Paul McLaughlin
@physiopaul.bsky.social
Postdoctoral Consultant Physiotherapist - Haemophilia/ Bleeding Disorders | Royal Free Hospital London | Research Dept Haematology UCL
Pinned
Paul McLaughlin
@physiopaul.bsky.social
· Nov 18
Exercise-based telerehabilitation for the management of chronic pain in people with severe haemophilia: a mixed-methods feasibility study - Pilot and Feasibility Studies
Background Chronic pain is reported by between 30 and 71% of people with haemophilia (PWH). Exercise is shown to be effective for pain management in other arthritides, but it remains unclear if such a...
doi.org
Got there in the end- final paper from my PhD just published! Pain management in haemophilia is complex & an exercise approach may help - understanding nuance and individuality can inform the 'why' but we must measure 'success' better! doi.org/10.1186/s408...
Reposted by Paul McLaughlin
An NDORMS study has found that a tailored exercise programme for people aged 80 years + with osteoarthritis is practical and acceptable, leading the way to a large clinical trial. https://www.ndorms.ox.ac.uk/news/study-finds-tailored-exercise-programme-feasible-for-adults-over-80-with-osteoarthritis
October 21, 2025 at 6:01 AM
An NDORMS study has found that a tailored exercise programme for people aged 80 years + with osteoarthritis is practical and acceptable, leading the way to a large clinical trial. https://www.ndorms.ox.ac.uk/news/study-finds-tailored-exercise-programme-feasible-for-adults-over-80-with-osteoarthritis
Reposted by Paul McLaughlin
The EAHAD 2026 AHP Day programme is live! Explore the sessions and prepare for the latest in haemophilia science and care: eahadcongress.com/allied-healt...
September 11, 2025 at 9:00 AM
The EAHAD 2026 AHP Day programme is live! Explore the sessions and prepare for the latest in haemophilia science and care: eahadcongress.com/allied-healt...
Reposted by Paul McLaughlin
📰 Check the recently published article “Gap Analysis Investigating Healthcare Professionals’ Skills and Knowledge for Pain Management in Haemophilia - A Qualitative Study”. 🔗 onlinelibrary.wiley.com/doi/10.1111/... @haemophilia.bsky.social
September 4, 2025 at 8:50 AM
📰 Check the recently published article “Gap Analysis Investigating Healthcare Professionals’ Skills and Knowledge for Pain Management in Haemophilia - A Qualitative Study”. 🔗 onlinelibrary.wiley.com/doi/10.1111/... @haemophilia.bsky.social
Reposted by Paul McLaughlin
#WorldPTDay we highlight the importance of physiotherapy for those living with a #bleedingdisorder #haemophilia Specialized, personalised and supported care from childhood through to later in life, promoting and enabling participation and physical activity for all.
September 8, 2025 at 10:13 AM
#WorldPTDay we highlight the importance of physiotherapy for those living with a #bleedingdisorder #haemophilia Specialized, personalised and supported care from childhood through to later in life, promoting and enabling participation and physical activity for all.
Reposted by Paul McLaughlin
Calling all physiotherapists with experience in inherited bleeding disorders! The #EMPOWER study, led by 2024 Research Grant recipient Megan Kennedy, highlights the often-overlooked experiences of PTs caring for women and girls with BD. Take the survey tcdhealthsciences.qualtrics.com/jfe/form/SV_...
Qualtrics Survey | Qualtrics Experience Management
The most powerful, simple and trusted way to gather experience data. Start your journey to experience management and try a free account today.
tcdhealthsciences.qualtrics.com
August 6, 2025 at 12:01 PM
Calling all physiotherapists with experience in inherited bleeding disorders! The #EMPOWER study, led by 2024 Research Grant recipient Megan Kennedy, highlights the often-overlooked experiences of PTs caring for women and girls with BD. Take the survey tcdhealthsciences.qualtrics.com/jfe/form/SV_...
Reposted by Paul McLaughlin
🩸Abstract submissions for EAHAD 2026 will open soon! Get organised and start compiling your latest findings ahead of time: eahadcongress.com/abstract-sub...
August 1, 2025 at 6:00 AM
🩸Abstract submissions for EAHAD 2026 will open soon! Get organised and start compiling your latest findings ahead of time: eahadcongress.com/abstract-sub...
Reposted by Paul McLaughlin
🚨 New in @rpth.bsky.social: “Gene-based therapies for hemophilia” offers a clear, visual overview of gene therapy for hemophilia A and B, now available #openaccess.
