phaware®
@phaware.bsky.social
Help make the 🌎 #phaware. Pulmonary hypertension (PH) is a rare, life-threatening disease of the lungs that can lead to right heart failure. 💜💙💚🧡❤️ Phaware Global Association is a 501c3 info@phaware.global www.phaware.global. www.phawarepodcast.com
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phaware®
@phaware.bsky.social
· Jan 6
Thank you Feedspot for naming I'm Aware That I'm Rare: the @phaware.bsky.social podcast the #1 "Best Pulmonary Hypertension Podcast You Must Follow in 2025!" ranked by relevancy, authority, social media follows and freshness. Like, Follow, Subscribe: www.phawarepodcast.com
After years of being dismissed, Lenise Whitley shares her raw journey to a pulmonary hypertension diagnosis: loss, faith, advocacy, and finding community when no one listened. 🎧 @phaware.bsky.social podcast ep 556 @teamphhope.bsky.social medium.com/p/im-aware-t...
I’m Aware That I’m Rare: Lenise Whitley (556)
the phaware® interview
medium.com
January 20, 2026 at 4:18 PM
After years of being dismissed, Lenise Whitley shares her raw journey to a pulmonary hypertension diagnosis: loss, faith, advocacy, and finding community when no one listened. 🎧 @phaware.bsky.social podcast ep 556 @teamphhope.bsky.social medium.com/p/im-aware-t...
Nicole Fitzgerald was a full-time special ed teacher juggling work, family, and a big move -- until breathlessness and fatigue nearly took her life. Hear how she faced pulmonary hypertension head-on and redefined her purpose. @phaware.bsky.social podcast ep 555 medium.com/p/im-aware-t...
I’m Aware That I’m Rare: Nicole Fitzgerald (555)
the phaware® interview
medium.com
January 13, 2026 at 3:51 PM
Nicole Fitzgerald was a full-time special ed teacher juggling work, family, and a big move -- until breathlessness and fatigue nearly took her life. Hear how she faced pulmonary hypertension head-on and redefined her purpose. @phaware.bsky.social podcast ep 555 medium.com/p/im-aware-t...
Telehealth is reshaping pulmonary hypertension care—but its future is uncertain. Dr. Jean Elwing on access, equity, and what’s at stake as funding sunsets. @phaware.bsky.social podcast ep 554 @uc_health @ElwingJean @accpchest.bsky.social medium.com/p/im-aware-t...
I’m Aware That I’m Rare: Jean Elwing, MD (554)
the phaware® interview
medium.com
January 6, 2026 at 4:04 PM
Telehealth is reshaping pulmonary hypertension care—but its future is uncertain. Dr. Jean Elwing on access, equity, and what’s at stake as funding sunsets. @phaware.bsky.social podcast ep 554 @uc_health @ElwingJean @accpchest.bsky.social medium.com/p/im-aware-t...
You Can Grieve and Still Fight: Love, Loss, and Living with PAH. PAH patient, Jasmine Wells discusses navigating relationships, infections, and fear of transplant, to leading support groups and fighting misinformation. @phaware.bsky.social podcast ep 553 #phaware medium.com/p/im-aware-t...
I’m Aware That I’m Rare: Jasmine Wells (553)
the phaware® interview
medium.com
December 30, 2025 at 5:01 PM
You Can Grieve and Still Fight: Love, Loss, and Living with PAH. PAH patient, Jasmine Wells discusses navigating relationships, infections, and fear of transplant, to leading support groups and fighting misinformation. @phaware.bsky.social podcast ep 553 #phaware medium.com/p/im-aware-t...
Kevin Allen survived near-death, systemic medical neglect, and an invisible disability most physicians don’t understand. Today, he’s pushing policy, pressuring universities, and pioneering new models of PH patient-centered care. @phaware.bsky.social podcast ep 552 medium.com/p/im-aware-t...
