Wales Gene Park
@walesgenepark.bsky.social
Harnessing Genetics to advance Research, Healthcare, Education and Innovation 🧬💡
📩 walesgenepark@cardiff.ac.uk
linktr.ee/walesgenepark
📩 walesgenepark@cardiff.ac.uk
linktr.ee/walesgenepark
At our Genomics Café in Swansea, Laura Morris and Imogen Bennett from @swanseauni.bsky.social will discuss the challenges and opportunities in rare disease research.
📍 Institute of Life Science, Swansea Uni
📅 19 Nov | ⏰ 11:00–12:45
Book here ➡️ bit.ly/4o3a3Dg
#GenomicsResearch
📍 Institute of Life Science, Swansea Uni
📅 19 Nov | ⏰ 11:00–12:45
Book here ➡️ bit.ly/4o3a3Dg
#GenomicsResearch
November 14, 2025 at 4:23 PM
At our Genomics Café in Swansea, Laura Morris and Imogen Bennett from @swanseauni.bsky.social will discuss the challenges and opportunities in rare disease research.
📍 Institute of Life Science, Swansea Uni
📅 19 Nov | ⏰ 11:00–12:45
Book here ➡️ bit.ly/4o3a3Dg
#GenomicsResearch
📍 Institute of Life Science, Swansea Uni
📅 19 Nov | ⏰ 11:00–12:45
Book here ➡️ bit.ly/4o3a3Dg
#GenomicsResearch
After a great café in Wrexham, it’s Swansea’s turn for a Genomics Cafe!
Join us Swansea Uni to hear Prof. William Griffiths dive into cutting-edge diagnose rare diseases.
📍 Institute of Life Science 🗓️ 19 Nov |⏰11:00 – 12:45
Grab a spot➡️ bit.ly/4o3a3Dg
#GenomicsResearch #GenomicsPartnershipWales
Join us Swansea Uni to hear Prof. William Griffiths dive into cutting-edge diagnose rare diseases.
📍 Institute of Life Science 🗓️ 19 Nov |⏰11:00 – 12:45
Grab a spot➡️ bit.ly/4o3a3Dg
#GenomicsResearch #GenomicsPartnershipWales
November 13, 2025 at 3:03 PM
After a great café in Wrexham, it’s Swansea’s turn for a Genomics Cafe!
Join us Swansea Uni to hear Prof. William Griffiths dive into cutting-edge diagnose rare diseases.
📍 Institute of Life Science 🗓️ 19 Nov |⏰11:00 – 12:45
Grab a spot➡️ bit.ly/4o3a3Dg
#GenomicsResearch #GenomicsPartnershipWales
Join us Swansea Uni to hear Prof. William Griffiths dive into cutting-edge diagnose rare diseases.
📍 Institute of Life Science 🗓️ 19 Nov |⏰11:00 – 12:45
Grab a spot➡️ bit.ly/4o3a3Dg
#GenomicsResearch #GenomicsPartnershipWales
Tomorrow we have our Public Genomics Café in Wrexham!
Hear from UNIQUE about supporting people affected by rare chromosomal disorders and their lived experiences.
📍 Xplore!
📅13 Nov |⏰ 11:00–12:45
Book here ➡️ bit.ly/4o3a3Dg
#Genomics #LivedExperiences #GenomicsPartnershipWales
Hear from UNIQUE about supporting people affected by rare chromosomal disorders and their lived experiences.
📍 Xplore!
📅13 Nov |⏰ 11:00–12:45
Book here ➡️ bit.ly/4o3a3Dg
#Genomics #LivedExperiences #GenomicsPartnershipWales
November 12, 2025 at 9:15 AM
Tomorrow we have our Public Genomics Café in Wrexham!
Hear from UNIQUE about supporting people affected by rare chromosomal disorders and their lived experiences.
📍 Xplore!
📅13 Nov |⏰ 11:00–12:45
Book here ➡️ bit.ly/4o3a3Dg
#Genomics #LivedExperiences #GenomicsPartnershipWales
Hear from UNIQUE about supporting people affected by rare chromosomal disorders and their lived experiences.
📍 Xplore!
📅13 Nov |⏰ 11:00–12:45
Book here ➡️ bit.ly/4o3a3Dg
#Genomics #LivedExperiences #GenomicsPartnershipWales
Our Public Genomics Café in Wrexham is nearly here!