🔗 Read the full article & be sure to follow @rpth.bsky.social: www.rpthjournal.org/article/S2475-0379(25)00194-3/fulltext
🔗 Read the full article & be sure to follow @rpth.bsky.social: www.rpthjournal.org/article/S2475-0379(25)00194-3/fulltext
Gene-based therapies for hemophilia
Gene therapy is a transformative approach to treating genetic disorders in order to
improve disease outcomes for patients. Hemophilia A and B are inherited genetic disorders
caused by mutations in the...
www.rpthjournal.org
July 22, 2025 at 5:53 PM
🚨 New in @rpth.bsky.social: “Gene-based therapies for hemophilia” offers a clear, visual overview of gene therapy for hemophilia A and B, now available #openaccess.
🔗 Read the full article & be sure to follow @rpth.bsky.social: www.rpthjournal.org/article/S2475-0379(25)00194-3/fulltext
🔗 Read the full article & be sure to follow @rpth.bsky.social: www.rpthjournal.org/article/S2475-0379(25)00194-3/fulltext
Reposted by Paul McLaughlin
🩸 Join the EAHAD community and play an active role in advancing care for #haemophilia and allied disorders. Gain access to exclusive benefits, including discounted registration for #EAHAD2026 in Dublin! 🔗 Sign up today: www.eahad.org/become-a-mem...
July 16, 2025 at 7:00 AM
🩸 Join the EAHAD community and play an active role in advancing care for #haemophilia and allied disorders. Gain access to exclusive benefits, including discounted registration for #EAHAD2026 in Dublin! 🔗 Sign up today: www.eahad.org/become-a-mem...
Reposted by Paul McLaughlin
Scoping review highlighting lack of #rehabilitation research in POEMS syndrome,
Led by NHNN physio Lucy Johnson, published in @clinicalrehab.bsky.social
journals.sagepub.com/doi/10.1177/...
@uclh.bsky.social @gitaramdharry.bsky.social @jackiewalumbe.bsky.social
Led by NHNN physio Lucy Johnson, published in @clinicalrehab.bsky.social
journals.sagepub.com/doi/10.1177/...
@uclh.bsky.social @gitaramdharry.bsky.social @jackiewalumbe.bsky.social
A scoping review: POEMS syndrome (Polyneuropathy, Organomegaly, Endocrinopathy, Monoclonal plasma cell disorder and Skin Changes), physical recovery, and rehabilitation - Lucy Johnson, Shirley D’Sa, G...
Objective POEMS syndrome is a rare and treatable plasma cell disorder. Although medical advances have improved survival, polyneuropathy – which impairs both sen...
journals.sagepub.com
July 8, 2025 at 2:29 PM
Scoping review highlighting lack of #rehabilitation research in POEMS syndrome,
Led by NHNN physio Lucy Johnson, published in @clinicalrehab.bsky.social
journals.sagepub.com/doi/10.1177/...
@uclh.bsky.social @gitaramdharry.bsky.social @jackiewalumbe.bsky.social
Led by NHNN physio Lucy Johnson, published in @clinicalrehab.bsky.social
journals.sagepub.com/doi/10.1177/...
@uclh.bsky.social @gitaramdharry.bsky.social @jackiewalumbe.bsky.social
Reposted by Paul McLaughlin
🎥 Prof. Niamh O’Connell, President of #EAHAD2026, welcomes you to the journey toward Dublin. Watch her short message to the haemophilia community:
🔗 eahadcongress.com
🔗 eahadcongress.com
July 7, 2025 at 9:01 AM
🎥 Prof. Niamh O’Connell, President of #EAHAD2026, welcomes you to the journey toward Dublin. Watch her short message to the haemophilia community:
🔗 eahadcongress.com
🔗 eahadcongress.com
Reposted by Paul McLaughlin
The 19th Annual Congress of EAHAD is taking place in Dublin from 3 - 6 February 2026. Join experts in #haemophilia and allied disorders for four days of science, connection, and impact. Explore the website: eahadcongress.com
#EAHAD2026
#EAHAD2026
July 1, 2025 at 7:21 AM
The 19th Annual Congress of EAHAD is taking place in Dublin from 3 - 6 February 2026. Join experts in #haemophilia and allied disorders for four days of science, connection, and impact. Explore the website: eahadcongress.com
#EAHAD2026
#EAHAD2026
Reposted by Paul McLaughlin
Every single person is a heart beat, a car crash or an infection away from acquiring a lifelong disability and needing support.
