Aileen O'Dowd
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ailsod.bsky.social
Aileen O'Dowd
@ailsod.bsky.social
You've got the universe reclining in your hair...
Kind of a Star Trek fan 🖖 Other sci-fi may also be considered. Seasonal tour guide. Kindness advocate. PwMS dx 2012.
Aibhlín Ní Dhubhda is ainm dom. 🇮🇪
I absolutely feel that! I'm not autistic but MS is neurological and there are similarities. Plus with the constant assumption I was lazy and not trying hard enough. Diagnosis was a relief and validation. And a roll eyes cos I'd figured it out about 18 months before 😂
November 11, 2025 at 4:00 PM
Aww that's so tough 😢 Everyone's MS is different of course, I've had it since I was a child (in hindsight, was officially diagnosed at 29) so it's just normality for me but for someone who gets hit suddenly it's awful. My mobility has mostly been spared apart from the fatigue.
November 11, 2025 at 3:11 PM
It's the same with my #MS. I tell someone I get extreme fatigue and they're like, sure everyone gets tired. No, you don't know the meaning of tired and thank your lucky stars that you don't!
November 11, 2025 at 2:26 PM
"There’s a big difference between mostly dead and all dead."
November 11, 2025 at 11:35 AM
Haha in true Trek Culture style here's my hot take... Peanut Hamper is a brilliant character. Evil as heck, don't get me wrong, but she's very good at it! 😂
November 10, 2025 at 11:01 PM
Awesome, looking forward to watching them. I'm doing 1 episode, 1 Ups&Downs a night 😁
November 10, 2025 at 10:55 PM
That is a fabulous idea! 😂
November 10, 2025 at 10:52 PM
Yeah that's the one! Now it's not my favourite episode in any way but I didn't hate it as much as Seán did. But he's absolutely entitled to feel like that about it of course, we all see things differently 😁
November 10, 2025 at 10:51 PM
Lower Decks s3ep7! I know we don't always have to agree and I still love him to the ends of the universe, but it's so rare that I don't at least half agree with him it's kinda scary! 😂
November 10, 2025 at 10:45 PM
Oh what a nonsense post! I love how he didn't have the guts to actually tag @seanferrick.bsky.social 🙄
Also, why single Seán out and not say Trek Culture? Because he knows well he's wrong but picked Seán cos he does the most talking. It's a compliment in a way, you're so memorable Seán a stór ❤️
November 10, 2025 at 9:37 PM
I still wonder what I did to deserve the privilege of getting to know you online! It's not often things like that happen to me so I'm going to hold onto it fiercely. Thank you for being you a stór, you make my day more than you know ❤️
November 7, 2025 at 11:24 PM