Action for ME
@actionforme.bsky.social
Providing support & holistic healthcare services to people of all ages affected by #MECFS
Charity number: 1036419 / SC040452
Charity number: 1036419 / SC040452
You can find out more about our Christmas Angels project on our website 👇
www.actionforme.org.uk/christmas-an...
www.actionforme.org.uk/christmas-an...
November 10, 2025 at 2:05 PM
You can find out more about our Christmas Angels project on our website 👇
www.actionforme.org.uk/christmas-an...
www.actionforme.org.uk/christmas-an...
We ask that all cards arrive at our office by Monday 8 December to allow us time to process and send them on.
This project is open to anyone with ME of any age. If you’re aged 18 and under, you need to be a member of our free Young People’s Community to take part.
This project is open to anyone with ME of any age. If you’re aged 18 and under, you need to be a member of our free Young People’s Community to take part.
November 10, 2025 at 2:05 PM
We ask that all cards arrive at our office by Monday 8 December to allow us time to process and send them on.
This project is open to anyone with ME of any age. If you’re aged 18 and under, you need to be a member of our free Young People’s Community to take part.
This project is open to anyone with ME of any age. If you’re aged 18 and under, you need to be a member of our free Young People’s Community to take part.
Our Christmas Angels project, now in it’s 15th year, enables people with ME to send Christmas cards to each other – all via the Action for ME office!
To take part, complete our online form 👇
forms.gle/VQ51jyCiKGYN...
To take part, complete our online form 👇
forms.gle/VQ51jyCiKGYN...
November 10, 2025 at 2:05 PM
Our Christmas Angels project, now in it’s 15th year, enables people with ME to send Christmas cards to each other – all via the Action for ME office!
To take part, complete our online form 👇
forms.gle/VQ51jyCiKGYN...
To take part, complete our online form 👇
forms.gle/VQ51jyCiKGYN...
You can also find information about the conference here 👇
aliancamillionsmissing.org/2-conferenci...
#MECFS #pwME #MyagicE #MyalgicEncephalomyelitis #LongCovid #Research
aliancamillionsmissing.org/2-conferenci...
#MECFS #pwME #MyagicE #MyalgicEncephalomyelitis #LongCovid #Research
November 10, 2025 at 11:10 AM
You can also find information about the conference here 👇
aliancamillionsmissing.org/2-conferenci...
#MECFS #pwME #MyagicE #MyalgicEncephalomyelitis #LongCovid #Research
aliancamillionsmissing.org/2-conferenci...
#MECFS #pwME #MyagicE #MyalgicEncephalomyelitis #LongCovid #Research
We will be sharing a recording of Sian's presentation afterwards on our YouTube channel.
Register now to attend online, for one or both days 👇
aliancamillionsmissing.org/2-conferencia/
Register now to attend online, for one or both days 👇
aliancamillionsmissing.org/2-conferencia/
November 10, 2025 at 11:10 AM
We will be sharing a recording of Sian's presentation afterwards on our YouTube channel.
Register now to attend online, for one or both days 👇
aliancamillionsmissing.org/2-conferencia/
Register now to attend online, for one or both days 👇
aliancamillionsmissing.org/2-conferencia/
Sian, an Action for ME staff member who is also a member of the PPI steering group for DecodeME and PPI Coordinator for the PRIME project, will be presenting about DecodeME PPI as part of the 'Patient Advocacy Panel’ session!
November 10, 2025 at 11:10 AM
Sian, an Action for ME staff member who is also a member of the PPI steering group for DecodeME and PPI Coordinator for the PRIME project, will be presenting about DecodeME PPI as part of the 'Patient Advocacy Panel’ session!
The conference aims to raise awareness and understanding among healthcare professionals, researchers, policy makers, patients and advocates about ME/CFS, long Covid and other post-viral illnesses.
📆 When? 12-13 November 2025
📍 Where? Online
📆 When? 12-13 November 2025
📍 Where? Online
November 10, 2025 at 11:10 AM
The conference aims to raise awareness and understanding among healthcare professionals, researchers, policy makers, patients and advocates about ME/CFS, long Covid and other post-viral illnesses.
📆 When? 12-13 November 2025
📍 Where? Online
📆 When? 12-13 November 2025
📍 Where? Online
3/3
We are incredibly grateful to our judging panel of people with ME and medical professionals, who are now carefully assessing all the entries.
We will announce the winner in the first week of December!
We are incredibly grateful to our judging panel of people with ME and medical professionals, who are now carefully assessing all the entries.
We will announce the winner in the first week of December!
November 5, 2025 at 12:37 PM
3/3
We are incredibly grateful to our judging panel of people with ME and medical professionals, who are now carefully assessing all the entries.
We will announce the winner in the first week of December!
We are incredibly grateful to our judging panel of people with ME and medical professionals, who are now carefully assessing all the entries.
We will announce the winner in the first week of December!
2/3
"Thank you for the opportunity to take part in such an important and timely competition. I am grateful for the chance to deepen my understanding of ME/CFS and contribute to a more compassionate and evidence-informed future for patients."
