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National Patient Advocate Foundation
@npaforg.bsky.social
80 followers 38 following 100 posts
We advocate for policy solutions that support the whole person, and partner with people like you to ensure that healthcare works for all of us.
https://linktr.ee/NPAF
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npaforg.bsky.social
Medicare Open Enrollment starts today!
#GetCareGetCovered
From October 15 through December 7, 2025, people with Medicare can review, compare, and make changes to their coverage for the year ahead.
October 15, 2025 at 4:06 PM
npaforg.bsky.social
Discover how you can help us expand our reach and educate communities about patient experiences, like financial hardship and the need for Needs Navigation.

October 1st | 3-4 pm ET

Register here: www.npaf.org/events/
Hot air balloons with text announcing a webinar against a cloudy sky and green forest. Transcribed Text: LIVE WEBINAR: Building Community in The Digital Space: How Social Media Drives Connection, Action, and Impact October 1st | 3–4 pm ET
September 25, 2025 at 1:24 PM
npaforg.bsky.social
Join @NA4Caregiving & @CancerCare for an interactive listening session exploring the financial challenges faced by cancer caregivers, from out-of-pocket costs to lost wages. Hear from experts, speak with other caregivers, and share your own story.

Sept 29, 1-2:30PM ET

bit.ly/4oG6mEl
Understanding the Financial Challenges of Cancer Caregiving
bit.ly
September 18, 2025 at 11:16 PM
Reposted by National Patient Advocate Foundation
npaforg.bsky.social
Join us for Building Community in the Digital Space
Learn how social media can spotlight financial hardship, connect advocates, and provide real tools for action.

Register: www.npaf.org/events/

#NPAF #Webinar #PatientAdvocacy #FinancialHealth #SocialMedia #Community #Voices4Change
September 12, 2025 at 2:16 PM
npaforg.bsky.social
LinkedIn
We’re proud to spotlight our latest blog post, Through Adversity, Advocacy Called My Name

Read Julia’s story: www.npaf.org/blogs/throug...
September 17, 2025 at 4:33 PM
npaforg.bsky.social
Join us for Building Community in the Digital Space
Learn how social media can spotlight financial hardship, connect advocates, and provide real tools for action.

Register: www.npaf.org/events/

#NPAF #Webinar #PatientAdvocacy #FinancialHealth #SocialMedia #Community #Voices4Change
September 12, 2025 at 2:16 PM
npaforg.bsky.social
47 leading patient orgs are calling on House appropriators to protect robust federal funding for medical research in FY26, because cures can’t wait.

Read the coalition letter + details: unitedforcures.org/47-leading-p...

#MedicalResearch #Cures #Appropriations
47 Leading Patient Advocacy Organizations Urge House Appropriators to Support Robust Federal Funding — United For Cures
unitedforcures.org
September 2, 2025 at 2:09 PM
Reposted by National Patient Advocate Foundation
kff.org
Medicare beneficiaries spent 11% of their total per capita income on out-of-pocket health care costs, on average, but 1 in 4 beneficiaries spent at least 21% and 1 in 10 beneficiaries spent 39% or more. https://on.kff.org/4lL3R0S
Chart showing the percentage of total per capita income spent on out-of-pocket healthcare costs by Medicare beneficiaries in 2022. It shows Medicare beneficiaries spent 11% of their total per capita income on out-of-pocket health care costs, on average, but 1 in 4 beneficiaries spent at least 21% and 1 in 10 beneficiaries spent 39% or more. Data sourced from CMS Current Beneficiary Survey, 2022, KFF analysis and the Urban Institute's DYNASIM.
August 25, 2025 at 5:49 PM
npaforg.bsky.social
Today we’re debuting the Needs Navigation Toolkit — a new resource designed to help advocates, patients, caregivers, and communities understand and act on the importance of Needs Navigation.

Download the Toolkit here: www.npaf.org/resources/ne...
August 25, 2025 at 6:00 PM
npaforg.bsky.social
Starting Now!
npaforg.bsky.social National Patient Advocate Foundation @npaforg.bsky.social · Aug 21
Join us TODAY, at 3 PM ET, for a free webinar about Needs Navigation — hands-on support that helps people manage costs concerns by connecting them to the right resources.
There’s still time to join us: www.npaf.org/events/
#NeedsNavigation #Voices4Change #CommunityHealth
August 21, 2025 at 7:03 PM
npaforg.bsky.social
Join us TODAY, at 3 PM ET, for a free webinar about Needs Navigation — hands-on support that helps people manage costs concerns by connecting them to the right resources.
There’s still time to join us: www.npaf.org/events/
#NeedsNavigation #Voices4Change #CommunityHealth
August 21, 2025 at 4:08 PM
npaforg.bsky.social
Care isn’t just about doctors and medicine...
Needs Navigation connects patients to the resources they need right in their own communities.
Join us tomorrow to learn how to talk about this important support:

🗓 August 21 | 3–4 PM ET | Free Webinar (Zoom)
Register now:https://www.npaf.org/events/
August 20, 2025 at 6:07 PM
npaforg.bsky.social
Karla Alvarado of BSWH Community Care Clinics reminded us: “Whether someone is called an advocate, a navigator, or a community health worker, the goal is the same. People need someone by their side who understands both the medical system and their personal reality.” Read More: ow.ly/YuEO50WHRk1
August 18, 2025 at 9:00 PM
npaforg.bsky.social
Right now, Medicaid is at risk. We need your help protect it.

Check out: Medicaid 101: What You Need to Know

Learn the facts.
Share it with your networks
Watch now: youtu.be/yRgxXzmXsjg

#MedicaidDayOfAction #ProtectMedicaid #NPAF
Medicaid 101 Training Video
YouTube video by National Patient Advocate Foundation (NPAF)
youtu.be
July 30, 2025 at 7:14 PM
npaforg.bsky.social
How to Talk About Needs Navigation and Why It Matters
August 21 3–4 PM ET
Free Webinar ow.ly/Po7K50Wu83E

#NeedsNavigation #Voices4Change #Healthcare
Promotional image for a webinar on needs navigation, set against a colorful landscape and sky. Transcribed Text: NPAF National Patient Advocate Foundation Live Webinar: How to Talk About Needs Navigation ...and Why It Matters. Thursday, August 21, 2025 | 3-4 pm ET Needs Navigation is more than just a list of resources; it’s personalized support that helps people find the right programs and get the help they need to ease their cost concerns.
July 23, 2025 at 5:02 PM
npaforg.bsky.social
Ky wrote about what it means to make healthcare work for all of us at a time where it doesn't feel like it's working at all.
Read the full post here: www.npaf.org/blogs/all-of...

#Medsky #Voices4Change #Protectmedicaid #NPAF
July 17, 2025 at 4:24 PM
npaforg.bsky.social
At NPAF, we believe no one should face the cost of care alone.
Needs Navigation eases cost concerns to make healthcare work for all of us.

We stand with people managing chronic conditions and fight for care that supports real life, not just medical charts.

#ChronicDiseaseDay #ChronicIllness
July 10, 2025 at 11:48 PM
npaforg.bsky.social
The Scott Amendment which would bring the ACA's Medicaid expansion federal match from a 90% federal share to a much lower match that differs by state (generally between 50% and 75%)- winding down the ACA's expansion, leading to loss of access to care.

Please take action here: ow.ly/cVH050WiBrh
Say No to Medicaid Cuts – Our Communities Depend on It
Congress is considering cuts that could leave many without coverage. Urge lawmakers to protect Medicaid and safety net programs that keep our communities strong. Your voice matters! #ProtectMedicaid #...
ow.ly
July 1, 2025 at 1:02 PM
npaforg.bsky.social
View out summaries of today's #NPAF #PolCon in our #IssueBrief here: www.npaf.org/resources/ne...

#MedSky #ChronicIllness
June 11, 2025 at 7:46 PM
npaforg.bsky.social
"the constellation for healthcare costs showed that people are making the choice between paying for food, rent, and utilities and their #healthcare costs"

#NeedsNavigation secures access to safety net services that people need.

#PolCon #NPAF #ProtectMedicaid #Finance #HealthcareCosts
June 11, 2025 at 7:39 PM
npaforg.bsky.social
95% of patients values #NeedsNavigation services (of those who have experienced needs navigation services) #NPAF #PolCon
June 11, 2025 at 7:32 PM
npaforg.bsky.social
" Patients are more concerned about financial impacts than dying". "The number one thing that matters the most during a diagnosis is overall financial concern; 95% of patients said the financial impact caused serious concern." - Patient Insight Institute #NPAF #PolCon
June 11, 2025 at 7:31 PM
npaforg.bsky.social
Findings from Patient Insight Institute, via Rebekah Angove, PhD most recent study. "all research and data is just a thousand stories": 82% experienced financial difficulty in the past 12 months. #NPAf #PolCon
June 11, 2025 at 7:30 PM
npaforg.bsky.social
"The cost of healthcare is from premiums to parking... #NeedsNavigation turns a health system into a #Healthcare System" - Bri Davis

#NPAF #PolCon
June 11, 2025 at 7:16 PM
npaforg.bsky.social
"It brings anxiety knowing that even if I'm going for a routine visit.... if something is wrong... am I going to be able to afford medication and follow up visits?" - Bri Davis

#NPAF #PolCon
June 11, 2025 at 7:15 PM