Mwidimi Ndosi
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ndosie.bsky.social
Mwidimi Ndosi
@ndosie.bsky.social
Assoc Prof Rheumatology Nursing (UWE) | Editor-in-Chief, Rheumatology Advances in Practice | Research: PROMs & Patient Empowerment | Educate. Empower. Enable.
Pinned
Introducing the Positive Perspective Paradigm in the management of #rheumatoid #arthritis

1️⃣Educate with positive communication (not just warnings
2️⃣Empower by validating lived experience early
3️⃣Enable holistic care to support the mind and the joints

New paper Doumen et al doi.org/10.1016/j.ar...
Introducing the Positive Perspective Paradigm in the management of #rheumatoid #arthritis

1️⃣Educate with positive communication (not just warnings
2️⃣Empower by validating lived experience early
3️⃣Enable holistic care to support the mind and the joints

New paper Doumen et al doi.org/10.1016/j.ar...
February 5, 2026 at 4:06 PM
Study of patients newly diagnosed with Giant Cell Arteritis identified 4 themes

1️⃣Uncertainty & fear
2️⃣Loss of autonomy & identity
3️⃣Adapting to physical symptoms
4️⃣Critical role of healthcare interactions

Patients need clear communication and support alongside disease control
doi.org/10.1093/rap/...
Understanding the patient experience of newly diagnosed giant cell arteritis
AbstractOBJECTIVE. The impact Giant Cell Arteritis (GCA) and its treatment has on an individual’s life is poorly characterised. This research sought to adv
doi.org
January 27, 2026 at 2:59 PM
Social media listening of people with #PMR and #GCA

➡️61% of treatment-related mentions were negative
➡️72% of GCA-related mentions on steroids were negative
➡️Biologics had more positive feedback than steroids

Download full paper doi.org/10.1093/rap/...
@rheumjnl.bsky.social
Patient perspectives on life impact and unmet needs in giant cell arteritis and polymyalgia rheumatica: insights from social media
AbstractObjective. To ascertain the perspectives of caregivers and patients with giant cell arteritis (GCA) and/or polymyalgia rheumatica (PMR) and the imp
doi.org
January 27, 2026 at 10:58 AM
Hot off the press!🗞️

The AGenDA project shows how to finally enrich African representation in the global genome

Led by African researchers, they targeted under-represented groups, prioritising data sovereignty and local capacity building

Blueprint for decolonising research doi.org/10.1038/s415...
Enriching African genome representation through the AGenDA project - Nature
The Assessing Genetic Diversity in Africa (AGenDA) project shares their processes, including community engagement, obtaining ethics approvals, navigating legal compliance and developing a common gover...
doi.org
January 15, 2026 at 10:10 PM
Palindromic rheumatism is unpredictable and under-researched

New study by Chapman et al captures valuable patient insights

➡️ Unpredictable flares & psychological distress
➡️ Frequent diagnostic delays
➡️ Lack of info on progression to RA

@rheumjnl.bsky.social #palindromic doi.org/10.1093/rap/...
Living with palindromic rheumatism: a qualitative interview study
AbstractObjectives. Palindromic rheumatism (PR) is an unpredictable and under-researched inflammatory condition, and patients with PR are at risk of develo
doi.org
January 7, 2026 at 11:23 PM
For people with #inflammatory #arthritis, staying in work matters.

Employment loss is driven by:
➡️manual work
➡️age
➡️musculoskeletal symptoms
➡️mental health

A simple risk tool can help direct scarce occupational health support to those who need it most.

Open access doi.org/10.1093/rap/...
Development of a clinical tool to identify patients with early inflammatory arthritis at high risk of employment loss: analysis from the National Early Inflammatory Arthritis Audit
AbstractObjectives. Work disability is an early consequence of inflammatory arthritis. Preventive interventions exist but access is limited, highlighting t
doi.org
January 5, 2026 at 6:43 PM
We are good at promoting "movement" in Rheumatoid Arthritis, but are we neglecting "strength"?

🏃‍♀️ 67% of patients meet aerobic activity guidelines.
🏋️‍♀️ Only 29% meet muscle strengthening targets.

The missing link? Confidence and clinician support.

