ACC Support UK
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accsupportuk.bsky.social
ACC Support UK
@accsupportuk.bsky.social
Providing information resources, support services, and advocacy for the UK adrenocortical cancer (ACC) community at www.accsupport.org.uk. Follow our sister accounts @amenduk.bsky.social and @phaeoparasupportuk.bsky.social. #endosky
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ACC Support UK is part of the patient group charity, @amenduk.bsky.social (reg 1153890). Visit our website for more information on diagnosis, treatment and life with #ACC, and how we help to support patients and their loved ones
www.accsupport.org.uk
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#adrenocorticalcancer #adrenalcancer
Our ACC Support UK account will be deleted shortly as we centralise our social media accounts under the AMEND account. ACC-related posts will be found on the AMEND account along with those related to MEN and PPGL syndromes. Follow AMEND!
January 21, 2025 at 3:56 PM
Reposted by ACC Support UK
December 20, 2024 at 8:17 AM
What's it like to live with adrenocortical cancer? Who better to explain than patients themselves. Listen to what they have to say in our video 'Living with ACC'.

youtu.be/Me83Z_j59k4

#ACC #adrenocorticalcancer #adrenalcancer
Talking about ACC: Living with ACC
YouTube video by ACC Support UK
youtu.be
December 18, 2024 at 11:27 AM
Reposted by ACC Support UK
December 8, 2024 at 7:33 AM
Reposted by ACC Support UK
A physician’s personal story of his battle vs Adrenal Cancer published in #EndocrinePractice via Adrenocortical Carcinoma and the Mitotane Morass: A Physician/Patient Perspective #endosky www.endocrinepractice.org/article/S153...
December 8, 2024 at 3:59 PM
Reposted by ACC Support UK
Vu leur rareté on parle rarement des cancers de la surrénale dans les média. Une actrice courageuse fait état de sa maladie, le message clé comme pour toute maladie rare est d'avoir une prise en charge guidée par des centres experts.

www.20minutes.fr/sante/412660...
Qu’est-ce que lecorticosurrénalome, le cancer dont souffre Emilie Dequenne ?
L’actrice belge Émilie Dequenne a expliqué dimanche se battre contre la récidive de son cancer, un corticosurrénalome
www.20minutes.fr
December 4, 2024 at 10:20 PM
Helps us too!
Skiwear, festive designs and bags gallore! Profits help fund our work so shop now at our Teemill store for worldwide delivery in time for xmas 🎄 amend.teemill.com/collection/g.... #charitystore #charitymerchandise #teemill
November 25, 2024 at 7:51 PM
Reposted by ACC Support UK
Honoured to have presented our work on #liquidbiopsy #ccfDNA for prognostication and monitoring of #adrenal #cancer at the amazing @a5-adrenal.bsky.social @mdanderson.bsky.social Int’l Adrenal Cancer Symposium @amenduk.bsky.social @accsupportuk.bsky.social #adrenalcancer #adrenocorticalcarcinoma
November 24, 2024 at 4:29 AM
Reposted by ACC Support UK
My first post here!
🚨 Excited to present at the upcoming International Adrenal Cancer Symposium at MD Anderson Cancer Center in Houston, Texas. I will talk about the role of #liquidbiopsy #ccfDNA in #adrenalcancer #ACC.
Stay tuned for updates! #EndoSky #MedSky
November 21, 2024 at 5:41 AM
Reposted by ACC Support UK
Seasonal sustainable clothing on side of AMEND available to buy now including two new skiwear designs!

amend.teemill.com
#charityshop
#charitystore
November 19, 2024 at 1:30 PM
Reposted by ACC Support UK
Dual Aldosterone- and Cortisol-Secreting Adrenal Cortical Carcinoma: Pre- and Perioperative Evaluation and Management
academic.oup.com/jcemcr/artic... #ACC #adrenocortical cancer @accsupportuk.bsky.social
Dual Aldosterone- and Cortisol-Secreting Adrenal Cortical Carcinoma: Pre- and Perioperative Evaluation and Management
Abstract. Adrenal cortical carcinoma (ACC) is a rare cancer (1-2/million) that presents with hormone overproduction in 60% of cases. Presentation of ACC wi
academic.oup.com
November 20, 2024 at 4:08 AM
Reposted by ACC Support UK
AMEND is a UK charity (reg 1153890) providing information resources and support services to the multiple endocrine neoplasia communities. Visit our website for comprehensive information on diagnosis, treatment, and life with an #MENSyndrome

www.amend.org.uk

#MEN1 #MEN2 #MEN3 #MEN2A #MEN2B
November 19, 2024 at 11:08 AM
ACC Support UK is part of the patient group charity, @amenduk.bsky.social (reg 1153890). Visit our website for more information on diagnosis, treatment and life with #ACC, and how we help to support patients and their loved ones
www.accsupport.org.uk
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#adrenocorticalcancer #adrenalcancer
November 19, 2024 at 10:54 AM