Ring fencing PIP to those who already receive it is, paradoxically, even more unfair than the original proposal. #Newsnight
Ring fencing PIP to those who already receive it is, paradoxically, even more unfair than the original proposal. #Newsnight
June 26, 2025 at 9:43 PM
Every single person is a heart beat, a car crash or an infection away from acquiring a lifelong disability and needing support.
Ring fencing PIP to those who already receive it is, paradoxically, even more unfair than the original proposal. #Newsnight
Ring fencing PIP to those who already receive it is, paradoxically, even more unfair than the original proposal. #Newsnight
Reposted by Paul McLaughlin
👏 A truly encouraging session today at the #ISTHCongress on the ISTH haemophilia guidelines. The open and constructive dialogue reflects the progress we’ve made collectively as a global community. This evolving landscape highlights the value of collaboration and mutual respect among all stakeholders
June 24, 2025 at 6:37 PM
👏 A truly encouraging session today at the #ISTHCongress on the ISTH haemophilia guidelines. The open and constructive dialogue reflects the progress we’ve made collectively as a global community. This evolving landscape highlights the value of collaboration and mutual respect among all stakeholders
Reposted by Paul McLaughlin
🤝 We are pleased to announce that EAHAD has signed an MoU with @isth.org reaffirming our commitment to supporting the bleeding disorders community. This is the result of early efforts and continued dialogue from our side, supported with enthusiasm by our ISTH colleagues!
June 22, 2025 at 3:56 PM
🤝 We are pleased to announce that EAHAD has signed an MoU with @isth.org reaffirming our commitment to supporting the bleeding disorders community. This is the result of early efforts and continued dialogue from our side, supported with enthusiasm by our ISTH colleagues!
Reposted by Paul McLaughlin
🩺 Calling all nurses in #haemophilia & bleeding disorders! The EAHAD Nurses Committee is looking for one new member to join for a three-year term starting September 2025! 📅 Don’t wait and apply now: www.eahad.org/call-for-app...
📣 Are you a nurse active in the field of #haemophilia and BD? 🩸The EAHAD Nurses Committee is looking for a new member to join for a 3-year term! 🌍
📅 Term starts: September 2025
🔗 Apply today: www.eahad.org/call-for-app...
#EAHADVacancy
📅 Term starts: September 2025
🔗 Apply today: www.eahad.org/call-for-app...
#EAHADVacancy
Call for Applications: EAHAD Nurses Committee
The European Association for Haemophilia and Allied Disorders is inviting haemophilia nurses to apply for one (1) post on its Nurses Committee. The position is for a three-year term that would begin i...
www.eahad.org
June 2, 2025 at 2:47 PM
🩺 Calling all nurses in #haemophilia & bleeding disorders! The EAHAD Nurses Committee is looking for one new member to join for a three-year term starting September 2025! 📅 Don’t wait and apply now: www.eahad.org/call-for-app...
Reposted by Paul McLaughlin
Late breaking at #ASCO25:
A 3-year structured exercise program after adjuvant chemotherapy for colon cancer improved disease-free and overall survival, physical functioning, and fitness, as compared with health education alone. Full CHALLENGE phase 3 trial: nej.md/4mh5RPL
@ascocancer.bsky.social
A 3-year structured exercise program after adjuvant chemotherapy for colon cancer improved disease-free and overall survival, physical functioning, and fitness, as compared with health education alone. Full CHALLENGE phase 3 trial: nej.md/4mh5RPL
@ascocancer.bsky.social
June 1, 2025 at 12:05 PM
Late breaking at #ASCO25:
A 3-year structured exercise program after adjuvant chemotherapy for colon cancer improved disease-free and overall survival, physical functioning, and fitness, as compared with health education alone. Full CHALLENGE phase 3 trial: nej.md/4mh5RPL
@ascocancer.bsky.social
A 3-year structured exercise program after adjuvant chemotherapy for colon cancer improved disease-free and overall survival, physical functioning, and fitness, as compared with health education alone. Full CHALLENGE phase 3 trial: nej.md/4mh5RPL
@ascocancer.bsky.social
Reposted by Paul McLaughlin
🔍Rethink the way you search! Join Wichor Bramer, Biomedical Information Specialist, for a hands-on session on literature searches. A unique collaboration between the Nurses Committees of @wfhemophilia @isth and #EAHAD 📺: academy.eahad.org/eahad/2025/n...
