Alice Beck
@aliceebeck.bsky.social
Policy at @hai-org.bsky.social | The Netherlands | Health & AI/privacy/digital, access to medecines, climate change
Reposted by Alice Beck
📢 Curious about what’s worked — and what hasn’t — in medicine transparency initiatives? /1
Join us next week as we explore lessons from Europe and Africa on how to make medicine pricing systems more transparent and accountable: shorturl.at/mv8YD
#GlobalHealth #WHA78 #IDsky 💊🌐
Join us next week as we explore lessons from Europe and Africa on how to make medicine pricing systems more transparent and accountable: shorturl.at/mv8YD
#GlobalHealth #WHA78 #IDsky 💊🌐
July 3, 2025 at 8:27 AM
📢 Curious about what’s worked — and what hasn’t — in medicine transparency initiatives? /1
Join us next week as we explore lessons from Europe and Africa on how to make medicine pricing systems more transparent and accountable: shorturl.at/mv8YD
#GlobalHealth #WHA78 #IDsky 💊🌐
Join us next week as we explore lessons from Europe and Africa on how to make medicine pricing systems more transparent and accountable: shorturl.at/mv8YD
#GlobalHealth #WHA78 #IDsky 💊🌐
Reposted by Alice Beck
Last week, reports circulated of the risks of misuse of data by period tracking apps. In a new blog, @aliceebeck.bsky.social and @hvkolfschooten.bsky.social argue that the #EU must do more to protect consumers (and their private data) from harmful practices. Read it here: haiweb.org/period-track...
June 18, 2025 at 8:05 AM
Last week, reports circulated of the risks of misuse of data by period tracking apps. In a new blog, @aliceebeck.bsky.social and @hvkolfschooten.bsky.social argue that the #EU must do more to protect consumers (and their private data) from harmful practices. Read it here: haiweb.org/period-track...
Reposted by Alice Beck
A big thank you to all who joined us and @wemos.org in The Hague last week for the Netherlands launch of our joint report "Pharmaceutical transparency: from resolution to reality" looking at the state of implementation of WHO transparency resolution WHA72.8. Read it here: haiweb.org/publication/...
June 16, 2025 at 11:36 AM
A big thank you to all who joined us and @wemos.org in The Hague last week for the Netherlands launch of our joint report "Pharmaceutical transparency: from resolution to reality" looking at the state of implementation of WHO transparency resolution WHA72.8. Read it here: haiweb.org/publication/...
www.bbc.com/news/article...
The research team called for better governance of the "femtech" industry, improved data security of these apps and the introduction of "meaningful consent options".
The research team called for better governance of the "femtech" industry, improved data security of these apps and the introduction of "meaningful consent options".
Menstrual tracking app users cautioned by Cambridge researchers
Women deserve better than to have their menstrual data treated as consumer data, say researchers.
www.bbc.com
June 11, 2025 at 9:40 AM
www.bbc.com/news/article...
The research team called for better governance of the "femtech" industry, improved data security of these apps and the introduction of "meaningful consent options".
The research team called for better governance of the "femtech" industry, improved data security of these apps and the introduction of "meaningful consent options".
Reposted by Alice Beck
"Gilead is employing evergreening tactics to extend its
monopoly on lenacapavir. This involves staggering patent filings and securing additional patents on modifications, different forms or new uses of an existing compound to prolong rights beyond the primary patent."
www.twn.my/title2/brief...
monopoly on lenacapavir. This involves staggering patent filings and securing additional patents on modifications, different forms or new uses of an existing compound to prolong rights beyond the primary patent."
www.twn.my/title2/brief...
www.twn.my
May 30, 2025 at 6:18 AM
"Gilead is employing evergreening tactics to extend its
monopoly on lenacapavir. This involves staggering patent filings and securing additional patents on modifications, different forms or new uses of an existing compound to prolong rights beyond the primary patent."
www.twn.my/title2/brief...
monopoly on lenacapavir. This involves staggering patent filings and securing additional patents on modifications, different forms or new uses of an existing compound to prolong rights beyond the primary patent."
www.twn.my/title2/brief...
Just a few days left to provide input to EMA's survey on a key information section on medicine package leaflets, see here: ec.europa.eu/eusurvey/run...
Consultation on a potential Key Information Section in the Package Leaflet of centrally authorised medicinal products
ec.europa.eu
May 28, 2025 at 7:47 AM
Just a few days left to provide input to EMA's survey on a key information section on medicine package leaflets, see here: ec.europa.eu/eusurvey/run...