Hear from Jayne Hughes, CEO of Amy and Friends, on supporting children with DNA repair disorders and improving rare disease care.
Book here➡️ bit.ly/4o3a3Dg
📍Xplore! Science Discovery Centre
📅13 Nov
⏰11:00–12:45
#Genomics #GenomicsPartnershipWales
Hear from Jayne Hughes, CEO of Amy and Friends, on supporting children with DNA repair disorders and improving rare disease care.
Book here➡️ bit.ly/4o3a3Dg
📍Xplore! Science Discovery Centre
📅13 Nov
⏰11:00–12:45
#Genomics #GenomicsPartnershipWales
November 7, 2025 at 1:54 PM
Our Public Genomics Café in Wrexham is nearly here!
Hear from Jayne Hughes, CEO of Amy and Friends, on supporting children with DNA repair disorders and improving rare disease care.
Book here➡️ bit.ly/4o3a3Dg
📍Xplore! Science Discovery Centre
📅13 Nov
⏰11:00–12:45
#Genomics #GenomicsPartnershipWales
Hear from Jayne Hughes, CEO of Amy and Friends, on supporting children with DNA repair disorders and improving rare disease care.
Book here➡️ bit.ly/4o3a3Dg
📍Xplore! Science Discovery Centre
📅13 Nov
⏰11:00–12:45
#Genomics #GenomicsPartnershipWales
It's great to be taking part in the Welsh NHS Confederation Annual Conference today.
We're at #WelshConfed25 as part of #GenomicsPartnershipWales, and it’s been a fantastic opportunity to speak to delegates about the range of genomics 🧬 work happening across Wales 🐲.
#Genomics #Cymru #NHSWales
We're at #WelshConfed25 as part of #GenomicsPartnershipWales, and it’s been a fantastic opportunity to speak to delegates about the range of genomics 🧬 work happening across Wales 🐲.
#Genomics #Cymru #NHSWales
November 6, 2025 at 12:39 PM
It's great to be taking part in the Welsh NHS Confederation Annual Conference today.
We're at #WelshConfed25 as part of #GenomicsPartnershipWales, and it’s been a fantastic opportunity to speak to delegates about the range of genomics 🧬 work happening across Wales 🐲.
#Genomics #Cymru #NHSWales
We're at #WelshConfed25 as part of #GenomicsPartnershipWales, and it’s been a fantastic opportunity to speak to delegates about the range of genomics 🧬 work happening across Wales 🐲.
#Genomics #Cymru #NHSWales
Our next Public Genomics Café☕🧬 is coming to #SwanseaUni! ☕🧬
Hear from researchers on diagnostics, precision medicine, and rare disease research as well gaining insight into the lived experiences of those with kidney conditions.
Spaces are limited so book now➡️ bit.ly/4o3a3Dg
🗓️ 19 Nov | 11:00–12:45
Hear from researchers on diagnostics, precision medicine, and rare disease research as well gaining insight into the lived experiences of those with kidney conditions.
Spaces are limited so book now➡️ bit.ly/4o3a3Dg
🗓️ 19 Nov | 11:00–12:45
November 4, 2025 at 2:33 PM
Our next Public Genomics Café☕🧬 is coming to #SwanseaUni! ☕🧬
Hear from researchers on diagnostics, precision medicine, and rare disease research as well gaining insight into the lived experiences of those with kidney conditions.
Spaces are limited so book now➡️ bit.ly/4o3a3Dg
🗓️ 19 Nov | 11:00–12:45
Hear from researchers on diagnostics, precision medicine, and rare disease research as well gaining insight into the lived experiences of those with kidney conditions.
Spaces are limited so book now➡️ bit.ly/4o3a3Dg
🗓️ 19 Nov | 11:00–12:45
Our Genomics Cafés are going on tour! 🚗☕🧬
Join us in Wrexham for a café at Xplore! with talks from patient organisations Amy and Friends, and UNIQUE as well as Genomics Partnership Wales on the new Genomics Delivery Plan for Wales.
Don’t miss out ➡️ bit.ly/4o3a3Dg
🗓️ 13 Nov | 🕰️ 11:00–12:45
Join us in Wrexham for a café at Xplore! with talks from patient organisations Amy and Friends, and UNIQUE as well as Genomics Partnership Wales on the new Genomics Delivery Plan for Wales.
