Vivli
@vivli.bsky.social
We are an independent non-profit whose mission is to advance human health through global clinical research data sharing. Visit us at vivli.org for more information.
Congrats to Niklas Klümper of University Medical Center Bonn on your public disclosure, “On-treatment modified Glasgow Prognostic Score in hepatocellular carcinoma treated with atezolizumab & bevacizumab provides prognostic information.” We’re proud to facilitate your access to data.
Frontiers | On-treatment modified Glasgow Prognostic Score (mGPS) in hepatocellular carcinoma treated with atezolizumab and bevacizumab provides prognostic information
Background & aimsHepatocellular carcinoma (HCC) is associated with high cancer-specific mortality. While immune-checkpoint inhibitors (ICIs) improved overall...
doi.org
November 21, 2025 at 7:02 PM
Congrats to Niklas Klümper of University Medical Center Bonn on your public disclosure, “On-treatment modified Glasgow Prognostic Score in hepatocellular carcinoma treated with atezolizumab & bevacizumab provides prognostic information.” We’re proud to facilitate your access to data.
The @who.int promotes a "One Health" approach that unites human, animal, and environmental health as a key part of the response to the global #AMR crisis. Vivli AMR Data Challenge Judge Ana Cristina Gales hopes to see projects grounded in that approach in next year's challenge. buff.ly/5hmqRi0 #WAAW
November 21, 2025 at 5:05 PM
The @who.int promotes a "One Health" approach that unites human, animal, and environmental health as a key part of the response to the global #AMR crisis. Vivli AMR Data Challenge Judge Ana Cristina Gales hopes to see projects grounded in that approach in next year's challenge. buff.ly/5hmqRi0 #WAAW
Our NIH GREI colleagues have published a new blog post highlighting the GREI presentation at #SciDataCon2025, which emphasized the benefits of GREI’s coopetition model (a collaboration across 7 generalist repositories). Read all about it here: buff.ly/Wz6ukbJ. Thanks for the opportunity, #IDW2025!
Strategic Coopetition in Action at SciDataCon 2025
Highlighting data repository advancement through coopetition and making community connections at International Data Week 2025
medium.com
November 20, 2025 at 7:17 PM
Our NIH GREI colleagues have published a new blog post highlighting the GREI presentation at #SciDataCon2025, which emphasized the benefits of GREI’s coopetition model (a collaboration across 7 generalist repositories). Read all about it here: buff.ly/Wz6ukbJ. Thanks for the opportunity, #IDW2025!
This #WAAW, @who.int is calling us to "Act Now: Protect Our Present, Secure Our Future." The Vivli AMR Register can help. Learn more about how our 2025 AMR Visionary Award winners used the Vivli AMR Register to evaluate #AMR policies: amr.vivli.org/data-challen.... #WAAW2025 #AntimicrobialResistance
November 20, 2025 at 5:05 PM
This #WAAW, @who.int is calling us to "Act Now: Protect Our Present, Secure Our Future." The Vivli AMR Register can help. Learn more about how our 2025 AMR Visionary Award winners used the Vivli AMR Register to evaluate #AMR policies: amr.vivli.org/data-challen.... #WAAW2025 #AntimicrobialResistance
Congratulations to Fabricio Garelli of National University of La Plata and CONICET on your public disclosure, “Model based analytical approach for physical activity quantification in people with type 1 diabetes.” We’re proud to facilitate your access to data. #ClinicalResearch
Model based analytical approach for physical activity quantification in people with type 1 diabetes - Medical & Biological Engineering & Computing
Abstract Physical activity (PA) represents a significant challenge in the management of type 1 diabetes (T1D), given its impact on glucose levels, which are influenced by various exercise…
doi.org
November 19, 2025 at 7:03 PM
Congratulations to Fabricio Garelli of National University of La Plata and CONICET on your public disclosure, “Model based analytical approach for physical activity quantification in people with type 1 diabetes.” We’re proud to facilitate your access to data. #ClinicalResearch
Sharing #AMR surveillance data is an important part of the fight against #AntimicrobialResistance. The Vivli AMR Register includes 15 datasets with data collected in 87 countries. Learn more in our AMR progress report. amr.vivli.org/about/2025-p... #WAAW #WAAW2025
November 19, 2025 at 5:05 PM
Sharing #AMR surveillance data is an important part of the fight against #AntimicrobialResistance. The Vivli AMR Register includes 15 datasets with data collected in 87 countries. Learn more in our AMR progress report. amr.vivli.org/about/2025-p... #WAAW #WAAW2025
Congratulations to Josep Vehi of @univgirona.bsky.social on your public disclosure, “Including Aerobic Exercise Into Data-Based Virtual Twins for Glycemic Simulation.” We’re proud to facilitate your access to data. #ClinicalResearch
Sage Journals: Discover world-class research
Subscription and open access journals from Sage, the world's leading independent academic publisher.
