It’s a pilot study, aiming to find early imaging features that could help predict how children will recover and live after treatment.

Find out more: bit.ly/4nM6osE

#Research #ResearchGrant #AlderHeyResearch #RadiologyResearch

The study, titled “Early imaging Predictors of Quality of Life in Children and Young People. A pilot study in Paediatric Ependymoma (EPiQ – Ependymoma)”, is the first imaging study to be launched under the European Society of Paediatric Oncology (SIOPE) Brain Tumour Group.

He also took some time to meet with LFC fan Jackson and his parents, before getting some pictures with our staff 📸💙

A huge thank you to Wayne for taking the time out to come and brighten everybody’s day 🙌

Dan said: 🗣️ "It creates some very exciting possibilities, and the chance to do what I think everyone involved with child health wants – make a step change for the better in the lives of children, both here, across the UK, and internationally"

100% of all profits from this campaign will be donated to Alder Hey Children's Charity (Registered Charity Number 1160661).

You can find out more about Ffredi's story and Hirschsprung's Disease on our website:

www.alderhey.nhs.uk/ffredi-and-f...

To say thank you, this month, Ffredi’s dad and his friend Jacob are raising money for Ronald McDonald House, which became a lifeline for the family during their many hospital stays.

#HirschsprungsDiseaseAwarenessMonth #HirschsprungsDisease

Ffredi’s dad Arron said: “The team, especially the surgical staff & stoma nurses have been amazing. Thanks to them, we feel confident looking after Ffredi, even when he’s unwell. His stoma is now just part of everyday life. He’s growing into the funniest, cheekiest little boy” 💙

Ffredi’s surgeon Ms Almond explains; “While Hirschsprung disease is a life-long condition, with appropriate management, patients are thankfully able to live full, active lives.”

Ffredi had surgery here at Alder Hey last August, where he was fitted with a stoma. Since then, the family has made many return trips between their home in Anglesey, Wales and Alder Hey, as he needs ongoing care.

It’s a serious bowel condition caused by missing nerve cells from part of the bowel. This prevents the bowel from working properly, leading to blockages, infections & complications. Research at Alder Hey is looking into ways to improve the treatments available for the condition.

So far Adam has raised just over £5,800 for these amazing causes. Congratulations Adam – what an fantastic achievement! 👏

#FGF #FridayFeels #Inspirational #Charity #Fundraising

Adam said: “It was the hardest thing I’ve ever done, but giving up was never an option! Thank you to everyone who supported me along the way - from the people who kept donating to keep me going to the complete strangers who washed my running gear halfway through the challenge!”

Adam, who is the Running and Challenge Manager for
Alder Hey Children's Charity, ran an incredible SEVEN ultramarathons, totalling 208 miles, to raise money for Alder Hey Charity , Owen McVeigh Foundation and Rainbow Hub. He averaged 29.8 miles each day and ran for a total of 49 hours.