Don’t miss out ➡️ bit.ly/4o3a3Dg
🗓️ 13 Nov | 🕰️ 11:00–12:45
November 3, 2025 at 4:45 PM
Our Genomics Cafés are going on tour! 🚗☕🧬
Join us in Wrexham for a café at Xplore! with talks from patient organisations Amy and Friends, and UNIQUE as well as Genomics Partnership Wales on the new Genomics Delivery Plan for Wales.
Don’t miss out ➡️ bit.ly/4o3a3Dg
🗓️ 13 Nov | 🕰️ 11:00–12:45
Join us in Wrexham for a café at Xplore! with talks from patient organisations Amy and Friends, and UNIQUE as well as Genomics Partnership Wales on the new Genomics Delivery Plan for Wales.
Don’t miss out ➡️ bit.ly/4o3a3Dg
🗓️ 13 Nov | 🕰️ 11:00–12:45
#SwanseaSciFest this past weekend was amazing! 🎉
We chatted with so many people about genetics & genomics. Thanks to everyone who braved the weather, visited our stand, joined in and asked questions!
Big thanks to the National Waterfront Museum for hosting. Can't wait for next year!
#Genomics
We chatted with so many people about genetics & genomics. Thanks to everyone who braved the weather, visited our stand, joined in and asked questions!
Big thanks to the National Waterfront Museum for hosting. Can't wait for next year!
#Genomics
October 29, 2025 at 4:17 PM
#SwanseaSciFest this past weekend was amazing! 🎉
We chatted with so many people about genetics & genomics. Thanks to everyone who braved the weather, visited our stand, joined in and asked questions!
Big thanks to the National Waterfront Museum for hosting. Can't wait for next year!
#Genomics
We chatted with so many people about genetics & genomics. Thanks to everyone who braved the weather, visited our stand, joined in and asked questions!
Big thanks to the National Waterfront Museum for hosting. Can't wait for next year!
#Genomics
There have been some amazing and engaging sessions so far at the #publichealthwales Conference 2025.
There's a lot to consider and reflect on regarding health in Wales, with talks from #WHO, Sarah Murphy MS, and others highlighting the ongoing work in this area.
#PublicHealth #Genomics #Equitable
There's a lot to consider and reflect on regarding health in Wales, with talks from #WHO, Sarah Murphy MS, and others highlighting the ongoing work in this area.
#PublicHealth #Genomics #Equitable
October 22, 2025 at 2:06 PM
There have been some amazing and engaging sessions so far at the #publichealthwales Conference 2025.
There's a lot to consider and reflect on regarding health in Wales, with talks from #WHO, Sarah Murphy MS, and others highlighting the ongoing work in this area.
#PublicHealth #Genomics #Equitable
There's a lot to consider and reflect on regarding health in Wales, with talks from #WHO, Sarah Murphy MS, and others highlighting the ongoing work in this area.
#PublicHealth #Genomics #Equitable
We've been talking about the range of genomics and genetics careers across #genomicspartnershipwales at #cmetcareersfair along with the All Wales Medical Genomics Service.
It's great to meet so many students! Thanks to #cardiffmetstudentsservices and #CardiffMet.
#GenomicsCareers #genomics
It's great to meet so many students! Thanks to #cardiffmetstudentsservices and #CardiffMet.
#GenomicsCareers #genomics
October 21, 2025 at 1:00 PM
We've been talking about the range of genomics and genetics careers across #genomicspartnershipwales at #cmetcareersfair along with the All Wales Medical Genomics Service.
It's great to meet so many students! Thanks to #cardiffmetstudentsservices and #CardiffMet.
#GenomicsCareers #genomics
It's great to meet so many students! Thanks to #cardiffmetstudentsservices and #CardiffMet.
#GenomicsCareers #genomics
The next Young People’s Genomic Café is coming! ☕🧬.
Hear from Dr Wallace & Dr Swift from #CardiffUniversity on “Going Viral for All the Right Reasons” — insights into careers in virology & genomic research.
🔗 Book your spot 👉 bit.ly/3WAqmv5
#Genomics #ResearchCareers #GenomicPartnershipWales
Hear from Dr Wallace & Dr Swift from #CardiffUniversity on “Going Viral for All the Right Reasons” — insights into careers in virology & genomic research.
