The LAM Foundation
@thelamfoundation.bsky.social
The LAM Foundation's mission is to catalyze new treatments—and ultimately a cure—for LAM by advancing research, supporting compassionate care, and amplifying the voice of women with rare diseases. www.thelamfoundation.org
Pinned
Join our supportive network of scientists, clinicians, and LAM patients. Receive valuable resources and stay informed on the latest LAM-related news and events.
https://www.thelamfoundation.org/join-our-community/?utm_source=BS&utm_medium=Post&utm_id=Join+List
#Curelam #lymphangioleiomyomatosis
https://www.thelamfoundation.org/join-our-community/?utm_source=BS&utm_medium=Post&utm_id=Join+List
#Curelam #lymphangioleiomyomatosis
This holiday, give a gift that gives back!
Check out our “Can you say lymphangioleiomyomatosis” t-shirts and Rosie mugs.
A portion of the proceeds supports The LAM Foundation.
https://tlf-merch.printify.me/category/all/1
#curelam #thelamfoundation
Check out our “Can you say lymphangioleiomyomatosis” t-shirts and Rosie mugs.
A portion of the proceeds supports The LAM Foundation.
https://tlf-merch.printify.me/category/all/1
#curelam #thelamfoundation
December 17, 2025 at 9:55 PM
This holiday, give a gift that gives back!
Check out our “Can you say lymphangioleiomyomatosis” t-shirts and Rosie mugs.
A portion of the proceeds supports The LAM Foundation.
https://tlf-merch.printify.me/category/all/1
#curelam #thelamfoundation
Check out our “Can you say lymphangioleiomyomatosis” t-shirts and Rosie mugs.
A portion of the proceeds supports The LAM Foundation.
https://tlf-merch.printify.me/category/all/1
#curelam #thelamfoundation
Finish 2025 strong with The LAM Foundation! 💪
Your support gives women with LAM hope. Jennifer found her life again thanks to you!
Make a gift today: thelamfoundation.org/donate.
Let’s empower the LAM community!
#curelam #thelamfoundation
Your support gives women with LAM hope. Jennifer found her life again thanks to you!
Make a gift today: thelamfoundation.org/donate.
Let’s empower the LAM community!
#curelam #thelamfoundation
December 16, 2025 at 8:02 PM
Finish 2025 strong with The LAM Foundation! 💪
Your support gives women with LAM hope. Jennifer found her life again thanks to you!
Make a gift today: thelamfoundation.org/donate.
Let’s empower the LAM community!
#curelam #thelamfoundation
Your support gives women with LAM hope. Jennifer found her life again thanks to you!
Make a gift today: thelamfoundation.org/donate.
Let’s empower the LAM community!
#curelam #thelamfoundation
Last Chance! Circle of Hope webinar is TONIGHT, 12/15, 7 PM – 8:30 PM ET.
Join us for a discussion with post-transplant patients as they reflect on their experiences and the things they wish they’d known along the way.
Register: https://www.tfaforms.com/5201758
#Raredisease #LAM
Join us for a discussion with post-transplant patients as they reflect on their experiences and the things they wish they’d known along the way.
Register: https://www.tfaforms.com/5201758
#Raredisease #LAM
December 15, 2025 at 1:00 PM
Last Chance! Circle of Hope webinar is TONIGHT, 12/15, 7 PM – 8:30 PM ET.
Join us for a discussion with post-transplant patients as they reflect on their experiences and the things they wish they’d known along the way.
Register: https://www.tfaforms.com/5201758
#Raredisease #LAM
Join us for a discussion with post-transplant patients as they reflect on their experiences and the things they wish they’d known along the way.
Register: https://www.tfaforms.com/5201758
#Raredisease #LAM
Don't forget to register! Circle of Hope webinar is on Mon, 12/15, 7 PM – 8:30 PM ET.
Join us for a discussion with post-transplant patients as they reflect on their experiences and the things they wish they’d known along the way.