Download the full paper doi.org/10.1093/rap/...
Understanding physical activity participation in people living with rheumatoid arthritis
AbstractObjective. We examined self-reported physical activity (PA) levels (metabolic equivalents expended (METs)/week and muscle strengthening/resistance
doi.org
January 3, 2026 at 6:28 PM
Glad to have supported 35 authors in the BMC Rheumatology and Arthritis Research & Therapy this year.

Next time you get an invite to #review, ask the editor if you can mentor a PhD student through the process. This helps reduce the reviewer 2 syndrome.

@springernature.com #AcademicSky #PeerReview
December 24, 2025 at 9:54 AM
Fusama et al assessed the implementation of @eular.org recommendations for the role of the #nurse in Japan 🇯🇵

High agreement by both nurses and rheumatologists, but the classic implementation barriers remain
⏳ Lack of time
🧠 Knowledge gaps
🛑 Issues with role expansion

🔗 doi.org/10.1111/1756...
Acceptability and Barriers to Implementation of the EULAR Recommendations for the Role of the Nurse in the Management of Chronic Inflammatory Arthritis: A Mixed‐Methods Study With Nurses and Rheumatol...
Aim EULAR recommendations for the role of nurses in managing chronic inflammatory arthritis were updated in 2018. This study aimed to: (i) assess the level of agreement and implementation of these r.....
doi.org
December 18, 2025 at 3:11 PM
Pain and fatigue are among the most disabling symptoms in systemic #sclerosis.

New randomised controlled trila shows that a 12-week personalised, supervised exercise programme can ease pain, fatigue, and other symptoms of systemic sclerosis.

rmdopen.bmj.com/content/11/4...
High-intensity interval and resistance training programme improves pain and fatigue outcomes in people with systemic sclerosis: a European multicentre randomised controlled trial
Background Pain and fatigue are among the most debilitating symptoms of systemic sclerosis (SSc), severely impairing quality of life (QoL). Pharmacological management is often inadequate, and evidence...
rmdopen.bmj.com
November 12, 2025 at 9:19 AM
New Joint Statement on artificial intelligence #AI in evidence synthesis. From Cochrane, Campbell Collaboration, JBI & CEE

🧠 Human accountability remains paramount
🤖 AI tools require expert oversight
📊 Transparency & methodological rigour are non-negotiable

More: doi.org/10.1002/1465...
Position statement on artificial intelligence (AI) use in evidence synthesis across Cochrane, the Campbell Collaboration, JBI and the Collaboration for Environmental Evidence 2025 | Cochrane Library
doi.org
November 11, 2025 at 5:08 PM
Reposted by Mwidimi Ndosi
When I was first elected, evidence showed it would take 193 years to bring London's air pollution within legal limits.

Due to our policies, we've done it in 9.

In Brazil this week, we showed that cities are giving the world reason to hope when it comes to tackling the climate emergency.
November 8, 2025 at 9:09 AM
What if the biggest barrier to early #arthritis treatment is not access to care but knowing when to ask for help?

🇩🇰 New Danish study shows how #education relates to how quickly people seek medical help.

We need health education and advocacy built into every health system. 🔗 doi.org/10.1016/j.ar...
Redirecting
doi.org
November 6, 2025 at 10:41 PM
How do health professionals in Kazakhstan use social media? 🇰🇿

📱 98% adoption
🎓 82% use it for learning
📹 YouTube & Instagram dominate
😰 75% feel overwhelmed
💡 99% want training on professional social media use

Full paper 👉 doi.org/10.1007/s002...
Social media landscape: a cross-sectional survey of health professionals - Rheumatology International
Social networks are widely used in the healthcare system for education, research, and professional networking. However, its adoption and impact in Central Asia, particularly among medical professional...
doi.org
October 28, 2025 at 12:34 PM
Nurse-led care in #inflammatory #arthritis is expanding across Europe. New study from Bulgaria 🇧🇬 confirms how much patients value it

Majority of patients on bDMARDs were trained to self-inject by a nurse. They highly valued nurse-led #education and psychological support.

🔗 doi.org/10.3390/heal...
doi.org
October 25, 2025 at 9:04 PM
New #scoping review of 137 reviews across 47 conditions shows oral 💊 #glucocorticoids are widely used across numerous specialities.