🔗 Book your spot 👉 bit.ly/3WAqmv5
#Genomics #ResearchCareers #GenomicPartnershipWales
October 20, 2025 at 10:36 AM
The next Young People’s Genomic Café is coming! ☕🧬.
Hear from Dr Wallace & Dr Swift from #CardiffUniversity on “Going Viral for All the Right Reasons” — insights into careers in virology & genomic research.
🔗 Book your spot 👉 bit.ly/3WAqmv5
#Genomics #ResearchCareers #GenomicPartnershipWales
Hear from Dr Wallace & Dr Swift from #CardiffUniversity on “Going Viral for All the Right Reasons” — insights into careers in virology & genomic research.
🔗 Book your spot 👉 bit.ly/3WAqmv5
#Genomics #ResearchCareers #GenomicPartnershipWales
Only 4 days to go until our Young People’s Genomic Café ☕🧬
Hear from Laura Gifford and Joanne Watkins of the Pathogen Genomics Unit as they share insights into career opportunities within #PenGU🐧.
📅 21 Oct | ⏰ 17:30–19:00
🔗 Book your spot 👉 bit.ly/3WAqmv5
#Genomics #Careers #PathogenGenomics
Hear from Laura Gifford and Joanne Watkins of the Pathogen Genomics Unit as they share insights into career opportunities within #PenGU🐧.
📅 21 Oct | ⏰ 17:30–19:00
🔗 Book your spot 👉 bit.ly/3WAqmv5
#Genomics #Careers #PathogenGenomics
October 17, 2025 at 3:47 PM
Only 4 days to go until our Young People’s Genomic Café ☕🧬
Hear from Laura Gifford and Joanne Watkins of the Pathogen Genomics Unit as they share insights into career opportunities within #PenGU🐧.
📅 21 Oct | ⏰ 17:30–19:00
🔗 Book your spot 👉 bit.ly/3WAqmv5
#Genomics #Careers #PathogenGenomics
Hear from Laura Gifford and Joanne Watkins of the Pathogen Genomics Unit as they share insights into career opportunities within #PenGU🐧.
📅 21 Oct | ⏰ 17:30–19:00
🔗 Book your spot 👉 bit.ly/3WAqmv5
#Genomics #Careers #PathogenGenomics
📢We’re just under a week away from our next Young People’s Genomic Café ☕🧬a great chance to explore careers.
Join Zobia Tahseen & Dr Matthew Spencer as they share insights into a wide range of careers across AWMGS.
📅 21 Oct |⏰ 17:30–19:00
🔗 Book your spot 👉 bit.ly/3WAqmv5
Join Zobia Tahseen & Dr Matthew Spencer as they share insights into a wide range of careers across AWMGS.
📅 21 Oct |⏰ 17:30–19:00
🔗 Book your spot 👉 bit.ly/3WAqmv5
October 15, 2025 at 9:33 AM
📢We’re just under a week away from our next Young People’s Genomic Café ☕🧬a great chance to explore careers.
Join Zobia Tahseen & Dr Matthew Spencer as they share insights into a wide range of careers across AWMGS.
📅 21 Oct |⏰ 17:30–19:00
🔗 Book your spot 👉 bit.ly/3WAqmv5
Join Zobia Tahseen & Dr Matthew Spencer as they share insights into a wide range of careers across AWMGS.
📅 21 Oct |⏰ 17:30–19:00
🔗 Book your spot 👉 bit.ly/3WAqmv5
It was encouraging to see the @senedd.wales event reported in the North Wales Chronicle, highlighting the work that still needs to be done to improve the lives of those affected by rare conditions.
Read more at the link 👉 bit.ly/3IR6yk4
#RareDiseases #Genomics
Read more at the link 👉 bit.ly/3IR6yk4
#RareDiseases #Genomics
October 9, 2025 at 3:47 PM
It was encouraging to see the @senedd.wales event reported in the North Wales Chronicle, highlighting the work that still needs to be done to improve the lives of those affected by rare conditions.
Read more at the link 👉 bit.ly/3IR6yk4
#RareDiseases #Genomics
Read more at the link 👉 bit.ly/3IR6yk4
#RareDiseases #Genomics
We’ve been out and about today with #GeneticAllianceUK and #genomicspartnershipwales at the #seneddwales for a drop-in event.
