Primary Progressive Aphasia Awareness
ppaphasiaawareness.bsky.social
Primary Progressive Aphasia Awareness
@ppaphasiaawareness.bsky.social
Primary Progressive Aphasia - PPA describes a group of language led dementias. Speech & language therapy is the MAIN treatment for PPA. We spread awareness about this for ppl affected by PPA & professionals (by Dr Anna Volkmer & Rosemary Townsend)
Reposted by Primary Progressive Aphasia Awareness
Are you living with or supporting someone with #primaryprogressiveaphasia?

Join leading neuroscientists and speech pathologists on 25th September for a FREE webinar exploring the latest research on PPA and how speech pathology can make a difference.

@ppaphasiaawareness.bsky.social
August 27, 2025 at 12:56 AM
Reposted by Primary Progressive Aphasia Awareness
We are doing a survey to understand why other professionals do/don't refer people with Primary Progressive Aphasia for speech-language support

We want Drs, nurses, psychologists, social workers, OTs, PTs & any other profession.

The survey can be accessed here: qualtrics.ucl.ac.uk/jfe/form/SV_...
Qualtrics Survey | Qualtrics Experience Management
The most powerful, simple and trusted way to gather experience data. Start your journey to experience management and try a free account today.
qualtrics.ucl.ac.uk
April 17, 2025 at 8:00 AM
The 1st ever PPA awareness day was Friday 4 April 2025

We had webinars in the UK, Greece, Italy, Canada, France & USA.

Recordings will be available soon speechtherapyppa.com/ppa-awarenes...

Give us your views forms.office.com/e/ARRes9j9bV

PPA awareness day 2026 will be Friday 10th April!
April 8, 2025 at 3:58 PM
Reposted by Primary Progressive Aphasia Awareness
What an amazing day!

Webinars in UK, USA, France, Greece, Italy & Canada to celebrate the 1st PPA awareness day

Thank u to all contributors!

@mayalhenry.bsky.social @jgallee.bsky.social @smgrasso.bsky.social @sharonmantonucci.bsky.social

@ppaphasiaawareness.bsky.social
April 4, 2025 at 5:38 PM
Reposted by Primary Progressive Aphasia Awareness
Onwards and upwards!

The work is not over- if you are a researcher working in the field of PPA we have started a PPA journal club with @dementiaresearcher.bsky.social

Sign up & enhance your PPA research network!

www.dementiaresearcher.nihr.ac.uk/primary-prog...

@ppaphasiaawareness.bsky.social
New Primary Progressive Aphasia Online Journal Club
Join our new Primary Progressive Aphasia Journal Club—connecting researchers & clinicians to explore diagnostics, clinical management & patient-focused advances
www.dementiaresearcher.nihr.ac.uk
April 4, 2025 at 4:19 PM
Reposted by Primary Progressive Aphasia Awareness
#PPAawareness day is here! 🙌🏻 motivated,inspired & shaped by people living with #PrimaryProgressiveAphasia & driven by a community of international #SLT #SLP s who believe in better access to therapy support & resources. Huge thx to the amazing @annavolkmer@bsky.social & @dyscoveraphasia
April 4, 2025 at 8:28 AM
Reposted by Primary Progressive Aphasia Awareness
Meet Jessica Molloy, Clinical Specialist Speech and Language Therapists. Jessica is marking Primary Progressive Aphasia Awareness Day 🗣

“SLT can help people with PPA to find their voice again, even when the words are gone, people with PPA still have a lot to say”

@ppaphasiaawareness.bsky.social
April 4, 2025 at 11:43 AM
Reposted by Primary Progressive Aphasia Awareness
Interest in the PPA awareness day event has exceeded our expectations!

If you are coming to our webinar - come along early 2 guarantee a place!

speechtherapyppa.com/ppa-awarenes...

We will record the event & pop it on our website

@rosemary-townsend.bsky.social
@ppaphasiaawareness.bsky.social
Primary Progressive Aphasia (PPA) Awareness Day | 4th April 2025
Primary Progressive Aphasia (PPA) Awareness Day is an event to raise awareness of the condition and the work of the International Speech and Language Therapy / Pathology Primary Progressive Aphasia Ne...
speechtherapyppa.com
April 4, 2025 at 8:46 AM
Today, 4 April 2025, is the 1st ever Primary Progressive Aphasia (PPA) awareness day!

Free UK webinar today: speechtherapyppa.com/ppa-awarenes...

Missed it? A recording will be on our website: speechtherapyppa.com/ppa-awarenes...

@annavolkmer.bsky.social
@rosemary-townsend.bsky.social
April 4, 2025 at 7:11 AM
1-week till PPA awareness day 4 April!

Webinar: speechtherapyppa.com/ppa-awarenes...

This wk we were raising awareness at the highest level asking MPs for their support at Westminster with Dyscover & the Royal College of Speech & Language Therapists

#PPAawareness
@ppaphasiaawareness.bsky.social
March 28, 2025 at 4:16 PM
2-weeks till PPA awareness day 4 April!

Webinar link: speechtherapyppa.com/ppa-awarenes...

