Alport UK
@alportuk.bsky.social
Alport UK is a patient-led organisation dedicated to empowering people living with Alport Syndrome to enjoy the best possible quality of life.
Join Alport Warriors!
A supportive FB group for those living with Alport Syndrome.
www.facebook.com/groups/17746...
Because no one should face this alone.
#AlportWarriors #AlportSyndrome #RareDiseaseCommunity #SupportNetwork #AlportUK
A supportive FB group for those living with Alport Syndrome.
www.facebook.com/groups/17746...
Because no one should face this alone.
#AlportWarriors #AlportSyndrome #RareDiseaseCommunity #SupportNetwork #AlportUK
July 28, 2025 at 9:08 AM
Join Alport Warriors!
A supportive FB group for those living with Alport Syndrome.
www.facebook.com/groups/17746...
Because no one should face this alone.
#AlportWarriors #AlportSyndrome #RareDiseaseCommunity #SupportNetwork #AlportUK
A supportive FB group for those living with Alport Syndrome.
www.facebook.com/groups/17746...
Because no one should face this alone.
#AlportWarriors #AlportSyndrome #RareDiseaseCommunity #SupportNetwork #AlportUK
We're still smiling!
2025 Nottingham info day was a hit!
The Alport UK team is already planning the next one.
Comment “Christmas” for details on our Dec 6 winter wonderland meetup! 🎄
#Christmas #NottinghamInformationDay #PeopleLivingWithAlportSyndrome #Community #Collaboration
2025 Nottingham info day was a hit!
The Alport UK team is already planning the next one.
Comment “Christmas” for details on our Dec 6 winter wonderland meetup! 🎄
#Christmas #NottinghamInformationDay #PeopleLivingWithAlportSyndrome #Community #Collaboration
July 23, 2025 at 8:45 AM
We're still smiling!
2025 Nottingham info day was a hit!
The Alport UK team is already planning the next one.
Comment “Christmas” for details on our Dec 6 winter wonderland meetup! 🎄
#Christmas #NottinghamInformationDay #PeopleLivingWithAlportSyndrome #Community #Collaboration
2025 Nottingham info day was a hit!
The Alport UK team is already planning the next one.
Comment “Christmas” for details on our Dec 6 winter wonderland meetup! 🎄
#Christmas #NottinghamInformationDay #PeopleLivingWithAlportSyndrome #Community #Collaboration
What is RaDaR?
Are you registered?
RaDaR tracks data on 1200+ Alport patients in the UK to boost kidney research.
Join to improve Alport diagnosis & treatments!
Register via your consultant!
More info: www.ukkidney.org/rare-renal/a...
#AlportSyndrome #RaDaR
Are you registered?
RaDaR tracks data on 1200+ Alport patients in the UK to boost kidney research.
Join to improve Alport diagnosis & treatments!
Register via your consultant!
More info: www.ukkidney.org/rare-renal/a...
#AlportSyndrome #RaDaR
July 7, 2025 at 1:01 PM
What is RaDaR?
Are you registered?
RaDaR tracks data on 1200+ Alport patients in the UK to boost kidney research.
Join to improve Alport diagnosis & treatments!
Register via your consultant!
More info: www.ukkidney.org/rare-renal/a...
#AlportSyndrome #RaDaR
Are you registered?
RaDaR tracks data on 1200+ Alport patients in the UK to boost kidney research.
Join to improve Alport diagnosis & treatments!
Register via your consultant!
More info: www.ukkidney.org/rare-renal/a...
#AlportSyndrome #RaDaR