Appendix Cancer PMP Research Foundation
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Appendix Cancer PMP Research Foundation
@acpmpresearch.bsky.social
501(c)3 that funds and supports research, education, and awareness related to Appendix Cancer and Pseudomyxoma Peritonei 🎗

Learn more at https://acpmp.org
Remembering Stuart Scott today. His #appendixcancer journey touched so many and brought rare visibility to this disease. @espn.com honors his legacy Wed, Dec 10 at 9 PM ET with the 30x30 film Boo-Yah: A Portrait of #StuartScott.

Preview: www.espn.com/video/clip?i...
30 for 30: 'Boo-Yah: A Portrait of Stuart Scott' trailer - ESPN Video
Catch the historic 30 for 30 premiere: 'Boo-Yah: A Portrait of Stuart Scott' on Dec 10 on ESPN.
www.espn.com
December 9, 2025 at 2:18 PM
Congratulations to the Top 3 Winners of the @givingtuesday.bsky.social 2025 Shades of Amber: Creative Contest for a Cure!

Thank you to every artist who shared their amber-inspired work and to everyone who voted in support of #appendixcancer awareness.

learn more: acpmp.org/event/shades...
December 2, 2025 at 11:25 PM
"I want to help spread awareness, share knowledge & offer support. ACPMP has given me a platform not only to learn for myself, but to help others navigate this journey."- Melissa

This #GivingTuesday, your support helps more patients find hope when they need it most. secure.acpmp.org/campaign/726...
December 2, 2025 at 6:15 PM
A major milestone for the #appendixcancer community!

The #NCCN has released dedicated Guidelines for Appendiceal Cancer, officially recognizing this #raredisease as distinct from colorectal cancer.

Read more about this important step forward: oncodaily.com/insight/nccn...

@oncodaily.bsky.social
NCCN Guidelines for Appendiceal Cancer: Defining a New Standard of Care 2025 - OncoDaily
NCCN Guidelines for Appendiceal Cancer: Defining a New Standard of Care 2025 / appendiceal cancer, cancer, Cancer Management, NCCN, NCCN guidelines, NCCN
oncodaily.com
November 6, 2025 at 4:53 PM
Missed the live sessions from the 2025 #AppendixCancer Symposium? Recordings are now available!

Catch fundamentals education, research updates, and expert sessions at your own pace.

Watch the recordings: youtube.com/playlist?lis...

@yaleschoolofmed.bsky.social @huntsmancancer.bsky.social
November 5, 2025 at 4:53 PM
The voice of patients unites at #PSOGI2025!

On Oct 30 in Barcelona, patient advocates from 🇪🇸🇬🇧🇫🇷🇺🇸 will present the 1st Patient Manifesto on Peritoneal Malignancies, highlighting shared needs, challenges & hopes.

#PatientVoice #RareCancer #AppendixCancer
@pmpsurvivor.bsky.social @mesouk.bsky.social
October 24, 2025 at 5:14 PM
Learn why cancer immunotherapies sometimes fail—and how a new study out of @osucccjames.bsky.social could lead to improved treatments.
Why cancer immunotherapy fails: Ohio State researchers link it to protein quality control collapse
In what experts are calling a paradigm-shifting landmark study, scientists from the OSUCCC – James report key findings about the underlying mechanisms of
cancer.osu.edu
October 14, 2025 at 7:08 PM
The voice of patients unites at #PSOGI2025 🇪🇸

On Oct 30 in Barcelona, the first International Patient Manifesto on Peritoneal Malignancies will be presented - a global, patient-led initiative co-developed by 7 orgs from 5 countries, including ACPMP.

@pmpsurvivor.bsky.social @mesouk.bsky.social
October 13, 2025 at 2:12 PM
New to the Appendix Cancer Symposium? Here’s what to expect:

➡️ Expert presentations on diagnosis, treatment & research
➡️ Mock Tumor Board discussion of real patient cases
➡️ Live Q&As throughout the day
➡️ Regional breakout sessions focused on practical needs

events.zoom.us/ev/AlbNeGm7q...
October 8, 2025 at 6:56 PM
In this insightful Q&A, Dr. Kiran Turaga discusses the increasing incidence of #appendixcancer cases & the progress being made in research & treatment.

Dr. Turaga will also be joining us as a moderator for our Appendix Cancer Symposium on Oct 17!

Read more: www.yalemedicine.org/news/from-sy...
From Symptoms to Survival: What to Know About Appendix Cancer
Appendix cancer remains rare but incidence is growing, as is knowledge about the likely causes. A Yale Medicine expert offers insights on symptoms that should not be ignored, diagnosis, and therapi...
www.yalemedicine.org
September 29, 2025 at 2:25 PM
What’s next for PIPAC in the U.S.? 🌎

Dr. Mustafa Raoof of City of Hope, Duarte Cancer Center, will share the latest updates and future directions at the 2025 #AppendixCancer Multi-Regional Symposium.

Save Your Spot: events.zoom.us/ev/AlbNeGm7q...

#PIPAC #CityofHope
September 22, 2025 at 2:28 PM
The AROD Strong Kickball Tournament, Walk, and BBQ raised more than $7,300 to honor Anthony "AROD"’s memory and support appendix cancer research, education, and awareness. Thank you to everyone who joined, played, and supported this amazing day. 💛 #AppendixCancer #ARODStrong
September 18, 2025 at 1:59 PM
💛 #AppendixCancer Awareness Month 2025 = Global Impact.

✨ 143 landmarks lit in 4 countries
✨ 58 new recurring donors
✨ 332 news outlets + 101 radio stations
✨ 8M reached in our first global ad campaign

Thank you for standing with us. Watch the full recap!

