United2EndMND
@united2endmnd.bsky.social
Novel gene therapies, funding for promising projects, earlier diagnosis through biopsy, ways to accelerate research, addressing heartbreaking trial failures, communications, frustrations with government agencies - all discussed at @lifearc.bsky.social summit
united2endmnd.org/2025/04/09/l...
united2endmnd.org/2025/04/09/l...
LifeArc Translational Science Summit MND & Rare Dementias
LifeArc Translational Science Summit on MND and Rare Dementias – a patient view Collaboration is vital in research for complicated neurodegenerative diseases, especially with MND.
united2endmnd.org
April 16, 2025 at 12:20 PM
Novel gene therapies, funding for promising projects, earlier diagnosis through biopsy, ways to accelerate research, addressing heartbreaking trial failures, communications, frustrations with government agencies - all discussed at @lifearc.bsky.social summit
united2endmnd.org/2025/04/09/l...
united2endmnd.org/2025/04/09/l...
For obvious reasons, we are, sadly, part of an ever-changing community. See our post to find out more about our aims/who we work with/what we've done together/what we're doing to help accelerate progress @mndresearch.bsky.social @ukmndri.bsky.social #United2EndMND
united2endmnd.org/2025/03/31/m...
united2endmnd.org/2025/03/31/m...
United2EndMND – committed to the acceleration of MND research
United2EndMND Committed to the acceleration of MND research United2EndMND is committed to promoting the acceleration of MND research towards meaningful treatments and, ultimately, a cure through a …
united2endmnd.org
April 16, 2025 at 12:19 PM
For obvious reasons, we are, sadly, part of an ever-changing community. See our post to find out more about our aims/who we work with/what we've done together/what we're doing to help accelerate progress @mndresearch.bsky.social @ukmndri.bsky.social #United2EndMND
united2endmnd.org/2025/03/31/m...
united2endmnd.org/2025/03/31/m...
@ukmndri.bsky.social post on ellorarxine. "There is currently no evidence that (it) is safe in humans. However, if… evidence becomes available, we would be delighted to work with the company…to advise on…fastest way to assess it in clinical trials"
ukmndri.org/2025/02/07/a...
ukmndri.org/2025/02/07/a...
An update on Ellorarxine - UKMNDRI
Why this statement?
As neurologists specialising in the care of people living with motor neuron disease, we are receiving increasing enquiries about a drug called ellorarxine. Many of our patients are...
ukmndri.org
February 8, 2025 at 10:29 AM
@ukmndri.bsky.social post on ellorarxine. "There is currently no evidence that (it) is safe in humans. However, if… evidence becomes available, we would be delighted to work with the company…to advise on…fastest way to assess it in clinical trials"
ukmndri.org/2025/02/07/a...
ukmndri.org/2025/02/07/a...