I’m Aware That I’m Rare: Kevin Allen (552)
the phaware® interview
medium.com
December 23, 2025 at 4:23 PM
Kevin Allen survived near-death, systemic medical neglect, and an invisible disability most physicians don’t understand. Today, he’s pushing policy, pressuring universities, and pioneering new models of PH patient-centered care. @phaware.bsky.social podcast ep 552 medium.com/p/im-aware-t...
Dr. Russel Hirsch on the core pillars of the PPHNet and why the next chapter in pediatric pulmonary hypertension care must be written with families through a PHriends family-led committee. @phaware.bsky.social podcast ep 551 #phawareMD #PPHNet @PPHNet @CincyChildrens medium.com/p/im-aware-t...
I’m Aware That I’m Rare: Russell Hirsch, MD (551)
the phaware® interview
medium.com
December 16, 2025 at 3:56 PM
Dr. Russel Hirsch on the core pillars of the PPHNet and why the next chapter in pediatric pulmonary hypertension care must be written with families through a PHriends family-led committee. @phaware.bsky.social podcast ep 551 #phawareMD #PPHNet @PPHNet @CincyChildrens medium.com/p/im-aware-t...
Nurse Practitioners, Jennifer Keeley and Mary Whittenhall, discuss the management of cough in patients receiving inhaled therapies for PH and ILD. @phaware.bsky.social podcast ep 550 @gossamerbio.bsky.social #phild #cough #pah @teamphhope.bsky.social #GossamerBioPartner medium.com/p/im-aware-t...
I’m Aware That I’m Rare: Jennifer Keeley, DPN and Mary Whittenhall, MSN (550)
the phaware® interview
medium.com
December 9, 2025 at 3:21 PM
Nurse Practitioners, Jennifer Keeley and Mary Whittenhall, discuss the management of cough in patients receiving inhaled therapies for PH and ILD. @phaware.bsky.social podcast ep 550 @gossamerbio.bsky.social #phild #cough #pah @teamphhope.bsky.social #GossamerBioPartner medium.com/p/im-aware-t...
FIGHTER TO SURVIVOR: ASHLEE GAMBINO’S BATTLE BEYOND THE RING. Ashlee "The Mobwife" Gambino turned her fighter's mindset into a lifeline, navigating the unimaginable loss of her daughter and a battle for her life. @phaware.bsky.social podcast ep 549 @teamphhope.bsky.social medium.com/p/im-aware-t...
I’m Aware That I’m Rare: Ashlee Gambino (549)
the phaware® interview
medium.com
December 1, 2025 at 6:52 PM
FIGHTER TO SURVIVOR: ASHLEE GAMBINO’S BATTLE BEYOND THE RING. Ashlee "The Mobwife" Gambino turned her fighter's mindset into a lifeline, navigating the unimaginable loss of her daughter and a battle for her life. @phaware.bsky.social podcast ep 549 @teamphhope.bsky.social medium.com/p/im-aware-t...
Scars and Survival: Rebuilding Life After a Devastating Diagnosis. After countless hospital stays, new medications, and near-breaking points, Sophia Esteves found the reason she wanted to live -- and it wasn’t just for herself. @phaware podcast ep 548 medium.com/p/im-aware-t...
I’m Aware That I’m Rare: Sophia Esteves (548)
the phaware® interview
medium.com
November 25, 2025 at 3:08 PM
Scars and Survival: Rebuilding Life After a Devastating Diagnosis. After countless hospital stays, new medications, and near-breaking points, Sophia Esteves found the reason she wanted to live -- and it wasn’t just for herself. @phaware podcast ep 548 medium.com/p/im-aware-t...
phaware global association® presents a RooandKanga production: Aware I’m Rare. A BREATHTAKING SHORT FILM ABOUT PULMONARY HYPERTENSION.
Streaming this December exclusively on the Heart Works app. Learn More: phaware.global/heartworksapp
@phaware.bsky.social
Streaming this December exclusively on the Heart Works app. Learn More: phaware.global/heartworksapp
@phaware.bsky.social
November 19, 2025 at 3:37 PM
phaware global association® presents a RooandKanga production: Aware I’m Rare. A BREATHTAKING SHORT FILM ABOUT PULMONARY HYPERTENSION.
