Smart Patients
@smartpatients.bsky.social
Smart Patients - a peer-to-peer support forum where patients learn from each other about treatments, challenges, and how it all fits into the context of their experience.
www.smartpatients.com
https://linktr.ee/smartpatients
www.smartpatients.com
https://linktr.ee/smartpatients
Anyone else going to be at the Cervivor Cancer Summit tomorrow to learn from experts, advocates, patients, and survivors on strategies to end cervical cancer?
If so, please leave a comment so we can connect in person!
If so, please leave a comment so we can connect in person!
January 22, 2026 at 4:50 PM
Anyone else going to be at the Cervivor Cancer Summit tomorrow to learn from experts, advocates, patients, and survivors on strategies to end cervical cancer?
If so, please leave a comment so we can connect in person!
If so, please leave a comment so we can connect in person!
Not all rescues look like relief.
In Movement III of "I Am...Rescued by Music," patients share songs that tell the truth: https://research.smartpatients.com/resources/i-amrescued-by-music-1
#MusicHeals #PatientStories #SmartPatients #MusicTherapy #AuthenticGrief
In Movement III of "I Am...Rescued by Music," patients share songs that tell the truth: https://research.smartpatients.com/resources/i-amrescued-by-music-1
#MusicHeals #PatientStories #SmartPatients #MusicTherapy #AuthenticGrief
January 21, 2026 at 5:00 PM
Not all rescues look like relief.
In Movement III of "I Am...Rescued by Music," patients share songs that tell the truth: https://research.smartpatients.com/resources/i-amrescued-by-music-1
#MusicHeals #PatientStories #SmartPatients #MusicTherapy #AuthenticGrief
In Movement III of "I Am...Rescued by Music," patients share songs that tell the truth: https://research.smartpatients.com/resources/i-amrescued-by-music-1
#MusicHeals #PatientStories #SmartPatients #MusicTherapy #AuthenticGrief
30% of desmoid tumors shrink on their own. 30% stay stable. 40% grow. So when do you treat and when do you wait? In a recent Ask the Expert session, Dr. Dale Shepard from Cleveland Clinic addressed this question.
Read more: https://ow.ly/v47850XWQxR
#DesmoidTumors #SmartPatients
Read more: https://ow.ly/v47850XWQxR
#DesmoidTumors #SmartPatients
January 20, 2026 at 7:00 PM
30% of desmoid tumors shrink on their own. 30% stay stable. 40% grow. So when do you treat and when do you wait? In a recent Ask the Expert session, Dr. Dale Shepard from Cleveland Clinic addressed this question.
Read more: https://ow.ly/v47850XWQxR
#DesmoidTumors #SmartPatients
Read more: https://ow.ly/v47850XWQxR
#DesmoidTumors #SmartPatients
"Life's most persistent and urgent question is, 'What are you doing for others?'"
—Dr. Martin Luther King Jr.
On MLK Day, we celebrate our Smart Patients' members who honor what Dr. King called the Beloved Community.
What does community mean to you?
#MLKDay #BelovedCommunity #SmartPatients
—Dr. Martin Luther King Jr.
On MLK Day, we celebrate our Smart Patients' members who honor what Dr. King called the Beloved Community.
What does community mean to you?
#MLKDay #BelovedCommunity #SmartPatients
January 19, 2026 at 6:00 PM
"Life's most persistent and urgent question is, 'What are you doing for others?'"
—Dr. Martin Luther King Jr.
On MLK Day, we celebrate our Smart Patients' members who honor what Dr. King called the Beloved Community.
What does community mean to you?
#MLKDay #BelovedCommunity #SmartPatients
—Dr. Martin Luther King Jr.
On MLK Day, we celebrate our Smart Patients' members who honor what Dr. King called the Beloved Community.
What does community mean to you?
#MLKDay #BelovedCommunity #SmartPatients
Valuable advice comes from other patients. Like when someone asks: "What do you eat when your appetite disappears?" The Smart Patients community responds.
