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meetanostomate.bsky.social
@meetanostomate.bsky.social
www.MeetAnOstoMate.org - a safe space filled with valuable information and wonderful people always ready to assist.
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www.MeetAnOstoMate.org
A safe space filled with valuable information and wonderful people always ready to assist. Join us and feel free to ask any questions or share concerns. Connect with new friends who understand what you're going through.
#ostomy #colostomy #ileostomy #wocn
Reposted
November 16, 2024 at 2:49 AM
Many name their stoma. I named mine Krakatoa—it either spews like crazy or stays dormant for days! How about you? Have you named your stoma, and why?"
#ostomy
June 12, 2025 at 2:24 PM
Reposted
My stoma is sore, bleeding, and so painful I can’t sleep. After 5 visits to my nurse, there’s no improvement. It’s ruining my life. Does anyone have ideas or advice? I’m desperate. Thanks! #ostomy
June 7, 2025 at 1:26 PM
Reposted
After 40+ years with an ileostomy, leaks & blowouts are now constant due to a hernia, skin-level stoma, & uneven skin. Nothing works well anymore. Has anyone dealt with this? Did you need stoma revision? Advice appreciated!
#ostomy #stoma
June 4, 2025 at 9:54 PM
Reposted
Looking for the best filter for liquid output. Considering switching to a 1-piece drainable pouch for my colostomy. Filters on my 2-piece Convatec clog quickly. Sampling Hollister Cera Plus & Sensura Mio Flip. Any suggestions?
#ostomy #stoma
May 28, 2025 at 10:26 PM
My stoma is sore, bleeding, and so painful I can’t sleep. After 5 visits to my nurse, there’s no improvement. It’s ruining my life. Does anyone have ideas or advice? I’m desperate. Thanks! #ostomy
June 7, 2025 at 1:26 PM
After 40+ years with an ileostomy, leaks & blowouts are now constant due to a hernia, skin-level stoma, & uneven skin. Nothing works well anymore. Has anyone dealt with this? Did you need stoma revision? Advice appreciated!
#ostomy #stoma
June 4, 2025 at 9:54 PM
Reposted
What should I expect after 10, 20, or 30 years w/ a colostomy? Will I need extra surgeries as I age? For those with permanent stomas, is returning to a normal life possible? Are there any studies on the longest lifespan with a stoma? Tx.
#ostomy
April 20, 2025 at 6:15 PM
Reposted
I would just like to encourage everyone on MAO site that you can find true love after surgery. I absolutely found my life-long true love on this site or should I say he found me. My life will never be the same.” (А member of www.MeetAnOstoMate.org) ❤️
#ostomy #stoma #colostomy #urostomy #ileostomy
May 28, 2025 at 10:32 PM
Reposted
This is a pretty cool site w/ over 39,500 members.
But it’s not all about ostomy. We talk about everything.
Many come here for advice, others find lasting friendships, & some have even found love.
• Privacy is very important, your profile's not visible to the outside world. MeetAnOstoMate.org
#stoma
Meet and talk to people with an Ostomy
MeetAnOstoMate is a vibrant multi-topic community, where people have fun, discuss various things, laugh together, cry together, and give each other plenty of love and support.
MeetAnOstoMate.org
May 28, 2025 at 11:35 PM
Reposted
www.meetanostomate.org/
It’s been an incredible journey and there is a lot more to come.
#ostomy #stoma #wocn #colostomy #ileostomy #urostomy #colorectalsurgery
May 7, 2025 at 11:50 PM
This is a pretty cool site w/ over 39,500 members.
But it’s not all about ostomy. We talk about everything.
Many come here for advice, others find lasting friendships, & some have even found love.
• Privacy is very important, your profile's not visible to the outside world. MeetAnOstoMate.org
#stoma
Meet and talk to people with an Ostomy
MeetAnOstoMate is a vibrant multi-topic community, where people have fun, discuss various things, laugh together, cry together, and give each other plenty of love and support.
MeetAnOstoMate.org
May 28, 2025 at 11:35 PM
I would just like to encourage everyone on MAO site that you can find true love after surgery. I absolutely found my life-long true love on this site or should I say he found me. My life will never be the same.” (А member of www.MeetAnOstoMate.org) ❤️
#ostomy #stoma #colostomy #urostomy #ileostomy
May 28, 2025 at 10:32 PM
Looking for the best filter for liquid output. Considering switching to a 1-piece drainable pouch for my colostomy. Filters on my 2-piece Convatec clog quickly. Sampling Hollister Cera Plus & Sensura Mio Flip. Any suggestions?
#ostomy #stoma
May 28, 2025 at 10:26 PM
Reposted
From MeetAnOstoMate forum: I reversed my stoma, and it was the worst decision of my life. Multiple surgeries, sickness, and no improvement. Now I’m looking forward to getting it back. We’re all different, but for me, the stoma brought relief and a better quality of life.
#ostomy
May 16, 2025 at 1:25 AM
Reposted
“Hi, I just wanted to say I met someone on this site. He lives in the UK but comes to visit and we both have urostomies. It is funny because we have similar situations even though we are from opposite sides of the world.” (А member of www.MeetAnOstoMate.org)
#ostomy #colostomy #wocn #ostomydating
May 24, 2025 at 12:49 AM
Reposted
I’ve had an ileostomy for 6 years & started forming uric acid stones. My doc prescribed allopurinol, but I’m trying ACV & lemon juice. Anyone else dealing with stones? What works for you?
#ostomy #stoma #wocn
May 25, 2025 at 2:38 AM
Reposted
Ladies, I’ve been searching for the perfect post-ostomy pants for 3 years. I need comfort without tightness over my stoma. Any suggestions for nice-looking, comfy pants that work all day? I’ve tried Jjill and maternity jeans. Thanks.
#stoma
May 5, 2025 at 3:39 PM
Reposted
“Keep the faith - I met a wonderful man on this site and recently flew out to visit him for five days. We had a blast and stay in touch now.” (E. A., 53, from USA, a member of www.MeetAnOstoMate.org)
#ostomy #ileostomy #colostomy #urostomy #wocn #ostomydating
May 23, 2025 at 12:50 AM
Reposted
From MeetAnOstoMate forum:
“To avoid pancaking, add a little air to your bag so the stoma moves freely, and output falls to the bottom. Push air near the stoma and use a filterless bag if needed. Stay hydrated to improve output consistency.”
#ostomy
May 18, 2025 at 12:58 AM
Reposted
WE ARE ALL HERE FOR YOU. ww.MeetAnOstoMate.org ❤️
The world's largest web community of people with a stoma.
Over 40,000 members; real-life Forum; 280+ nurses.
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#ostomy #colostomy #urostomy #ileostomy #wocn #ostomycare
May 20, 2025 at 2:06 AM
I’ve had an ileostomy for 6 years & started forming uric acid stones. My doc prescribed allopurinol, but I’m trying ACV & lemon juice. Anyone else dealing with stones? What works for you?
#ostomy #stoma #wocn
May 25, 2025 at 2:38 AM
“Hi, I just wanted to say I met someone on this site. He lives in the UK but comes to visit and we both have urostomies. It is funny because we have similar situations even though we are from opposite sides of the world.” (А member of www.MeetAnOstoMate.org)
#ostomy #colostomy #wocn #ostomydating
May 24, 2025 at 12:49 AM
Reposted
"Never thought I’d discuss stool color! Mine changed from normal to light, then green. Has anyone experienced this? What caused it, and how can I get back to normal (if that exists)?
#ostomy #stoma
May 22, 2025 at 3:22 PM