Sandra Smith
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sandrasmithmnd.bsky.social
Sandra Smith
@sandrasmithmnd.bsky.social
30 followers 70 following 5 posts
Husband died MND/FTD. Public Adviser MND,
Dementia, Palliative End of Life care, Health Inequalities ARCNWC was Sandra True
Spontaneous coronary heart dissection survivor
Posts Replies Media Videos
Reposted by Sandra Smith
healthequitynorth.bsky.social
Regional inequalities in health, wages and economic inactivity have deepened since our first #HealthforWealth report in 2018, placing a financial burden on the economy and stagnating possible productivity growth.

www.healthequitynorth.co.uk/poor-health-...
November 24, 2025 at 8:51 AM
Reposted by Sandra Smith
mndsmart.bsky.social
We’re delighted to share that MND SMART is now open for recruitment at Imperial College Healthcare NHS Trust.
A very warm welcome to the Imperial team!

Read more 👉 edin.ac/47zZLn5

Register your interest to participate 👉 edin.ac/490fmPk

#ALS #MND #ClinicalTrial
Lead research nurse, Della and Sub-Investigator Radu smiling.
November 3, 2025 at 8:39 AM
Reposted by Sandra Smith
alzheimersresearchuk.org
Congratulations to Dr Laura Smith and Dr Alastair Noyce at @qmuldementia.bsky.social for receiving funding through our February Grant Review Board. The team will work to improve risk disclosure for people with iRBD, a sleep disorder linked to Parkinson’s and LBD. #ARUKfunded
August 27, 2025 at 12:49 PM
Reposted by Sandra Smith
livuni-iph.bsky.social
NEWS | Professor Dan Pope from @livuni-phps.bsky.social and Dr Jonny Higham from the Department of Geography and Planning have developed a prototype low-cost air monitor, a new, affordable way to measure personal exposure to air pollution

➡️ bit.ly/4lHMJJl

#TeamLivUni
A news title card that reads 'Liverpool unveils prototype low-cost personal air pollution monitor for Africa' in white text against a navy blue background. Pictured to the right is Professor Dan Pope and Dr Jonny Higham unveiling the Low-Cost Monitors.
August 27, 2025 at 12:54 PM
Reposted by Sandra Smith
arc-em.bsky.social
People prefer the term “multiple long‑term conditions” (MLTC) over “multimorbidity” – it’s less stigmatising and more empowering, focusing on the person rather than just their conditions.

Discover more:
📺 YouTube: youtu.be/7cdgra-Wrfk
🎧 Spotify: tinyurl.com/mtwt5ajy
MLTC INSIGHTS | Video 1 | Defining MLTC–ARC panel on terminology, epidemiology & overcoming barriers
This panel discussion explores what “multiple long-term conditions” (MLTC) really means, why the words we use matter, and how common these conditions are. The group also talks about the main…
youtu.be
August 28, 2025 at 8:15 AM
Reposted by Sandra Smith
scadalliance.bsky.social
#MedSky #CardioSky #SCADheart
gvascstudy.bsky.social gVasc research study @gvascstudy.bsky.social · Aug 12
gVasc is a research study trying to find out if there are genetic factors behind why SCAD happens🫀Click the link in our bio or head to gvascstudy.org to learn more about our study and to participate! #gvasc #SCAD #research #heart #hearthealth #heartresearch #scadalliance @scadalliance.bsky.social
image of heart - Spontaneous Coronary Artery Dissection - SCAD - gVasc Research Study
August 28, 2025 at 3:11 PM
Reposted by Sandra Smith
lewybodysociety.bsky.social
💥 For a small charity, we make a BIG impact - and we are making a bigger one every year!

With Lewy body dementia so misunderstood, no wonder families are turning to us for help.

#Lewybodydementia #Dementiasupport #Dementia
August 28, 2025 at 3:58 PM
Reposted by Sandra Smith
nihrarcs.bsky.social
Explore the August roundup of top stories from all 15 of our Applied Research Collaborations (ARCs):
mailchi.mp/nihr/august-...
Including the latest research news, resources, blogs, events, training & more from ARCs across the country

Join the newsletter: tinyurl.com/ARCsnewsletter
The NIHR Applied Research Collaborations (ARCs) August 2025 newsletter
The national newsletter from across all the NIHR ARCs. In this edition: Creative arts for dementia care and involvement, improving child health, benefits of giving patients online access to medical no...
mailchi.mp
August 5, 2025 at 7:51 AM
Reposted by Sandra Smith
thekingsfund.bsky.social
Join us in September as Chris Whitty, CMO for England, discusses what we can learn about prevention from across the UK.

Register your place now.

buff.ly/nw0MBAu
Promotional image for a talk titled 'Taking prevention forward – what can we learn from across the UK and NI?' featuring Chris Whitty, Chief Medical Officer for England. The event is scheduled for September 17 at 3:15 pm, hosted by The King's Fund.
July 31, 2025 at 5:45 PM
Reposted by Sandra Smith
denpruexeter.bsky.social
🆕We're bringing some newness to you this Friday!🆕

Check out this infographic highlighting an overview of our project 'Parkinson's disease: mapping the current research landscape'

shorturl.at/vWpaZ
August 1, 2025 at 8:25 AM
Reposted by Sandra Smith
mndsmart.bsky.social
⭐️The brilliant and dedicated research team at the Southampton General Hospital Trial Centre have now randomised >50 participants to MND-SMART!⭐️

Read more 👉 mnd-smart.org/news/jul-202...