Join a community where real experience = real support: https://www.smartpatients.com/
#PatientCommunity #SmartPatients #TreatmentSideEffects
Join a community where real experience = real support: https://www.smartpatients.com/
#PatientCommunity #SmartPatients #TreatmentSideEffects
January 18, 2026 at 5:00 PM
Valuable advice comes from other patients. Like when someone asks: "What do you eat when your appetite disappears?" The Smart Patients community responds.
Join a community where real experience = real support: https://www.smartpatients.com/
#PatientCommunity #SmartPatients #TreatmentSideEffects
Join a community where real experience = real support: https://www.smartpatients.com/
#PatientCommunity #SmartPatients #TreatmentSideEffects
Valuable advice comes from other patients.
Like when someone asks: "What do you eat when your appetite disappears?" The Smart Patients community responds.
Join a community where real experience = real support: https://www.smartpatients.com/
#SmartPatients #TreatmentSideEffects #PatientCommunity
Like when someone asks: "What do you eat when your appetite disappears?" The Smart Patients community responds.
Join a community where real experience = real support: https://www.smartpatients.com/
#SmartPatients #TreatmentSideEffects #PatientCommunity
January 18, 2026 at 4:40 PM
Valuable advice comes from other patients.
Like when someone asks: "What do you eat when your appetite disappears?" The Smart Patients community responds.
Join a community where real experience = real support: https://www.smartpatients.com/
#SmartPatients #TreatmentSideEffects #PatientCommunity
Like when someone asks: "What do you eat when your appetite disappears?" The Smart Patients community responds.
Join a community where real experience = real support: https://www.smartpatients.com/
#SmartPatients #TreatmentSideEffects #PatientCommunity
Sometimes music just sits with us while we listen and becomes rhythm when you feel lost.
Read Movement III of our I Am…Rescued by Music series. This is where music stays with us through what hurts until something inside begins to loosen. https://ow.ly/73q650XVNrI
#SmartPatients #MusicAsHealing
Read Movement III of our I Am…Rescued by Music series. This is where music stays with us through what hurts until something inside begins to loosen. https://ow.ly/73q650XVNrI
#SmartPatients #MusicAsHealing
January 17, 2026 at 9:05 PM
Sometimes music just sits with us while we listen and becomes rhythm when you feel lost.
Read Movement III of our I Am…Rescued by Music series. This is where music stays with us through what hurts until something inside begins to loosen. https://ow.ly/73q650XVNrI
#SmartPatients #MusicAsHealing
Read Movement III of our I Am…Rescued by Music series. This is where music stays with us through what hurts until something inside begins to loosen. https://ow.ly/73q650XVNrI
#SmartPatients #MusicAsHealing
What's exciting about today? Smart patients has a new look to its website! Click here to check it out: https://www.smartpatients.com
Though it looks different, the heart of Smart Patients hasn’t changed one bit. It’s still about people helping people and showing up for one another.
Though it looks different, the heart of Smart Patients hasn’t changed one bit. It’s still about people helping people and showing up for one another.
January 16, 2026 at 5:20 PM
What's exciting about today? Smart patients has a new look to its website! Click here to check it out: https://www.smartpatients.com
Though it looks different, the heart of Smart Patients hasn’t changed one bit. It’s still about people helping people and showing up for one another.
Though it looks different, the heart of Smart Patients hasn’t changed one bit. It’s still about people helping people and showing up for one another.
For young women with desmoid tumors, fertility decisions can determine when and whether to start treatment. For example, would IVF make the tumor worse?
Dr. Dale Shepard, a leading desmoid tumor specialist, spoke to us to answer these questions and more. Learn more: https://ow.ly/r1zJ50XWQk1
Dr. Dale Shepard, a leading desmoid tumor specialist, spoke to us to answer these questions and more. Learn more: https://ow.ly/r1zJ50XWQk1
January 15, 2026 at 6:25 PM
For young women with desmoid tumors, fertility decisions can determine when and whether to start treatment. For example, would IVF make the tumor worse?
