Penn FTD Center
@pennftdc.bsky.social
The University of Pennsylvania Frontotemporal Degeneration Center
linktr.ee/pennftdcenter
linktr.ee/pennftdcenter
FTD Fact Friday: FTD impacts approximately 60,000 patients in the United States.
The Penn FTD Center is here to help!
📍 Check out our Support & Resources
📰 Read our monthly blog
🔎 Learn more about Observational Research or Clinical Trials
Click the website link for more!
The Penn FTD Center is here to help!
📍 Check out our Support & Resources
📰 Read our monthly blog
🔎 Learn more about Observational Research or Clinical Trials
Click the website link for more!
February 6, 2026 at 4:58 PM
FTD Fact Friday: FTD impacts approximately 60,000 patients in the United States.
The Penn FTD Center is here to help!
📍 Check out our Support & Resources
📰 Read our monthly blog
🔎 Learn more about Observational Research or Clinical Trials
Click the website link for more!
The Penn FTD Center is here to help!
📍 Check out our Support & Resources
📰 Read our monthly blog
🔎 Learn more about Observational Research or Clinical Trials
Click the website link for more!
Penn FTD Center Genetic Counselor Laynie Dratch, ScM, CGC presented at the 2026 @theaftd.bsky.social Holloway Summit discussing "Evolution of ALS/FTD genetic testing practice."
Thank you for your work, Laynie!
Thank you for your work, Laynie!
February 5, 2026 at 2:22 PM
Penn FTD Center Genetic Counselor Laynie Dratch, ScM, CGC presented at the 2026 @theaftd.bsky.social Holloway Summit discussing "Evolution of ALS/FTD genetic testing practice."
Thank you for your work, Laynie!
Thank you for your work, Laynie!
We understand that care management can be tough. For American Heart Month, we are providing tips on healthy hearts and healthy brains!
📍Check out our website for more information on Support & Resources
📍Check out our website for more information on Support & Resources
February 2, 2026 at 3:05 PM
We understand that care management can be tough. For American Heart Month, we are providing tips on healthy hearts and healthy brains!
📍Check out our website for more information on Support & Resources
📍Check out our website for more information on Support & Resources
FTD Fact Friday: FTD is one of the most common causes of early onset dementia worldwide. The Penn FTD Center is here to help!
📍 Check out our Support & Resources
📰 Read our monthly blog
🔎 Learn more about Observational Research or Clinical Trials
Click the website link!
📍 Check out our Support & Resources
📰 Read our monthly blog
🔎 Learn more about Observational Research or Clinical Trials
Click the website link!
January 30, 2026 at 4:01 PM
FTD Fact Friday: FTD is one of the most common causes of early onset dementia worldwide. The Penn FTD Center is here to help!
📍 Check out our Support & Resources
📰 Read our monthly blog
🔎 Learn more about Observational Research or Clinical Trials
Click the website link!
📍 Check out our Support & Resources
📰 Read our monthly blog
🔎 Learn more about Observational Research or Clinical Trials
Click the website link!
The Penn FTD Center is featured in an article from AARP discussing FTD, symptoms, and support.
Read the article now at the link in our bio or below 👇
www.aarp.org/health/condi...
Read the article now at the link in our bio or below 👇
www.aarp.org/health/condi...
What Is Frontotemporal Dementia?
Its symptoms are very different from Alzheimer’s disease, and it is frequently misdiagnosed
www.aarp.org
January 29, 2026 at 2:37 PM
The Penn FTD Center is featured in an article from AARP discussing FTD, symptoms, and support.
Read the article now at the link in our bio or below 👇
www.aarp.org/health/condi...
Read the article now at the link in our bio or below 👇
www.aarp.org/health/condi...
Penn FTDC and @theaftd.bsky.social are hosting the FTD CRLI! This virtual program empowers individuals diagnosed with FTD, their caregivers and loved ones to be strong advocates in the field of FTD research by educating them on the clinical research process.
Click the link in our bio!
Click the link in our bio!
January 28, 2026 at 2:25 PM
Penn FTDC and @theaftd.bsky.social are hosting the FTD CRLI! This virtual program empowers individuals diagnosed with FTD, their caregivers and loved ones to be strong advocates in the field of FTD research by educating them on the clinical research process.
Click the link in our bio!
Click the link in our bio!
FTD Fact Friday: Although age of onset ranges from 21 to 80, most FTD cases occur between 45 and 64.
📍 Check out our Support & Resources
📰 Read our monthly blog
🔎 Learn more about Observational Research or Clinical Trials
Click the website link for more!