It was great to meet MS’s Mabon ap Gwynfor and Llyr Gruffydd as well as patient support groups working to improve the lives of those affected by rare conditions.
#Genomics
It was great to meet MS’s Mabon ap Gwynfor and Llyr Gruffydd as well as patient support groups working to improve the lives of those affected by rare conditions.
#Genomics
October 7, 2025 at 2:26 PM
We’ve been out and about today with #GeneticAllianceUK and #genomicspartnershipwales at the #seneddwales for a drop-in event.
It was great to meet MS’s Mabon ap Gwynfor and Llyr Gruffydd as well as patient support groups working to improve the lives of those affected by rare conditions.
#Genomics
It was great to meet MS’s Mabon ap Gwynfor and Llyr Gruffydd as well as patient support groups working to improve the lives of those affected by rare conditions.
#Genomics
🚀Our Genomics Cafés☕🧬 continue with a Virtual Young People’s Café for 16–25-year-olds interested in careers in:
🔬Genomics research
🦠the Pathogen Genomics Unit (PenGU)
🧬the All Wales Medical Genomics Service (AWMGS)
📅 21 Oct
⏰ 17:30–19:00
#Genomics #Careers #EarlyCareers #GenomicPartnershipWales
🔬Genomics research
🦠the Pathogen Genomics Unit (PenGU)
🧬the All Wales Medical Genomics Service (AWMGS)
📅 21 Oct
⏰ 17:30–19:00
#Genomics #Careers #EarlyCareers #GenomicPartnershipWales
October 2, 2025 at 3:47 PM
🚀Our Genomics Cafés☕🧬 continue with a Virtual Young People’s Café for 16–25-year-olds interested in careers in:
🔬Genomics research
🦠the Pathogen Genomics Unit (PenGU)
🧬the All Wales Medical Genomics Service (AWMGS)
📅 21 Oct
⏰ 17:30–19:00
#Genomics #Careers #EarlyCareers #GenomicPartnershipWales
🔬Genomics research
🦠the Pathogen Genomics Unit (PenGU)
🧬the All Wales Medical Genomics Service (AWMGS)
📅 21 Oct
⏰ 17:30–19:00
#Genomics #Careers #EarlyCareers #GenomicPartnershipWales
Our next Genomics Café☕🧬kicks off today at 11!
Join us at the next Genomics Café☕🧬with Dr Shane Doheny (Cardiff University). He’ll share insights on how genomics can be mainstreamed across medical specialties.
📅 2 Oct
⏰ 11:00–12:45
Secure your spot👉 bit.ly/4mHxAsE
#Genomics #MainstreamingGenomics
Join us at the next Genomics Café☕🧬with Dr Shane Doheny (Cardiff University). He’ll share insights on how genomics can be mainstreamed across medical specialties.
📅 2 Oct
⏰ 11:00–12:45
Secure your spot👉 bit.ly/4mHxAsE
#Genomics #MainstreamingGenomics
October 2, 2025 at 8:14 AM
Our next Genomics Café☕🧬kicks off today at 11!
Join us at the next Genomics Café☕🧬with Dr Shane Doheny (Cardiff University). He’ll share insights on how genomics can be mainstreamed across medical specialties.
📅 2 Oct
⏰ 11:00–12:45
Secure your spot👉 bit.ly/4mHxAsE
#Genomics #MainstreamingGenomics
Join us at the next Genomics Café☕🧬with Dr Shane Doheny (Cardiff University). He’ll share insights on how genomics can be mainstreamed across medical specialties.
📅 2 Oct
⏰ 11:00–12:45
Secure your spot👉 bit.ly/4mHxAsE
#Genomics #MainstreamingGenomics
⏳Only 1 day to go!
This Genomics Café features Public Health Wales’ Pathogen Genomics Unit (PenGU🐧). Their talk, ‘The Hidden Lab’, shows how genomics is aiding our knowledge of pathogens from COVID-19 to influenza.
📅2 Oct
⏰11–12:45
Secure your spot👉 bit.ly/4mHxAsE
#Genomics #PathogenGenomics
This Genomics Café features Public Health Wales’ Pathogen Genomics Unit (PenGU🐧). Their talk, ‘The Hidden Lab’, shows how genomics is aiding our knowledge of pathogens from COVID-19 to influenza.
