A Darkened Room
@adarkenedroom.bsky.social
One of the #millionsmissing || Raising awareness of the most severe form of #MyalgicEncephalomyelitis
Reposted by A Darkened Room
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“These results indicate that it may be beneficial for severely and very severely affected ME/CFS patients to be cared for in an environment where they are met with respect, understanding with the aim to reduce PEM as much as possible.”
# #VerySevereME #MEcfs #CFS #PwME #SevereMEcfs
“These results indicate that it may be beneficial for severely and very severely affected ME/CFS patients to be cared for in an environment where they are met with respect, understanding with the aim to reduce PEM as much as possible.”
# #VerySevereME #MEcfs #CFS #PwME #SevereMEcfs
October 1, 2025 at 7:26 PM
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“These results indicate that it may be beneficial for severely and very severely affected ME/CFS patients to be cared for in an environment where they are met with respect, understanding with the aim to reduce PEM as much as possible.”
# #VerySevereME #MEcfs #CFS #PwME #SevereMEcfs
“These results indicate that it may be beneficial for severely and very severely affected ME/CFS patients to be cared for in an environment where they are met with respect, understanding with the aim to reduce PEM as much as possible.”
# #VerySevereME #MEcfs #CFS #PwME #SevereMEcfs
Reposted by A Darkened Room
"Severe ME has almost made me forget about the dancer in me." Anil van der Zee Former professional ballet dancer.
See more stories from people with Severe Myalgic Encephalomyelitis: www.meaction.net/2019/08/08/t...
#pwME #myalgicE
See more stories from people with Severe Myalgic Encephalomyelitis: www.meaction.net/2019/08/08/t...
#pwME #myalgicE
August 5, 2025 at 7:39 PM
"Severe ME has almost made me forget about the dancer in me." Anil van der Zee Former professional ballet dancer.
See more stories from people with Severe Myalgic Encephalomyelitis: www.meaction.net/2019/08/08/t...
#pwME #myalgicE
See more stories from people with Severe Myalgic Encephalomyelitis: www.meaction.net/2019/08/08/t...
#pwME #myalgicE
Reposted by A Darkened Room
Merryn had Very Severe ME for 6 years. She was totally bedbound, tube fed intravenously (TPN) due to gastro intestinal failure, unable to bear light, noise, touch or movement She suffered with horrific pain but never lost her big beautiful smile.
Merryn died just 10 days after her 21st birthday.
Merryn died just 10 days after her 21st birthday.
August 5, 2025 at 7:39 PM
Merryn had Very Severe ME for 6 years. She was totally bedbound, tube fed intravenously (TPN) due to gastro intestinal failure, unable to bear light, noise, touch or movement She suffered with horrific pain but never lost her big beautiful smile.
Merryn died just 10 days after her 21st birthday.
Merryn died just 10 days after her 21st birthday.
Reposted by A Darkened Room
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(Contd)
Includes comments from professionals (incl. Drs Muirhead/Weir/Speight/Shepherd/Nacul & Caroline Kingdon (nurse), patients & carers (incl. Association chairperson) Discusses various distressing topics www.dialogues-mecfs.co.uk/films/severe... Day 27
#mecfs
(Contd)
Includes comments from professionals (incl. Drs Muirhead/Weir/Speight/Shepherd/Nacul & Caroline Kingdon (nurse), patients & carers (incl. Association chairperson) Discusses various distressing topics www.dialogues-mecfs.co.uk/films/severe... Day 27
#mecfs
Severe & Very Severe ME / CFS - Dialogues
www.dialogues-mecfs.co.uk
May 27, 2025 at 12:23 PM
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(Contd)
Includes comments from professionals (incl. Drs Muirhead/Weir/Speight/Shepherd/Nacul & Caroline Kingdon (nurse), patients & carers (incl. Association chairperson) Discusses various distressing topics www.dialogues-mecfs.co.uk/films/severe... Day 27
#mecfs
(Contd)
Includes comments from professionals (incl. Drs Muirhead/Weir/Speight/Shepherd/Nacul & Caroline Kingdon (nurse), patients & carers (incl. Association chairperson) Discusses various distressing topics www.dialogues-mecfs.co.uk/films/severe... Day 27
#mecfs
Reposted by A Darkened Room
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May is Myalgic Encephalomyelitis (M.E.) Awareness Month.
You can help by sharing and/or liking this 15-minute video on #SevereME & #VerySevereME: "Severe & Very Severe ME / CFS Myalgic Encephalomyelitis / Chronic Fatigue Syndrome"
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May is Myalgic Encephalomyelitis (M.E.) Awareness Month.
You can help by sharing and/or liking this 15-minute video on #SevereME & #VerySevereME: "Severe & Very Severe ME / CFS Myalgic Encephalomyelitis / Chronic Fatigue Syndrome"
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Severe & Very Severe ME / CFS - Dialogues
www.dialogues-mecfs.co.uk
May 27, 2025 at 12:23 PM
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May is Myalgic Encephalomyelitis (M.E.) Awareness Month.
You can help by sharing and/or liking this 15-minute video on #SevereME & #VerySevereME: "Severe & Very Severe ME / CFS Myalgic Encephalomyelitis / Chronic Fatigue Syndrome"
(Contd)
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May is Myalgic Encephalomyelitis (M.E.) Awareness Month.
You can help by sharing and/or liking this 15-minute video on #SevereME & #VerySevereME: "Severe & Very Severe ME / CFS Myalgic Encephalomyelitis / Chronic Fatigue Syndrome"
(Contd)