doi.org
November 18, 2025 at 7:01 PM
Congratulations to Josep Vehi of @univgirona.bsky.social on your public disclosure, “Including Aerobic Exercise Into Data-Based Virtual Twins for Glycemic Simulation.” We’re proud to facilitate your access to data. #ClinicalResearch
This #WAAW, @who.int is calling us to "Act Now: Protect Our Present, Secure Our Future." The Vivli AMR Register can help researchers develop models that can protect future use of antimicrobials. Learn more. amr.vivli.org/about/overvi... #WAAW2025 #AntimicrobialResistance
November 18, 2025 at 5:04 PM
This #WAAW, @who.int is calling us to "Act Now: Protect Our Present, Secure Our Future." The Vivli AMR Register can help researchers develop models that can protect future use of antimicrobials. Learn more. amr.vivli.org/about/overvi... #WAAW2025 #AntimicrobialResistance
Congratulations to Cynthia Comella of Rush University Medical Center on your public disclosure, “Investigating Sleep Concerns in Cervical Dystonia.” We’re proud to facilitate your access to data. doi.org/10.1002/mdc3... #ClinicalResearch
doi.org
November 17, 2025 at 7:02 PM
Congratulations to Cynthia Comella of Rush University Medical Center on your public disclosure, “Investigating Sleep Concerns in Cervical Dystonia.” We’re proud to facilitate your access to data. doi.org/10.1002/mdc3... #ClinicalResearch
Couldn't make it to the Vivli Annual Meeting last month? You can watch the sessions on YouTube, like this one tackling how clinical data sharing can impact routine care. youtu.be/NWe48KB0dMY?... #DataSharing #DataReuse #ClinicalTrialData #HealthResearch
From Contribution to Impact in Clinical Trial Applicability to Routine Care
Researcher and Data Contributor Panel – From Contribution to Impact in Clinical Trial Applicability to Routine Care:
- Ida Sim, University of California, San Francisco, and Vivli (Moderator)
-…
youtu.be
November 17, 2025 at 5:02 PM
Couldn't make it to the Vivli Annual Meeting last month? You can watch the sessions on YouTube, like this one tackling how clinical data sharing can impact routine care. youtu.be/NWe48KB0dMY?... #DataSharing #DataReuse #ClinicalTrialData #HealthResearch
Today, Vivli CEO Rebecca Li is speaking at the Nexus of Open Science symposium, hosted by Johns Hopkins University. Dr. Li is talking to Johns Hopkins faculty and students about how researchers can share and access clinical trial data securely via the Vivli platform. vivli.org/vivli-ceo-re...
November 14, 2025 at 8:11 PM
Today, Vivli CEO Rebecca Li is speaking at the Nexus of Open Science symposium, hosted by Johns Hopkins University. Dr. Li is talking to Johns Hopkins faculty and students about how researchers can share and access clinical trial data securely via the Vivli platform. vivli.org/vivli-ceo-re...
Did you know that the Vivli #AntimicrobialResistance (#AMR) Register has data from 15 surveillance programs? We recently added data from the Survey of Antibiotic Resistance (SOAR) 207965 study, conducted by @gsk.bsky.social. Learn more about this dataset and the others available at buff.ly/jxkm2Jl.
Surveillance Programs - Vivli AMR
Datasets from the following AMR surveillance programs are available to request via the Vivli AMR Register.
buff.ly
November 14, 2025 at 5:04 PM
Did you know that the Vivli #AntimicrobialResistance (#AMR) Register has data from 15 surveillance programs? We recently added data from the Survey of Antibiotic Resistance (SOAR) 207965 study, conducted by @gsk.bsky.social. Learn more about this dataset and the others available at buff.ly/jxkm2Jl.
Congrats to Yuan-yuan Kong of Beijing Friendship Hospital, Capital Medical University, on your public disclosure, “Dynamic Early Survival Prediction Model for Hepatocellular Carcinoma Patients Treated With Atezolizumab and Bevacizumab: A Longitudinal Deep Learning Analysis.”
doi.org
November 13, 2025 at 7:01 PM
Congrats to Yuan-yuan Kong of Beijing Friendship Hospital, Capital Medical University, on your public disclosure, “Dynamic Early Survival Prediction Model for Hepatocellular Carcinoma Patients Treated With Atezolizumab and Bevacizumab: A Longitudinal Deep Learning Analysis.”
