LetsBeWheel
letsbewheel.bsky.social
LetsBeWheel
@letsbewheel.bsky.social
Sharing my story to battle stigma, raise awareness and advocate for the inclusion of those with long-term conditions & disabilities ♿️🧡
I’ve started creating hospital guides for people anxious about certain procedures!

I’ve started off with Plaster Room guides, most recently explaining the ‘saw’.

If there could be a guide to any procedure, which would you like to see?

#hospital #nhs #advocate #Disability
November 12, 2025 at 3:10 PM
It’s men’s mental health month and so I wanted to share a video talking of my own struggles with mental health. Especially as a child.

Check out the full video here - vm.tiktok.com/ZNdK2EpJE/
November 10, 2025 at 5:06 PM
I’m doing Movember! And it’s umm, going okay hahaha

- uk.movember.com/donate/detai...
November 8, 2025 at 8:04 PM
Halloween to me is a chance to give kids, teens and parents alike a funny memory to remember the night by! If that involves me in a shark costume being stupid, so be it 😂

Come and check out my interactions here - vm.tiktok.com/ZNd3ENUJL/
November 1, 2025 at 3:15 PM
Reposted by LetsBeWheel
NEW research to bridge the data gap in patient care 📉

We're teaming up with @sarcoma.org.uk to launch the Sarcoma Data Partnership Programme and tackle one of the biggest barriers to better care.

Learn more: ow.ly/mWOr50XfB1U

#Research #UntilTheresACure
October 29, 2025 at 3:01 PM
As true as this is, the world can change and the way it does is through us. ♿️🧡

Check out the full video here - vm.tiktok.com/ZNd3hFVEw/
October 29, 2025 at 7:48 PM
This little Lego minifigure is significant to the disabled community!

vm.tiktok.com/ZNd3efqRA/
October 28, 2025 at 10:42 PM
Reposted by LetsBeWheel
Adamantinoma research update 🧬

Thanks to donated tumour samples, scientists at @unileiden.bsky.social have:

- Identified a new subtype
- Found clues in immune cells
- Moved towards better diagnosis

Visit: ow.ly/TUel50X5It2

@letsbewheel.bsky.social

#BoneCancerAwarenessWeek #UntilTheresACure
October 10, 2025 at 9:22 AM
Reposted by LetsBeWheel
Lewis was diagnosed with adamantinoma in his shinbone at just 8 years old.

For #BoneCancerAwarenessWeek, he shares his powerful story to raise life-changing awareness of the signs & symptoms 🎗️

Visit: ow.ly/4wEJ50X5J4N

@letsbewheel.bsky.social

#CouldItBeBoneCancer #Awareness #UntilTheresACure
October 10, 2025 at 4:03 PM
Reposted by LetsBeWheel
This #BoneCancerAwarenessWeek, meet Lewis, who was diagnosed with adamantinoma at 8 years old.

His pain was documented for years before his diagnosis. Unfortunately, it was dismissed 📕

Visit: ow.ly/2PJO50X5FB9

@letsbewheel.bsky.social

#CouldItBeBoneCancer #Awareness #UntilTheresACure
October 8, 2025 at 4:13 PM
Reposted by LetsBeWheel
For #BoneCancerAwarenessWeek, we're shining a light on misdiagnosis to help reduce life-threatening delays.

From Monday 6th October, share your misdiagnosis on social media using #CouldItBeBoneCancer.

Your story could change someone else's 🧡

Visit: ow.ly/QlGE50X4aLc

#UntilTheresACure
September 30, 2025 at 1:20 PM
A couple pics from Teens Unite’s Discover You 2025!

Not only are these events chances to learn new things, they are an incredible opportunity to make friends who understand what you’re going through! And that to me is invaluable!

#teensunite #bonecancer #cancer #advocate
September 30, 2025 at 4:49 PM
Cancer Fatigue SUCKS! So let’s talk about it! ♿️🧡

#bonecancer #cancerfatigue #fatigue #illness #disabilityadvocate
September 25, 2025 at 4:41 PM
Reposted by LetsBeWheel
We’re thrilled to celebrate Sandra Jeffs, winner of the Fundraiser Award at the BBC Radio Berkshire Make a Difference Awards! She’s raised £132K in memory of her son Michael and launched her own charity, Buying Time, to help young adults make precious memories with their families. 💙
September 18, 2025 at 3:01 PM
Anxiety sucks!! So let’s talk about it!

My anxiety worry is time, here’s a little more about it - www.instagram.com/reel/DOv87Pd...

What is your current worry? No matter how big or small, drop it below! This is a safe space! ♿️🧡
September 18, 2025 at 4:06 PM
It’s not everyday you get to meet YouTube’s Managing Director Alison Lomax!!

Come with me to Google HQ - www.instagram.com/reel/DOREgd7...

#youtube #google #vlog #teensunite
September 14, 2025 at 2:03 PM
I love Autumn soooo much, I decided to film an Autumn decoration Haul with my sister! Here’s a couple out of context shots from it 👀

Which season is your favourite? 🍂

#autumn #fall #september
September 10, 2025 at 11:56 AM
I was lucky enough to attend the screening for Conjuring: The Last Rites on Wednesday, all thanks to the truly wonderful charity Teens Unite

What an INCREDIBLE experience! Thank you so much to all involved Warner Bros UK, CrewHQ

Go and see the movie! IT’S A MASTERPIECE!! 🪞
September 4, 2025 at 8:11 PM
I was really unhappy with the way my YouTube channel looked on its debut! So… I did a lot upgrading! What do you think?

Before 🟡 After 🔵

- youtube.com/@letsbewheel...

#youtubechannel #letsbewheel #vlogging #disability
August 24, 2025 at 8:59 PM
A little weekly update with Let’s Be Wheel! I’m back to working on tv!!

#tvshow #actor #letsbewheel
August 23, 2025 at 11:08 AM
The GREAT impact that Green Day and specifically Tre Cool have had on my life!

More from 'The Wheel Story' here - youtu.be/2TmoveM-8nU?...

#Disability #advocate #greenday #drummer
August 17, 2025 at 3:13 PM
Today I was honoured to be on BBC Radio Somerset talking all things Let’s Be Wheel!

A huge thank you to the wonderful host Simon Parkin and the team for not only making me feel welcome and comfortable but for giving the opportunity of a lifetime, to share something so dear to me with the world!
August 15, 2025 at 6:56 PM
Reposted by LetsBeWheel
This year, the Euro Ewing Consortium (EEC) and Advances in Ewing Sarcoma Research (AESR) meetings joined forces — uniting over 200 experts & advocates to drive much-needed change 🌍

Learn more: ow.ly/22jw50WECZO

@universityofleeds.bsky.social | @dkfz.bsky.social

#Research #UntilTheresACure
August 14, 2025 at 2:22 PM
I'm looking for similar creators here on Bluesky! Does anybody also vlog on the big red app? 👀
May 8, 2025 at 7:03 PM
Ever wondered what it’s like to attend a Teenage Cancer Trust Event as a young person with Bone Cancer? 🦴🎗️

Lemme show you!! 🎥 youtu.be/kXOQ770cbhU?...

Have a lovely day! ♿️🧡

#disabilityawareness #bonecancer #teenagecancer #letsbewheel
May 6, 2025 at 10:38 AM