Jo Robson
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robsonjc.bsky.social
Jo Robson
@robsonjc.bsky.social
Academic Rheumatologist UWE Bristol
Patient reported outcomes and impact of rare rheumatic disease on health- related quality of life
ANCA associated vasculitis Giant cell arteritis
Reposted by Jo Robson
Vaccines, including MMR, do not cause autism

Over 25 studies, including a 2019 analysis of 600,000+ children in Denmark, refute any link

No biological plausibility exists: brain changes linked to autism occur in utero, well before vaccination

yourlocalepidemiologist.substack.com/p/vaccines-d...
Vaccines don’t cause autism. So what does?
Another CDC/MMR study is a waste. Autism rates are increasing due to complicated factors.
yourlocalepidemiologist.substack.com
March 20, 2025 at 5:27 PM
Reposted by Jo Robson
1️⃣ Digital health tools promise more efficient and accessible healthcare—but do they benefit everyone equally?

Last night, Prof @trishgreenhalgh.bsky.social explored how digitalisation can actually deepen health inequalities by creating new barriers.

Here are my key takeaways from the lecture.🧵 1/8
February 4, 2025 at 5:35 PM
Reposted by Jo Robson
The mere-measurement effect of patient-reported outcomes: a #systematic review and meta-analysis

Simply asking patients about their health can influence their perceptions and behaviours

With a 17% increased likelihood of change, could #PROMs be a subtle intervention? 🤔

doi.org/10.1007/s111...
The mere-measurement effect of patient-reported outcomes: a systematic review and meta-analysis - Quality of Life Research
Purpose The mere-measurement effect is the phenomenon in which subjects exposed to measurements have their perceptions and/or behaviors on the inquired topic affected simply through the act of respond...
doi.org
February 14, 2025 at 11:43 PM
Reposted by Jo Robson
‘I don’t look like me’ Patients share the impact of glucocorticoid-related appearance changes

🧑‍🤝‍🧑 Societal pressures: Feeling the need to conform
💔 Mental health struggles: Loss of confidence, identity
⚖️ Daily adjustments: Clothing sizes, diet, lifestyle shifts

💊 #SteroidPRO doi.org/10.1093/rheu...
Patient perspectives on the impact of appearance and weight changes attributed to systemic glucocorticoid treatment of rheumatic diseases
AbstractObjectives. To explore patients’ perspectives on the impact of appearance changes attributed to glucocorticoid treatment.Methods. We conducted a se
doi.org
March 18, 2025 at 10:54 PM
Reposted by Jo Robson
I am running for Clinical VP of the RCP.

For those who don't know me, here is a potted bio.
🧵
Right RCP Fellows! Voting for elections is now open. I am running for Clinical VP.

My election statement is here:
🧵
March 17, 2025 at 11:41 AM
Reposted by Jo Robson
Here's to the incredible women who continue to break barriers, inspire change, and shape the world around them. Happy International Women's Day #IWD! We are honoured to introduce our key women behind the scenes helping to organise #IVW2026 vasculitis-melbourne2026.com
March 5, 2025 at 10:04 PM