Jeremy Pomeroy
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movemoresitless.bsky.social
Jeremy Pomeroy
@movemoresitless.bsky.social
Behavioral epidemiologist and rare disease researcher. PI of largest international registry of people with #bardetbiedlsyndrome
Reposted by Jeremy Pomeroy
Relying on ChatGPT to teach you about a topic leaves you with shallower knowledge than Googling and reading about it, according to new research that compared what more than 10,000 people knew after using one method or the other.

Shared by @gizmodo.com: buff.ly/yAAHtHq
November 21, 2025 at 11:48 AM
The Northern Lights are putting on quite a show tonight
November 12, 2025 at 3:52 AM
Reposted by Jeremy Pomeroy
Are you with us in the battle against misinformation? If so, we’d appreciate your support.

Just this week, we’ve explained the importance and safety of vaccines… 🧵
buff.ly/cRsOxNT
🩺 🧪 #VaccinesWork
Hepatitis B shot for newborns has nearly eliminated childhood infections with this virus in the US
Before universal vaccination for hepatitis B began in 1991, 18,000 children contracted the virus by age 10 each year, and most of them developed chronic illness and liver damage. Vaccination reduced…
theconversation.com
September 23, 2025 at 12:07 AM
Reposted by Jeremy Pomeroy
NEW: GOP lawmakers cite Georgia’s Pathways to Coverage as a national model for federal Medicaid work requirements that are set to take effect in 2027.

A new report shows the program has spent twice as much on administrative costs as on health care.

By @savmargaret.bsky.social
Georgia’s Medicaid Work Requirement Program Spent Twice as Much on Administrative Costs as on Health Care, GAO Says
Republican lawmakers cite Georgia’s Pathways to Coverage as a national model for federal Medicaid work requirements that are set to take effect in 2027. A new report shows the program has spent at lea...
www.propublica.org
September 24, 2025 at 1:15 PM
Reposted by Jeremy Pomeroy
I am grateful for the opportunity to chat with Dr Stephen Johnston from A Race Against Blindness youtu.be/XUZMrMG4WKg?...
#raredisease #medsky #bardetbiedlsyndrome
Multispecialty care for BBS @ the Marshfield Clinic BBS Center of Excellence with Dr. Jeremy Pomeroy
YouTube video by A Race Against Blindness - Nonprofit Organization
youtu.be
April 7, 2025 at 12:53 AM
Reposted by Jeremy Pomeroy
We are witnessing the destruction of science in America | Paul Darren Bieniasz
We are witnessing the destruction of science in America | Paul Darren Bieniasz
If we stay on this administration’s course, future life-saving medicines may never be invented
www.theguardian.com
April 9, 2025 at 2:41 PM
I am grateful for the opportunity to chat with Dr Stephen Johnston from A Race Against Blindness youtu.be/XUZMrMG4WKg?...
#raredisease #medsky #bardetbiedlsyndrome
Multispecialty care for BBS @ the Marshfield Clinic BBS Center of Excellence with Dr. Jeremy Pomeroy
YouTube video by A Race Against Blindness - Nonprofit Organization
youtu.be
April 7, 2025 at 12:53 AM
Reposted by Jeremy Pomeroy
Working with an interdisciplinary team, we have developed a website to communicate how the White House's proposed cuts to health research would cause losses of $16B and 68,500 jobs.

Find out how your community may be impacted.

Explore more at SCIMaP: scienceimpacts.org

a 🧵
March 28, 2025 at 2:15 AM
Reposted by Jeremy Pomeroy
From 2010 to 2016 (latest data I have ), NIH research contributed to EVERY drug approved by the FDA
March 22, 2025 at 10:44 AM
Reposted by Jeremy Pomeroy
My latest - gene therapy company MeiraGTx has restored sight to 11 children born with a rare genetic disorder that causes blindness.

www.forbes.com/sites/alexkn...
This Founder’s Gene Therapy Company Helped Blind Kids See Again
Zandy Forbes’ biotech company MeiraGTx has developed targeted gene therapy methods to treat more than just genetic disorders. Now it’s on the cusp of its first approval.
www.forbes.com
March 5, 2025 at 3:56 PM
Reposted by Jeremy Pomeroy
1. The Trump administration has crippled cancer and Alzheimer's research by imposing a freeze on all government credit cards at NIH.