Reposted by Alice Beck
There is no #equity in #access to basic #health care. The latest biennial report on #UHC reported that in 2021 4·5 billion people—about half the world's population—had no access to basic health services, and progress has stalled since 2019. @thelancet.com www.thelancet.com/journals/lan...
Accelerating progress on essential medicines: a new Lancet Commission
There is no equity in access to basic health care. The latest biennial report on universal
health coverage reported that in 2021 4·5 billion people—about half the world's population—had
no access to b...
www.thelancet.com
May 27, 2025 at 9:14 AM
There is no #equity in #access to basic #health care. The latest biennial report on #UHC reported that in 2021 4·5 billion people—about half the world's population—had no access to basic health services, and progress has stalled since 2019. @thelancet.com www.thelancet.com/journals/lan...
Discussions on transparency continuing today through an event organised by @keiwashdc.bsky.social - great to hear national experiences from South Africa. #WHA78
May 22, 2025 at 10:51 AM
Discussions on transparency continuing today through an event organised by @keiwashdc.bsky.social - great to hear national experiences from South Africa. #WHA78
Insightful and interesting event from @gchalliance.bsky.social on how to break free from fossil fuel influence - important reflections to take forward on effective communication strategies. #ClimateAndHealth #WHA78
May 22, 2025 at 7:48 AM
Insightful and interesting event from @gchalliance.bsky.social on how to break free from fossil fuel influence - important reflections to take forward on effective communication strategies. #ClimateAndHealth #WHA78
Reposted by Alice Beck
In the six years since its adoption, what is the state of implementation of @who.int transparency resolution WHA72.8? In a report launched today at #WHA78, HAI and @wemos.org take stock, assess progress and give recommendations for stakeholders.
Read the report here: haiweb.org/publication/...
Read the report here: haiweb.org/publication/...
May 21, 2025 at 7:29 AM
In the six years since its adoption, what is the state of implementation of @who.int transparency resolution WHA72.8? In a report launched today at #WHA78, HAI and @wemos.org take stock, assess progress and give recommendations for stakeholders.
Read the report here: haiweb.org/publication/...
Read the report here: haiweb.org/publication/...
Reposted by Alice Beck
Join HAI and @wemos.org during #WHA78 for a side event to mark the launch of our joint report 'Pharmaceutical transparency: from resolution to reality', highlighting steps taken to implement WHA resolution 72.8.
📆21 May, 07.30-09.00, Warwick Hotel, Geneva. Register here: forms.gle/Vdg6gsr7PqVM...
📆21 May, 07.30-09.00, Warwick Hotel, Geneva. Register here: forms.gle/Vdg6gsr7PqVM...
May 14, 2025 at 9:11 AM
Join HAI and @wemos.org during #WHA78 for a side event to mark the launch of our joint report 'Pharmaceutical transparency: from resolution to reality', highlighting steps taken to implement WHA resolution 72.8.
📆21 May, 07.30-09.00, Warwick Hotel, Geneva. Register here: forms.gle/Vdg6gsr7PqVM...
📆21 May, 07.30-09.00, Warwick Hotel, Geneva. Register here: forms.gle/Vdg6gsr7PqVM...
Reposted by Alice Beck
In a @bmj.com Response, @nicolegross.bsky.social, @aliceebeck.bsky.social &I argue that important gaps remain in the EU AI Act when it comes to the protection of patients' rights. Such regulatory pitfalls risk undermining public trust, safety, and equity ➡️ Read lnkd.in/eedZMKZY @hai-org.bsky.social
May 7, 2025 at 12:53 PM
In a @bmj.com Response, @nicolegross.bsky.social, @aliceebeck.bsky.social &I argue that important gaps remain in the EU AI Act when it comes to the protection of patients' rights. Such regulatory pitfalls risk undermining public trust, safety, and equity ➡️ Read lnkd.in/eedZMKZY @hai-org.bsky.social
Reposted by Alice Beck
Investors who opt for ‘ethical’ or ‘socially responsible’ plans may end up funding firms linked to Israeli human rights violations in the occupied Palestinian territories. Two advisory firms, under pressure from pro-Israel lobbying, no longer flag allegations of such violations in their assessments.
Your ‘ethical’ pension plan could be funding Israeli human rights abuses
Investors who choose to put their money in ‘ethical’ or ‘socially responsible’ plans could be directly funding Israeli human rights abuses in Gaza and the West Bank. This is because major advisory fir...
www.ftm.eu
May 6, 2025 at 5:01 AM
Investors who opt for ‘ethical’ or ‘socially responsible’ plans may end up funding firms linked to Israeli human rights violations in the occupied Palestinian territories. Two advisory firms, under pressure from pro-Israel lobbying, no longer flag allegations of such violations in their assessments.
