Prunos spinosa
banner
spinosaprunus.bsky.social
Prunos spinosa
@spinosaprunus.bsky.social
Mom and caretaker of two kids with severe damage from COVID. One kid with #severeMEcfs / #longCovid and one that got diabetes 1 from COVID
Social worker,
Trying to raise awareness and sharing what helps us in the hope it might help others
2 weeks after the 15th Help apheresis & 1.5 weeks after the 6th #ivig :
My #mecfs kid has been taking part digitally with avatar in 3 school lessons daily from 9.45 on since Thursday & after a break been able to do some homework in the afternoon. This was unthinkable before..
September 30, 2025 at 8:24 AM
Now with Englisch subtitles
wrote this song for my kid with ##mecfs with her quotes & she sang it & drew for all the sick #longcovidkids

#spn inspired: „where is my hunter? Who‘ll rescue me?“
Please support the #lemonchallengemecfs help to safe our kids
#spnfamily

youtu.be/8Xd6NaCrPnw?...
June 24, 2025 at 8:03 PM
@lisaberrylive.bsky.social
Please support this good cause
May 27, 2025 at 7:03 AM
Dear #spnfamily my #kid with #mecfs designed with @idlingintheimpala.bsky.social a cool bag to raise awareness fo fans with #longCovid #mecfs

profits go to #lemonchallengemecfs
to fund research for a cure. 🙏 buy a bag &
#GiveHope
#supernatural
idlingintheimpala.com/en-eur/produ...
Fighting The Reaper Tote - ME/CFS Awareness
The official website and shop of Idling In The Impala Podcast. Find the latest content, buy merch, and support your favorite creator.
idlingintheimpala.com
May 26, 2025 at 2:16 PM
Here is the English translation of our song. Sung byy kid with #mecfs #longcovid for all the kids with long COVID. Hope you'll enjoy it. youtu.be/8Xd6NaCrPnw?...
March 1, 2025 at 9:23 AM
wrote this song for my #mecfs #kid & all the sick kids out there. My Kid sang &did the drawings. Hope your kids like it. 🙏 Share to help spread awareness for #longCovid kids #millionsmissing

youtu.be/8Xd6NaCrPnw?...
Der Wolf
YouTube video by Hans-Carl Oberdalhoff
youtu.be
February 26, 2025 at 9:05 PM
Watched this for my sleep disorder. But this nurologist is discribing so many symptoms my #mecfs Kid has & what to do in detail. Great Interview. Worth listening to for all with #mecfs #longcovid
We're doing her rightsleep program now
#nichtgenesen

youtube.com/watch?v=g-Do...
youtube.com
February 16, 2025 at 10:00 AM
This it what it feels like, when your child is severely ill. #art by 13 year old Rebecca, who is severely ill with ##longcovid #mecfs. For over a year misdiagnosed #frauenticket #youngartist #kidswithmecfs #nichtgenesen
February 16, 2025 at 9:30 AM