So much to share from DDW2025 but here’s a couple photos in the meantime.

So many friends and patients making themselves known at the conference is humbling and powerful to see. Then catching up with friends and colleagues!

Yesterday was day one of Digestive Disease Week!

I am here in San Diego reporting from the conference as a patient. Excited for day 2 and will post some of my highlights from Day 1. #IBD #GiSky #DDW2025

Recovering from my 28th surgery related to my rare disease. Ice cream always helps the recovery. #rare #surgery #raresky

I was 20 years old when I had my first two hip replacements.

I was 24 when I had my 3rd and 4th hip replacements.

I was 25 when I was finally diagnosed with an ultra-rare genetic metabolic bone disease called Hypophosphatasia.

#rare #raresky #rarediseasemonth

How the world feels right now with all these decisions being made and the disregard for science and the mountains of scientific evidence we have for things like vaccines. #science

Spent the weekend in Chicago working on a really cool advocacy project related to gastrointestinal health. Always cool to talk about my Crohn’s disease story. #gisky #IBD #crohnsdisease

Got a good report from my colonoscopy/EGD. Mild gastritis and esophagitis that they biopsied to rule out H. Pylori. Otherwise is Crohn’s related but mild.

Colon/ileum look great! Happy to still be in remission. Will have a pillcam in the coming months to look at my small bowel further #gisky #ibd

It’s colonoscopy and EGD time. Hoping for a good report on my Crohn’s Disease

It’s colonoscopy prep day! This is my second time using Sutab, the pill prep vs oral solution and I’m a big fan.

The oral prep always made me vomit. So I’m thankful for this option. #IBD #colonoscopy #crohnsdisease

It’s Crohn’s and Colitis Awareness Week!

It’s been 15 years since I was diagnosed with Crohn’s Disease which changed my life in more ways than I can count.

Excited to raise awareness this week. #IBD #GISky #Crohnsdisease

Made it to Nashville last night. Seeing my rare disease doctor at Vanderbilt this morning for my yearly evaluation and then driving back home.

Very short turn around on this one but have to see my doctor and this is part of it. #raredisease #raresky #hypophosphatasia

Hello BlueSky! I’m Aaron. Came over from Twitter.

I live with #CrohnsDisease and an ultra-rare genetic bone disease called #hypophosphatasia.

I have been advocating for these diseases for a long time. I also have a background in #science and love to talk about that! #chronicillness