Register: https://www.tfaforms.com/5201758
#Raredisease #LAM
Join us for a discussion with post-transplant patients as they reflect on their experiences and the things they wish they’d known along the way.
Register: https://www.tfaforms.com/5201758
#Raredisease #LAM
December 13, 2025 at 10:00 PM
Don't forget to register! Circle of Hope webinar is on Mon, 12/15, 7 PM – 8:30 PM ET.
Join us for a discussion with post-transplant patients as they reflect on their experiences and the things they wish they’d known along the way.
Register: https://www.tfaforms.com/5201758
#Raredisease #LAM
Join us for a discussion with post-transplant patients as they reflect on their experiences and the things they wish they’d known along the way.
Register: https://www.tfaforms.com/5201758
#Raredisease #LAM
Thank you for supporting LAM patients like Jen!
💪 Watch her inspiring story and see how The LAM Foundation has helped her thrive: https://youtu.be/hns5XiNLutU
#PatientSupport #HopeAndStrength #ChronicIllnessAwareness #LAMFoundation
💪 Watch her inspiring story and see how The LAM Foundation has helped her thrive: https://youtu.be/hns5XiNLutU
#PatientSupport #HopeAndStrength #ChronicIllnessAwareness #LAMFoundation
December 11, 2025 at 8:01 PM
Thank you for supporting LAM patients like Jen!
💪 Watch her inspiring story and see how The LAM Foundation has helped her thrive: https://youtu.be/hns5XiNLutU
#PatientSupport #HopeAndStrength #ChronicIllnessAwareness #LAMFoundation
💪 Watch her inspiring story and see how The LAM Foundation has helped her thrive: https://youtu.be/hns5XiNLutU
#PatientSupport #HopeAndStrength #ChronicIllnessAwareness #LAMFoundation
You can change someone’s story, just like Jennifer’s.
After being diagnosed with LAM, she found hope through The LAM Foundation. Now, she thrives and inspires others! Your support makes this possible.
Let’s finish 2025 strong for women with LAM.
thelamfoundation.org/donate
#RareDisease
After being diagnosed with LAM, she found hope through The LAM Foundation. Now, she thrives and inspires others! Your support makes this possible.
Let’s finish 2025 strong for women with LAM.
thelamfoundation.org/donate
#RareDisease
December 9, 2025 at 9:35 PM
You can change someone’s story, just like Jennifer’s.
After being diagnosed with LAM, she found hope through The LAM Foundation. Now, she thrives and inspires others! Your support makes this possible.
Let’s finish 2025 strong for women with LAM.
thelamfoundation.org/donate
#RareDisease
After being diagnosed with LAM, she found hope through The LAM Foundation. Now, she thrives and inspires others! Your support makes this possible.
Let’s finish 2025 strong for women with LAM.
thelamfoundation.org/donate
#RareDisease
In 1 week: Our Circle of Hope webinar is Mon, Dec. 15, 7PM – 8:30PM ET.
Please join us for a discussion with post-transplant patients as they reflect on their experiences and the things they wish they’d known along the way.
Register: https://www.tfaforms.com/5201758
#raredisease #LAM
Please join us for a discussion with post-transplant patients as they reflect on their experiences and the things they wish they’d known along the way.
Register: https://www.tfaforms.com/5201758
#raredisease #LAM
December 8, 2025 at 8:00 PM
In 1 week: Our Circle of Hope webinar is Mon, Dec. 15, 7PM – 8:30PM ET.
Please join us for a discussion with post-transplant patients as they reflect on their experiences and the things they wish they’d known along the way.
Register: https://www.tfaforms.com/5201758
#raredisease #LAM
Please join us for a discussion with post-transplant patients as they reflect on their experiences and the things they wish they’d known along the way.
Register: https://www.tfaforms.com/5201758
#raredisease #LAM
Our Scientific Advisory Board recently reviewed 2025 grant applications, focusing on research benefiting LAM patients in 3-5 years.