Streaming this December exclusively on the Heart Works app. Learn More: phaware.global/heartworksapp
@phaware.bsky.social
Streaming this December exclusively on the Heart Works app. Learn More: phaware.global/heartworksapp
@phaware.bsky.social
The Silent Rise of Chronic Pulmonary Embolism and the Tech That’s Changing Everything. Dr. Richard Channick discusses the cutting-edge interventions in the treatment of pulmonary embolism. @phaware.bsky.social podcast ep 547 #CTEPH @uclahealth.org @accpchest.bsky.social medium.com/p/im-aware-t...
I’m Aware That I’m Rare: Richard Channick, MD (547)
the phaware® interview
medium.com
November 18, 2025 at 4:39 PM
The Silent Rise of Chronic Pulmonary Embolism and the Tech That’s Changing Everything. Dr. Richard Channick discusses the cutting-edge interventions in the treatment of pulmonary embolism. @phaware.bsky.social podcast ep 547 #CTEPH @uclahealth.org @accpchest.bsky.social medium.com/p/im-aware-t...
Dr. Jenny Yang dives into the rare but life-changing world of CTEPH, the only form of pulmonary hypertension that may be curable. Learn why ruling out #CTEPH should be step one for any PH diagnosis. @phaware.bsky.social podcast 546 @ucsdhealth.bsky.social #phawareMD medium.com/p/im-aware-t...
I’m Aware That I’m Rare: Jenny Yang, MD (546)
the phaware® interview
medium.com
November 11, 2025 at 4:44 PM
Dr. Jenny Yang dives into the rare but life-changing world of CTEPH, the only form of pulmonary hypertension that may be curable. Learn why ruling out #CTEPH should be step one for any PH diagnosis. @phaware.bsky.social podcast 546 @ucsdhealth.bsky.social #phawareMD medium.com/p/im-aware-t...
Despite better tools and more awareness, people with pulmonary hypertension are still being diagnosed too late. Dr. Victor Test opens up about the biggest barrier in PH today @phaware.bsky.social podcast ep 545 #phawareMD @accpchest.bsky.social @redraiderpulmcc medium.com/p/im-aware-t...
I’m Aware That I’m Rare: Victor Test, MD, FCCP (545)
the phaware® interview
medium.com
November 4, 2025 at 3:44 PM
Despite better tools and more awareness, people with pulmonary hypertension are still being diagnosed too late. Dr. Victor Test opens up about the biggest barrier in PH today @phaware.bsky.social podcast ep 545 #phawareMD @accpchest.bsky.social @redraiderpulmcc medium.com/p/im-aware-t...
How TBX4Life Is Fueling a Global Collaboration. LaRae Hacker never set out to become a rare disease advocate—but when her daughter’s TBX4 diagnosis left her feeling helpless, she found power in connection. @phaware.bsky.social podcast ep 544 @TBX4_Life phaware.medium.com/im-aware-tha...
I’m Aware That I’m Rare: LaRae Hacker (544)
the phaware® interview
phaware.medium.com
October 28, 2025 at 2:50 PM
How TBX4Life Is Fueling a Global Collaboration. LaRae Hacker never set out to become a rare disease advocate—but when her daughter’s TBX4 diagnosis left her feeling helpless, she found power in connection. @phaware.bsky.social podcast ep 544 @TBX4_Life phaware.medium.com/im-aware-tha...
How He Survived Meth Addiction, Lung Failure, and Found Purpose. Anthony Carrasco was a meth addict by 15, and nearly dead by 35. But a double lung transplant and a deep surrender to recovery transformed everything. @phaware.bsky.social podcast ep 543 @JNJInnovMed medium.com/p/im-aware-t...
I’m Aware That I’m Rare: Anthony Carrasco (543)
the phaware® interview
medium.com
October 21, 2025 at 1:14 PM
How He Survived Meth Addiction, Lung Failure, and Found Purpose. Anthony Carrasco was a meth addict by 15, and nearly dead by 35. But a double lung transplant and a deep surrender to recovery transformed everything. @phaware.bsky.social podcast ep 543 @JNJInnovMed medium.com/p/im-aware-t...