Our collaborative research aims to explore how they affect quality of life and how to minimise harms.

Read more 👉 doi.org/10.1002/pds....
Mapping Use of High Dose or Long‐Term Oral Glucocorticoids and Steroid‐Sparing Strategies in Adults With Chronic Conditions: A Rapid Scoping Review of Reviews
Purpose Oral glucocorticoids (OGCs) have a broad range of uses and are effective in treating numerous conditions. However, it is commonly acknowledged that OGCs at high doses or over long periods ha...
doi.org
October 15, 2025 at 4:31 PM
🚫New RCT highlights what not to do in clinical practice. Using a fancy HandScan to guide therapy was less effective than standard care.

🔍The study also revealed high non-adherence highlighting real-world challenges of rigid treat-to-target protocols.

@rheumjnl.bsky.social doi.org/10.1093/rap/...
HandScan criteria versus ACR/EULAR Boolean remission as treatment target in early rheumatoid arthritis: results of a randomized controlled trial
AbstractObjectives. The HandScan is a novel method to quickly and objectively quantify RA disease activity using optical spectral transmission in hands and
doi.org
October 6, 2025 at 12:24 PM
Reposted by Mwidimi Ndosi
#Solar becomes main source of electricity in the #EU for first time. More than half of the EU’s #electricity in the second quarter of 2025 came from #RenewableEnergy
www.independent.co.uk/tech/solar-p...
Solar becomes main source of electricity in the EU for first time
More than half of the EU’s electricity in the second quarter of 2025 came from renewable energy
www.independent.co.uk
October 3, 2025 at 9:15 AM
Looking to connect with the leading community for health professionals in European rheumatology?

The EULAR HPR network offers an unparalleled opportunity to grow your professional network, access education and play an active role in advancing rheumatology care.

More: www.eular.org/eular-hpr-co...
October 1, 2025 at 9:27 AM
AI and NLP analysed >8,400 patient-written free-text symptom descriptions.

Clinically relevant patterns helped distinguish #osteoarthritis, #fibromyalgia and immune-mediated rheumatic diseases.

This may reduce misdiagnosis and support earlier triage.

@rheumjnl.bsky.social doi.org/10.1093/rap/...
Let’s ask the patient: disease prediction based on patients’ symptom descriptions in free text
AbstractObjective. This study evaluates the value self-reported free-text symptom descriptions for supporting diagnostic decisions in osteoarthritis (OA),
academic.oup.com
September 30, 2025 at 5:37 PM
Reposted by Mwidimi Ndosi
Join the 6th EULAR Postgraduate Course Health Professionals in Rheumatology 2026, focusing on the management of rheumatic and musculoskeletal diseases.

📅6-7 February 2026
📍Amsterdam, Netherlands
🔔Registration deadline: 7 December 2025
Register here: https://pulse.ly/phcts9mmby

#eularEDUCATION
September 17, 2025 at 9:59 AM
UK adults with #fibromyalgia! Your experiences are needed for a PhD study on personalized care. Take our survey here 🔗 go.uwe.ac.uk/FMSPHD
September 17, 2025 at 12:33 PM
SURGE Workforce Partnership want to set research priorities for the same day and urgent care workforce.

If you are a patient, carer, staff or public in the UK 🇬🇧 your views are important, please take part in a survey, workshop or WhatsApp.

Link surgeworkforce.uk/priority-set...
Welcome to the project page for the same day and urgent care workforce priority setting partnership  | SURGE Workforce Partnership
surgeworkforce.uk
August 26, 2025 at 10:20 AM
Message for the weekend warrior #runners

➡️ Sudden long runs increase #injury risk
➡️ Increase distance gradually to let your body adapt
➡️ Observe the 10% rule outlined in the study

A study of 5,200+ runners @runsafe.bsky.social @aarhusuniint.bsky.social

🔗 doi.org/10.1136/bjsp...
How much running is too much? Identifying high-risk running sessions in a 5200-person cohort study
Objectives We explored whether a spike in running distance during a single session or over 1 week, compared with the preceding period, was associated with increased risk of running-related overuse inj...
doi.org
August 24, 2025 at 7:53 AM