#MND #ALS #clinicaltrial
July 25, 2025 at 11:04 AM
Reposted by Sandra Smith
livuni-iph.bsky.social
Following a major research collaboration between the University and the UK’s National Crime Agency, a new national training programme to better yield information from suspect interviews in Child Sexual Abuse (CSA) investigations has been launched

➡️ bit.ly/3ILG6Yx

#TeamLivUni
A news title card that reads “A collaboration between the university and the UK’s National Crime Agency unveils a new national training programme” in white text against a navy blue background. To the right is an image of a police interview room with three chairs and a table.
July 25, 2025 at 1:33 PM
Reposted by Sandra Smith
j9kirby.bsky.social
Great couple of days attending the School of Medicine and Population Health graduations of PGR and MBChB students @sheffielduni.bsky.social
July 25, 2025 at 6:38 PM
Reposted by Sandra Smith
lincneurosci.bsky.social
£2.7M for Liverpool-led trial investigating vagus nerve stimulation for drug-resistant epilepsy

news.liverpool.ac.uk/2025/07/16/2...
Computer image of a transparent human head with the brain and vagus nerve illuminated
July 21, 2025 at 12:38 PM
Reposted by Sandra Smith
dementiaresearcher.bsky.social
Lifestyle, policy, prevention—how do we shift dementia research from treatment to risk reduction? Join our live webinar with Seb Walsh & Adrián Noriega de la Colina, 8pm BST tomorrow - be there for our free weekly webinar
Dementia Researcher Salon - Population-level Dementia Risk Reduction
Dementia Researcher Salon - Population-level Dementia Risk Reduction
communities.dementiaresearcher.nihr.ac.uk
July 22, 2025 at 3:05 PM
Reposted by Sandra Smith
longitudeprize.bsky.social
“MND is one of the most scientifically and biologically challenging diseases to tackle. That said, no mountain is insurmountable…”

Dr. Mike Rogers (@mndassoc.bsky.social) shares why the #LongitudePrizeOnALS is key to creating new opportunities for #ALS & #MND

📰 longevity.technology/news/climbin...
Climbing the ALS mountain
Mike Rogers, MND Association Director of Research and Innovation, looks at how data and AI could unlock new treatments.
longevity.technology
July 22, 2025 at 8:54 AM
Reposted by Sandra Smith
euansguide.com
Changing Places toilets are vital – but still too rare. On #CPAD25 we explore why these life-changing facilities matter so much and highlight some of our Changing Places reviews. buff.ly/RO51TAW

💙 #CPAD25 #ChangingPlaces #AccessibleToilets #InclusionMatters
Real Reviews, Real Impact: Helping Others Find Changing Places Toilets
A blog post by disabled access charity Euan's Guide about the importance of sharing disabled access information on Changing Places toilets.
buff.ly
July 19, 2025 at 4:00 PM
Reposted by Sandra Smith
lincneurosci.bsky.social
The LINC launch was reported on by The Liverpool Echo:
www.liverpoolecho.co.uk/news/liverpo...
'It's the spirit of Liverpool that has made this possible'
LFC legend David Fairclough praised the initiative that is the first of its kind in the country
www.liverpoolecho.co.uk
July 18, 2025 at 2:39 PM
Reposted by Sandra Smith
braincomms.bsky.social
Does cognitive impairment affect how people perceive their own motivation? Zhao et al. find that patients with neurological conditions—especially given greater cognitive deficits—often underestimate their apathy; caregiver input is crucial. Read at buff.ly/Bf2qHv2
@sijiazhao92
@MasudHusain
@OxExpPsy
July 11, 2025 at 3:03 PM
Reposted by Sandra Smith
patients-association.org.uk
💬 Do you, or someone you know, struggle to communicate with healthcare services?
Our helpline is here to help with translation, large print, and more.
Read how we're working to make support accessible for all: buff.ly/xGzkPlc #HealthEquity
June 19, 2025 at 3:32 PM
Reposted by Sandra Smith
thekingsfund.bsky.social
'We’re not here to serve institutions – we’re here to serve people. That means working with communities, not doing things to them.’

@swoolnoughtkf.bsky.social shares her hopes for a new strategic direction at The King’s Fund in her blog.

www.kingsfund.org.uk/insight-and-...
Serving people, not institutions: a new direction for The King's Fund | The King's Fund
We want to boldly reimagine the health and care system. Chief Executive Sarah Woolnough explains how our new strategy will help us do this.
www.kingsfund.org.uk
June 5, 2025 at 2:44 PM
Reposted by Sandra Smith
mndoddie5.bsky.social
Are you living with MND or an informal caregiver for someone who is? Researchers at @sheffielduni.bsky.social would like your input for the iDeliver MND project, which aims to improve the delivery of psychological care in MND services.

Click below to take part in the survey 👇
bit.ly/iDeliver-survey
May 28, 2025 at 1:57 PM
Reposted by Sandra Smith
benjaminbarr.bsky.social
Community wealth building increases the employment of disabled people. jech.bmj.com/content/earl... health inequalities #episky
Understanding the differential effects on employment of a community wealth building programme in England: a difference-in-differences study
Background People-centred initiatives to create and retain local wealth, such as Community Wealth Building (CWB), have potential to stimulate regional economic regeneration that addresses economic ine...
jech.bmj.com
May 23, 2025 at 2:05 AM
Reposted by Sandra Smith
lewybodysociety.bsky.social
I know we have people on here who have strong feelings about social care needs assessments.

Please do get in touch with clarissa.giebel@liverpool.ac.uk or emma.williams2@liverpool.ac.uk

#dementiaresearch #dementiacarers #Lewybodydementia @liverpooluni.bsky.social
May 7, 2025 at 8:47 PM
Reposted by Sandra Smith
dementiaresearcher.bsky.social
A simple guide to qualitative interviews!

soundcloud.com/dementia-res...
May 3, 2025 at 3:48 PM