Reposted by Alice Beck
Out now in EYHR: 𝐀 𝐇𝐮𝐦𝐚𝐧 𝐑𝐢𝐠𝐡𝐭𝐬-𝐁𝐚𝐬𝐞𝐝 𝐀𝐩𝐩𝐫𝐨𝐚𝐜𝐡 𝐭𝐨 𝐀𝐫𝐭𝐢𝐟𝐢𝐜𝐢𝐚𝐥 𝐈𝐧𝐭𝐞𝐥𝐥𝐢𝐠𝐞𝐧𝐜𝐞 𝐢𝐧 𝐇𝐞𝐚𝐥𝐭𝐡𝐜𝐚𝐫𝐞: 𝐀 𝐏𝐫𝐨𝐩𝐨𝐬𝐚𝐥 𝐟𝐨𝐫 𝐚 𝐏𝐚𝐭𝐢𝐞𝐧𝐭𝐬’ 𝐑𝐢𝐠𝐡𝐭𝐬 𝐈𝐦𝐩𝐚𝐜𝐭 𝐀𝐬𝐬𝐞𝐬𝐬𝐦𝐞𝐧𝐭 𝐓𝐨𝐨𝐥. How can doctors & informal carers make informed decisions about AI tools in a way that respects patients’ rights? papers.ssrn.com/sol3/papers....
April 22, 2025 at 9:49 AM
Out now in EYHR: 𝐀 𝐇𝐮𝐦𝐚𝐧 𝐑𝐢𝐠𝐡𝐭𝐬-𝐁𝐚𝐬𝐞𝐝 𝐀𝐩𝐩𝐫𝐨𝐚𝐜𝐡 𝐭𝐨 𝐀𝐫𝐭𝐢𝐟𝐢𝐜𝐢𝐚𝐥 𝐈𝐧𝐭𝐞𝐥𝐥𝐢𝐠𝐞𝐧𝐜𝐞 𝐢𝐧 𝐇𝐞𝐚𝐥𝐭𝐡𝐜𝐚𝐫𝐞: 𝐀 𝐏𝐫𝐨𝐩𝐨𝐬𝐚𝐥 𝐟𝐨𝐫 𝐚 𝐏𝐚𝐭𝐢𝐞𝐧𝐭𝐬’ 𝐑𝐢𝐠𝐡𝐭𝐬 𝐈𝐦𝐩𝐚𝐜𝐭 𝐀𝐬𝐬𝐞𝐬𝐬𝐦𝐞𝐧𝐭 𝐓𝐨𝐨𝐥. How can doctors & informal carers make informed decisions about AI tools in a way that respects patients’ rights? papers.ssrn.com/sol3/papers....
Reposted by Alice Beck
HAI welcomes the conclusion of negotiations on the #PandemicAgreement. However, this is not the end of the process and efforts from all parties will now be needed to ensure ratification, implementation and adaptation to local and regional realities. Read our statement: haiweb.org/media-resour...
April 16, 2025 at 9:39 AM
HAI welcomes the conclusion of negotiations on the #PandemicAgreement. However, this is not the end of the process and efforts from all parties will now be needed to ensure ratification, implementation and adaptation to local and regional realities. Read our statement: haiweb.org/media-resour...
It is good to be reminded that genetic data also forms part of health data under the European Health Data Space, hence it is of upmost importance that Member States take strong steps to ensure the privacy of such unique data. www.theguardian.com/science/2025...
Genetic data is an another asset to be exploited – beware who has yours | John Naughton
The bankruptcy of genealogy company 23andMe has resulted in a fire sale of millions of people’s genetic information – and there’s no shortage of eager buyers with questionable motives
www.theguardian.com
April 8, 2025 at 11:29 AM
It is good to be reminded that genetic data also forms part of health data under the European Health Data Space, hence it is of upmost importance that Member States take strong steps to ensure the privacy of such unique data. www.theguardian.com/science/2025...
Reposted by Alice Beck
As technology evolves, the use of chatbots for mental health support is gaining traction. But what do people really think? We took to the streets of Amsterdam to gather genuine opinions. Check out some of their thoughts and watch the full video from 16 April: lnkd.in/eKqn3dNU
April 8, 2025 at 9:38 AM
As technology evolves, the use of chatbots for mental health support is gaining traction. But what do people really think? We took to the streets of Amsterdam to gather genuine opinions. Check out some of their thoughts and watch the full video from 16 April: lnkd.in/eKqn3dNU
"There are, though, concerns that these models could “hallucinate” and come up with responses that are misleading and inaccurate. And with both predictive and generative #AI, how well the models work depends on what data they were trained on". edition.cnn.com/2025/03/27/h...