This wk we are sharing another podcast, this time created with student speech & language therapists abt the UCL PPA clinic: podcasts.apple.com/gb/podcast/e...

#PPAawareness
@ppaphasiaawareness.bsky.social
March 21, 2025 at 9:41 AM
Reposted by Primary Progressive Aphasia Awareness
3-weeks till PPA Awareness day 4 April!

Webinar link: speechtherapyppa.com/ppa-awarenes...

Living with PPA can be difficult. Rory's beautiful poetry captures this

youtu.be/8K363W-XzWI?...

Book sale proceeds to Rare Dementia Support - available soon: shop.nationalbrainappeal.org?gad_source=1...
Rory Barnes poetry for PPA awareness
YouTube video by BetterConversations
youtu.be
March 14, 2025 at 9:43 AM
Reposted by Primary Progressive Aphasia Awareness
4-weeks till PPA awareness day 4 April!

Webinar link: speechtherapyppa.com/ppa-awarenes...

Why is speech and language therapy important for people living with PPA?

We asked people with PPA, families and professionals. Watch our video abt it!

#PPAawareness
@ppaphasiaawareness.bsky.social
PPA awareness
YouTube video by BetterConversations
youtu.be
March 7, 2025 at 9:34 AM
5-weeks till PPA awareness day 4 April!

Webinar link: speechtherapyppa.com/ppa-awarenes...

Book launch at UCL for the 2nd Ed of our book - 16 international co-authors writing about PPA!

15% off J&R Press NOW at: www.jr-press.co.uk/product/asse...

#PPAawareness
@ppaphasiaawareness.bsky.social
February 28, 2025 at 10:18 AM
6-weeks till PPA awareness day 4 April!

Webinar link: speechtherapyppa.com/ppa-awarenes...

Listen in 2 @rosemary-townsend.bsky.social chatting to Helen from The Brainy Speech Therapy Podcast about PPA early next wk: open.spotify.com/show/7FY6mec...

#PPAawareness
@ppaphasiaawareness.bsky.social
February 21, 2025 at 4:18 PM
7-weeks till PPA awareness day 4 April!

Webinar link: speechtherapyppa.com/ppa-awarenes...

💕 Valentines Day is all about relationships.

We did a @dementiaresearcher.bsky.social podcast on PPA, relationships & speech therapy that helps

Get a sneak peek here: youtu.be/t2k2-UhJjbU

#PPAawareness
February 14, 2025 at 2:32 PM
8-weeks to go till PPA awareness day: 4th April 2025!

Speech & language therapy can help join up ppl with PPA. Rare Dementia Support also connects people with PPA like Helen.

Sign up for PPA awareness day webinar: speechtherapyppa.com/ppa-awarenes...
#PPAawareness
Primary progressive aphasia support group webinar - 27th October 2020
YouTube video by Rare Dementia Support
youtu.be
February 7, 2025 at 3:59 PM
Reposted by Primary Progressive Aphasia Awareness
We’re pleased to help spread the word about the official launch of the first-ever Primary Progressive Aphasia (PPA) Awareness Day - 4th April 2025! #PPAawareness @ppaphasiaawareness.bsky.social

www.dementiaresearcher.nihr.ac.uk/primary-prog...
Primary Progressive Aphasia awareness day – 4th April 2025 - DEMENTIA RESEARCHER
We’re pleased to help spread the word about the official launch of the first-ever Primary Progressive Aphasia (PPA) Awareness Day - 4th April 2025!
www.dementiaresearcher.nihr.ac.uk
February 4, 2025 at 4:05 PM
Reposted by Primary Progressive Aphasia Awareness
A tremendous endeavor: sign up today! I am very much looking forward to being in the virtual audience!
Announcing the launch of the 1st ever Primary Progressive Aphasia (PPA) awareness day 4th April 2025!

Webinar sign up: speechtherapyppa.com/ppa-awarenes...

Follow for updates:
@ppaphasiaawareness.bsky.social
@annavolkmer.bsky.social
@rosemary-townsend.bsky.social

#PPAawareness
January 31, 2025 at 5:16 PM
Reposted by Primary Progressive Aphasia Awareness
It’s been a busy time, planning #PPAawareness together with @annavolkmer.bsky.social & all our collaborators! 9 weeks of content coming in the lead up to 4 April ! Please share
Announcing the launch of the 1st ever Primary Progressive Aphasia (PPA) awareness day 4th April 2025!

Webinar sign up: speechtherapyppa.com/ppa-awarenes...

Follow for updates:
@ppaphasiaawareness.bsky.social
@annavolkmer.bsky.social
@rosemary-townsend.bsky.social

#PPAawareness
January 31, 2025 at 12:49 PM
Announcing the launch of the 1st ever Primary Progressive Aphasia (PPA) awareness day 4th April 2025!

Webinar sign up: speechtherapyppa.com/ppa-awarenes...

Follow for updates:
@ppaphasiaawareness.bsky.social
@annavolkmer.bsky.social
@rosemary-townsend.bsky.social

#PPAawareness
January 31, 2025 at 12:06 PM