Zebra in the Desert.
@zebrainthedesert.bsky.social
Let's pretend like it's 2001 and blog about it. ZebraintheDesert.com.
#EDS #hEDS #POTS #MCAS #lipedema
#EDS #hEDS #POTS #MCAS #lipedema
Pinned
My lipedema specialist has been after me forever to get on Facebook. I haven't been on their in almost a decade.
What are you favorite groups on FB for lipedema?
What are you favorite groups on FB for lipedema?
February 14, 2026 at 12:10 AM
My lipedema specialist has been after me forever to get on Facebook. I haven't been on their in almost a decade.
What are you favorite groups on FB for lipedema?
What are you favorite groups on FB for lipedema?
Hahaha! She heard lipid maybe.
Sometimes I will pause and say, "You know, lipid edema - like fat + swelling?"
Sometimes I will pause and say, "You know, lipid edema - like fat + swelling?"
February 14, 2026 at 12:09 AM
Hahaha! She heard lipid maybe.
Sometimes I will pause and say, "You know, lipid edema - like fat + swelling?"
Sometimes I will pause and say, "You know, lipid edema - like fat + swelling?"
I'm not Buddhist. I'm a Quaker. But, I digress ...
Her book "Radical Compassion" was very helpful in my life.
www.powells.com/book/radical... #book #amreading #reading #EDS #lipedema
Her book "Radical Compassion" was very helpful in my life.
www.powells.com/book/radical... #book #amreading #reading #EDS #lipedema
Radical Compassion: Learning to Love Yourself & Your World with the Practice of RAIN | Powell's Books
One of the most beloved and trusted mindfulness teachers in America offers a lifeline for difficult times: the RAIN meditation, which awakens our courage and heart
Tara Brach is an in-the-trenches te...
www.powells.com
February 13, 2026 at 8:50 PM
I'm not Buddhist. I'm a Quaker. But, I digress ...
Her book "Radical Compassion" was very helpful in my life.
www.powells.com/book/radical... #book #amreading #reading #EDS #lipedema
Her book "Radical Compassion" was very helpful in my life.
www.powells.com/book/radical... #book #amreading #reading #EDS #lipedema
Listen up, mofos:
You can't diet or exercise your way out of lipedema.
You can't supplement your way out of any brand of EDS.
And that's why I'm reading "Radical Acceptance," by Tara Brach.
www.powells.com/book/radical... #book #amreading #reading #EDS #lipedema
You can't diet or exercise your way out of lipedema.
You can't supplement your way out of any brand of EDS.
And that's why I'm reading "Radical Acceptance," by Tara Brach.
www.powells.com/book/radical... #book #amreading #reading #EDS #lipedema
Radical Acceptance Embracing Your Life with the Heart of a Buddha | Powell's Books
The life-changing guide to finding freedom from our self-doubt through the revolutionary practice of Radical Acceptance from the renowned meditation teacher, psychologist, and author--now revised and ...
www.powells.com
February 13, 2026 at 8:50 PM
Listen up, mofos:
You can't diet or exercise your way out of lipedema.
You can't supplement your way out of any brand of EDS.
And that's why I'm reading "Radical Acceptance," by Tara Brach.
www.powells.com/book/radical... #book #amreading #reading #EDS #lipedema
You can't diet or exercise your way out of lipedema.
You can't supplement your way out of any brand of EDS.
And that's why I'm reading "Radical Acceptance," by Tara Brach.
www.powells.com/book/radical... #book #amreading #reading #EDS #lipedema
So, I made a donation in her name to the Lipedema Foundation and had them send her a bunch of brochures on lipedema and then I fired her.
But that didn't make anything any better.
What did your doctor say?
But that didn't make anything any better.
What did your doctor say?
February 13, 2026 at 8:44 PM
So, I made a donation in her name to the Lipedema Foundation and had them send her a bunch of brochures on lipedema and then I fired her.
But that didn't make anything any better.
What did your doctor say?
But that didn't make anything any better.
What did your doctor say?
After I went to a lipedema specialist -- four hours away, naturally -- I returned to my PC and was like, you've been fat shaming me and telling me to eat the wrong diet and fear mongering for 15 years, what say you? She was dismissive.
February 13, 2026 at 8:44 PM
After I went to a lipedema specialist -- four hours away, naturally -- I returned to my PC and was like, you've been fat shaming me and telling me to eat the wrong diet and fear mongering for 15 years, what say you? She was dismissive.
