Mollie
@one-change.com
Our life & home are labs for inclusivity.
Chronic illness & mental health advocate. Living with Long COVID. https://one-change.com
Chronic illness & mental health advocate. Living with Long COVID. https://one-change.com
Reposted by Mollie
I’ll be taking down the #Pride shirts at the end of the month. I’ll be making some new designs next year that I’ll put up in May so we can all have them for the entire month of June.
June 29, 2025 at 9:42 PM
I’ll be taking down the #Pride shirts at the end of the month. I’ll be making some new designs next year that I’ll put up in May so we can all have them for the entire month of June.
The millions of people suffering from #LongCOVID deserve empathy, compassion and resources to recover our lives in a meaningful way.
January 10, 2025 at 6:30 PM
The millions of people suffering from #LongCOVID deserve empathy, compassion and resources to recover our lives in a meaningful way.
Disaster struck our family almost 5 years. We've been left on our own by society + the government to find our way through it. We didn't do something to deserve what happened.
Our lives matter.
Our lives matter.
January 10, 2025 at 6:30 PM
Disaster struck our family almost 5 years. We've been left on our own by society + the government to find our way through it. We didn't do something to deserve what happened.
Our lives matter.
Our lives matter.
Without support--financial, social, medical--people with #LongCOVID + other #chronicillness cannot recover in any meaningful way.
January 10, 2025 at 6:30 PM
Without support--financial, social, medical--people with #LongCOVID + other #chronicillness cannot recover in any meaningful way.
I’d love to hear any ways that you do your future self a favor especially if you’re chronically ill or helping to care for others. #chronicillness
January 10, 2025 at 6:11 PM
I’d love to hear any ways that you do your future self a favor especially if you’re chronically ill or helping to care for others. #chronicillness
I always try to do my future self a favor when I can. It’s been everything from spending my 20s laying a foundation for my mental health by focusing on healing from #CPTSD to these days getting medication set up on days where I have a little bit more ability to do it.
January 10, 2025 at 6:11 PM
I always try to do my future self a favor when I can. It’s been everything from spending my 20s laying a foundation for my mental health by focusing on healing from #CPTSD to these days getting medication set up on days where I have a little bit more ability to do it.
We don't have to perform. All feelings are OK. You will not be left alone or left out. We will change what we need to to make sure that everyone is cared for and included.
#InclusionMatters
#InclusionMatters
December 26, 2024 at 12:01 AM
We don't have to perform. All feelings are OK. You will not be left alone or left out. We will change what we need to to make sure that everyone is cared for and included.
#InclusionMatters
#InclusionMatters
Here’s a reminder I just gave my son & @k3nd477.com has given me plenty of times:
These holidays are for us. We adapt them to fit our needs.
These holidays are for us. We adapt them to fit our needs.
December 26, 2024 at 12:01 AM
Here’s a reminder I just gave my son & @k3nd477.com has given me plenty of times:
These holidays are for us. We adapt them to fit our needs.
These holidays are for us. We adapt them to fit our needs.
Long COVID doesn't pause for things you look forward to, want or need. My kids and I have been feeling particularly rough lately. Especially one of our sons. #longcovid
December 26, 2024 at 12:01 AM
Long COVID doesn't pause for things you look forward to, want or need. My kids and I have been feeling particularly rough lately. Especially one of our sons. #longcovid
If someone shares this with you, it’s ok to feel the discomfort and awkwardness. Don't run from it. Lean in. That's the only way we learn how to hold space for one another. #DisabilitySky
December 21, 2024 at 12:41 AM
If someone shares this with you, it’s ok to feel the discomfort and awkwardness. Don't run from it. Lean in. That's the only way we learn how to hold space for one another. #DisabilitySky
When someone shares about their unseen #ChronicIllness or #Disability, it's okay to not have the perfect response. It's okay to not "fix" things. Just being there--listening, holding space--mean so much more than you think.
December 21, 2024 at 12:41 AM
When someone shares about their unseen #ChronicIllness or #Disability, it's okay to not have the perfect response. It's okay to not "fix" things. Just being there--listening, holding space--mean so much more than you think.
Was told the other day by someone who has seen firsthand how sick my kids & I are, that we'll just need to find new hobbies. Its not a lack of imagination. Its lack of ability thats keeping us from being able to do anything other than lay down. Its the reality of living w/ #LongCOVID #ChronicIllness
December 20, 2024 at 11:44 PM
Was told the other day by someone who has seen firsthand how sick my kids & I are, that we'll just need to find new hobbies. Its not a lack of imagination. Its lack of ability thats keeping us from being able to do anything other than lay down. Its the reality of living w/ #LongCOVID #ChronicIllness
It's really important as a human to be able to sit with suffering--both your own and others. It's an essential basic human skill that most people haven't learned. #ChronicIllness
December 20, 2024 at 11:41 PM
It's really important as a human to be able to sit with suffering--both your own and others. It's an essential basic human skill that most people haven't learned. #ChronicIllness
I'm very open about my kids and I having #LongCOVID. There are many times where people will make ablest assumptions and I will share our situation. The vast majority of people are VERY awkward.