🎉 New Vivli Annual Meeting bonus content is out! In an #AntimicrobialResistance (AMR) Fireside Chat, 2 past winners of the Vivli AMR Data Challenge & a data challenge judge discuss their experiences w/ the challenge & how it could impact the global #AMR crisis. youtu.be/ZA17GqATlQI?...
Antimicrobial Resistance (AMR) Fireside Chat
YouTube video by Vivli Org
youtu.be
November 13, 2025 at 3:55 PM
🎉 New Vivli Annual Meeting bonus content is out! In an #AntimicrobialResistance (AMR) Fireside Chat, 2 past winners of the Vivli AMR Data Challenge & a data challenge judge discuss their experiences w/ the challenge & how it could impact the global #AMR crisis. youtu.be/ZA17GqATlQI?...
Vivli, the Center for Global Clinical Research, is seeking a part-time Contract Specialist to manage Vivli’s legal agreements with data contributors and researchers. Learn more. vivli.org/vivli-is-hir...
November 12, 2025 at 3:02 PM
Vivli, the Center for Global Clinical Research, is seeking a part-time Contract Specialist to manage Vivli’s legal agreements with data contributors and researchers. Learn more. vivli.org/vivli-is-hir...
Congratulations to Yuan-yuan Kong of Beijing Friendship Hospital, Capital Medical University, on your public disclosure, “Impact of temporary atezolizumab and bevacizumab interruption on survival in advanced HCC: an IMbrave150 analysis.” We’re proud to facilitate your access to data.
Impact of temporary atezolizumab and bevacizumab interruption on survival in advanced HCC: an IMbrave150 analysis
AbstractImportance. Atezolizumab (Atez) combined with bevacizumab (Bev) is the recommended first-line treatment for unresectable hepatocellular carcinoma (
doi.org
November 11, 2025 at 7:05 PM
Congratulations to Yuan-yuan Kong of Beijing Friendship Hospital, Capital Medical University, on your public disclosure, “Impact of temporary atezolizumab and bevacizumab interruption on survival in advanced HCC: an IMbrave150 analysis.” We’re proud to facilitate your access to data.
This week, we'll be highlighting a lot of content related to #AntimicrobialResistance or #AMR as we gear up for World AMR Awareness Week #WAAW 🦠next week. To start, catch up on the exciting AMR conversation at the 2025 Vivli Annual Meeting: buff.ly/rnmhdTN
#DataSharing #DataReuse
#DataSharing #DataReuse
Data Challenge – Lessons Learned from AMR Data Challenges
Data Challenge – Lessons Learned from AMR Data Challenges:
- Rebecca Li, Vivli (Moderator)
- Harry Akligoh, Northeastern University and Duplex Bioscience
- Kasim Allel Henriquez, University of…
buff.ly
November 11, 2025 at 5:04 PM
This week, we'll be highlighting a lot of content related to #AntimicrobialResistance or #AMR as we gear up for World AMR Awareness Week #WAAW 🦠next week. To start, catch up on the exciting AMR conversation at the 2025 Vivli Annual Meeting: buff.ly/rnmhdTN
#DataSharing #DataReuse
#DataSharing #DataReuse
Vivli is seeking an Executive Director for Vivli Europe (Vivli EU Stichting, in formation). The Executive Director will lead Vivli EU once formally registered and guide its early growth.
Read more at vivli.org/vivli-is-see....
Read more at vivli.org/vivli-is-see....
November 10, 2025 at 2:19 PM
Vivli is seeking an Executive Director for Vivli Europe (Vivli EU Stichting, in formation). The Executive Director will lead Vivli EU once formally registered and guide its early growth.
Read more at vivli.org/vivli-is-see....
Read more at vivli.org/vivli-is-see....
Congratulations to Tobias Polak, graduate of Erasmus University Rotterdam, on your public disclosure, “Augmenting Treatment Arms With External Data Through Propensity‐Score Weighted Power Priors: An Application in Expanded Access.” We’re proud to facilitate your access to data.
Augmenting Treatment Arms With External Data Through Propensity‐Score Weighted Power Priors: An Application in Expanded Access
The incorporation of real-world data to supplement the analysis of trials and improve decision-making has spurred the development of statistical techniques to account for introduced confounding.…
onlinelibrary.wiley.com
November 7, 2025 at 7:01 PM
Congratulations to Tobias Polak, graduate of Erasmus University Rotterdam, on your public disclosure, “Augmenting Treatment Arms With External Data Through Propensity‐Score Weighted Power Priors: An Application in Expanded Access.” We’re proud to facilitate your access to data.
Missed the 2025 Vivli Annual Meeting? No worries! You can catch the recordings on YouTube. In the "Lessons Learned from the Helmsley Type 1 Diabetes Challenge" panel, the panelists discussed how data challenges can lead to solutions that can help millions of people with #diabetes.