📅2 Oct
⏰11–12:45
Secure your spot👉 bit.ly/4mHxAsE
#Genomics #PathogenGenomics
October 1, 2025 at 1:58 PM
⏳Only 1 day to go!
This Genomics Café features Public Health Wales’ Pathogen Genomics Unit (PenGU🐧). Their talk, ‘The Hidden Lab’, shows how genomics is aiding our knowledge of pathogens from COVID-19 to influenza.
📅2 Oct
⏰11–12:45
Secure your spot👉 bit.ly/4mHxAsE
#Genomics #PathogenGenomics
This Genomics Café features Public Health Wales’ Pathogen Genomics Unit (PenGU🐧). Their talk, ‘The Hidden Lab’, shows how genomics is aiding our knowledge of pathogens from COVID-19 to influenza.
📅2 Oct
⏰11–12:45
Secure your spot👉 bit.ly/4mHxAsE
#Genomics #PathogenGenomics
✨ Just 3 days to go!
At our next Genomics Café☕🧬, Yvonne Hughes will share her lived experience in ‘Growing Old with Cystic Fibrosis’. A unique chance to see rare disease from a new perspective.
📅 2 Oct
⏰ 11:00–12:45
Secure your spot 👉 bit.ly/4mHxAsE
#Genomics #CysticFibrosis #RareDisease
At our next Genomics Café☕🧬, Yvonne Hughes will share her lived experience in ‘Growing Old with Cystic Fibrosis’. A unique chance to see rare disease from a new perspective.
📅 2 Oct
⏰ 11:00–12:45
Secure your spot 👉 bit.ly/4mHxAsE
#Genomics #CysticFibrosis #RareDisease
September 30, 2025 at 2:45 PM
✨ Just 3 days to go!
At our next Genomics Café☕🧬, Yvonne Hughes will share her lived experience in ‘Growing Old with Cystic Fibrosis’. A unique chance to see rare disease from a new perspective.
📅 2 Oct
⏰ 11:00–12:45
Secure your spot 👉 bit.ly/4mHxAsE
#Genomics #CysticFibrosis #RareDisease
At our next Genomics Café☕🧬, Yvonne Hughes will share her lived experience in ‘Growing Old with Cystic Fibrosis’. A unique chance to see rare disease from a new perspective.
📅 2 Oct
⏰ 11:00–12:45
Secure your spot 👉 bit.ly/4mHxAsE
#Genomics #CysticFibrosis #RareDisease
Great to be at the Rare Disease Research Network Inaugural Conference at Swansea Uni!
Inspiring to hear from researchers & healthcare professionals advancing rare disease research across Wales whilst sharing updates about our work & @geneticallianceuk.bsky.social
#RDRN #RareDisease #Genomics
Inspiring to hear from researchers & healthcare professionals advancing rare disease research across Wales whilst sharing updates about our work & @geneticallianceuk.bsky.social
#RDRN #RareDisease #Genomics
September 26, 2025 at 1:01 PM
Great to be at the Rare Disease Research Network Inaugural Conference at Swansea Uni!
Inspiring to hear from researchers & healthcare professionals advancing rare disease research across Wales whilst sharing updates about our work & @geneticallianceuk.bsky.social
#RDRN #RareDisease #Genomics
Inspiring to hear from researchers & healthcare professionals advancing rare disease research across Wales whilst sharing updates about our work & @geneticallianceuk.bsky.social
#RDRN #RareDisease #Genomics
It's been great to be part of the #UniqueCharity Family Information Day in Cardiff for those affected by rare chromosome and gene conditions.
We were highlighting our work along, with that of #GenomicsPartnershipWales, #AllWalesMedicalGenomicService, and #geneticallianceuk.
#PatientEngagement
We were highlighting our work along, with that of #GenomicsPartnershipWales, #AllWalesMedicalGenomicService, and #geneticallianceuk.
#PatientEngagement
September 24, 2025 at 3:03 PM
It's been great to be part of the #UniqueCharity Family Information Day in Cardiff for those affected by rare chromosome and gene conditions.
We were highlighting our work along, with that of #GenomicsPartnershipWales, #AllWalesMedicalGenomicService, and #geneticallianceuk.
