Ingrid Birchell Hughes
@1ngi.bsky.social
Serialising my ggGrandparents 300+ Victorian love letters in 'My Love Letter Time Machine' podcast. Shortlisted: @IndPodAwards 2023 + @IWPodcastAwards 2022, 2023 + 2024. Artist, Writer, Podcaster. Queer. Zelda. Trigeminal Neuralgia. Exmo. Cardiff. she/they
I may have COVID, but I have some beautiful beautiful friends. I have had fleeting doorstep visits to deliver homemade soup, special teas, apple pie, bunches of flowers, chocolate, cake, more chocolate, and supermarket supplies. I am so touched 🥲❤️
October 12, 2025 at 2:34 PM
I may have COVID, but I have some beautiful beautiful friends. I have had fleeting doorstep visits to deliver homemade soup, special teas, apple pie, bunches of flowers, chocolate, cake, more chocolate, and supermarket supplies. I am so touched 🥲❤️
Hello.
It me.
October 7th is World Trigeminal Neuralgia Awareness Day.
6+ years and counting. It's a life changing illness. There is no cure. Facial pain falls down the cracks between diciplines. It's recognised as one of the worst pains in medicine.
#ShowTN3Fingers #FaceofTN #TrigeminalNeuralgia
It me.
October 7th is World Trigeminal Neuralgia Awareness Day.
6+ years and counting. It's a life changing illness. There is no cure. Facial pain falls down the cracks between diciplines. It's recognised as one of the worst pains in medicine.
#ShowTN3Fingers #FaceofTN #TrigeminalNeuralgia
October 7, 2025 at 6:24 PM
Hello.
It me.
October 7th is World Trigeminal Neuralgia Awareness Day.
6+ years and counting. It's a life changing illness. There is no cure. Facial pain falls down the cracks between diciplines. It's recognised as one of the worst pains in medicine.
#ShowTN3Fingers #FaceofTN #TrigeminalNeuralgia
It me.
October 7th is World Trigeminal Neuralgia Awareness Day.
6+ years and counting. It's a life changing illness. There is no cure. Facial pain falls down the cracks between diciplines. It's recognised as one of the worst pains in medicine.
#ShowTN3Fingers #FaceofTN #TrigeminalNeuralgia
My cat is exactly the same. 3 belly rubs, no more, but boundaries exist for her alone, my tummy is feline commons.
September 16, 2025 at 9:32 PM
My cat is exactly the same. 3 belly rubs, no more, but boundaries exist for her alone, my tummy is feline commons.
Why not have 3 facial pain conditions for the price of 2!
After MRI, both consultants agree that it's Idiopathic Trigeminal Neuralgia. I am so torn. I am honestly relieved that I do not have to have brain surgery, however, I am GUTTED that there is no 'fix'. It can only be managed.
I need wine.
After MRI, both consultants agree that it's Idiopathic Trigeminal Neuralgia. I am so torn. I am honestly relieved that I do not have to have brain surgery, however, I am GUTTED that there is no 'fix'. It can only be managed.
I need wine.
September 9, 2025 at 5:39 PM
Why not have 3 facial pain conditions for the price of 2!
After MRI, both consultants agree that it's Idiopathic Trigeminal Neuralgia. I am so torn. I am honestly relieved that I do not have to have brain surgery, however, I am GUTTED that there is no 'fix'. It can only be managed.
I need wine.
After MRI, both consultants agree that it's Idiopathic Trigeminal Neuralgia. I am so torn. I am honestly relieved that I do not have to have brain surgery, however, I am GUTTED that there is no 'fix'. It can only be managed.
I need wine.
Not every colour but some 😊
August 26, 2025 at 11:06 AM
Not every colour but some 😊
Buying strawberry flavour rice cakes was a mistake. I can not get past it looking like cerebellum.
August 21, 2025 at 2:14 PM
Buying strawberry flavour rice cakes was a mistake. I can not get past it looking like cerebellum.
Yep, here are some of the 300+ my great great grandparents wrote each other in the 1880s, most of which are from a single year. They didn't keep it clean either! 😳 ❤️🔥
August 11, 2025 at 9:35 PM
Yep, here are some of the 300+ my great great grandparents wrote each other in the 1880s, most of which are from a single year. They didn't keep it clean either! 😳 ❤️🔥
Drop an old person you’re going to turn into in the future
August 10, 2025 at 2:28 PM
Drop an old person you’re going to turn into in the future
Just heading up Pen y Fan.
August 6, 2025 at 1:21 PM
Just heading up Pen y Fan.
I noticed the light had changed today, we are roughly half way between the summer solstice and the Autumn equinox, the first burnt leaves are showing in the trees. It's been ages since I picked up a brush. Here's an oldy.
August 6, 2025 at 10:28 AM
I noticed the light had changed today, we are roughly half way between the summer solstice and the Autumn equinox, the first burnt leaves are showing in the trees. It's been ages since I picked up a brush. Here's an oldy.
So today is 6 years since TN. I almost gave up going to the Printhaus open evening to come home coz face was flaring. But given the date I was feeling so bloody minded. And I went and met some lovely people. I did my first ever letter press printing. I'm so glad I went.
July 30, 2025 at 8:41 PM
So today is 6 years since TN. I almost gave up going to the Printhaus open evening to come home coz face was flaring. But given the date I was feeling so bloody minded. And I went and met some lovely people. I did my first ever letter press printing. I'm so glad I went.
Today marks 6 years of having Trigeminal Neuralgia. I have been in pain for the last 2000+ days. New MRI next week.
The watercolour below was my homage to 'The Little Prince' which I think I painted after diagnoses.
"It is such a mysterious place, the land of tears.”
― Antoine de Saint-Exupéry
The watercolour below was my homage to 'The Little Prince' which I think I painted after diagnoses.