📍 Check out our Support & Resources
📰 Read our monthly blog
🔎 Learn more about Observational Research or Clinical Trials
Click the website link for more!
January 23, 2026 at 4:50 PM
FTD Fact Friday: Although age of onset ranges from 21 to 80, most FTD cases occur between 45 and 64.
📍 Check out our Support & Resources
📰 Read our monthly blog
🔎 Learn more about Observational Research or Clinical Trials
Click the website link for more!
📍 Check out our Support & Resources
📰 Read our monthly blog
🔎 Learn more about Observational Research or Clinical Trials
Click the website link for more!
In our January blog post, Former Clinical Research Coordinator Chigozie Ibe reviews what takes place in a Research MRI and how to prepare.
Read now at the link in our bio!
Read now at the link in our bio!
January 22, 2026 at 2:22 PM
In our January blog post, Former Clinical Research Coordinator Chigozie Ibe reviews what takes place in a Research MRI and how to prepare.
Read now at the link in our bio!
Read now at the link in our bio!
The Penn FTD Center is here for another FTD Fact Friday! And we are here to help!
📍 Check out our Support & Resources
📃 Read our monthly blog
🔎 Learn more about Observational Research or Clinical Trials
Click the website link in bio for more!
📍 Check out our Support & Resources
📃 Read our monthly blog
🔎 Learn more about Observational Research or Clinical Trials
Click the website link in bio for more!
January 16, 2026 at 3:13 PM
The Penn FTD Center is here for another FTD Fact Friday! And we are here to help!
📍 Check out our Support & Resources
📃 Read our monthly blog
🔎 Learn more about Observational Research or Clinical Trials
Click the website link in bio for more!
📍 Check out our Support & Resources
📃 Read our monthly blog
🔎 Learn more about Observational Research or Clinical Trials
Click the website link in bio for more!
📢Looking for the latest news from the Penn FTD Center? Want to stay up-to-date on research and trials?
Make sure you are following the Penn FTD Center on all your social platforms.
📍All of our social media accounts can be found at the link in our bio!
Make sure you are following the Penn FTD Center on all your social platforms.
📍All of our social media accounts can be found at the link in our bio!
January 14, 2026 at 4:28 PM
📢Looking for the latest news from the Penn FTD Center? Want to stay up-to-date on research and trials?
Make sure you are following the Penn FTD Center on all your social platforms.
📍All of our social media accounts can be found at the link in our bio!
Make sure you are following the Penn FTD Center on all your social platforms.
📍All of our social media accounts can be found at the link in our bio!
Apply today to become an FTD CRLI Research Ambassador!
The FTD Clinical Research Learning Institute is a virtual program that empowers individuals diagnosed with FTD, their caregivers and loved ones. Applications close February 13th, 2026.
Link in bio to for the application!
The FTD Clinical Research Learning Institute is a virtual program that empowers individuals diagnosed with FTD, their caregivers and loved ones. Applications close February 13th, 2026.
Link in bio to for the application!
January 12, 2026 at 8:59 PM
Apply today to become an FTD CRLI Research Ambassador!
The FTD Clinical Research Learning Institute is a virtual program that empowers individuals diagnosed with FTD, their caregivers and loved ones. Applications close February 13th, 2026.
Link in bio to for the application!
The FTD Clinical Research Learning Institute is a virtual program that empowers individuals diagnosed with FTD, their caregivers and loved ones. Applications close February 13th, 2026.
Link in bio to for the application!
Penn FTD Center Staff Highlight 🌟
Ashlyn O’Halloran is a Clinical Research Coordinator at the Penn FTD Center. Ashlyn works on the center’s observational repository study UNICORN.
📍Read more details on Ashlyn and wish her a happy birthday in the blog post! Link in our bio!
Ashlyn O’Halloran is a Clinical Research Coordinator at the Penn FTD Center. Ashlyn works on the center’s observational repository study UNICORN.
📍Read more details on Ashlyn and wish her a happy birthday in the blog post! Link in our bio!
January 12, 2026 at 3:29 PM
Penn FTD Center Staff Highlight 🌟
Ashlyn O’Halloran is a Clinical Research Coordinator at the Penn FTD Center. Ashlyn works on the center’s observational repository study UNICORN.
📍Read more details on Ashlyn and wish her a happy birthday in the blog post! Link in our bio!
Ashlyn O’Halloran is a Clinical Research Coordinator at the Penn FTD Center. Ashlyn works on the center’s observational repository study UNICORN.