Data Challenge – Lessons Learned from the Helmsley Type 1 Diabetes Challenge
Data Challenge – Lessons Learned from the Helmsley Type 1 Diabetes Challenge:
- Deniz Dalton, The Leona M. and Harry B. Helmsley Charitable Trust (Moderator)
- Robin Gal, Jaeb Center for Health…
youtu.be
November 7, 2025 at 5:02 PM
Missed the 2025 Vivli Annual Meeting? No worries! You can catch the recordings on YouTube. In the "Lessons Learned from the Helmsley Type 1 Diabetes Challenge" panel, the panelists discussed how data challenges can lead to solutions that can help millions of people with #diabetes.
Congratulations to Fabricio Garelli of National University of La Plata and CONICET on your public disclosure, “Identification of Physical Activity Type in People with Diabetes: A Spectrogram-Based Approach.” We’re proud to facilitate your access to data. buff.ly/GXNtIJG #ClinicalResearch
Identification of Physical Activity Type in People with Diabetes: A Spectrogram-Based Approach | Diabetes Technology and Obesity Medicine
Background: Individuals with type 1 diabetes (T1D) require close glucose monitoring to prevent both short- and long-term complications. Physical activity (PA) is a significant source of variability…
doi.org
November 6, 2025 at 7:02 PM
Congratulations to Fabricio Garelli of National University of La Plata and CONICET on your public disclosure, “Identification of Physical Activity Type in People with Diabetes: A Spectrogram-Based Approach.” We’re proud to facilitate your access to data. buff.ly/GXNtIJG #ClinicalResearch
Have you ever wondered about Vivli's data anonymization process? We've developed a guide that explains how we transform raw #ClinicalTrialData into fully anonymized datasets suitable for secondary research. Read about it on our website. buff.ly/NOQZWX3 #DataSharing #DataReuse #DataPrivacy #Privacy
From Source Data to Anonymized Data: Protecting Privacy in Clinical Research - Vivli
At Vivli, we recognize that sharing clinical trial data responsibly begins with protecting participants’ privacy. We’ve developed a guide that illustrates how we transform raw ...
vivli.org
November 6, 2025 at 5:02 PM
Have you ever wondered about Vivli's data anonymization process? We've developed a guide that explains how we transform raw #ClinicalTrialData into fully anonymized datasets suitable for secondary research. Read about it on our website. buff.ly/NOQZWX3 #DataSharing #DataReuse #DataPrivacy #Privacy
Congrats to Frank Doyle of Royal College of Surgeons in Ireland on your public disclosure, “Do complex psychometric analyses really matter? Comparing multiple approaches using individual participant data from antidepressant trials.” We’re proud to facilitate your access to data.
Do complex psychometric analyses really matter? Comparing multiple approaches using individual participant data from antidepressant trials | Psychological Medicine | Cambridge Core
Do complex psychometric analyses really matter? Comparing multiple approaches using individual participant data from antidepressant trials - Volume 55
www.cambridge.org
November 5, 2025 at 7:02 PM
Congrats to Frank Doyle of Royal College of Surgeons in Ireland on your public disclosure, “Do complex psychometric analyses really matter? Comparing multiple approaches using individual participant data from antidepressant trials.” We’re proud to facilitate your access to data.
ICYMI The videos from the 2025 Vivli Annual Meeting are now on YouTube. Check out the opening session for insights from Vivli CEO Rebecca Li followed by a panel highlighting how #DataSharing is improving #CancerResearch, diagnosis, and treatment. buff.ly/EFerDNQ #Oncology #ClinicalTrialData
Welcome + Researcher and Data Contributor Panel – From Contribution to Impact in Oncology
Welcome and Introductions: Rebecca Li, Vivli, and Mike Stebbins, Science Advisors and Vivli
Researcher and Data Contributor Panel – From Contribution to Impact in Oncology:
- Murray Stewart, Vivli…
www.youtube.com
November 5, 2025 at 5:00 PM
ICYMI The videos from the 2025 Vivli Annual Meeting are now on YouTube. Check out the opening session for insights from Vivli CEO Rebecca Li followed by a panel highlighting how #DataSharing is improving #CancerResearch, diagnosis, and treatment. buff.ly/EFerDNQ #Oncology #ClinicalTrialData
Did you know that you can search our data repository using keywords or ID numbers? Learn more in this 5-minute overview: youtu.be/PolKqv1a7us.
Vivli Platform - Demo
YouTube video by Vivli Org
youtu.be
November 4, 2025 at 9:23 PM
Did you know that you can search our data repository using keywords or ID numbers? Learn more in this 5-minute overview: youtu.be/PolKqv1a7us.