We received 3 Clinical Research Award & 14 Pilot Feasibility Award proposals from 4 countries.
Learn More: https://ow.ly/pjz150XANzv
#Research #raredisease 🧪
We received 3 Clinical Research Award & 14 Pilot Feasibility Award proposals from 4 countries.
Learn More: https://ow.ly/pjz150XANzv
#Research #raredisease 🧪
December 5, 2025 at 5:50 PM
Our Scientific Advisory Board recently reviewed 2025 grant applications, focusing on research benefiting LAM patients in 3-5 years.
We received 3 Clinical Research Award & 14 Pilot Feasibility Award proposals from 4 countries.
Learn More: https://ow.ly/pjz150XANzv
#Research #raredisease 🧪
We received 3 Clinical Research Award & 14 Pilot Feasibility Award proposals from 4 countries.
Learn More: https://ow.ly/pjz150XANzv
#Research #raredisease 🧪
THANK YOU for making a difference this #GivingTuesday!
Join Megan's livestream Dec 6-7 to support The LAM Foundation: https://www.twitch.tv/gamerprincess92
Donate: thelamfoundation.org/GiveHope
#LAMFoundation #RareDisease #GivingHope #Nonprofit #charitystream #twitch #twitchstream
Join Megan's livestream Dec 6-7 to support The LAM Foundation: https://www.twitch.tv/gamerprincess92
Donate: thelamfoundation.org/GiveHope
#LAMFoundation #RareDisease #GivingHope #Nonprofit #charitystream #twitch #twitchstream
December 4, 2025 at 4:01 PM
THANK YOU for making a difference this #GivingTuesday!
Join Megan's livestream Dec 6-7 to support The LAM Foundation: https://www.twitch.tv/gamerprincess92
Donate: thelamfoundation.org/GiveHope
#LAMFoundation #RareDisease #GivingHope #Nonprofit #charitystream #twitch #twitchstream
Join Megan's livestream Dec 6-7 to support The LAM Foundation: https://www.twitch.tv/gamerprincess92
Donate: thelamfoundation.org/GiveHope
#LAMFoundation #RareDisease #GivingHope #Nonprofit #charitystream #twitch #twitchstream
In 2 weeks: Our Circle of Hope webinar is Mon, Dec. 15, 7 PM – 8:30 PM ET.
Please join us for a discussion with post-transplant patients as they reflect on their experiences and the things they wish they’d known along the way.
Register: https://www.tfaforms.com/5201758
#Raredisease #LAM
Please join us for a discussion with post-transplant patients as they reflect on their experiences and the things they wish they’d known along the way.
Register: https://www.tfaforms.com/5201758
#Raredisease #LAM
December 3, 2025 at 9:00 PM
In 2 weeks: Our Circle of Hope webinar is Mon, Dec. 15, 7 PM – 8:30 PM ET.
Please join us for a discussion with post-transplant patients as they reflect on their experiences and the things they wish they’d known along the way.
Register: https://www.tfaforms.com/5201758
#Raredisease #LAM
Please join us for a discussion with post-transplant patients as they reflect on their experiences and the things they wish they’d known along the way.
Register: https://www.tfaforms.com/5201758
#Raredisease #LAM
🎮 #GivingTuesday is here!
We're supporting women with LAM, like Megan. Your gift fuels hope! Donate now: https://give.thelamfoundation.org/campaign/738994/donate #LAMFoundation #RareDisease #WomenInScience #GivingHope #Nonprofit
We're supporting women with LAM, like Megan. Your gift fuels hope! Donate now: https://give.thelamfoundation.org/campaign/738994/donate #LAMFoundation #RareDisease #WomenInScience #GivingHope #Nonprofit
December 2, 2025 at 9:00 PM
🎮 #GivingTuesday is here!