Same, same. I'd actually fallen and the injury on my calf -- a huge bruise and a raised area -- took years to heal. It's because of my fat legs that I didn't break one when I fell, and it's because of that fall that I figured it out.
February 13, 2026 at 8:44 PM
Same, same. I'd actually fallen and the injury on my calf -- a huge bruise and a raised area -- took years to heal. It's because of my fat legs that I didn't break one when I fell, and it's because of that fall that I figured it out.
I've had strangers yell "Here comes the bus!" while I'm walking down the street, minding my own business. When people get angry at me, the first insult out of their mouths usually starts with "fat."
zebrainthedesert.com/blog/misunderstood
#lipedema #chronicillness #POTS #EDS #MCAS #writer #blog
zebrainthedesert.com/blog/misunderstood
#lipedema #chronicillness #POTS #EDS #MCAS #writer #blog
Misunderstood — Zebra in the Desert
All my life, people have looked at my body and decided they know my story. They know I'm lazy. They know I eat too much. They know I don't exercise enough. They know I lack discipline, willpower, sel...
zebrainthedesert.com
February 13, 2026 at 5:02 PM
I've had strangers yell "Here comes the bus!" while I'm walking down the street, minding my own business. When people get angry at me, the first insult out of their mouths usually starts with "fat."
zebrainthedesert.com/blog/misunderstood
#lipedema #chronicillness #POTS #EDS #MCAS #writer #blog
zebrainthedesert.com/blog/misunderstood
#lipedema #chronicillness #POTS #EDS #MCAS #writer #blog
February 13, 2026 at 4:45 PM
So much. Do you have to deal with it, too?
THANKS, GOD, for the crap genetics. Amirite? lol
THANKS, GOD, for the crap genetics. Amirite? lol
February 13, 2026 at 4:28 PM
So much. Do you have to deal with it, too?
THANKS, GOD, for the crap genetics. Amirite? lol
THANKS, GOD, for the crap genetics. Amirite? lol
Reposted by Zebra in the Desert.
February 11, 2026 at 8:06 AM
Reposted by Zebra in the Desert.
Nailed it: "Perhaps it’s easier, and less frightening, to engage with the petty than with the important. It’s also useless."
I wrote this post back in 2018, but it seems as relevant as ever: We Quibble And Quarrel, Ignoring The Fire Around Us www.carlsetzer.com/2018/11/02/w...
#blog #blogpost #arguing
#blog #blogpost #arguing
We Quibble And Quarrel, Ignoring The Fire Around Us - Carl Setzer
I’m surrounded by dissention, anger and invective. It makes me want to scream. There are so many critical discussions, history making decisions that we need to make as a society and as a species. Wh...
www.carlsetzer.com
February 10, 2026 at 5:51 PM
Nailed it: "Perhaps it’s easier, and less frightening, to engage with the petty than with the important. It’s also useless."
Reposted by Zebra in the Desert.
Been keeping this under wraps, but I can finally let the dog out of the bag. I was one of the tree people in the Bad Bunny Super Bowl halftime show. Thanks Benito for the opportunity… career highlight honestly 😂🌿❤️ #corgi #corgicrew #dogsofbluesky
February 10, 2026 at 1:16 AM
Been keeping this under wraps, but I can finally let the dog out of the bag. I was one of the tree people in the Bad Bunny Super Bowl halftime show. Thanks Benito for the opportunity… career highlight honestly 😂🌿❤️ #corgi #corgicrew #dogsofbluesky
"But we didn't know that. None of us knew. So we blamed ourselves, and we were blamed by others — by doctors, by family, by a culture that sees a woman's body as a project she's failed to complete."
zebrainthedesert.com/blog/big-leg...
#newpost #blog #writing #lipedema #EDS #women #health
zebrainthedesert.com/blog/big-leg...
#newpost #blog #writing #lipedema #EDS #women #health
Big Legged Women — Zebra in the Desert
The photograph is from the 1890s. My great-great-grandmother stands with her fists on her hips, staring down the camera in a stance at least one of her eight surviving children knew well. She's wearin...
zebrainthedesert.com
February 8, 2026 at 8:56 PM
February 8, 2026 at 6:52 PM
Well, gosh. Thank you.
February 8, 2026 at 6:51 PM
Well, gosh. Thank you.
It's Saturday night and I just finished editing a 12-page technical document. I am that cool, correcting commas in my PJs. 🤓 #writing
Anyway, go Hawks!
#Seahawks #Superbowl
Anyway, go Hawks!