"It is such a mysterious place, the land of tears.”
― Antoine de Saint-Exupéry
July 30, 2025 at 12:01 PM
Today marks 6 years of having Trigeminal Neuralgia. I have been in pain for the last 2000+ days. New MRI next week.
The watercolour below was my homage to 'The Little Prince' which I think I painted after diagnoses.
"It is such a mysterious place, the land of tears.”
― Antoine de Saint-Exupéry
The watercolour below was my homage to 'The Little Prince' which I think I painted after diagnoses.
"It is such a mysterious place, the land of tears.”
― Antoine de Saint-Exupéry
I went to the TNA Trigeminal Neuralgia Association annual conference in Cardiff. It was an emotional day. Won some fizz in the raffle. Feel v educated, now have a game plan for better treatment. Thank you so much to @josiehenley.bsky.social who came with me for support. Meant the absolute world.
July 19, 2025 at 12:50 PM
I went to the TNA Trigeminal Neuralgia Association annual conference in Cardiff. It was an emotional day. Won some fizz in the raffle. Feel v educated, now have a game plan for better treatment. Thank you so much to @josiehenley.bsky.social who came with me for support. Meant the absolute world.
Are you going to sell this, because I need it so bad.
July 19, 2025 at 11:24 AM
Are you going to sell this, because I need it so bad.
My cappuccino from @queeremporium.bsky.social 😍
May 23, 2025 at 1:13 PM
My cappuccino from @queeremporium.bsky.social 😍
Bath! Sealant needs to cure and they sent the wrong bolt for the overflow. Actual bathing will have to wait until tomorrow
May 13, 2025 at 6:27 PM
Bath! Sealant needs to cure and they sent the wrong bolt for the overflow. Actual bathing will have to wait until tomorrow
The calorific and protein content between Yorkshire Provender's Chicken and Lentil soup, and a chocolate Huel is not significantly different. The soup is also 60gs larger and 50p cheaper.
May 12, 2025 at 12:12 PM
The calorific and protein content between Yorkshire Provender's Chicken and Lentil soup, and a chocolate Huel is not significantly different. The soup is also 60gs larger and 50p cheaper.
I get your point. It's hard when you live alone and have no one to express the thoughts to. I mean Maggie tries her best but right now she has a new house to thoroughly explore
April 5, 2025 at 2:24 PM
I get your point. It's hard when you live alone and have no one to express the thoughts to. I mean Maggie tries her best but right now she has a new house to thoroughly explore
Little red brick house now home to a little black kitty and a rather tired Ingi. Once again grateful to have such kind and loving friends.
April 4, 2025 at 12:46 PM
Little red brick house now home to a little black kitty and a rather tired Ingi. Once again grateful to have such kind and loving friends.
Today's self care is not going to the shop for bread because you got the shakes after a shower. So french fries w soup it is. #trigeminalneuralgia #spoonie #fatigue #disability
March 26, 2025 at 1:54 PM
Today's self care is not going to the shop for bread because you got the shakes after a shower. So french fries w soup it is. #trigeminalneuralgia #spoonie #fatigue #disability
When my friend @gwenfar.bsky.social + I make plans we've started framing our respective challenges w health + disabilty as the 'Spoon Forecast'
"Body: Weak. 4 or 5, squally shakes. Spirit 8 Willing. Moderate to good, veering to hopeful in the morning."
(explanation for Shipping Forecast in alt)
"Body: Weak. 4 or 5, squally shakes. Spirit 8 Willing. Moderate to good, veering to hopeful in the morning."
(explanation for Shipping Forecast in alt)
March 18, 2025 at 3:45 PM
When my friend @gwenfar.bsky.social + I make plans we've started framing our respective challenges w health + disabilty as the 'Spoon Forecast'
"Body: Weak. 4 or 5, squally shakes. Spirit 8 Willing. Moderate to good, veering to hopeful in the morning."
(explanation for Shipping Forecast in alt)
"Body: Weak. 4 or 5, squally shakes. Spirit 8 Willing. Moderate to good, veering to hopeful in the morning."
(explanation for Shipping Forecast in alt)
I have Trigeminal Neuralgia, a rare condition (1 in 8000) that causes sudden, severe facial pain. It gets worse over time + there is no cure. Sufferers of rare diseases often have to contend with health systems that lack scientific knowledge + reliable treatment, and access to social support.
February 28, 2025 at 3:25 PM
I have Trigeminal Neuralgia, a rare condition (1 in 8000) that causes sudden, severe facial pain. It gets worse over time + there is no cure. Sufferers of rare diseases often have to contend with health systems that lack scientific knowledge + reliable treatment, and access to social support.
Tell me you had a flare yesterday without telling me...
February 3, 2025 at 11:28 AM
Tell me you had a flare yesterday without telling me...
Ms Maggalena Mardy Boots of Maggie town, doing her Maggie Smith impression.
#cat
#catsky
#catsofbluesky
#cat
#catsky
#catsofbluesky
January 1, 2025 at 2:40 PM
Ms Maggalena Mardy Boots of Maggie town, doing her Maggie Smith impression.
#cat
#catsky
#catsofbluesky
#cat
#catsky
#catsofbluesky
My ggGrandad's New Years' resolutions from 1879 - when he was 19 years old. The idea: "That I will read as few novels as possible, but rather incline to Biography" is seen as something to aspire too throws me a bit. Was the reading of novels seen as frivolous back then?
January 1, 2025 at 2:28 PM
My ggGrandad's New Years' resolutions from 1879 - when he was 19 years old. The idea: "That I will read as few novels as possible, but rather incline to Biography" is seen as something to aspire too throws me a bit. Was the reading of novels seen as frivolous back then?