We're supporting women with LAM, like Megan. Your gift fuels hope! Donate now: https://give.thelamfoundation.org/campaign/738994/donate #LAMFoundation #RareDisease #WomenInScience #GivingHope #Nonprofit
We're supporting women with LAM, like Megan. Your gift fuels hope! Donate now: https://give.thelamfoundation.org/campaign/738994/donate #LAMFoundation #RareDisease #WomenInScience #GivingHope #Nonprofit
#GivingTuesday is here! Make an impact for women with LAM, like Megan.
🎁Donate in her honor: thelamfoundation.org/GiveHope.
🎮 Join her livestream Dec 6–7: https://www.twitch.tv/gamerprincess92.
#GivingHope #TheLAMFoundation #RareDisease
🎁Donate in her honor: thelamfoundation.org/GiveHope.
🎮 Join her livestream Dec 6–7: https://www.twitch.tv/gamerprincess92.
#GivingHope #TheLAMFoundation #RareDisease
December 2, 2025 at 3:30 PM
#GivingTuesday is here! Make an impact for women with LAM, like Megan.
🎁Donate in her honor: thelamfoundation.org/GiveHope.
🎮 Join her livestream Dec 6–7: https://www.twitch.tv/gamerprincess92.
#GivingHope #TheLAMFoundation #RareDisease
🎁Donate in her honor: thelamfoundation.org/GiveHope.
🎮 Join her livestream Dec 6–7: https://www.twitch.tv/gamerprincess92.
#GivingHope #TheLAMFoundation #RareDisease
Join Megan's mission this #GivingTuesday!
Donate → thelamfoundation.org/givehope
Fundraise → thelamfoundation.org/create-a-fundraiser
Follow on Twitch → https://www.twitch.tv/gamerprincess92
#GivingTuesday #TheLAMFoundation #CureLAM #RareDisease #GamingForGood #GivingHope
Donate → thelamfoundation.org/givehope
Fundraise → thelamfoundation.org/create-a-fundraiser
Follow on Twitch → https://www.twitch.tv/gamerprincess92
#GivingTuesday #TheLAMFoundation #CureLAM #RareDisease #GamingForGood #GivingHope
December 1, 2025 at 8:05 PM
Join Megan's mission this #GivingTuesday!
Donate → thelamfoundation.org/givehope
Fundraise → thelamfoundation.org/create-a-fundraiser
Follow on Twitch → https://www.twitch.tv/gamerprincess92
#GivingTuesday #TheLAMFoundation #CureLAM #RareDisease #GamingForGood #GivingHope
Donate → thelamfoundation.org/givehope
Fundraise → thelamfoundation.org/create-a-fundraiser
Follow on Twitch → https://www.twitch.tv/gamerprincess92
#GivingTuesday #TheLAMFoundation #CureLAM #RareDisease #GamingForGood #GivingHope
Give a gift that gives back! 🎁 Check out our store for popular items like the ‘Can you say lymphangioleiomyomatosis’ t-shirts and Rosie mugs. A portion supports The LAM Foundation. Spread the word! https://tlf-merch.printify.me/category/all/1
November 28, 2025 at 2:55 PM
Give a gift that gives back! 🎁 Check out our store for popular items like the ‘Can you say lymphangioleiomyomatosis’ t-shirts and Rosie mugs. A portion supports The LAM Foundation. Spread the word! https://tlf-merch.printify.me/category/all/1
We are incredibly grateful to the LAM community. Your support inspires us every day as we work toward a future without LAM.
#ICYMI - Please enjoy this video from members of our Board of Directors.
https://youtu.be/yEmI9gAWn40
#curelam See less
#ICYMI - Please enjoy this video from members of our Board of Directors.
https://youtu.be/yEmI9gAWn40
#curelam See less
November 27, 2025 at 5:01 PM
We are incredibly grateful to the LAM community. Your support inspires us every day as we work toward a future without LAM.