"Thank you for the opportunity to take part in such an important and timely competition. I am grateful for the chance to deepen my understanding of ME/CFS and contribute to a more compassionate and evidence-informed future for patients."
November 5, 2025 at 12:37 PM
2/3
"Thank you for the opportunity to take part in such an important and timely competition. I am grateful for the chance to deepen my understanding of ME/CFS and contribute to a more compassionate and evidence-informed future for patients."
"Thank you for the opportunity to take part in such an important and timely competition. I am grateful for the chance to deepen my understanding of ME/CFS and contribute to a more compassionate and evidence-informed future for patients."
Ask your MP to attend using the form on the Overlapping Illness Alliance website, linked below.
You can read more about the Overlapping Illness Alliance here 👇
www.overlappingillnessalliance.org.uk
You can read more about the Overlapping Illness Alliance here 👇
www.overlappingillnessalliance.org.uk
November 4, 2025 at 1:01 PM
Ask your MP to attend using the form on the Overlapping Illness Alliance website, linked below.
You can read more about the Overlapping Illness Alliance here 👇
www.overlappingillnessalliance.org.uk
You can read more about the Overlapping Illness Alliance here 👇
www.overlappingillnessalliance.org.uk
This founding group will turn collaboration into action, creating one voice for the progress our communities need.
The Overlapping Illness Alliance are hosting a drop-in session at the House of Parliament on Tuesday, 25 November to inform MPs about these illnesses, and what they can do to support.
The Overlapping Illness Alliance are hosting a drop-in session at the House of Parliament on Tuesday, 25 November to inform MPs about these illnesses, and what they can do to support.
November 4, 2025 at 1:01 PM
This founding group will turn collaboration into action, creating one voice for the progress our communities need.
The Overlapping Illness Alliance are hosting a drop-in session at the House of Parliament on Tuesday, 25 November to inform MPs about these illnesses, and what they can do to support.
The Overlapping Illness Alliance are hosting a drop-in session at the House of Parliament on Tuesday, 25 November to inform MPs about these illnesses, and what they can do to support.
If you would like to send or receive a card from another person with ME this Christmas, or know someone severely affected who would appreciate a card, complete the form below 👇
forms.gle/VQ51jyCiKGYN...
You can read more about this project on our website:
www.actionforme.org.uk/christmas-an...
forms.gle/VQ51jyCiKGYN...
You can read more about this project on our website:
www.actionforme.org.uk/christmas-an...
2025 Action for ME Christmas Angels
Action for ME’s Christmas Angels project, now in its 15th year, enables people with ME to send Christmas cards to each other via the Action for ME office.
This project is open to anyone with ME of an...
forms.gle
November 4, 2025 at 10:23 AM
If you would like to send or receive a card from another person with ME this Christmas, or know someone severely affected who would appreciate a card, complete the form below 👇
forms.gle/VQ51jyCiKGYN...
You can read more about this project on our website:
www.actionforme.org.uk/christmas-an...
forms.gle/VQ51jyCiKGYN...
You can read more about this project on our website:
www.actionforme.org.uk/christmas-an...
“I loved it last year! Receiving a card was so lovely and brightened my Christmas!”
Our Christmas Angels project is open to anyone with ME of any age. If you’re aged 18 and under, you need to be a part of our free Young People’s Community to take part.
Our Christmas Angels project is open to anyone with ME of any age. If you’re aged 18 and under, you need to be a part of our free Young People’s Community to take part.
November 4, 2025 at 10:23 AM
“I loved it last year! Receiving a card was so lovely and brightened my Christmas!”
Our Christmas Angels project is open to anyone with ME of any age. If you’re aged 18 and under, you need to be a part of our free Young People’s Community to take part.
Our Christmas Angels project is open to anyone with ME of any age. If you’re aged 18 and under, you need to be a part of our free Young People’s Community to take part.
You can read more about the guidelines, including about some of the people working on them, on our website 👇
www.actionforme.org.uk/the-british-...
www.actionforme.org.uk/the-british-...
The British Psychological Society Good Practice Guidelines for Psychologists Working with People with ME/CFS Update
The British Psychological Society have updated its good practice guidelines for psychologists working with people with ME/CFS
www.actionforme.org.uk
November 3, 2025 at 12:41 PM
You can read more about the guidelines, including about some of the people working on them, on our website 👇
www.actionforme.org.uk/the-british-...
www.actionforme.org.uk/the-british-...
More on DecodeME and our partnership with the University of Edinburgh 👇
www.actionforme.org.uk/research-cam...
#MyalgicE #MyalgicEncephalomyelitis #MEAwareness
www.actionforme.org.uk/research-cam...
#MyalgicE #MyalgicEncephalomyelitis #MEAwareness
October 30, 2025 at 3:35 PM
More on DecodeME and our partnership with the University of Edinburgh 👇
www.actionforme.org.uk/research-cam...
#MyalgicE #MyalgicEncephalomyelitis #MEAwareness
www.actionforme.org.uk/research-cam...
#MyalgicE #MyalgicEncephalomyelitis #MEAwareness