#AmberforAppendixCancer
September 16, 2025 at 2:19 PM
This clinical trial of a vaccine as a potential new treatment for PMP is supported in part by an ACPMP Catalyst Research Grant awarded to Dr. Flatmark. We are grateful to our donors for making this support possible, and to Dr. Flatmark and her team for their years of dedication!

#pseudovax
September 10, 2025 at 6:11 PM
🎗️ History Made in Wisconsin 🎗️

@govevers.wisconsin.gov has issued an official proclamation declaring August as #AppendixCancer Awareness Month in Wisconsin - Our first-ever statewide proclamation!

This was made possible by Deborah Stalsberg, ACPMP volunteer, patient, and proud Wisconsin resident 💛
August 27, 2025 at 7:44 PM
Please join us in celebrating ACPMP Medical Advisory Board member Dr. John Paul Shen, a physician-scientist at
@mdanderson.bsky.social, for being recognized by @conquercancer.bsky.social, for his work to improve outcomes for patients w/ #appendixcancer!

Read more: www.conquer.org/cancer-resea...
John Paul Shen, MD | Conquer Cancer, the ASCO Foundation
Of the approximately 78 organs in the human body, there are a handful that scientists have ultimately deemed unnecessary for survival. Of these, few are more problematic—or confounding—than the append...
www.conquer.org
August 18, 2025 at 1:35 PM
ACPMP is proud to fund two $50K Catalyst Research Grants through the @nordrare.bsky.social #RareDisease Research Program.

These grants will support scientific and/or clinical research related to #AppendixCancer/PMP

Apps due: October 12, 2025
Apply now: rarediseases.org/advancing......
August 14, 2025 at 6:57 PM
#Appendixcancer patients & caregivers: we want to hear from YOU 💛

Dr. Kimberly Kopecky's new CRS/HIPEC study aims to improve care & support, and your feedback can help shape it. 10 mins to complete: uab.co1.qualtrics.com/jfe/form/SV_...

*Funded by ACPMP: $25K @socsurgonc.bsky.social YI Award*
Qualtrics Survey | Qualtrics Experience Management
The most powerful, simple and trusted way to gather experience data. Start your journey to experience management and try a free account today.
uab.co1.qualtrics.com
August 13, 2025 at 7:45 PM
Registration is now open for the 2025 Appendix Cancer Symposium – our biggest educational event of the year!

📅 Friday, Oct 17 | 10 AM–4:30 PM ET | Online & Free

events.zoom.us/ev/AlbNeGm7q...

Moderated by Atrium Health Levine Cancer, @huntsmancancer.bsky.social & @yaleschoolofmed.bsky.social
August 11, 2025 at 3:31 PM
ACPMP is yet again funding the $100K Lisa Kurtz Luciano Clinical Investigator Award + $25K
@socsurgonc.bsky.social Young Investigator Award—both focused solely on #appendixcancer & PMP. Applications now open: surgonc.org/resources/re... #RareCancer #RareDiseaseResearch
August 8, 2025 at 6:13 PM
Join us TONIGHT at 7 PM EST! Get your questions about CRS/HIPEC answered. events.zoom.us/ev/AkYvSm_lq...
Facing appendiceal cancer brings tough decisions & emotions for patients and caregivers. Join us for an open convo with Drs. Greenbaum & Kopecky on what to expect before surgery & the important role caregivers play.

This free webinar includes a live Q&A - Register: events.zoom.us/ev/AkYvSm_lq...
All-in-one virtual event platform | Zoom Events
events.zoom.us
August 7, 2025 at 6:55 PM
Facing appendiceal cancer brings tough decisions & emotions for patients and caregivers. Join us for an open convo with Drs. Greenbaum & Kopecky on what to expect before surgery & the important role caregivers play.

This free webinar includes a live Q&A - Register: events.zoom.us/ev/AkYvSm_lq...
All-in-one virtual event platform | Zoom Events
events.zoom.us
July 16, 2025 at 2:24 PM
Our Scientific Advisory Board Chair, @drholowatyj.bsky.social,
recently spoke with @nc5official.bsky.social about the new research showing that Gen X-ers & older Millennials are 3-4 times more likely to be diagnosed with #appendixcancer compared to previous generations. Watch:
New study shows appendix cancer on the rise in young adults
If you're a Generation X-er or a Millennial, local experts like Dr. Andreana Holowatyj say you may have a higher chance of getting appendiceal cancer.
www.newschannel5.com
June 30, 2025 at 7:30 PM
A study led by our Scientific Advisory Board Chair, @drholowatyj.bsky.social, found that #appendixcancer rates have quadrupled among Millennials.

ACPMP is proud to have contributed funding to this research alongside NIH. www.acpjournals.org/doi/10.7326/...

@nytimes.com @oncodaily.bsky.social
Birth Cohort Effects in Appendiceal Adenocarcinoma Incidence Across the United States | Annals of Internal Medicine
Background: Incidence rates of appendiceal adenocarcinoma (AA) are increasing across all age groups in the United States. Birth cohort patterns of AA can provide new, etiologic clues into increasing r...
www.acpjournals.org
June 12, 2025 at 2:09 PM
Join us in congratulating the Chair of ACPMP's Scientific Advisory Board, @drholowatyj.bsky.social, on her well-deserved '40 Under 40 in Cancer' award! Dr. Holowatyj's research is focused on early-onset cancers, including #appendixcancer

#raredisease @natrevcancer.nature.com @oncoalert.bsky.social
Andreana Holowatyj named ‘40 Under 40 In Cancer’ winner
The award identifies and recognizes contributions across the field of cancer by rising stars and emerging leaders under the age of 40.
news.vumc.org
May 30, 2025 at 8:44 PM