#ICYMI - Please enjoy this video from members of our Board of Directors.
https://youtu.be/yEmI9gAWn40
#curelam See less
#ICYMI - Please enjoy this video from members of our Board of Directors.
https://youtu.be/yEmI9gAWn40
#curelam See less
It's here! The November edition of The LAM Foundation newsletter is now available. Click here to read the latest: https://us12.campaign-archive.com/?u=77bdf9dc3cdccc92acf5d9f8e&id=5f7d1080ec
#curelam #LAMposium2025 #raredisease #thelamfoundation
#curelam #LAMposium2025 #raredisease #thelamfoundation
November 20, 2025 at 9:01 PM
It's here! The November edition of The LAM Foundation newsletter is now available. Click here to read the latest: https://us12.campaign-archive.com/?u=77bdf9dc3cdccc92acf5d9f8e&id=5f7d1080ec
#curelam #LAMposium2025 #raredisease #thelamfoundation
#curelam #LAMposium2025 #raredisease #thelamfoundation
You are invited to a Circle of Hope webinar on 12/15, 7 PM – 8:30 PM ET.
Please join us for a discussion with post-transplant patients as they reflect on their experiences and the things they wish they’d known along the way.
Register: https://www.tfaforms.com/5201758
#TransplantSupport #Curelam
Please join us for a discussion with post-transplant patients as they reflect on their experiences and the things they wish they’d known along the way.
Register: https://www.tfaforms.com/5201758
#TransplantSupport #Curelam
November 19, 2025 at 10:00 PM
You are invited to a Circle of Hope webinar on 12/15, 7 PM – 8:30 PM ET.
Please join us for a discussion with post-transplant patients as they reflect on their experiences and the things they wish they’d known along the way.
Register: https://www.tfaforms.com/5201758
#TransplantSupport #Curelam
Please join us for a discussion with post-transplant patients as they reflect on their experiences and the things they wish they’d known along the way.
Register: https://www.tfaforms.com/5201758
#TransplantSupport #Curelam
Tonight: Join 2025 International LAM Research Conference Co-Chairs, Dr. Henske and Dr. Johnson, as they share conference highlights, key takeaways, and what has them excited for the future of LAM research.
Register Now: https://www.tfaforms.com/5199266
#RareDiseaseResearch
Register Now: https://www.tfaforms.com/5199266
#RareDiseaseResearch
November 18, 2025 at 3:00 PM
Tonight: Join 2025 International LAM Research Conference Co-Chairs, Dr. Henske and Dr. Johnson, as they share conference highlights, key takeaways, and what has them excited for the future of LAM research.
Register Now: https://www.tfaforms.com/5199266
#RareDiseaseResearch
Register Now: https://www.tfaforms.com/5199266
#RareDiseaseResearch
Tomorrow: Join 2025 International LAM Research Conference Co-Chairs, Dr. Henske and Dr. Johnson, as they share conference highlights, key takeaways, and what has them excited for the future of LAM research.
Register Now: https://www.tfaforms.com/5199266
#RareDiseaseResearch
Register Now: https://www.tfaforms.com/5199266
#RareDiseaseResearch
November 17, 2025 at 9:00 PM
Tomorrow: Join 2025 International LAM Research Conference Co-Chairs, Dr. Henske and Dr. Johnson, as they share conference highlights, key takeaways, and what has them excited for the future of LAM research.
Register Now: https://www.tfaforms.com/5199266
#RareDiseaseResearch
Register Now: https://www.tfaforms.com/5199266
#RareDiseaseResearch
Join 2025 International LAM Research Conference Co-Chairs, Dr. Elizabeth Henske and Dr. Simon Johnson, as they share conference highlights, key takeaways, and what has them excited for the future of LAM research.
Register Now: https://www.tfaforms.com/5199266
#RareDiseaseResearch
Register Now: https://www.tfaforms.com/5199266
#RareDiseaseResearch
November 15, 2025 at 11:00 PM
Join 2025 International LAM Research Conference Co-Chairs, Dr. Elizabeth Henske and Dr. Simon Johnson, as they share conference highlights, key takeaways, and what has them excited for the future of LAM research.
