Alex
@alex-wears-crocs.bsky.social
Trying out this micro-blogging thing.
Life with autism, carers and chronic illnesses.
Life with autism, carers and chronic illnesses.
I'm annoyed that my #powerchair assumes I'm more #ambulatory than I am. What do you mean I'm supposed to charge it for a full 6 hours but avoid charging it overnight? It's my legs! #disabled
December 22, 2025 at 3:34 AM
I'm annoyed that my #powerchair assumes I'm more #ambulatory than I am. What do you mean I'm supposed to charge it for a full 6 hours but avoid charging it overnight? It's my legs! #disabled
I wish every #spoonie got to try a #powerchair. It would have been so good for me to know that getting one really is worth it. I didn't expect to get as much benefit from it as I have, and I didn't realise how much i was struggling before. #wheelchairuser
December 21, 2025 at 8:04 PM
I wish every #spoonie got to try a #powerchair. It would have been so good for me to know that getting one really is worth it. I didn't expect to get as much benefit from it as I have, and I didn't realise how much i was struggling before. #wheelchairuser
I want to give my #chronicillness to the next person who makes an insensitive comment about it. #spoonie #ableism
December 17, 2025 at 10:47 PM
I want to give my #chronicillness to the next person who makes an insensitive comment about it. #spoonie #ableism
I finally became a wheelchair user and it wasn't even a big adjustment. The only difference now is I go to the bathroom on wheels instead of on legs I can't trust to keep me up long enough to get back to bed. I like feeling safe. #powerchair #severeME
December 14, 2025 at 9:41 PM
I finally became a wheelchair user and it wasn't even a big adjustment. The only difference now is I go to the bathroom on wheels instead of on legs I can't trust to keep me up long enough to get back to bed. I like feeling safe. #powerchair #severeME
I want to run away, but I can't run away from my own body. I don't get to start again. #spoonie #chronicillness #grief #disabled
November 12, 2025 at 11:41 PM
I want to run away, but I can't run away from my own body. I don't get to start again. #spoonie #chronicillness #grief #disabled
Freebies are a genius marketing strategy. Of course I'll pay for the item if it turns out I like it enough to want to buy it again! 💸
October 21, 2025 at 11:53 PM
Freebies are a genius marketing strategy. Of course I'll pay for the item if it turns out I like it enough to want to buy it again! 💸
I really want a day off from pacing. Just one. Please.
#spoonie #chronicillness #chronicfatigue #pacing #energymanagement #disabled #disability
#spoonie #chronicillness #chronicfatigue #pacing #energymanagement #disabled #disability
October 17, 2025 at 9:02 AM
I really want a day off from pacing. Just one. Please.
#spoonie #chronicillness #chronicfatigue #pacing #energymanagement #disabled #disability
#spoonie #chronicillness #chronicfatigue #pacing #energymanagement #disabled #disability
A life lesson I am learning is that if a deal looks too good to be true, it probably is! I should've got the deal while it was still there! It's gone now!
October 16, 2025 at 7:29 PM
A life lesson I am learning is that if a deal looks too good to be true, it probably is! I should've got the deal while it was still there! It's gone now!
No one talks about how #hard it is to #acquire a #disability. I don't understand why. Everyone who lives long enough becomes #disabled eventually.
#DisabledGrief
#DisabledGrief
October 16, 2025 at 3:32 PM
No one talks about how #hard it is to #acquire a #disability. I don't understand why. Everyone who lives long enough becomes #disabled eventually.
#DisabledGrief
#DisabledGrief
October 12, 2025 at 2:31 PM
Why is almost all of the good delivery food spicy?
October 10, 2025 at 9:00 PM
Why is almost all of the good delivery food spicy?
I'm so #grateful that #people with different #disabilities exist, because #innovations and #adaptations that #help them can help me too, even though I don't have the #disability the #aids were originally designed for. #UniversalDesign #CurbCutEffect #disabled #accessibility
October 10, 2025 at 1:08 PM
I'm so #grateful that #people with different #disabilities exist, because #innovations and #adaptations that #help them can help me too, even though I don't have the #disability the #aids were originally designed for. #UniversalDesign #CurbCutEffect #disabled #accessibility
True #Vulcan logic involves ignoring #emotions. We can't live like that. However I do like to apply #principles of Vulcan #logic to #internalisedableism. It's not true, no matter how much I wish it was, and it would do me no good to listen to it. 🖖 #StarTrek #disabled #disability #ableism #healing
October 10, 2025 at 11:56 AM
True #Vulcan logic involves ignoring #emotions. We can't live like that. However I do like to apply #principles of Vulcan #logic to #internalisedableism. It's not true, no matter how much I wish it was, and it would do me no good to listen to it. 🖖 #StarTrek #disabled #disability #ableism #healing
My #goal isn't #recovery anymore. There's no #treatment, no #cure, and only a ~5% recovery rate.