Dr. Dale Shepard, a leading desmoid tumor specialist, spoke to us to answer these questions and more. Learn more: https://ow.ly/r1zJ50XWQk1
Dr. Dale Shepard, a leading desmoid tumor specialist, spoke to us to answer these questions and more. Learn more: https://ow.ly/r1zJ50XWQk1
What questions about MG do you wish researchers focused on more? Now's your chance to let us know by filling out these surveys created by the Autoimmune Registry to better understand how Myasthenia Gravis (MG) develops and affects people over time,: https://ow.ly/k5vy50XVIj2
#MyastheniaGravis
#MyastheniaGravis
January 14, 2026 at 5:00 PM
What questions about MG do you wish researchers focused on more? Now's your chance to let us know by filling out these surveys created by the Autoimmune Registry to better understand how Myasthenia Gravis (MG) develops and affects people over time,: https://ow.ly/k5vy50XVIj2
#MyastheniaGravis
#MyastheniaGravis
Why do we remember every word to songs from 30 years ago, but forget what we ate for breakfast?
Music lives somewhere deeper than memory. For people navigating cancer, grief, and fear, that matters more than you might think. https://ow.ly/rVjM50XVArE
#MusicAndMemory #PatientStories #SmartPatients
Music lives somewhere deeper than memory. For people navigating cancer, grief, and fear, that matters more than you might think. https://ow.ly/rVjM50XVArE
#MusicAndMemory #PatientStories #SmartPatients
January 13, 2026 at 7:00 PM
Why do we remember every word to songs from 30 years ago, but forget what we ate for breakfast?
Music lives somewhere deeper than memory. For people navigating cancer, grief, and fear, that matters more than you might think. https://ow.ly/rVjM50XVArE
#MusicAndMemory #PatientStories #SmartPatients
Music lives somewhere deeper than memory. For people navigating cancer, grief, and fear, that matters more than you might think. https://ow.ly/rVjM50XVArE
#MusicAndMemory #PatientStories #SmartPatients
“What does it really mean when my doctor wants me back in six months?” That question sparked a powerful Ask the Expert conversation on FAP. Read how shared questions become shared understanding on Smart Patients: https://ow.ly/OH7150XSA9P
January 12, 2026 at 6:55 PM
“What does it really mean when my doctor wants me back in six months?” That question sparked a powerful Ask the Expert conversation on FAP. Read how shared questions become shared understanding on Smart Patients: https://ow.ly/OH7150XSA9P
Moments of delight remind us that joy doesn’t have to be big or complicated. Sometimes it’s found in fresh air, quiet movement, and sharing the day with people who get you.
What was your moment of delight this week?
Come tell us: www.smartpatients.com
What was your moment of delight this week?
Come tell us: www.smartpatients.com
January 11, 2026 at 5:00 PM
Moments of delight remind us that joy doesn’t have to be big or complicated. Sometimes it’s found in fresh air, quiet movement, and sharing the day with people who get you.
What was your moment of delight this week?
Come tell us: www.smartpatients.com
What was your moment of delight this week?
Come tell us: www.smartpatients.com
What's a song that brings back a memory so vivid you can see it, smell it, feel it all over again? For people facing illness & loss, music can become memory. It holds what medications can't protect & anchors what time tries to take away. Read more: https://research.smartpatients.com/resources
January 10, 2026 at 4:40 PM
What's a song that brings back a memory so vivid you can see it, smell it, feel it all over again? For people facing illness & loss, music can become memory. It holds what medications can't protect & anchors what time tries to take away. Read more: https://research.smartpatients.com/resources
When you're navigating a diagnosis, the kindness of strangers who've been there becomes lifesaving. The knowledge they share becomes hope. What people give \ comes back when they need it most—in answers, support, & the comfort of not being alone. Join us: https://www.smartpatients.com
January 9, 2026 at 5:00 PM
When you're navigating a diagnosis, the kindness of strangers who've been there becomes lifesaving. The knowledge they share becomes hope. What people give \ comes back when they need it most—in answers, support, & the comfort of not being alone. Join us: https://www.smartpatients.com
Every 6 months, another scope. For people living with familial adenomatous polyposis (FAP), surveillance isn’t just a schedule—it’s a source of uncertainty, fear, & decision-making.
