Long Covid Scotland
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longcovidscot.bsky.social
Long Covid Scotland
@longcovidscot.bsky.social
Long Covid Scotland is a charity & action group led by & advocating for people living with Long Covid.

https://www.longcovid.scot
"Long Covid Scotland stands ready to work with government and partners but the next move must come with real, measurable change."

Long Covid Scotland responds to the inquiry report and calls for real action, not just acknowledgement.
www.longcovid.scot/blog/sta...
Statement on UK Covid-19 Inquiry Findings - Long Covid Scotland — Long Covid Scotland
Long Covid Scotland welcomes yesterdays inquiry report, which confirms what so many already knew: the UK and Scottish Governments’ early pandemic response was “too little, too late.” These failures did not just cost lives, they created a long-term wa
www.longcovid.scot
November 21, 2025 at 4:27 PM
🧼 63% of Scots with #LongCovid need help with personal care - things like washing, dressing, or cooking a meal.

Yet funding is now just £9.70 per patient per year
People are left without dignity or support.

#LongCovidScotland #Disability #ChronicIllness #Scotland
October 10, 2025 at 12:20 PM
🚗 64% of Scots with #LongCovid need help with travel and transport.
People can’t drive or even leave home yet government funding is just £9.70 per patient per year.
That’s not mobility. That’s abandonment.
#LongCovidScotland #Disability #ChronicIllness #Scotland
October 9, 2025 at 6:27 PM
🛒𝟴𝟮%of Scots with #LongCovid told us they need help with shopping.
People are struggling with basic tasks but government funding is now just £𝟵.𝟳𝟬 per patient per year.

We're telling That isn't enough.

#LongCovidScotland #Disability #ChronicIllness #Scotland
October 8, 2025 at 9:11 AM
🧹 89% of Scots with #LongCovid need help with household chores.
Many can’t cook, clean, launder without support yet funding is just £9.70 per patient per year?!

Hey ScotGov That’s not care. That’s neglect.
#LongCovidScotland #Disability #ChronicIllness #Scotland
October 7, 2025 at 7:54 AM
In Scotland, the disabled pay TWICE

🏥 84% of Scots with #LongCovid pay for supplements.
59% for alternative therapies. 41% for private appointments.
...Because Scottish Government funding is only £9.70 per patient per year

#LongCovidScotland #ChronicIllness #Disability #Scotland
October 6, 2025 at 3:59 PM
📊 4 in 10 Scots with #LongCovid told us they can’t work at all.
Another 2 in 10 are forced to cut their hours.
Meanwhile, Scottish Government funding is just £9.70 per patient per year.
People are losing livelihoods while support lags behind.

#LongCovidScotland #Disability #Scotland
October 5, 2025 at 11:29 AM
Scots disabled by #LongCovid have lost over £50,000 in earnings on average.
Scottish Government funding? Just £9.70 per patient per year.
People are paying the price — not the government.
#LongCovidScotland #ChronicIllness #Scotland #MECFS
October 4, 2025 at 10:53 AM
We see seven major problems with the recent funding announcement. Here's what you need to know. Please watch, like and share to raise awareness. Audit Scotland MUST surely now investigate? #LongCovid #MECFS #ScotGov www.youtube.com/watch?v=BtO...
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September 28, 2025 at 12:08 PM
While we welcome the Scottish Government announcement of £4.5 million recurrent #LongCovid and #MECFS funding, serious concerns remain. Patients are told money is being allocated, but there is no clarity on how it will be used.

Read the full statement on our website: www.longcovid.scot/blog/res...
September 26, 2025 at 3:13 PM
📢 New research from Robert Gordon University and the Poverty Alliance highlights the severe financial pressures faced by people with Long COVID in Scotland.

Read the full story - and let us know your experience

www.rgu.ac.uk/news/news-202...

#LongCovid #SocialJustice #Workplace #Scotland #Poverty
Long COVID, long consequences | September 2025 | News | RGU
New research from Robert Gordon University (RGU) and the Poverty Alliance highlights the severe financial pressures being faced by people with Long COVID in Scotland.
www.rgu.ac.uk
September 23, 2025 at 11:46 AM
Members of The Long Covid Cuppa in Falkirk, Noreen & Suzanne are braving The Forth Bridge Abseil on 28th Sep to raise awareness of Long Covid services from Chest Heart and Stroke Scotland and The Cuppa Group:

Can donate here: gofund.me/71d0cc9d1
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September 23, 2025 at 10:15 AM
36% of people with confirmed COVID develop Long COVID, per a mega-review of 429 studies. Higher in hospitalised patients (44%). Common issues: fatigue, respiratory and neurological problems. This is a long-term public health challenge.

www.eatg.org/hiv-news/more-...
#LongCovid #PublicHealth
More than one-third of individuals with COVID-19 experience long COVID
Long COVID remains a globally persistent condition, with a pooled prevalence of 36% worldwide, highlighting the urgent need for follow-up studies and policy responses.
www.eatg.org
September 21, 2025 at 4:10 PM
36% of people with confirmed COVID develop Long COVID, per a mega-review of 429 studies. Higher in hospitalised patients (44%). Common issues: fatigue, respiratory and neurological problems. This is a long-term public health challenge.

www.eatg.org/hiv-news/more-...
#LongCovid #PublicHealth
More than one-third of individuals with COVID-19 experience long COVID
Long COVID remains a globally persistent condition, with a pooled prevalence of 36% worldwide, highlighting the urgent need for follow-up studies and policy responses.
www.eatg.org
September 21, 2025 at 4:10 PM
🧠 COVID-19 Isn’t Just a Lung Disease It’s Hitting Our Brains Too.