If I do have #ME, 'recovery' is simply out of my control.
#MECFS #myalgicencephalomyelitis #symptommanagement #NHS #UK #MEawareness
If I do have #ME, 'recovery' is simply out of my control.
#MECFS #myalgicencephalomyelitis #symptommanagement #NHS #UK #MEawareness
October 7, 2025 at 8:43 AM
My #goal isn't #recovery anymore. There's no #treatment, no #cure, and only a ~5% recovery rate.
If I do have #ME, 'recovery' is simply out of my control.
#MECFS #myalgicencephalomyelitis #symptommanagement #NHS #UK #MEawareness
If I do have #ME, 'recovery' is simply out of my control.
#MECFS #myalgicencephalomyelitis #symptommanagement #NHS #UK #MEawareness
#YouTube knows I'm #disabled. I keep getting #adverts for #accessible bathtubs and orthopaedic shoes.
September 26, 2025 at 7:07 PM
#YouTube knows I'm #disabled. I keep getting #adverts for #accessible bathtubs and orthopaedic shoes.
The NHS's goal for me is #recovery, but I've done enough #research into #disability theory and #cripplepunk to know that's not what I want for my life anymore. I want the #NHS to #support me to #choose instead. I am #physicallydisabled and no amount of fighting it will #change that. #disabled
September 26, 2025 at 12:28 PM
The NHS's goal for me is #recovery, but I've done enough #research into #disability theory and #cripplepunk to know that's not what I want for my life anymore. I want the #NHS to #support me to #choose instead. I am #physicallydisabled and no amount of fighting it will #change that. #disabled
It shouldn't be, but, as a #disabled person, it is a #privilege to be able to #afford essential #medical and #mobility #equipment while on #UniversalCredit and #unable to #work. #benefits #disability #UK #DWP #benefitsUK #disabilitypoverty #costofliving
September 25, 2025 at 1:33 PM
It shouldn't be, but, as a #disabled person, it is a #privilege to be able to #afford essential #medical and #mobility #equipment while on #UniversalCredit and #unable to #work. #benefits #disability #UK #DWP #benefitsUK #disabilitypoverty #costofliving
If #disability was more #normalised and we had more #representation of #disabled people, fewer people would rather die than be disabled, and fewer #newly disabled people would lose their lives.
September 25, 2025 at 9:37 AM
If #disability was more #normalised and we had more #representation of #disabled people, fewer people would rather die than be disabled, and fewer #newly disabled people would lose their lives.
I was thinking about how amazing it is that content creators seem to be able to remember things for the length of time between jump cuts - because I could never - and then I remembered that brain fog is one of my symptoms. 🤦😂
#spoonie #brainfog #neurodivergent #disabled
#spoonie #brainfog #neurodivergent #disabled
September 22, 2025 at 6:38 PM
I was thinking about how amazing it is that content creators seem to be able to remember things for the length of time between jump cuts - because I could never - and then I remembered that brain fog is one of my symptoms. 🤦😂
#spoonie #brainfog #neurodivergent #disabled
#spoonie #brainfog #neurodivergent #disabled
For a long time, I have written #poems as a #coping mechanism. I used to want to put them in a #book and publish them. Looking back on them, however, I realise that most of my best poems are #unpublishable. Sadly, they talk about #serious mental health topics in a way that does more #harm than good.
September 20, 2025 at 11:26 PM
For a long time, I have written #poems as a #coping mechanism. I used to want to put them in a #book and publish them. Looking back on them, however, I realise that most of my best poems are #unpublishable. Sadly, they talk about #serious mental health topics in a way that does more #harm than good.
Inner peace is important, but elusive and hard to find.
September 20, 2025 at 10:53 PM
Inner peace is important, but elusive and hard to find.
Heinz sweet chilli sauce review: great on chips, barely detectable on burgers.
September 16, 2025 at 7:22 PM
Heinz sweet chilli sauce review: great on chips, barely detectable on burgers.