Our #LeDeR deep dive about avoidable deaths due to cancer in people with a learning disability is now available.

We explore barriers to screening, early diagnosis, & treatment that contribute to these unacceptable health inequalities.

www.kcl.ac.uk/ioppn/assets...

@kingsioppn.bsky.social

Our deep dive reports analyse key themes identified through LeDeR reviews. The team continues to develop additional deep dives to address emerging priorities in learning disability healthcare with more due to release soon. Access here: kcl.ac.uk/ioppn/assets... #LeDeR
@kingsioppn.bsky.social

The academic team at KCL, UCLan and Kingston University undertakes more in-depth analysis on other key areas using data from LeDeR reviews. See chapter 5 for more details: kcl.ac.uk/ioppn/assets... #LeDeR
@kingsioppn.bsky.social

A relatively high proportion of deaths of autistic adults reviewed were by suicide, misadventure, or accident, showing the need for accessible mental health supports to be in place. Chapter 4: kcl.ac.uk/ioppn/assets... #LeDeR
@kingsioppn.bsky.social

Autistic adults notified to LeDeR were mostly male and White. The small numbers of reviews mean these data aren't representative but we saw high rates of mental health concerns in autistic adults whose deaths were reviewed. Chapter 4: kcl.ac.uk/ioppn/assets... #LeDeR
@kingsioppn.bsky.social

The 2023 report includes a new chapter on deaths of people with a severe or profound learning disability. They died on average 7.3 years younger than adults with mild or moderate learning disability. Chapter 3: kcl.ac.uk/ioppn/assets... #LeDeR
@kingsioppn.bsky.social

Reviewers identified delays in care or treatment in 37.2% of deaths and problems with organisational systems in 36.3%. While slightly improved, care coordination remains a priority for service development. Chapter 1: kcl.ac.uk/ioppn/assets... #LeDeR
@kingsioppn.bsky.social

Across 2021-23, 51.8% of deaths among Black adults with a learning disability were deemed avoidable vs 38.8% across all LeDeR notifications. Findings highlight importance of culturally responsive care. Chapter 2: kcl.ac.uk/ioppn/assets... #LeDeR
@kingsioppn.bsky.social

LeDeR data finds people with a learning disability from an ethnic minority group had a lower median age at death on average than white people. Further research is essential for understanding this difference. Chapter 2: kcl.ac.uk/ioppn/assets... #LeDeR
@kingsioppn.bsky.social

LeDeR findings indicate 25.6% of adults with a learning disability who died in 2023 did not have a care package meeting all needs. Additionally, 27.3% required reasonable adjustments that were not provided. Chapter 1 details: kcl.ac.uk/ioppn/assets... #LeDeR
@kingsioppn.bsky.social

The median age at death for 2023 LeDeR reviews was 62.5 years, 19.5 years younger than the general population. 2018 data showed a median age of death of 61.8 years, representing a small improvement over 6 years. Chapter 1 details: kcl.ac.uk/ioppn/assets... #LeDeR
@kingsioppn.bsky.social

Findings indicate 38.8% of deaths reviewed in 2023 were classed as avoidable. A notable reduction from previous years but still almost double the 21.6% in the total adult population. Chapter 1 details: kcl.ac.uk/ioppn/assets... #LeDeR
@kingsioppn.bsky.social

📖 Easy read and accessible versions of the LeDeR 2023 report are available to ensure findings reach everyone. These materials make research accessible to people with a learning disability, their families, and carers. Access here: kcl.ac.uk/research/leder #LeDeR
@kingsioppn.bsky.social

📢 The new LeDeR report is now available. The 2023 annual report analyses the deaths of 3,556 people with a learning disability & autistic people who died in 2023. The work is part of efforts to reduce health inequalities. Access here: kcl.ac.uk/ioppn/assets... #LeDeR
@kingsioppn.bsky.social