Doctor explains how artificial intelligence is already being deployed in medical care | CNN
The use of AI applications in medical care is growing. Dr. Leana Wen explains the uses of AI that could improve care — and the reasons for continued caution.
edition.cnn.com
April 2, 2025 at 2:11 PM
"There are, though, concerns that these models could “hallucinate” and come up with responses that are misleading and inaccurate. And with both predictive and generative #AI, how well the models work depends on what data they were trained on". edition.cnn.com/2025/03/27/h...
Reposted by Alice Beck
" #AI systems designed to predict the likelihood of a hospitalized patient dying largely aren't detecting worsening health conditions, a new study found". www.axios.com/2025/03/12/a...
AI failed to detect critical health conditions: study
AI systems designed to predict the likelihood of a hospitalized patient dying aren't detecting worsening health conditions.
www.axios.com
March 19, 2025 at 2:46 PM
" #AI systems designed to predict the likelihood of a hospitalized patient dying largely aren't detecting worsening health conditions, a new study found". www.axios.com/2025/03/12/a...
Reposted by Alice Beck
Devastating cuts to aid budgets by the US and others will lead to avoidable deaths, increase the risk of pandemics, sow unrest, instability and insecurity, and ultimately mean a less safe world for us all. The HAI team comments on recent seismic shifts in global health: haiweb.org/global-healt...
Global Health and Development Under Attack - Health Action International
US President Donald Trump has unleashed an unprecedented assault on global health and development. We explore the potential consequences.
haiweb.org
March 18, 2025 at 9:57 AM
Devastating cuts to aid budgets by the US and others will lead to avoidable deaths, increase the risk of pandemics, sow unrest, instability and insecurity, and ultimately mean a less safe world for us all. The HAI team comments on recent seismic shifts in global health: haiweb.org/global-healt...
Reposted by Alice Beck
Mental health chatbots are just one example of growing investments and innovations in AI used in mental healthcare. This trend raises a number of concerns & risks, prompting important questions about what drives these developments. Find out more in our new page: healthai.haiweb.org/ai-in-mental...
March 13, 2025 at 9:25 AM
Mental health chatbots are just one example of growing investments and innovations in AI used in mental healthcare. This trend raises a number of concerns & risks, prompting important questions about what drives these developments. Find out more in our new page: healthai.haiweb.org/ai-in-mental...
Reposted by Alice Beck
Climate was high on the agenda at the WHO Executive Board earlier this month as Member States gear up towards agreeing the global action plan on climate change and health. Our new blog argues for putting equity and climate justice at the centre of the ongoing discussion: haiweb.org/upholding-eq...
Upholding equity and justice in climate change and health - Health Action International
The start of this month was marked by animated discussions at the 156th Session of the WHO Executive Board. Among the many topics up for discussion, the World Health Organization’s draft Global Action...
haiweb.org
February 20, 2025 at 1:18 PM
Climate was high on the agenda at the WHO Executive Board earlier this month as Member States gear up towards agreeing the global action plan on climate change and health. Our new blog argues for putting equity and climate justice at the centre of the ongoing discussion: haiweb.org/upholding-eq...
Reposted by Alice Beck
Are you concerned about how #AI in healthcare affects fundamental rights, and how tech regulation in Europe could address the risks? Read all about our work to ensure trustworthy algorithms and their responsible use in healthcare: ➡️ www.healthai.haiweb.org/
February 13, 2025 at 12:03 PM
Are you concerned about how #AI in healthcare affects fundamental rights, and how tech regulation in Europe could address the risks? Read all about our work to ensure trustworthy algorithms and their responsible use in healthcare: ➡️ www.healthai.haiweb.org/
Reposted by Alice Beck
📣 The #EU4HealthCSA is concerned about restrictions of activities under the #LIFE programme, and potential spillover effects this could have on CSOs from other sectors, including #health.
🔗Read more: eu4health.eu/letter-of-co...
@vonderleyen.ec.europa.eu
🔗Read more: eu4health.eu/letter-of-co...
@vonderleyen.ec.europa.eu
Letter of concern: restrictions on civil society’s activities in the new mandate - EU4health
eu4health.eu
February 10, 2025 at 10:01 AM
📣 The #EU4HealthCSA is concerned about restrictions of activities under the #LIFE programme, and potential spillover effects this could have on CSOs from other sectors, including #health.
🔗Read more: eu4health.eu/letter-of-co...
@vonderleyen.ec.europa.eu
🔗Read more: eu4health.eu/letter-of-co...
@vonderleyen.ec.europa.eu