Read our full Ask the Expert recap to learn more about how patients navigate life with FAP: https://ow.ly/sCGO50XSzZ1
Read our full Ask the Expert recap to learn more about how patients navigate life with FAP: https://ow.ly/sCGO50XSzZ1
January 8, 2026 at 6:55 PM
Every 6 months, another scope. For people living with familial adenomatous polyposis (FAP), surveillance isn’t just a schedule—it’s a source of uncertainty, fear, & decision-making.
Read our full Ask the Expert recap to learn more about how patients navigate life with FAP: https://ow.ly/sCGO50XSzZ1
Read our full Ask the Expert recap to learn more about how patients navigate life with FAP: https://ow.ly/sCGO50XSzZ1
What’s the song that gets you through the hardest part of the day?
In Movement I: The First Steps, we revisit the post that sparked Smart Patients’ longest conversation. Read Movement I and tell us: what’s your song?
https://ow.ly/yyCN50XRYIj
#MusicAndHealing #SmartPatients #YouAreNotAlone
In Movement I: The First Steps, we revisit the post that sparked Smart Patients’ longest conversation. Read Movement I and tell us: what’s your song?
https://ow.ly/yyCN50XRYIj
#MusicAndHealing #SmartPatients #YouAreNotAlone
January 7, 2026 at 5:45 PM
What’s the song that gets you through the hardest part of the day?
In Movement I: The First Steps, we revisit the post that sparked Smart Patients’ longest conversation. Read Movement I and tell us: what’s your song?
https://ow.ly/yyCN50XRYIj
#MusicAndHealing #SmartPatients #YouAreNotAlone
In Movement I: The First Steps, we revisit the post that sparked Smart Patients’ longest conversation. Read Movement I and tell us: what’s your song?
https://ow.ly/yyCN50XRYIj
#MusicAndHealing #SmartPatients #YouAreNotAlone
On this day, way back in 1610, Galileo observed Jupiter's moons through his telescope, revealing more stars. One observer. One lens. Suddenly, the invisible became visible. At Smart Patients, we observe and share what we see together, so we see more.
#SmartPatients
#SmartPatients
January 6, 2026 at 7:40 PM
On this day, way back in 1610, Galileo observed Jupiter's moons through his telescope, revealing more stars. One observer. One lens. Suddenly, the invisible became visible. At Smart Patients, we observe and share what we see together, so we see more.
#SmartPatients
#SmartPatients
Thank you to each and every person in this community. Whether you post often or rarely, your presence matters more than you may realize. The simple act of showing up make this space what it is—& we’re grateful for all of it.
#SmartPatients #PatientCommunity #Gratitude #YouMatter #StrongerTogether
#SmartPatients #PatientCommunity #Gratitude #YouMatter #StrongerTogether
January 5, 2026 at 4:25 PM
Thank you to each and every person in this community. Whether you post often or rarely, your presence matters more than you may realize. The simple act of showing up make this space what it is—& we’re grateful for all of it.