Register Now: https://www.tfaforms.com/5199266
#RareDiseaseResearch
Register Now: https://www.tfaforms.com/5199266
#RareDiseaseResearch
Meet Frances, our LAM co-liaison for Region 15: NM, southern, and western TX! Diagnosed in 2013, she offers hope and support to LAM patients, especially in rural areas and to those considering adoption.
Find a liaison near you:
https://bit.ly/46qbsuA
#Curelam
Find a liaison near you:
https://bit.ly/46qbsuA
#Curelam
November 12, 2025 at 9:00 PM
Meet Frances, our LAM co-liaison for Region 15: NM, southern, and western TX! Diagnosed in 2013, she offers hope and support to LAM patients, especially in rural areas and to those considering adoption.
Find a liaison near you:
https://bit.ly/46qbsuA
#Curelam
Find a liaison near you:
https://bit.ly/46qbsuA
#Curelam
Join 2025 International LAM Research Conference Co-Chairs, Dr. Elizabeth Henske and Dr. Simon Johnson, as they share conference highlights, key takeaways, and what has them excited for the future of LAM research.
Register Now: https://www.tfaforms.com/5199266
#RareDiseaseResearch
Register Now: https://www.tfaforms.com/5199266
#RareDiseaseResearch
November 11, 2025 at 9:15 PM
Join 2025 International LAM Research Conference Co-Chairs, Dr. Elizabeth Henske and Dr. Simon Johnson, as they share conference highlights, key takeaways, and what has them excited for the future of LAM research.
Register Now: https://www.tfaforms.com/5199266
#RareDiseaseResearch
Register Now: https://www.tfaforms.com/5199266
#RareDiseaseResearch
Shoutout to The LAMinators, Chowchilla Champs, Team Denver, and Team Love my Lungs! Together, they exceeded their combined Laps for LAM goal of $10K!
We are grateful to everyone who fundraised, donated, or shared a post. Your support is vital to the LAM community.
#Curelam
We are grateful to everyone who fundraised, donated, or shared a post. Your support is vital to the LAM community.
#Curelam
November 6, 2025 at 6:55 PM
Shoutout to The LAMinators, Chowchilla Champs, Team Denver, and Team Love my Lungs! Together, they exceeded their combined Laps for LAM goal of $10K!
We are grateful to everyone who fundraised, donated, or shared a post. Your support is vital to the LAM community.
#Curelam
We are grateful to everyone who fundraised, donated, or shared a post. Your support is vital to the LAM community.
#Curelam
Join us for Rare Disease Week on Capitol Hill, Feb 24–26, 2026! Educate Congress & apply for travel scholarships by Nov 8. Learn More: https://everylifefoundation.org/rare-advocates/rare-disease-week/ #RareDiseaseWeek #LAMFoundation #EveryLifeFoundation #CapitolHill #RareDiseaseAdvocacy
November 5, 2025 at 10:00 PM
Join us for Rare Disease Week on Capitol Hill, Feb 24–26, 2026! Educate Congress & apply for travel scholarships by Nov 8. Learn More: https://everylifefoundation.org/rare-advocates/rare-disease-week/ #RareDiseaseWeek #LAMFoundation #EveryLifeFoundation #CapitolHill #RareDiseaseAdvocacy
Join 2025 International LAM Research Conference Co-Chairs, Dr. Elizabeth Henske and Dr. Simon Johnson, as they share conference highlights, key takeaways, and what has them excited for the future of LAM research.
Register Now: https://www.tfaforms.com/5199266
#RareDiseaseResearch
Register Now: https://www.tfaforms.com/5199266
#RareDiseaseResearch
November 4, 2025 at 9:15 PM
Join 2025 International LAM Research Conference Co-Chairs, Dr. Elizabeth Henske and Dr. Simon Johnson, as they share conference highlights, key takeaways, and what has them excited for the future of LAM research.
Register Now: https://www.tfaforms.com/5199266
#RareDiseaseResearch
Register Now: https://www.tfaforms.com/5199266
#RareDiseaseResearch