:30 PM
New ALS research: https://bit.ly/4qg1JkM
APRTX-003 is an experimental RNA based therapy designed to reduce MMP 9, an enzyme associated with nerve cell damage.
#ALSNewsToday #ALSResearch #ALSScience #NeurodegenerativeDisease #RareDiseaseNews #Bionews
APRTX-003 is an experimental RNA based therapy designed to reduce MMP 9, an enzyme associated with nerve cell damage.
#ALSNewsToday #ALSResearch #ALSScience #NeurodegenerativeDisease #RareDiseaseNews #Bionews
January 9, 2026 at 8:02 PM
New ALS research: https://bit.ly/4qg1JkM
APRTX-003 is an experimental RNA based therapy designed to reduce MMP 9, an enzyme associated with nerve cell damage.
#ALSNewsToday #ALSResearch #ALSScience #NeurodegenerativeDisease #RareDiseaseNews #Bionews
APRTX-003 is an experimental RNA based therapy designed to reduce MMP 9, an enzyme associated with nerve cell damage.
#ALSNewsToday #ALSResearch #ALSScience #NeurodegenerativeDisease #RareDiseaseNews #Bionews
January 9, 2026 at 7:03 PM
January 9, 2026 at 6:30 PM
Support that adapts: https://bit.ly/4bq22EW
A new study suggests that psychological support works best when it is flexible, personalized, and centered on open conversation rather than a one-size-fits-all approach.
#ALS #LivingWithALS #CaregiverSupport #MentalHealth #ALSNewsToday #Bionews
A new study suggests that psychological support works best when it is flexible, personalized, and centered on open conversation rather than a one-size-fits-all approach.
#ALS #LivingWithALS #CaregiverSupport #MentalHealth #ALSNewsToday #Bionews
January 9, 2026 at 2:02 PM
Support that adapts: https://bit.ly/4bq22EW
A new study suggests that psychological support works best when it is flexible, personalized, and centered on open conversation rather than a one-size-fits-all approach.
#ALS #LivingWithALS #CaregiverSupport #MentalHealth #ALSNewsToday #Bionews
A new study suggests that psychological support works best when it is flexible, personalized, and centered on open conversation rather than a one-size-fits-all approach.
#ALS #LivingWithALS #CaregiverSupport #MentalHealth #ALSNewsToday #Bionews
January 8, 2026 at 9:30 PM
Read this honest perspective: https://bit.ly/4o5Sd2d
In this new column, Iomar Barrett shares his experience and why having realistic expectations can help prepare patients and caregivers for the road ahead.
#ALS #ALSNewsToday #Bionews #ALSCommunity #ALSStories #ALSAdvocacy #ALSProgression
In this new column, Iomar Barrett shares his experience and why having realistic expectations can help prepare patients and caregivers for the road ahead.
#ALS #ALSNewsToday #Bionews #ALSCommunity #ALSStories #ALSAdvocacy #ALSProgression
January 8, 2026 at 9:02 PM
Read this honest perspective: https://bit.ly/4o5Sd2d
In this new column, Iomar Barrett shares his experience and why having realistic expectations can help prepare patients and caregivers for the road ahead.
#ALS #ALSNewsToday #Bionews #ALSCommunity #ALSStories #ALSAdvocacy #ALSProgression
In this new column, Iomar Barrett shares his experience and why having realistic expectations can help prepare patients and caregivers for the road ahead.
#ALS #ALSNewsToday #Bionews #ALSCommunity #ALSStories #ALSAdvocacy #ALSProgression
Caregiving turnover realities: https://bit.ly/450CIkZ
Kristin Neva reflects on the often unseen toll of constant caregiver turnover while supporting her husband through ALS, and what it takes to keep going when stability feels nonexistent.
#ALS #ALSCommunity #ALSCaregivers #ALSNewsToday #Bionews
Kristin Neva reflects on the often unseen toll of constant caregiver turnover while supporting her husband through ALS, and what it takes to keep going when stability feels nonexistent.
#ALS #ALSCommunity #ALSCaregivers #ALSNewsToday #Bionews
January 8, 2026 at 8:24 PM
Caregiving turnover realities: https://bit.ly/450CIkZ
Kristin Neva reflects on the often unseen toll of constant caregiver turnover while supporting her husband through ALS, and what it takes to keep going when stability feels nonexistent.
#ALS #ALSCommunity #ALSCaregivers #ALSNewsToday #Bionews
Kristin Neva reflects on the often unseen toll of constant caregiver turnover while supporting her husband through ALS, and what it takes to keep going when stability feels nonexistent.