📍Read more details on Ashlyn and wish her a happy birthday in the blog post! Link in our bio!
The Penn FTD Center is here for another FTD Fact Friday! And we are here to help!
📍 Check out our Support & Resources
📃 Read our monthly blog
🔎 Learn more about Observational Research or Clinical Trials
Click the website link for more!
📍 Check out our Support & Resources
📃 Read our monthly blog
🔎 Learn more about Observational Research or Clinical Trials
Click the website link for more!
January 9, 2026 at 6:35 PM
The Penn FTD Center is here for another FTD Fact Friday! And we are here to help!
📍 Check out our Support & Resources
📃 Read our monthly blog
🔎 Learn more about Observational Research or Clinical Trials
Click the website link for more!
📍 Check out our Support & Resources
📃 Read our monthly blog
🔎 Learn more about Observational Research or Clinical Trials
Click the website link for more!
Interested in becoming an FTD Research Ambassador? The Penn FTD Center and Association for Frontotemporal Degeneration will host the 2026 FTD Clinical Research Learning Institute!
Applications for the program will open Jan 12th. For more info, click on the link in our bio!
Applications for the program will open Jan 12th. For more info, click on the link in our bio!
January 8, 2026 at 4:24 PM
Interested in becoming an FTD Research Ambassador? The Penn FTD Center and Association for Frontotemporal Degeneration will host the 2026 FTD Clinical Research Learning Institute!
Applications for the program will open Jan 12th. For more info, click on the link in our bio!
Applications for the program will open Jan 12th. For more info, click on the link in our bio!
Registration is open for the sixth annual virtual familial conference, Uncovering the Genetics of Familial FTD/ALS, on Wednesday, February 25, 2026, from 1:00PM-4:00PM EST.
Register now by clicking the link in our bio!
Register now by clicking the link in our bio!
January 7, 2026 at 2:32 PM
Registration is open for the sixth annual virtual familial conference, Uncovering the Genetics of Familial FTD/ALS, on Wednesday, February 25, 2026, from 1:00PM-4:00PM EST.
Register now by clicking the link in our bio!
Register now by clicking the link in our bio!
Recap the highlights of 2025 with the Penn FTD Center! 🌟
We are wishing you and your loved ones a wonderful holiday season and can't wait to see what 2026 brings!
We are wishing you and your loved ones a wonderful holiday season and can't wait to see what 2026 brings!
December 19, 2025 at 4:14 PM
Recap the highlights of 2025 with the Penn FTD Center! 🌟
We are wishing you and your loved ones a wonderful holiday season and can't wait to see what 2026 brings!
We are wishing you and your loved ones a wonderful holiday season and can't wait to see what 2026 brings!
📰 Are you subscribed to the Penn FTD Center newsletter?
Use the link in our bio to stay up to date on our latest updates, educational events, and research advancements!
Use the link in our bio to stay up to date on our latest updates, educational events, and research advancements!
December 15, 2025 at 3:22 PM
📰 Are you subscribed to the Penn FTD Center newsletter?
Use the link in our bio to stay up to date on our latest updates, educational events, and research advancements!
Use the link in our bio to stay up to date on our latest updates, educational events, and research advancements!
Penn FTD Center Staff Highlight 🌟
Emily Xie is the Penn FTD Center Clinical Research Project Manager. Emily’s focus lies in coordinating research operations to support both participants and research team.
📍Read more details on Emily in the blog post at the link in our bio!
Emily Xie is the Penn FTD Center Clinical Research Project Manager. Emily’s focus lies in coordinating research operations to support both participants and research team.
📍Read more details on Emily in the blog post at the link in our bio!
December 10, 2025 at 3:21 PM
Penn FTD Center Staff Highlight 🌟
Emily Xie is the Penn FTD Center Clinical Research Project Manager. Emily’s focus lies in coordinating research operations to support both participants and research team.
📍Read more details on Emily in the blog post at the link in our bio!
Emily Xie is the Penn FTD Center Clinical Research Project Manager. Emily’s focus lies in coordinating research operations to support both participants and research team.
📍Read more details on Emily in the blog post at the link in our bio!
In our December blog, Penn FTD Center Clinical Research Program and Operations Lead and Assistant Director Dahlia Kamel, MS provides some helpful tips for navigating the holiday season when a loved one is living with FTD.
Our latest blog post can be found at the link in our bio!
Our latest blog post can be found at the link in our bio!
December 9, 2025 at 6:27 PM
In our December blog, Penn FTD Center Clinical Research Program and Operations Lead and Assistant Director Dahlia Kamel, MS provides some helpful tips for navigating the holiday season when a loved one is living with FTD.
