Advocates for Collaborative Education
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advocatecollab.bsky.social
Advocates for Collaborative Education
@advocatecollab.bsky.social
We are patient, community, research, and policy advocates across all cancer types. We strive to unite and empower cancer advocates via collaboration, education, and dissemination of leading practices.

advocatecollaborative.org
Join us tomorrow for a #SaveRareCancerResearch toolkit presentation by ACE member Dana Deighton. If you're an cancer advocate but not already a member of ACE, we'd love to have you - learn more at advocatecollaborative.org
September 15, 2025 at 9:10 PM
Fabulous conversation today around advocacy expertise and compensation in our monthly meeting! Excited to gather additional perspectives and share those insights to strengthen the role of patient advocacy across community, research, industry, and policy work.
#CanSky #OncoSky #PatientAdvocacy
September 11, 2025 at 6:53 PM
Patient advocates are generally underutilized in research and definitely under compensated - this will be a topic of discussion and exploration in our next general meeting on September 11th 10amPT/1pmET - invites should be in your inboxes!
September 8, 2025 at 4:09 PM
Our next general meeting is August 14th 10amPT/1pmET - invites should be in your inboxes!
If you're a patient, research, policy, community advocate - or thinking about exploring cancer advocacy - please consider joining us. All cancers, all stages, all experiences welcome.

forms.gle/DrRyEKJG2JJ6...
August 8, 2025 at 8:25 PM
Join us for a mid-summer update on our projects, our publications & presentations, our sponsors, and ways you can become more involved in @advocatecollab.bsky.social
All members should have an invite for July 17th at 10amPT / 1pmET. If you're not yet a member, join us here forms.gle/VWT7MZHEc5qh...
July 15, 2025 at 9:54 PM
REMINDER to @advocatecollab.bsky.social members:
Please join us tomorrow 3/6 at 10amPT/1pmET for a presentation by Karen Merritt on the DPYD gene and the value of, and the need for, DPD deficiency testing before fluoropyrimidine chemotherapy #CanSky #OncSky #PatientAdvocacy
March 5, 2025 at 10:29 PM
Reminder we are hosting a Town Hall today for @advocatecollab.bsky.social members at 10amPT / 1pmET to discuss impacts of the new administration on our advocacy. What we know, what we still need to find out, and how best to move forward. #CanSky #OncSky #PatientAdvocacy #CancerResearch
February 20, 2025 at 2:53 PM
DYK when you google Medical Aid in Dying or Death with Dignity, the first search item that pops up is the National Suicide Hotline?
Please join us today for an ACE conversation with advocate @amjohnston.bsky.social about what Medical Aid in Dying really involves & why it exists #CanSky #PallOnc
January 16, 2025 at 4:08 PM
REMINDER: ACE Meeting on cancer vaccines today 1pmPT / 4pmET. Join us to hear from advocate & ACE member Judy Fitzgerald as she shares her experience as an advocate on current vaccine trials. As always presentation will be short so bulk of the time can be spent on Q&A / discussion #OncoSky #Advocacy
January 14, 2025 at 4:31 PM
Wonderful to kick off the new year by reconnecting with some of our advocates to discuss the evolution of the organization, upcoming presentations, and continued needs across patient, research, and policy advocacy.
#CanSky #OncoSky
January 6, 2025 at 10:25 PM
We finally made it to Instagram!
We meet virtually, but every now and again, the stars align, and some of us can connect at events in person! In honor of our first IG post, here is a throwback to our first face-to-face at ASCO in 2023 🎉 #CanSky #PatientAdvocacy
www.instagram.com/advocatecoll...
December 6, 2024 at 9:01 PM
Are you a #cancer Patient, Research, Policy or Community advocate? Are you a person diagnosed w/ (or history of) cancer interested in advocacy but not sure where to start? We need your voice & would love to have you join us! #Cansky #oncosky #patientadvocacy
advocatecollaborative.org/join-us/
December 6, 2024 at 4:24 PM
It's our first #GivingTuesday as a non-profit 🎉

At Advocates for Collaborative Education, we are on a mission to unite and empower advocates through pan-cancer collaborations, advocacy education, and the sharing of best practices.
If you're so inclined, we would love your support! #PatientAdvocacy
December 3, 2024 at 10:43 PM
New platform, same level of advocate awesomeness.
We just had a post-election conversation to talk about biggest personal concerns, biggest advocacy concerns, and how we will approach things at risk under this next administration #oncosky #bcsm #crcsm #btsm #gyncsm #lcsm #CancerResearch #SurvOnc
November 14, 2024 at 7:13 PM
ATTN Advocates:
We will be hosting an extended ACE call on Thurs 11/14
Agenda:
1.) check in on everyone
2.) discuss how we want to collectively approach this next year (including preparing for significant attempts to alter healthcare coverage and access)
#bcsm #crcsm #gyncsm #lcsm #mmsm #cancer
November 12, 2024 at 1:06 AM