#ALS #ALSCommunity #ALSCaregivers #ALSNewsToday #Bionews
Share and connect with others: https://bit.ly/42PQQwg
#ALS #ALSCaregiver #ALSFamily #ALSNewsToday #Bionews
#ALS #ALSCaregiver #ALSFamily #ALSNewsToday #Bionews
January 8, 2026 at 7:03 PM
Share and connect with others: https://bit.ly/42PQQwg
#ALS #ALSCaregiver #ALSFamily #ALSNewsToday #Bionews
#ALS #ALSCaregiver #ALSFamily #ALSNewsToday #Bionews
January 8, 2026 at 6:31 PM
Peace outdoors: https://bit.ly/46AlOek
As Kristin Neva shares, caring for her husband Todd, who lives with ALS, makes it hard to get away. But a visit to a nearby pond reminded her of the power of nature and community to bring both solace and gratitude.
#ALSCaregiver #ALSNewsToday #Bionews
As Kristin Neva shares, caring for her husband Todd, who lives with ALS, makes it hard to get away. But a visit to a nearby pond reminded her of the power of nature and community to bring both solace and gratitude.
#ALSCaregiver #ALSNewsToday #Bionews
January 7, 2026 at 11:02 PM
Peace outdoors: https://bit.ly/46AlOek
As Kristin Neva shares, caring for her husband Todd, who lives with ALS, makes it hard to get away. But a visit to a nearby pond reminded her of the power of nature and community to bring both solace and gratitude.
#ALSCaregiver #ALSNewsToday #Bionews
As Kristin Neva shares, caring for her husband Todd, who lives with ALS, makes it hard to get away. But a visit to a nearby pond reminded her of the power of nature and community to bring both solace and gratitude.
#ALSCaregiver #ALSNewsToday #Bionews
January 7, 2026 at 9:30 PM
January 7, 2026 at 6:30 PM
Everyday factors and ALS: https://bit.ly/3IQXxHC
While genes play a role, studies also connect ALS to lifestyle and environmental factors, including military service, head injuries, smoking, toxin exposure, and even strenuous exercise.
#ALSNewsToday #ALS #Bionews #RareDisease
While genes play a role, studies also connect ALS to lifestyle and environmental factors, including military service, head injuries, smoking, toxin exposure, and even strenuous exercise.
#ALSNewsToday #ALS #Bionews #RareDisease
January 7, 2026 at 5:05 PM
Everyday factors and ALS: https://bit.ly/3IQXxHC
While genes play a role, studies also connect ALS to lifestyle and environmental factors, including military service, head injuries, smoking, toxin exposure, and even strenuous exercise.
#ALSNewsToday #ALS #Bionews #RareDisease
While genes play a role, studies also connect ALS to lifestyle and environmental factors, including military service, head injuries, smoking, toxin exposure, and even strenuous exercise.
#ALSNewsToday #ALS #Bionews #RareDisease
Holding space for possibility: https://bit.ly/3LzLekj
In this reflection, Kristin Neva shares what it looks like to keep going while holding uncertainty, caregiving demands, and small moments of meaning all at once.
Read her full column at the link.
#ALS #ALSNewsToday #Bionews #ALSCommunity
In this reflection, Kristin Neva shares what it looks like to keep going while holding uncertainty, caregiving demands, and small moments of meaning all at once.
Read her full column at the link.
#ALS #ALSNewsToday #Bionews #ALSCommunity
January 7, 2026 at 2:03 PM
Holding space for possibility: https://bit.ly/3LzLekj
In this reflection, Kristin Neva shares what it looks like to keep going while holding uncertainty, caregiving demands, and small moments of meaning all at once.
Read her full column at the link.
#ALS #ALSNewsToday #Bionews #ALSCommunity
In this reflection, Kristin Neva shares what it looks like to keep going while holding uncertainty, caregiving demands, and small moments of meaning all at once.
Read her full column at the link.
#ALS #ALSNewsToday #Bionews #ALSCommunity
New ALS research update: https://bit.ly/45kwEnJ
An early clinical study suggests QRL 101 may reduce harmful overactivity in motor neurons, a process linked to faster ALS progression.
#ALSResearch #ALSNewsToday #Bionews #ClinicalTrials #Neuroscience #MotorNeuronDisease #ALSCommunity
An early clinical study suggests QRL 101 may reduce harmful overactivity in motor neurons, a process linked to faster ALS progression.
#ALSResearch #ALSNewsToday #Bionews #ClinicalTrials #Neuroscience #MotorNeuronDisease #ALSCommunity
January 6, 2026 at 10:01 PM
New ALS research update: https://bit.ly/45kwEnJ
An early clinical study suggests QRL 101 may reduce harmful overactivity in motor neurons, a process linked to faster ALS progression.
#ALSResearch #ALSNewsToday #Bionews #ClinicalTrials #Neuroscience #MotorNeuronDisease #ALSCommunity
An early clinical study suggests QRL 101 may reduce harmful overactivity in motor neurons, a process linked to faster ALS progression.
#ALSResearch #ALSNewsToday #Bionews #ClinicalTrials #Neuroscience #MotorNeuronDisease #ALSCommunity
January 6, 2026 at 9:30 PM