Referencing excellent work by @longcovidsupport.bsky.social @longcovidkids.bsky.social @decodemestudy.bsky.social @batemanhornecenter.bsky.social

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I agree - many psychiatric diagnoses have clear neurological drivers. I think in 100 years time we will have determined the neurological basis for just about all of psychiatry - I'm a 'reductive materialist' when it comes to neuroscience and philosophy of science

I’m sorry you’re dealing with multiple illnesses. It’s really hard.
I focused on the experience of ME here but unfortunately many of these issues will be common to other chronic illnesses today too - especially those neglected by medical science funding.

See next tweet in the thread for answer!

If you got this far
Thank you.

Thank you for having an open mind and for listening and wanting to help to make the world a better place

Check out linktr.ee/alexisme for links and www.instagram.com/alexis___me?... for highlights and posts on ME, long Covid and living with a chronic illness.

So what can you do?
If you care:
• learn more from reliable sources (see caption)
• advocate for better healthcare and policies
• advocate for research funding and clinical trials
• mutual aid (check my
'Direct giving' highlight on IG www.instagram.com/s/aGlnaGxpZ2...
• donate to research omf.ngo/

So what can you do?
Friend/family:
• ask the person what they need from you. Accept this and deliver it.
• educate yourself on the science of ME and best care practices.
• NEVER encourage them to
"push through"
• support them to rest
• be their advocate with drs
More:
www.meandmore.net/resources

So what can you do?
Health professional:
• keep up to date on best practice guidelines Bit.ly/nice206
• respect patient's experiences and knowledge of their own condition
• offer symptom management and chronic illness support
• consider evidence based off license treatments bit.ly/BHC-ME

NICE UK best practice guidance based on an evidence review.

The science says:
"Do not offer people with ME/CFS:
• any therapy based on physical activity or exercise as a cure for ME/CFS"

Para 1.11.14 - NICE NG 206
UK GUIDANCE - bit.ly/nice206

People with M.E. deserve appropriate holistic medical care which includes
symptom management, off-licence treatments based on good evidence and psychological support to deal with the impact of chronic illness.

Eg
batemanhornecenter.org/providers/me...

For many people with M.E. the neglect goes further and becomes abuse and gaslighting.

I have friends who have been held against their will in psychiatric facilities and abused by family for "making up" [their carers words] their illness.

Imagine for a moment, NOT being treated for your severe illness but actively being pushed to do something that's harmful and making you worse, whilst also not getting the psychological support you need for your trauma.

This is the reality for many people with M.E.

en.wikipedia.org/wiki/Controv...