#Seahawks #Superbowl
a football player with the number 83 on his jersey is dancing on the field
Alt: Seahawks players in full uniform dancing in the endzone.
media.tenor.com
February 8, 2026 at 5:11 AM
It's Saturday night and I just finished editing a 12-page technical document. I am that cool, correcting commas in my PJs. 🤓 #writing
Anyway, go Hawks!
#Seahawks #Superbowl
Anyway, go Hawks!
#Seahawks #Superbowl
Reposted by Zebra in the Desert.
hot take: newspapers should not be run by people who dislike reading and thinking
February 4, 2026 at 3:12 PM
hot take: newspapers should not be run by people who dislike reading and thinking
"Isn't it ironic? Don't you think? A little too ironic ..."
Hope he gets better really soon.
Hope he gets better really soon.
February 4, 2026 at 4:31 PM
"Isn't it ironic? Don't you think? A little too ironic ..."
Hope he gets better really soon.
Hope he gets better really soon.
One of the most difficult things about learning I have genetic hypermobile Ehlers Danlos Syndrome (hEDS) is also learning that I have a lot of other stuff, too.
zebrainthedesert.com/blog/comorbi...
#EDS #hEDS #POTS #MCAS #CVI #lipedema #blog #NewPost #chronicillness
zebrainthedesert.com/blog/comorbi...
#EDS #hEDS #POTS #MCAS #CVI #lipedema #blog #NewPost #chronicillness
Comorbidity — Zebra in the Desert
In medical school, students are taught: "When you hear hoofbeats, think horses, not zebras." It means look for common diagnoses first. Don't jump to the rare stuff. It's good advice, in theory. The p...
zebrainthedesert.com
February 4, 2026 at 4:30 PM
One of the most difficult things about learning I have genetic hypermobile Ehlers Danlos Syndrome (hEDS) is also learning that I have a lot of other stuff, too.
zebrainthedesert.com/blog/comorbi...
#EDS #hEDS #POTS #MCAS #CVI #lipedema #blog #NewPost #chronicillness
zebrainthedesert.com/blog/comorbi...
#EDS #hEDS #POTS #MCAS #CVI #lipedema #blog #NewPost #chronicillness
OMG, I'm gonna need my HOA drama to chill TF out so I can blog. LOL 😜
In related news, this is the blog post that inspired me to start a blog again: www.joanwestenberg.com/the-case-for...
#blog #blogging #writing
In related news, this is the blog post that inspired me to start a blog again: www.joanwestenberg.com/the-case-for...
#blog #blogging #writing
The Case for Blogging in the Ruins
In 1751, Denis Diderot began publishing his Encyclopédie, a project that would eventually span 28 volumes and take more than two decades to complete. The French government banned it twice. The Catholi...
www.joanwestenberg.com
January 31, 2026 at 12:47 AM
OMG, I'm gonna need my HOA drama to chill TF out so I can blog. LOL 😜
In related news, this is the blog post that inspired me to start a blog again: www.joanwestenberg.com/the-case-for...
#blog #blogging #writing
In related news, this is the blog post that inspired me to start a blog again: www.joanwestenberg.com/the-case-for...
#blog #blogging #writing
I'm having that day-after-starting-a-new-blog anxiety moment.
I mean, HAPPY FRIDAY!
I mean, HAPPY FRIDAY!
a man says instantly i 'm feeling this like deep aching sense of dread in front of a door
Alt: The son from Schitts Creek with the text "Instantly I'm feelng this, like, deem aching sense of dread."
media.tenor.com
January 30, 2026 at 3:47 PM
I'm having that day-after-starting-a-new-blog anxiety moment.
I mean, HAPPY FRIDAY!
I mean, HAPPY FRIDAY!
I've come to realize that "desert" describes more than geography.
First blog post alert! 🚨
zebrainthedesert.com/blog/on-the-...
#zebra #EDS #hEDS #POTS #MCAS #lipedema #desert
First blog post alert! 🚨
zebrainthedesert.com/blog/on-the-...
#zebra #EDS #hEDS #POTS #MCAS #lipedema #desert
On the desert — Zebra in the Desert
I've recently moved to the desert. Actually, the place I live is broadly called the Scablands. It’s a landscape shaped by ancient catastrophic floods that left behind stark basalt formations, dry coul...
zebrainthedesert.com
January 30, 2026 at 1:21 AM
tap, tap, tap ... is this thing on?
January 30, 2026 at 1:14 AM
tap, tap, tap ... is this thing on?