We need better mental support
Dr's should screen for brain symptoms early.
Long-term research and public health plan needed

#LongCovid #BrainFog #CovidRecovery #MentalHealth #Neurology #NeuroCovid
www.journalmbr.com.br/index...
Neuropsychiatric manifestations related to COVID-19 | Journal of Medical and Biosciences Research
www.journalmbr.com.br
July 14, 2025 at 4:09 PM
📣 HEAR US!
Long Covid Scotland has submitted our official response to the Long Term Conditions consultation. You can download it in full below.

🕒 You have until 20ᵗʰ July to submit your personal response.

#LongCovid #DisabilityRights #HearUs

drive.google.com/file/d/1mV...
July 10, 2025 at 7:06 PM
🚨𝗧𝗵𝗲𝗿𝗲'𝘀 𝗮 𝗻𝗲𝘄 𝗖𝗢𝗩𝗜𝗗 𝘃𝗮𝗿𝗶𝗮𝗻𝘁 𝘀𝗽𝗿𝗲𝗮𝗱𝗶𝗻𝗴 𝗶𝗻 𝘁𝗵𝗲 𝗨𝗞: 𝗦𝘁𝗿𝗮𝘁𝘂𝘀 𝗫𝗙𝗚.

Key symptoms:

‼️Sore Throat
🔇Hoarse Voice
😓Fatigue

www.independent.co.uk/news/...

#StratusXFG #LongCovid #CovidIsNotOver #HealthAlert #UKNews #LongCovidScotland
New Covid strain spreads across UK with unique symptom
The XFG and XFG.3 variants currently account for around 30 percent of Covid-19 cases in England
www.independent.co.uk
July 9, 2025 at 10:27 AM
🧬Does the Gut Hold the Key to Long COVID and Chronic Fatigue?
Researchers compared Long COVID to other fatigue & immune issues
www.mdpi.com/2218-273X/15/7...

#LongCovid #ChronicFatigue #GutHealth #Microbiome #PASC #PostViralFatigue #ImmuneSystem #HealthResearch #LongCovidAwareness
www.mdpi.com
July 3, 2025 at 9:58 AM
🧠💥 Could Long COVID Be Linked to Burnout in Your Body's Stress System?
Research suggests COVID affects adrenal glands,
When these don't work you can stay stuck in low-energy, high-stress mode.

#LongCOVID #ChronicIllness #Fatigue #BrainFog

scholar.kyobobook.co.kr/art...
June 30, 2025 at 5:21 PM
🧠💥 Could Long COVID Be Linked to Burnout in Your Body's Stress System?
Research suggests COVID affects adrenal glands,
When these don't work you can stay stuck in low-energy, high-stress mode.

#LongCOVID #ChronicIllness #Fatigue #BrainFog

scholar.kyobobook.co.kr/art...
June 30, 2025 at 5:21 PM
New study: Over 1 in 3 children had Long Covid symptoms 3 months after infection.
Breathing issues, sleep problems & hair loss were most common.
📌 Kids with moderate symptoms during Covid were much more likely to be affected.
he02.tci-thaijo.org/index.p...

#LongCovid #Covid19
Incidence and Risk Factors of Long COVID in Children and Adolescents: A Single-Center Cohort Study in Thailand | Vajira Medical Journal : Journal of Urban Medicine
he02.tci-thaijo.org
June 24, 2025 at 8:07 AM
New study: Over 1 in 3 children had Long Covid symptoms 3 months after infection.
Breathing issues, sleep problems & hair loss were most common.
📌 Kids with moderate symptoms during Covid were much more likely to be affected.
he02.tci-thaijo.org/index.p...

#LongCovid #Covid19
Incidence and Risk Factors of Long COVID in Children and Adolescents: A Single-Center Cohort Study in Thailand | Vajira Medical Journal : Journal of Urban Medicine
he02.tci-thaijo.org
June 17, 2025 at 10:48 AM
“Being alive is utterly exhausting.”
This Big Issue report shares how Long Covid is pushing people out of work — and into a benefits system that doesn’t understand them.
📉 2 million affected.
📢 No support, no treatment — just blame.
Read & share

www.bigissue.com/news/socia...
Five years on: How Covid forced people out of work and onto benefits
As the government seeks to crack down on worklessness in the UK, perhaps ministers need to consider the people suffering with long-Covid.
www.bigissue.com
June 16, 2025 at 5:52 PM
🫶 THANK YOU TO EVERYONE WHO FILLED IN OUR SURVEY

Your time, energy & concentration are so precious; we’re grateful you donated them. We’re now working with data experts to turn your answers into insights, then action. 

📢 Watch this space!

#LongCovid #InvisibleIllness #Fatigue #LivedExperience
June 5, 2025 at 8:36 AM