December 20, 2024 at 11:41 PM
I'm very open about my kids and I having #LongCOVID. There are many times where people will make ablest assumptions and I will share our situation. The vast majority of people are VERY awkward.
For everyone out there whether living with #ChronicIllness or not. No matter how you choose to celebrate this holiday season, know this: your presence, just as it is, is enough. You're doing a great job just by being YOU.
December 19, 2024 at 11:57 PM
For everyone out there whether living with #ChronicIllness or not. No matter how you choose to celebrate this holiday season, know this: your presence, just as it is, is enough. You're doing a great job just by being YOU.
Chronically ill people aren’t asking for miracles. We’re asking for a world that sees our reality.
It’s not just about the pain, fatigue, or struggle—it’s about how these challenges coexist with our love, empathy, and strength. #ChronicIllness
It’s not just about the pain, fatigue, or struggle—it’s about how these challenges coexist with our love, empathy, and strength. #ChronicIllness
December 19, 2024 at 4:43 AM
Chronically ill people aren’t asking for miracles. We’re asking for a world that sees our reality.
It’s not just about the pain, fatigue, or struggle—it’s about how these challenges coexist with our love, empathy, and strength. #ChronicIllness
It’s not just about the pain, fatigue, or struggle—it’s about how these challenges coexist with our love, empathy, and strength. #ChronicIllness
Our risk for infection would greatly go up, access to healthcare would go down because we cannot travel that frequently, our symptoms would be exacerbated, and we would have more crashes if we didn’t have access to telehealth. We need to be able to access care at home. @longcovidfam.bsky.social
December 19, 2024 at 1:07 AM
Our risk for infection would greatly go up, access to healthcare would go down because we cannot travel that frequently, our symptoms would be exacerbated, and we would have more crashes if we didn’t have access to telehealth. We need to be able to access care at home. @longcovidfam.bsky.social
Telehealth is at risk. Our family is almost entirely dependent on telehealth for our medical and mental health needs. Our family would lose access to weekly PT therapy and doctor appointments. #telehealth #chronicillness
December 19, 2024 at 1:07 AM
Telehealth is at risk. Our family is almost entirely dependent on telehealth for our medical and mental health needs. Our family would lose access to weekly PT therapy and doctor appointments. #telehealth #chronicillness
Recently we just had the first person in 4.5 years of being sick with #LongCovid ask us if there was anything they could do to make an event inclusive for someone in our family. They asked if there was a way they could advocate for us.
I'm so grateful.
I'm so grateful.
December 18, 2024 at 11:43 PM
Recently we just had the first person in 4.5 years of being sick with #LongCovid ask us if there was anything they could do to make an event inclusive for someone in our family. They asked if there was a way they could advocate for us.
I'm so grateful.
I'm so grateful.
Longhaulers often struggle to get through the basics of eating and going to the bathroom in a day and yet they will listen, help and love with the very little energy they have. #ChronicIllness
December 18, 2024 at 11:42 PM
Longhaulers often struggle to get through the basics of eating and going to the bathroom in a day and yet they will listen, help and love with the very little energy they have. #ChronicIllness
People with #LongCOVID are among the most loving, kind, generous, empathetic, strong, compassionate, soulful and real people I've ever met. I'm regularly struck with awe and respect.
December 18, 2024 at 11:42 PM
People with #LongCOVID are among the most loving, kind, generous, empathetic, strong, compassionate, soulful and real people I've ever met. I'm regularly struck with awe and respect.
The emotional roller coaster of getting our hopes up for a treatment that has the potential to help relieve/eliminate symptoms and the crash that happens when it doesn’t work or makes us worse, then trying to figure out what the next move is part of the invisible toll of #ChronicIllness.
December 17, 2024 at 3:16 AM
The emotional roller coaster of getting our hopes up for a treatment that has the potential to help relieve/eliminate symptoms and the crash that happens when it doesn’t work or makes us worse, then trying to figure out what the next move is part of the invisible toll of #ChronicIllness.
All of this while still taking care of my mental and physical health. It's really irritating that only now that my husband does some of these things, because I'm unable, they are acknowledged and praised by others.
December 6, 2024 at 12:56 AM
All of this while still taking care of my mental and physical health. It's really irritating that only now that my husband does some of these things, because I'm unable, they are acknowledged and praised by others.