It was such an honour for us to host this meeting in Copenhagen and to enjoy the company os more than 200 friends and colleagues

Excited to host - for the third time - this meeting of a scientific group that I joined in 1989, and which has since made a very substantial contribution to its field.

📅 Reminder: Registration is open for the @eortc.org #QualityofLife Group (QLG) autumn meeting, to be held on 25-26 September in Copenhagen!

⏰ Register by 19th August to secure your place!

🔗More info including on venue & programme: www.eortc.org/event/eortc-...

#QLGmeeting

🚀 @eortc.org QLQ-C30 is the leading PRO measure in oncology! Since 2016, EORTC #QualityofLife Group strategy has evolved to stay ahead with cancer treatment advancements. 🌟This includes disease-specific modules, Computer Adaptive Testing (CAT), & Item Lists.

@mogensgroenvold.bsky.social #QoLConf25

🌐 The @eortc.org Item Library is an interactive platform for creating customised item lists, useful for novel treatments, early phase trials, rare disease groups & tailored clinical monitoring. 👏 Ongoing projects will expand adverse events coverage and HRQoL issues.
- C. Piccinin at #QoLConf25

🔍 The @eortc.org Computerised Adaptive Testing (CAT) is an innovative, individually responsive HRQoL measurement. CAT optimises item presentation based on prior responses, allowing for more precision and reduced response burden compared to conventional PRO questionnaires.
- H. Vachon #QoLConf25

📝The @eortc.org Write-In-Three Symptoms/Problems (WISP) instrument enables open-ended reporting of PROs, filling a crucial gap in capturing missing symptoms across various oncological settings. WISP is both acceptable and useful for patients.🌟
- C. Piccinin #QoLConf25
#CancerResearch #QualityofLife

Skarp kritik igen: På fem år er der ikke sket nævne­værdige forbedringer af ventetiden til specialiseret lindring for patienter med livstruende sygdomme. Som samfund skal DK altså tage bedre hånd om mennesker med livstruende sygdomme #dkpol #sundpol www.rigsrevisionen.dk/revisionssag...

🔗 Often, the ‘integration of oncology & palliative care ideal’ is not a reality. The Joint Action Network of Expertise ‘JANE’ aims to bridge this gap by studying the timely integration of evidence-based palliative care into standard oncology care 🌟
@mogensgroenvold.bsky.social @eortc.org #QoLConf25

🔚 SESSION 4 focused on PROs for special cancer patient populations
Speakers: David Riedl, Anne-Sophie Darlington, Jaap Reijneveld, Paolo Bossi & Mogens Groenvold
Chairs: Dagmara Kuliś & @mogensgroenvold.bsky.social
#QoLConf25 #CancerResearch

Extremely happy to see the publication of our paper describing the gradual refinement and expansion of the EORTC QLG strategy through the last decade.

Thank you to all involved for both the excellent collaboration and the courage to make significant changes.

🤝As the clinical trial landscape evolves, so must our strategies for measuring patients’ #QualityofLife to ensure their voice is incorporated in the decision-making process

🔎Takeaways from new article in @thelancetoncol.bsky.social: www.eortc.org/blog/2025/04...
#GivingVoice2Patients @ema.europa.eu

Grateful to be interviewed (in Danish, and with Emma Helledie) about how to improve palliative care in Denmark based on the Danish Medical Association's excellent proposal for a national palliative care plan

ugeskriftet.dk/nyhed/slut-m...

In this interview, I was invited to present my vision for how palliative care can be improved in Denmark.

The article is in Danish and was originally published in a magazine for physicians in hospitals who are not specialized in palliative care.

sundhedspolitisktidsskrift.dk/nyheder/sund...

Meget fint resume - jeg har virkelig været opløftet over at have taget samme skridt og at at finde et bedre sted. Det var desuden en lettelse at slette min tidligere Twitterprofil, som jeg ellers har haft stor glæde af

Jeg er sammen med Lene Jarlbæk blevet interviewet til en fin artikel om udfordringerne for den basale palliative indsats i Seniormonitor:
‘Eksperter: Uklarhed og manglende overblik skaber ulighed i den palliative behandling'

seniormonitor.dk/nyheder/art1...