May 30, 2025 at 9:08 AM
🔍Rethink the way you search! Join Wichor Bramer, Biomedical Information Specialist, for a hands-on session on literature searches. A unique collaboration between the Nurses Committees of @wfhemophilia @isth and #EAHAD 📺: academy.eahad.org/eahad/2025/n...
Reposted by Paul McLaughlin
In light of recent decisions by several pharmaceutical companies to pause, scale back, or discontinue their haemophilia gene therapy programs, the International Society on @isth.org #WFH and #EAHAD have issued a formal Call-to-Action.📄 Read the full statement here: www.isth.org/news/699516/
May 6, 2025 at 1:06 PM
In light of recent decisions by several pharmaceutical companies to pause, scale back, or discontinue their haemophilia gene therapy programs, the International Society on @isth.org #WFH and #EAHAD have issued a formal Call-to-Action.📄 Read the full statement here: www.isth.org/news/699516/
Reposted by Paul McLaughlin
#PhysiotherapyNews 📚 The Clinical Practice Guideline for Physiotherapy in Haemophilia is now available in Italian 🇮🇹 in addition to English, French and Dutch! 🔗 www.eahad.org/eahad-projec...
🔬 Thanks to UMC Utrecht, EAHAD PT Committee, and European experts
🔬 Thanks to UMC Utrecht, EAHAD PT Committee, and European experts
May 2, 2025 at 12:14 PM
#PhysiotherapyNews 📚 The Clinical Practice Guideline for Physiotherapy in Haemophilia is now available in Italian 🇮🇹 in addition to English, French and Dutch! 🔗 www.eahad.org/eahad-projec...
🔬 Thanks to UMC Utrecht, EAHAD PT Committee, and European experts
🔬 Thanks to UMC Utrecht, EAHAD PT Committee, and European experts
Reposted by Paul McLaughlin
At #wfhccs in Dubai one of our UK physiotherapists Melanie Bladen speaking on the international expert panel discussing the importance of periodic visits for people with #BleedingDisorders #physiotherapy #mskcare #medsky
April 24, 2025 at 9:48 AM
At #wfhccs in Dubai one of our UK physiotherapists Melanie Bladen speaking on the international expert panel discussing the importance of periodic visits for people with #BleedingDisorders #physiotherapy #mskcare #medsky
Reposted by Paul McLaughlin
#wfhccs UK and Ireland physiotherapists Richard Davis & Mark McGowan share their work in the poster hall #physiotherapy #bleedingdisorders
Developing physiotherapy guidelines for iliopsoas haematomas and Adapting physiotherapy approaches for older patients with #haemophilia
Developing physiotherapy guidelines for iliopsoas haematomas and Adapting physiotherapy approaches for older patients with #haemophilia
April 24, 2025 at 9:53 AM
#wfhccs UK and Ireland physiotherapists Richard Davis & Mark McGowan share their work in the poster hall #physiotherapy #bleedingdisorders
Developing physiotherapy guidelines for iliopsoas haematomas and Adapting physiotherapy approaches for older patients with #haemophilia
Developing physiotherapy guidelines for iliopsoas haematomas and Adapting physiotherapy approaches for older patients with #haemophilia
Reposted by Paul McLaughlin
Professor David Stephensen, UK physiotherapist sharing his work at #wfhccs on identifying performance based outcome measures of physical function in #haemophilia #physiotherapy moving towards core outcomes in #BleedingDisorders
April 24, 2025 at 9:59 AM
Professor David Stephensen, UK physiotherapist sharing his work at #wfhccs on identifying performance based outcome measures of physical function in #haemophilia #physiotherapy moving towards core outcomes in #BleedingDisorders
Reposted by Paul McLaughlin
Fancy a new venture in #nursing? Why not come take a look at joining the @SheffieldHosp #haemostasis team as a #TTP & #BleedingDisorders specialist nurses? Give us a call, come meet the team. Lots of opportunities for development in this exciting field
www.sth.nhs.uk/work-for-us/...
www.sth.nhs.uk/work-for-us/...
Sheffield Teaching Hospital
www.sth.nhs.uk
April 17, 2025 at 8:37 PM
Fancy a new venture in #nursing? Why not come take a look at joining the @SheffieldHosp #haemostasis team as a #TTP & #BleedingDisorders specialist nurses? Give us a call, come meet the team. Lots of opportunities for development in this exciting field
www.sth.nhs.uk/work-for-us/...
www.sth.nhs.uk/work-for-us/...