Tinymegatron
@tinymegatron.bsky.social
Noonan Syndrome & HCM❤️💙ND/LD🧠 Zipper Club X3❤️🩹 Exercise Enthusiast 💪🏋♀️Animal Mama 🐈⬛️🐈🦎 Queer Canadian🏳️🌈🇨🇦
Me: "Hey Doc I'm having these symptoms."
Doc: "Okay take this medication."
Me: * reads medication side effects"*
The Side effects are the exact same as my symptoms.
Me: "Oh great, thanks..."
Doc: "Okay take this medication."
Me: * reads medication side effects"*
The Side effects are the exact same as my symptoms.
Me: "Oh great, thanks..."
February 20, 2025 at 2:22 AM
Me: "Hey Doc I'm having these symptoms."
Doc: "Okay take this medication."
Me: * reads medication side effects"*
The Side effects are the exact same as my symptoms.
Me: "Oh great, thanks..."
Doc: "Okay take this medication."
Me: * reads medication side effects"*
The Side effects are the exact same as my symptoms.
Me: "Oh great, thanks..."
Tonight I cried after I tried to test my INR with my home kit, 4 times. Every test failed and couldn't get a reading. Wasted test strips. Wasted my last lancets. These little continuous health management things are so incredibly frustrating at times.
February 14, 2025 at 2:34 AM
Tonight I cried after I tried to test my INR with my home kit, 4 times. Every test failed and couldn't get a reading. Wasted test strips. Wasted my last lancets. These little continuous health management things are so incredibly frustrating at times.
Today is the first day of Noonan Syndrome Awareness Month! I will be sharing 1 fact a day for the Month of February to spread awareness for Noonan Syndrome which is thd genetic condition I have and effects my everyday life.
February 1, 2025 at 12:42 PM
Today is the first day of Noonan Syndrome Awareness Month! I will be sharing 1 fact a day for the Month of February to spread awareness for Noonan Syndrome which is thd genetic condition I have and effects my everyday life.
Today while in the gym with the preschoolers I was trying my hand at "basketball" I predictably miss my shot and a kiddo tells me,
"Meghan you have to grow tall than you can get it!"
I love how she tried to encourage me but unfortunately I've not grown an inch since my early teens.
"Meghan you have to grow tall than you can get it!"
I love how she tried to encourage me but unfortunately I've not grown an inch since my early teens.
January 30, 2025 at 5:10 PM
Today while in the gym with the preschoolers I was trying my hand at "basketball" I predictably miss my shot and a kiddo tells me,
"Meghan you have to grow tall than you can get it!"
I love how she tried to encourage me but unfortunately I've not grown an inch since my early teens.
"Meghan you have to grow tall than you can get it!"
I love how she tried to encourage me but unfortunately I've not grown an inch since my early teens.
The irony is never lost on me when I come dangerously close to missing (and occasionally sometimes actually do miss) my bus because I was on my phone to check the TRANSIT app.
January 29, 2025 at 12:42 PM
The irony is never lost on me when I come dangerously close to missing (and occasionally sometimes actually do miss) my bus because I was on my phone to check the TRANSIT app.
Could really use that trillion dollars...
January 29, 2025 at 1:22 AM
Could really use that trillion dollars...
As I was on my way out from work today I'm of course bombarded with the usual questions from the preschoolers like "where are you going?" "Why do you need To go?" "will you come back?" Than one of the kiddos hit me with,
January 28, 2025 at 11:42 PM
As I was on my way out from work today I'm of course bombarded with the usual questions from the preschoolers like "where are you going?" "Why do you need To go?" "will you come back?" Than one of the kiddos hit me with,
Reposted by Tinymegatron
It’s actually a crucial time to be a person who cares about times, now more than ever.
January 23, 2025 at 1:50 AM
It’s actually a crucial time to be a person who cares about times, now more than ever.
Reposted by Tinymegatron
Sure is a bad time to be a person who cares about things.
January 22, 2025 at 4:20 AM
Sure is a bad time to be a person who cares about things.
Actual thing I said to my co-worker yesterday after stammering and struggling to ask a simple question:
"Sorry, I think my brain is running on power saving mode"
"Sorry, I think my brain is running on power saving mode"
January 16, 2025 at 11:29 AM
Actual thing I said to my co-worker yesterday after stammering and struggling to ask a simple question:
"Sorry, I think my brain is running on power saving mode"
"Sorry, I think my brain is running on power saving mode"
Reposted by Tinymegatron
disabled people are often left behind not because we’re helpless, but because these systems were not built with us in mind
January 12, 2025 at 6:40 PM
disabled people are often left behind not because we’re helpless, but because these systems were not built with us in mind
Hi there, Bluesky!
I'm Meg.
What a better day to introduce myself than my birthday 🎂 🥳
I like to share about my health & fitness journey, living as a disabled person with Noonan Syndrome and my art. Among other things.
If any of these interests you consider giving me a follow!
I'm Meg.
What a better day to introduce myself than my birthday 🎂 🥳
I like to share about my health & fitness journey, living as a disabled person with Noonan Syndrome and my art. Among other things.
If any of these interests you consider giving me a follow!
January 10, 2025 at 7:11 PM
Hi there, Bluesky!
I'm Meg.
What a better day to introduce myself than my birthday 🎂 🥳
I like to share about my health & fitness journey, living as a disabled person with Noonan Syndrome and my art. Among other things.
If any of these interests you consider giving me a follow!
I'm Meg.
What a better day to introduce myself than my birthday 🎂 🥳
I like to share about my health & fitness journey, living as a disabled person with Noonan Syndrome and my art. Among other things.
If any of these interests you consider giving me a follow!