Our latest blog post can be found at the link in our bio!
Our latest blog post can be found at the link in our bio!
FTD Fact Friday: FTD that runs in a family is often related to variants (permanent changes) in certain genes. The Penn FTD Center is here to help!
📍 Check out our Support & Resources
📰 Read our monthly blog
🔎 Learn more about Observational Research or Clinical Trials
Click the website link for more!
📍 Check out our Support & Resources
📰 Read our monthly blog
🔎 Learn more about Observational Research or Clinical Trials
Click the website link for more!
December 5, 2025 at 3:24 PM
FTD Fact Friday: FTD that runs in a family is often related to variants (permanent changes) in certain genes. The Penn FTD Center is here to help!
📍 Check out our Support & Resources
📰 Read our monthly blog
🔎 Learn more about Observational Research or Clinical Trials
Click the website link for more!
📍 Check out our Support & Resources
📰 Read our monthly blog
🔎 Learn more about Observational Research or Clinical Trials
Click the website link for more!
📢Looking for the latest news from the Penn FTD Center? Want to stay up-to-date on research and trials?
Make sure you are following the Penn FTD Center on all your social platforms.
📍All of our social media accounts can be found at the link in our bio!
Make sure you are following the Penn FTD Center on all your social platforms.
📍All of our social media accounts can be found at the link in our bio!
December 4, 2025 at 2:19 PM
📢Looking for the latest news from the Penn FTD Center? Want to stay up-to-date on research and trials?
Make sure you are following the Penn FTD Center on all your social platforms.
📍All of our social media accounts can be found at the link in our bio!
Make sure you are following the Penn FTD Center on all your social platforms.
📍All of our social media accounts can be found at the link in our bio!
We understand that care management can be tough. This December Care Management Monday, we are sharing tips on managing the holidays.
📍Check out our website for more information on Support & Resources
📍Check out our website for more information on Support & Resources
December 1, 2025 at 3:17 PM
We understand that care management can be tough. This December Care Management Monday, we are sharing tips on managing the holidays.
📍Check out our website for more information on Support & Resources
📍Check out our website for more information on Support & Resources
The Penn FTD Center is here for another FTD Fact Friday! And we are here to help!
📍 Check out our Support & Resources
📃 Read our monthly blog
🔎 Learn more about Observational Research or Clinical Trials
Click the website link for more!
📍 Check out our Support & Resources
📃 Read our monthly blog
🔎 Learn more about Observational Research or Clinical Trials
Click the website link for more!
November 21, 2025 at 6:51 PM
The Penn FTD Center is here for another FTD Fact Friday! And we are here to help!
📍 Check out our Support & Resources
📃 Read our monthly blog
🔎 Learn more about Observational Research or Clinical Trials
Click the website link for more!
📍 Check out our Support & Resources
📃 Read our monthly blog
🔎 Learn more about Observational Research or Clinical Trials
Click the website link for more!
Penn FTD Center's Emma Rhodes worked alongside collaborators to publish a paper in The American Journal of Geriatric Psychiatry regarding accelerated cognitive decline in late life depression.
Read the paper using the link below 👇
www.sciencedirect.com/science/arti...
Read the paper using the link below 👇
www.sciencedirect.com/science/arti...
Accelerated Cognitive Decline in Late Life Depression: The Role of Amyloid-β, Cortico-Limbic Volume, and White Matter Hyperintensities
Late life depression (LLD) is associated with cognitive impairment and dementia, but studies of cognitive decline in LLD have been confounded by under…
www.sciencedirect.com
November 20, 2025 at 2:42 PM
Penn FTD Center's Emma Rhodes worked alongside collaborators to publish a paper in The American Journal of Geriatric Psychiatry regarding accelerated cognitive decline in late life depression.
Read the paper using the link below 👇
www.sciencedirect.com/science/arti...
Read the paper using the link below 👇
www.sciencedirect.com/science/arti...
Laynie Dratch, ScM, CGC, Penn FTD Center Genetic Counselor, presented two posters at the National Society of Genetic Counselors (NSGC) Annual Conference in Seattle, WA.
Thank you for sharing your research, Laynie!
Thank you for sharing your research, Laynie!
November 19, 2025 at 2:23 PM
Laynie Dratch, ScM, CGC, Penn FTD Center Genetic Counselor, presented two posters at the National Society of Genetic Counselors (NSGC) Annual Conference in Seattle, WA.
Thank you for sharing your research, Laynie!
Thank you for sharing your research, Laynie!