Treating Meth-Associated PAH Without Judgment. Dr. Brandon Jakubowski takes us into the under-recognized world of stimulant-induced pulmonary arterial hypertension. @phaware.bsky.social podcast ep 542 #Methamphetamine @JNJInnovMed #phawareMD @UTSWMedCenter medium.com/p/im-aware-t...
I’m Aware That I’m Rare: Brandon Jakubowski, MD (542)
the phaware® interview
medium.com
October 14, 2025 at 4:20 PM
Treating Meth-Associated PAH Without Judgment. Dr. Brandon Jakubowski takes us into the under-recognized world of stimulant-induced pulmonary arterial hypertension. @phaware.bsky.social podcast ep 542 #Methamphetamine @JNJInnovMed #phawareMD @UTSWMedCenter medium.com/p/im-aware-t...
The Face of Addiction Isn’t Who You Think It Is. Dr. Nicholas Kolaitis reveals how building trust with meth associated-PAH patients can lead to incredible turnarounds. @phaware.bsky.social podcast ep 541 #phawareMD @JNJInnovMed @UCSFHospitals @LungTxptMD medium.com/@phaware/im-...
I’m Aware That I’m Rare: Nicholas Kolaitis, MD (541)
the phaware® interview
medium.com
October 7, 2025 at 3:06 PM
The Face of Addiction Isn’t Who You Think It Is. Dr. Nicholas Kolaitis reveals how building trust with meth associated-PAH patients can lead to incredible turnarounds. @phaware.bsky.social podcast ep 541 #phawareMD @JNJInnovMed @UCSFHospitals @LungTxptMD medium.com/@phaware/im-...
How Stigma Blocks Meth-PAH Treatment and How to Stop It. Dr. Peter Leary explains how a change in mindset, language, and compassion can transform outcomes for a neglected and growing patient population. @phaware.bsky.social podcast ep 540 #Meth @JNJInnovMed medium.com/p/im-aware-t...
I’m Aware That I’m Rare: Peter Leary, MD (540)
the phaware® interview
medium.com
September 30, 2025 at 2:51 PM
How Stigma Blocks Meth-PAH Treatment and How to Stop It. Dr. Peter Leary explains how a change in mindset, language, and compassion can transform outcomes for a neglected and growing patient population. @phaware.bsky.social podcast ep 540 #Meth @JNJInnovMed medium.com/p/im-aware-t...
Dr. Vinicio de Jesus Perez discusses The Hidden Epidemic: Meth and PH and the need for compassionate, stigma-free screening. @phaware.bsky.social podcast ep 539 @PHatStanford @Viniciodjperez #MA-PAH #Methamphetamine @JNJInnovMed phaware.medium.com/im-aware-tha...
I’m Aware That I’m Rare: Vinicio de Jesus Perez, MD (539)
the phaware® interview
phaware.medium.com
September 23, 2025 at 3:09 PM
Dr. Vinicio de Jesus Perez discusses The Hidden Epidemic: Meth and PH and the need for compassionate, stigma-free screening. @phaware.bsky.social podcast ep 539 @PHatStanford @Viniciodjperez #MA-PAH #Methamphetamine @JNJInnovMed phaware.medium.com/im-aware-tha...
Dr. John Kingrey exposes the rising crisis of meth-associated pulmonary hypertension, challenging misconceptions and the need for compassion in treating both PAH and addiction. @phaware.bsky.social podcast ep 538 #phawareMD @teamphhope.bsky.social @JNJInnovMed oembed.libsyn.com/embed?item_i...
Episode 538 - John Kingrey, MD
Dr. John Kingrey exposes the rising crisis of meth-associated pulmonary hypertension, a condition spreading fast across the U.S. He challenges misconceptions, highlights urgent research, and stresses ...
oembed.libsyn.com
September 16, 2025 at 4:15 PM
Dr. John Kingrey exposes the rising crisis of meth-associated pulmonary hypertension, challenging misconceptions and the need for compassion in treating both PAH and addiction. @phaware.bsky.social podcast ep 538 #phawareMD @teamphhope.bsky.social @JNJInnovMed oembed.libsyn.com/embed?item_i...