#PatientEngagement
We were highlighting our work along, with that of #GenomicsPartnershipWales, #AllWalesMedicalGenomicService, and #geneticallianceuk.
#PatientEngagement
Our Genomics Cafés ☕ 🧬 are back 2nd Oct!
Hear from:
✨ Yvonne Hughes on Growing Older with Cystic Fibrosis
🔬 Pathogen Genomics Unit with the “hidden lab”
🥼 Dr Shane Dohney about making genomics mainstream
🎟️ Save your spot: bit.ly/4mHxAsE
#GenomicsCafe #CysticFibrosis
Hear from:
✨ Yvonne Hughes on Growing Older with Cystic Fibrosis
🔬 Pathogen Genomics Unit with the “hidden lab”
🥼 Dr Shane Dohney about making genomics mainstream
🎟️ Save your spot: bit.ly/4mHxAsE
#GenomicsCafe #CysticFibrosis
September 24, 2025 at 8:40 AM
Our Genomics Cafés ☕ 🧬 are back 2nd Oct!
Hear from:
✨ Yvonne Hughes on Growing Older with Cystic Fibrosis
🔬 Pathogen Genomics Unit with the “hidden lab”
🥼 Dr Shane Dohney about making genomics mainstream
🎟️ Save your spot: bit.ly/4mHxAsE
#GenomicsCafe #CysticFibrosis
Hear from:
✨ Yvonne Hughes on Growing Older with Cystic Fibrosis
🔬 Pathogen Genomics Unit with the “hidden lab”
🥼 Dr Shane Dohney about making genomics mainstream
🎟️ Save your spot: bit.ly/4mHxAsE
#GenomicsCafe #CysticFibrosis
Registration is OPEN 🎉
The Rare Diseases Research Network meeting on 26 Sept 2025 @swanseauni.bsky.social
👩🔬 Researchers, clinicians, 💬 advocates + 🏭 industry coming together for equitable rare disease research.
Submit your abstracts by 5 Sept 📢
Learn more 👉 bit.ly/4mIqyUM
#RareDiseases #Cymru
The Rare Diseases Research Network meeting on 26 Sept 2025 @swanseauni.bsky.social
👩🔬 Researchers, clinicians, 💬 advocates + 🏭 industry coming together for equitable rare disease research.
Submit your abstracts by 5 Sept 📢
Learn more 👉 bit.ly/4mIqyUM
#RareDiseases #Cymru
Cyfarfod Cyntaf RDRN Cymru | Wales RDRN Inaugural Meeting
Ymunwch â ni ar gyfer cyfarfod cyntaf erioed Rhwydwaith Ymchwil i Glefydau Prin Cymru! | Join us for the very first RDRN meeting!
bit.ly
September 2, 2025 at 12:14 PM
Registration is OPEN 🎉
The Rare Diseases Research Network meeting on 26 Sept 2025 @swanseauni.bsky.social
👩🔬 Researchers, clinicians, 💬 advocates + 🏭 industry coming together for equitable rare disease research.
Submit your abstracts by 5 Sept 📢
Learn more 👉 bit.ly/4mIqyUM
#RareDiseases #Cymru
The Rare Diseases Research Network meeting on 26 Sept 2025 @swanseauni.bsky.social
👩🔬 Researchers, clinicians, 💬 advocates + 🏭 industry coming together for equitable rare disease research.
Submit your abstracts by 5 Sept 📢
Learn more 👉 bit.ly/4mIqyUM
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🧬 The struggle for diagnosis faced by Charlotte and many others highlights the importance of the UK Rare Diseases Framework. It has a critical role in raising awareness among 🥼 health professionals and ensuring patients are listened to.
📖 Read more of her story here: www.bbc.co.uk/news/article...
📖 Read more of her story here: www.bbc.co.uk/news/article...
'Eating disorder misdiagnosis left me with PTSD'
Charlotte Chapman-Hart tells of her experience of a lack of coordinated and informed care.
www.bbc.co.uk
August 19, 2025 at 2:52 PM
🧬 The struggle for diagnosis faced by Charlotte and many others highlights the importance of the UK Rare Diseases Framework. It has a critical role in raising awareness among 🥼 health professionals and ensuring patients are listened to.
📖 Read more of her story here: www.bbc.co.uk/news/article...
📖 Read more of her story here: www.bbc.co.uk/news/article...