An NIH source with direct knowledge tell Popular Information that scientific research has ground to halt because necessary supplies can no longer be purchased.
Trump credit card freeze crippling cancer and Alzheimer's research
On February 26, President Trump issued an executive order expanding the power of the United States DOGE Service (DOGE), the government initiative controlled by Elon Musk.
popular.info
March 3, 2025 at 2:19 PM
Reposted by Jeremy Pomeroy
Are you an HHS employee struggling with your 5 bullets? We applaud the hero that created this site, where you can input your occupation (title or job series both work) and it generates 5 bullets for you.
www.opmreply.com
OPM Reply
Automate response to OPM emails
www.opmreply.com
March 3, 2025 at 5:13 PM
Reposted by Jeremy Pomeroy
Just finished the renewal for my NIH grant, which has funded my work for 23 years. We'll follow through on exciting threads, including a possible link between autism spectrum disorder and sensation/movement.

Barring a collapse in the federal government and U.S. science, it's ready to submit.

uh oh
March 3, 2025 at 2:57 PM
Reposted by Jeremy Pomeroy
I cover health and biotech at WIRED, and I'm looking to speak with employees at federal labs whose work is being affected by the credit card freeze. You can reach me securely on Signal at emullin.06. I can honor requests for anonymity.
March 3, 2025 at 3:17 PM
As a former IRTA fellow I am grateful that I had to work at the NIDDK/NIH with scientists like Francis Collins. #NIH #medsky #science
March 2, 2025 at 6:29 PM
Reposted by Jeremy Pomeroy
Democracies weren’t built around this. They depend on a shared reality, however contested, to function. When governance becomes a battle between competing fictions rather than policy and truth, institutions designed for debate and compromise become tools for enforcing narratives.
February 28, 2025 at 9:56 PM
Realistically Trump isn’t going to do anything to benefit people with #raredisease but hopefully at some point there will be opportunities to make the changes necessary to benefit this underserved group. #medsky #fda
www.statnews.com/2025/02/28/t...
To fight for those with rare diseases, Trump must reform and modernize the FDA thoughtfully
“With the right policies, advanced science, and strong leadership in government agencies, Donald Trump has the power to save more American lives from rare diseases than any president in history,” writ...
www.statnews.com
February 28, 2025 at 8:54 PM
Reposted by Jeremy Pomeroy
Accommodations designed for people with #disabilities often benefit everyone. Examples include captioning, visual instructions, and remote work options, according to a professor of disability studies: buff.ly/4h1lVl5
Lauren Shallish, Rutgers - Newark #ADA #DEI #workplace #universaldesign
Why including people with disabilities in the workforce and higher education benefits everyone
For one thing, the presence of employees with disabilities improves the culture of the entire organization, making it more collaborative and responsive.
buff.ly
February 27, 2025 at 5:14 PM
I am absolutely gutted. During my time in the Intramural Program at NIDDK I had the opportunity to mentor 5 SIP interns including interns through the Office of Minority Health Research. It made me a better scientist and these students often went on to make underserved communities less underserved
NIDA has announced it, but all the NIH summer internship programs are likely cancelled.

Sorry college students interested in STEM jobs, sorry high school students looking at science 🧪 careers. Trump and Musk are cancelling your futures.
Another loss for #science & the next generation of researchers. The 28-year running NIDA summer internship program is cancelled for this year.
@altnih4science.bsky.social #SavetheNIH
February 27, 2025 at 3:49 PM
Reposted by Jeremy Pomeroy
Trump administration policies could create new barriers for disabled Americans in employment, education, and health care. Changes to federal programs may impact the whole 20-25% of the population with disabilities. https://buff.ly/3EZBLzd
@matthewborus.bsky.social, Binghamton University
Cutting Medicaid and federal programs are among 4 key Trump administration policy changes that could make life harder for disabled people
Tracking disability policies has long been challenging − this will become a harder task under the Trump administration.
buff.ly
February 26, 2025 at 11:27 PM
Reposted by Jeremy Pomeroy
Yo Feds! The trauma is real. It’s not your fault. Take care of yourself & your peeps. Go for a walk. Get in a different headspace.

We see you out there, we need you out there, & we love you & value your important work.

If you are in crisis, please reach out & #resist the doubt and despair.
February 26, 2025 at 5:53 PM
Reposted by Jeremy Pomeroy
what the actual fuck
February 26, 2025 at 2:36 PM
Reposted by Jeremy Pomeroy
This.

Let’s be done with the whole “run government like a business” bs, shall we?
February 20, 2025 at 2:31 PM
Reposted by Jeremy Pomeroy
Bobby Whalen is a man with autism who had a job sterilizing surgical instruments at NIH. He was apparently quite good at it, but he just lost his job because of Musk’s hatchet job. www.nbcwashington.com/news/local/f...
‘Disappointing': Fired NIH worker trained others hired in disability inclusion program
D.C. resident Bobby Whalen was a proud probationary employee of the National Institutes of Health. He lost his job Friday night along with what is believed to be more than 1,000 other NIH probationary...
www.nbcwashington.com
February 20, 2025 at 1:55 AM