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metupuk.bsky.social
@metupuk.bsky.social
UK’s only metastatic breast cancer patient advocacy charity. Led by patients, for patients. Focused on the unmet needs of people living with metastatic breast cancer (MBC).
Yesterday, the Government released the new National Cancer Plan for England and at 80+ pages, it’s a lot to digest. Starting today, we’re breaking it down for the Metastatic Breast Cancer community.  
There’s good news, and there are areas where time will tell. Read this post to learn more.
February 5, 2026 at 9:51 AM
This #WorldCancerDay, we’re taking part in the Upside Down Challenge to highlight what millions of people experience - cancer completely turning their world upside down. A small action can help spread awareness and ensure our voices are heard. 
 
#UnitedByUnique #CancerAwareness #WorldCancerDay2026
February 4, 2026 at 9:08 AM
We’re proud to see one of our volunteers’ voices included in this important new research.
Studies like this are vital in helping to uncover inequalities, improve understanding, and shape better care for people living with metastatic breast cancer.

#MBC #MetastaticBreastCancer
February 3, 2026 at 9:53 AM
It’s the 2nd of the month - a moment to pause, breathe, and tune in to your body.
Our #SecondsOnThe2nd post is back to spotlight the lesser-known signs of Metastatic Breast Cancer - symptoms that are often overlooked, misinterpreted, or dismissed altogether.
#SecondsOnThe2nd #MetastaticBreastCancer
February 2, 2026 at 6:49 PM
We’re proud to share this episode of Bridging the Gap, featuring Kirstin Spencer - one of our incredible volunteers.
A patient advocate for METUPUK and a patient expert for NICE and SMC, Kirstin brings powerful insight shaped by lived experience.
elmaresearch.podbean.com/e/breast-can... 🎧
January 26, 2026 at 6:17 PM
METUPUK have been exhibiting and attending sessions at the UKIBCS earlier this week. The UK Interdisciplinary Breast Cancer Symposium takes place every two years. It is a key event that brings together researchers, clinicians, and patient advocates to shape the future of breast cancer care.
January 23, 2026 at 5:58 PM
Myth vs Fact 💬
Metastatic breast cancer doesn’t look the same for everyone. While some areas are more common, spread can vary depending on the type of breast cancer.

#SecondsOnThe2nd
#MetastaticBreastCancer
January 21, 2026 at 6:19 PM
On Blue Monday, we’re sharing a moment of calm.
This guided meditation by @lauraashurst_lwh acts as a gentle reminder that alongside treatment, mental wellbeing is important too.
Please save and use this meditation whenever you feel you would benefit from it.
#guidedmeditation #meditation
January 19, 2026 at 4:34 PM
Stepping forward after the death of dear friends takes immense courage. Sue’s words remind us that advocacy doesn’t end with one voice - it carries on through those who believe deeply in the work and the people behind it.
 
#METUPUK #MBC #VolunteerSpotlight
January 16, 2026 at 8:47 AM
Today would have been Jo’s 57th birthday. We’re holding space for the memories, the laughter, and the joy she shared so freely with everyone around her. Jo’s light continues to shine through the community she built and the lives she touched. 
 
#JoTaylor #METUPUK #MBC #MetastaticBreastCancer
January 14, 2026 at 9:01 AM
Following the heartbreaking death of our founder Jo Taylor, METUPUK has faced one of its most difficult decisions, appointing a new Chair to lead us forward. This appointment has been made in consultation with Jo’s family, ensuring her legacy remains at the heart of everything we do.
January 8, 2026 at 11:37 AM
As 2026 begins, we want to share our gratitude with every person in our community.

Thank you for standing with METUPUK throughout 2025.

May the year ahead bring you strength, comfort, and moments of calm.

#METUPUK #MBC #MetastaticBreastCancer
January 2, 2026 at 7:15 PM
It’s the 2nd of the month - time to pause, stop scrolling, and check in with your body.

Our regular #SecondsOnThe2nd post is here to highlight the lesser-known signs of Metastatic Breast Cancer.

#SecondsOnThe2nd #MetastaticBreastCancer #MBC #SecondaryBreastCancer
January 2, 2026 at 4:17 PM
As we welcome the New Year, we pause to remember our friends - always.
Today, we honour members of the METUPUK community who have sadly died from Metastatic Breast Cancer. They are not forgotten. Always remembered. Always part of METUPUK.
#FriendsNotForgotten #MetastaticBreastCancer
December 31, 2025 at 12:22 PM
As Christmas Eve arrives, we want to extend our heartfelt thanks to our community, volunteers, advocates, and everyone who supports METUPUK.
This season can bring joy, reflection, or challenge and we hold space for all experiences.

#METUPUK #MBC #MetastaticBreastCancer #MBCAdvocacy #FestiveMessage
December 24, 2025 at 12:59 PM
This December, our incredible supporter Lesley will be walking 100km - one careful, determined step at a time, as part of her recovery from a recent hip replacement and in loving memory of her dear friend, Elaine.

www.gofundme.com/f/footsteps-...

#METUPUK #MBC
December 23, 2025 at 7:01 PM
Thank you to our incredible community for standing with METUPUK throughout 2025 and especially over the last few weeks since Jo died.

From volunteers and advocates to followers who amplify our work, your support strengthens every part of what we do.

#METUPUK #MBC #MetastaticBreastCancer
December 23, 2025 at 7:55 AM
The festive season can bring joy, connection and celebration - but it can also feel heavy, especially when living with Metastatic Breast Cancer.
These gentle, mindfulness-based tips are here to help you pause, breathe and nurture yourself with kindness.
#FestiveWellbeing #MetastaticBreastCancer
December 19, 2025 at 9:39 AM
We are deeply saddened by the death of our friend and METUPUK Trustee Nicky Goldthorpe. Nicky joined the METUPUK board of Trustees as Secretary in 2024 bringing a wealth of charitable sector expertise. We extend our deepest sympathy to Nicky's family and friends.
December 17, 2025 at 5:29 PM
Today we remember Tass. November 4th would have been her 34th birthday. This year her birthday was closely connected to the day our founder Jo died, falling the day after. As we pick ourselves up and move forward, we wanted to reflect on Tass’ legacy. #MetastaticBreastCancer #MBC
December 15, 2025 at 5:22 PM
Nicole, who lives with HER2+ Metastatic Breast Cancer, shares her first-hand experience as a patient expert supporting the Enhertu submission.

📲 Link in bio to learn more about advocacy and how to get involved.

#METUPUK #PatientAdvocacy
#LivingWithMBC #HER2Positive #Enhertu
December 12, 2025 at 11:12 AM
NICE will raise its cost-effectiveness threshold in 2026, potentially allowing more life-extending metastatic breast cancer treatments - like Enhertu for HER2-low - to qualify for NHS approval. METUPUK welcomes the move and will keep pushing for faster, fairer access. #MBC #METUPUK #NICE
December 10, 2025 at 3:15 PM
December 8, 2025 at 4:29 PM
Sharing the story of journalist and S4C presenter Mari Grug, who speaks openly about life with Metastatic Breast Cancer in her new documentary Un Dydd Ar Y Tro. We were honoured to hear her insights as she continues championing MBC care in Wales. Diolch, Mari.
December 5, 2025 at 3:55 PM