Dr. Kari Gillmeyer discussed PH care networks. She explores why so many patients experience delays, how geography and provider access play a role, and what can be done to improve timeliness of care. @phaware.bsky.social podcast ep 537 VABostonHC @The_BMC @JNJInnovMed medium.com/p/im-aware-t...
I’m Aware That I’m Rare: Kari Gillmeyer, MD, MSC (537)
the phaware® interview
medium.com
September 9, 2025 at 4:51 PM
Dr. Kari Gillmeyer discussed PH care networks. She explores why so many patients experience delays, how geography and provider access play a role, and what can be done to improve timeliness of care. @phaware.bsky.social podcast ep 537 VABostonHC @The_BMC @JNJInnovMed medium.com/p/im-aware-t...
When Eric Borstein collapsed in 2020, doctors gave him just months to live. Now, he’s leading a movement, walking 200 miles down the California coast to prove hope has no limits. @phaware.bsky.social podcast ep 536 @teamphhope.bsky.social @DJLisaFoxx medium.com/p/im-aware-t...
I’m Aware That I’m Rare: Eric Borstein (536)
the phaware® interview
medium.com
September 2, 2025 at 3:03 PM
When Eric Borstein collapsed in 2020, doctors gave him just months to live. Now, he’s leading a movement, walking 200 miles down the California coast to prove hope has no limits. @phaware.bsky.social podcast ep 536 @teamphhope.bsky.social @DJLisaFoxx medium.com/p/im-aware-t...
Akshay Muralidhar, MD discusses the importance of having specialized centers for pulmonary hypertension, underserved communities, meth use and PH, and the need for outreach programs for patients battling PH. @phaware.bsky.social podcast ep 535 #phawareMD @JNJInnovMed medium.com/p/im-aware-t...
I’m Aware That I’m Rare: Akshay Muralidhar, MD (535)
the phaware® interview
medium.com
August 26, 2025 at 2:53 PM
Akshay Muralidhar, MD discusses the importance of having specialized centers for pulmonary hypertension, underserved communities, meth use and PH, and the need for outreach programs for patients battling PH. @phaware.bsky.social podcast ep 535 #phawareMD @JNJInnovMed medium.com/p/im-aware-t...
Dr. Raj Parikh discusses building on foundational pathways with treatment options for PAH patients, the value of clinical trials, and the importance of a good doctor/patient relationship. @phaware.bsky.social podcast ep 534 #phawareMD @HartfordHealthC @JNJInnovMed medium.com/p/im-aware-t...
I’m Aware That I’m Rare: Raj, Parikh, MD (534)
the phaware® interview
medium.com
August 19, 2025 at 2:36 PM
Dr. Raj Parikh discusses building on foundational pathways with treatment options for PAH patients, the value of clinical trials, and the importance of a good doctor/patient relationship. @phaware.bsky.social podcast ep 534 #phawareMD @HartfordHealthC @JNJInnovMed medium.com/p/im-aware-t...
Dr. Robert Frantz breaks down the key metrics behind risk stratification: functional class, six-min walk distance, brain natriuretic peptide levels and how they shape treatment plans. @phaware.bsky.social podcast ep 533 @mayoclinic.org @teamphhope.bsky.social @JNJInnovMed medium.com/p/im-aware-t...
I’m Aware That I’m Rare: Robert Frantz, MD (533)
the phaware® interview
medium.com
August 12, 2025 at 4:10 PM
Dr. Robert Frantz breaks down the key metrics behind risk stratification: functional class, six-min walk distance, brain natriuretic peptide levels and how they shape treatment plans. @phaware.bsky.social podcast ep 533 @mayoclinic.org @teamphhope.bsky.social @JNJInnovMed medium.com/p/im-aware-t...