#SmartPatients #PatientCommunity #Gratitude #YouMatter #StrongerTogether
#SmartPatients #PatientCommunity #Gratitude #YouMatter #StrongerTogether
At the heart of Smart Patients is the feeling that you don’t have to figure it out alone. Whether you’re newly diagnosed, supporting a loved one, or years into your journey, this is a place where every question matters. Join us: www.smartpatients.com
#SmartPatients #PatientCommunity #YouAreNotAlone
#SmartPatients #PatientCommunity #YouAreNotAlone
January 4, 2026 at 5:00 PM
At the heart of Smart Patients is the feeling that you don’t have to figure it out alone. Whether you’re newly diagnosed, supporting a loved one, or years into your journey, this is a place where every question matters. Join us: www.smartpatients.com
#SmartPatients #PatientCommunity #YouAreNotAlone
#SmartPatients #PatientCommunity #YouAreNotAlone
It started with a walk that almost didn’t happen. One perfectly timed song later, something unexpected unfolded. Movement I: The First Steps opens our 4 part series on Music to the Rescue: https://ow.ly/9bFY50XR7Tu
#MusicToTheRescue #SmartPatients
#MusicToTheRescue #SmartPatients
January 3, 2026 at 5:40 PM
It started with a walk that almost didn’t happen. One perfectly timed song later, something unexpected unfolded. Movement I: The First Steps opens our 4 part series on Music to the Rescue: https://ow.ly/9bFY50XR7Tu
#MusicToTheRescue #SmartPatients
#MusicToTheRescue #SmartPatients
We know that the most important measure of our community is whether it helps you to move through hard moments. Smart Patients honors the voices of patients & caregivers who show up for each other & support meaningful conversation with this story: I Am...Grateful for You https://ow.ly/uj1U50XQkxs
January 2, 2026 at 5:00 PM
We know that the most important measure of our community is whether it helps you to move through hard moments. Smart Patients honors the voices of patients & caregivers who show up for each other & support meaningful conversation with this story: I Am...Grateful for You https://ow.ly/uj1U50XQkxs
Let’s welcome the New Year with lots of hope! Hope for progress in research, more treatment options, & better outcomes for patients & caregivers everywhere.
What’s one hope you’re carrying into this year—for your health, your care, or someone you love?
#NewYearsDay #SmartPatients #PatientVoices
What’s one hope you’re carrying into this year—for your health, your care, or someone you love?
#NewYearsDay #SmartPatients #PatientVoices
January 1, 2026 at 5:10 PM
Let’s welcome the New Year with lots of hope! Hope for progress in research, more treatment options, & better outcomes for patients & caregivers everywhere.
What’s one hope you’re carrying into this year—for your health, your care, or someone you love?
#NewYearsDay #SmartPatients #PatientVoices
What’s one hope you’re carrying into this year—for your health, your care, or someone you love?
#NewYearsDay #SmartPatients #PatientVoices
As this year comes to a close, we want to pause and honor something worth celebrating: you made it through uncertainty, treatment, caregiving, grief, hope, and resilience. Another year is behind you. So how are you celebrating?
Thanks for being a Smart Patient!
#NYE
Thanks for being a Smart Patient!
#NYE
December 31, 2025 at 3:01 PM
As this year comes to a close, we want to pause and honor something worth celebrating: you made it through uncertainty, treatment, caregiving, grief, hope, and resilience. Another year is behind you. So how are you celebrating?
Thanks for being a Smart Patient!
#NYE
Thanks for being a Smart Patient!
#NYE
What happens after you outlive the odds? Don Jackson shares what long-term cancer survivorship looks like. Thank you Don for turning to Smart Patients for support! Read the full story: https://ow.ly/a6Ex50XNeSR
#HeadAndNeckCancer #CancerSurvivorship #Keytruda #CaregiverSupport #PatientCommunity
#HeadAndNeckCancer #CancerSurvivorship #Keytruda #CaregiverSupport #PatientCommunity
December 30, 2025 at 8:25 PM
What happens after you outlive the odds? Don Jackson shares what long-term cancer survivorship looks like. Thank you Don for turning to Smart Patients for support! Read the full story: https://ow.ly/a6Ex50XNeSR
#HeadAndNeckCancer #CancerSurvivorship #Keytruda #CaregiverSupport #PatientCommunity
#HeadAndNeckCancer #CancerSurvivorship #Keytruda #CaregiverSupport #PatientCommunity