Kathy Seward MacKay
kathysmackay.bsky.social
Kathy Seward MacKay
@kathysmackay.bsky.social
Newspaper/documentary photographer turned writer, working on a medical scandal memoir.

https://linktr.ee/KathyMacKay
Pinned
I'm happy to announce STAT News published my opinion essay about my blood safety concerns in light of the HHS cuts. And I received a note from a former FDA commissioner who said my piece was "on target."
www.statnews.com/2025/06/18/b...
Thousands, including my husband, died because of tainted blood. I’m afraid it could happen again
Kathy Seward MacKay lost her husband in 1997 because of tainted blood-clotting products. She’s worried about history repeating itself.
www.statnews.com
This is scary. Good, hard working people & caregivers will r lose affordable health insurance. It's a fallacy that 1/2 the people on Medicaid do not work. See link in bio for stats. This bill isn't about balancing the budget. 😢 #healthcare #hemophilia @flsenrickscott @senashleymoody @hemophiliafed
July 1, 2025 at 5:22 PM
Reposted by Kathy Seward MacKay
You can't make this stuff up.
Fortunately, my brilliant colleague @jasonmast.bsky.social, was around to explain to you all what happened at the first meeting of the new #ACIP. www.statnews.com/2025/06/26/c...
The CDC’s vaccine advisory panel, empowered by RFK Jr., is just getting started
The ACIP, the CDC’s vaccine advisory panel newly empowered by health secretary Robert F. Kennedy Jr., is just getting started.
www.statnews.com
June 26, 2025 at 9:55 PM
Another good place to hang your hat …
June 24, 2025 at 5:10 PM
👏👏👏 Thanks to the amazing Tresa Chambers, marketing and brand specialist, for speaking to the South Florida chapter of the Women’s National Book Association. 📚
June 23, 2025 at 9:02 PM
And now for Walt Longmire fans! Author Craig Johnson is a fun, energetic presenter. Pictured here at The Portsmouth Music Hall June 3. There’s no asking this storyteller a quick question! 📚📖😃
June 20, 2025 at 4:13 PM
I'm happy to announce STAT News published my opinion essay about my blood safety concerns in light of the HHS cuts. And I received a note from a former FDA commissioner who said my piece was "on target."
www.statnews.com/2025/06/18/b...
Thousands, including my husband, died because of tainted blood. I’m afraid it could happen again
Kathy Seward MacKay lost her husband in 1997 because of tainted blood-clotting products. She’s worried about history repeating itself.
www.statnews.com
June 19, 2025 at 8:26 PM
Taking a stand in West Palm Beach …
June 14, 2025 at 11:44 PM
I'm attending No Kings's event, “"NO KINGS" SOUTH PBC INDIVISIBLE BOYNTON BEACH CAR CARAVAN, MARCH, & RALLY” - sign up now to join me! www.mobilize.us/nokings/even...
"NO KINGS" SOUTH PBC INDIVISIBLE BOYNTON BEACH CAR CARAVAN, MARCH, & RALLY · No Kings
**In America, we don’t put up with would-be kings.** NO KINGS is a national day of action and mass mobilization in response to increasing authoritarian excesses and corruption from Trump and his allie...
www.mobilize.us
June 14, 2025 at 2:39 AM
An evening of non-stop laughter at Books & Books with Dave Barry at the kickoff event for his memoir CLASS CLOWN. @booksandbooks #indybookshop #writingcommunity @miamibookfair #writingcommunityofinstagram
May 11, 2025 at 2:30 PM
It's all so scary.
RFK, Jr. Laying Off the entire OIDP - Office Of Infectious Disease And HIV/AIDS Policy

Problem is: general public not aware of what OIDP stands for, let alone what it does - and why this vision, strategy and organization is crucial

Here's just a small segment of what OIDP:
🧵
RFK, Jr. Laying Off Entire Office Of Infectious Disease And HIV/AIDS Policy
Robert F. Kennedy, Jr., the Secretary of Health and Human Services is reportedly laying off the entire Office Of Infectious Disease And HIV/AIDS Policy. Here's the impact
www.forbes.com
March 31, 2025 at 2:28 PM
When I announced my upcoming meeting with a Big Five editor (to discuss memoir pages) in a previous Substack newsletter post, I promised to share how it went—regardless of the outcome. ☺️ This follow-up piece was challenging to write, but here it is ...
kathysewardmackay.substack.com/p/my-meeting...
My Meeting with a Harper Collins/William Morrow Editor
Can I write better than Stephen King, Dave Barry, Mary Karr, and Amy Tan can sing?
kathysewardmackay.substack.com
March 29, 2025 at 3:29 PM
I love discovering new authors. I met Josie Cox & Clémence Michallon at the Miami Book Fair in Nov. Josie highlights the history of women fighting for equality, including UK suffragettes. Clémence’s psychological thriller is a page turner about a woman imprisoned by a beloved townsman.
March 28, 2025 at 6:39 PM
DIFFICULT CHOICES IN LIFE : Most people in my situation may have chosen to NOT have children, although others like me did. Maybe it was a combination of my youth, my stubbornness, my pre-Internet research that told me to take a chance. . 😊
kathysewardmackay.substack.com/p/musings-on...
March 15, 2025 at 12:04 AM
I wrote a memorial tribute to my friend Ken, a true warrior for justice. POZ, a magazine/newsletter for people affected by HIV/AIDS published it. Like my late husband, Ken was a hemophiliac who contracted HIV from a blood products scandal (topic of my memoir in progress).
www.poz.com/article/trib...
Tribute to a Warrior
Remembering Ken Baxter, January 1966–February 21, 2025
www.poz.com
March 5, 2025 at 3:43 PM
WARRIOR FOR JUSTICE
I first photographed Ken in ‘99. With his crimson face, he was protesting at the gates of Bayer, a biz that sold HIV-laced blood products. Ken, like my late hubby, was one of thousands of infected hemophiliacs. Once Ken learned the truth behind the scandal, his crusade began.
March 1, 2025 at 4:11 PM
MLK DAY: These statues, alive & haunting, speak loud as the hands of the enslaved man & the female figure reach but cannot touch. The website for the once paved over Portsmouth African Burying Ground reads: : “Willful ignorance of the past is not a way to move toward a better future.”
January 20, 2025 at 10:19 PM
🤗📘🎉 TOP REASONS I’M EXCITED FOR THE DEEP DIVE SERIES 2025:
1.) To immerse myself in the amazing writing community Bianca, Carly, & CeCe have created; 2) To listen & engage w/top-notch speakers, including authors, agents, editors; 3) To discover and take away the unexpected. #dds2025excited
January 7, 2025 at 5:25 AM
A stroll through downtown Exeter and a visit to Water Street Books - a lovely indie bookstore.
January 2, 2025 at 10:15 PM
THE RIVERRUN BOOKSTORE, PORTSMOUTH, NH … Sad to see the this store in downtown Portsmouth will close in February – especially after the Book and Bar shuttered earlier in the year. Perhaps another book store will take its place. 🤞📚🤓 #indiebooksellers #amreading #booklovers #writingcommunity
January 1, 2025 at 5:51 PM
What a fun surprise to see Fabienne Josaphat’s first line of her new book, KINGDOM OF NO TOMORROW, in Poets & Writers magazine. Brava Fabienne!

“Nettie had grown accustomed to the kind of darkness the human eye couldn’t recognize, the kind that stared back and engulfed a person.”
December 30, 2024 at 9:46 PM
Hello friends! 💥💕☀️ My latest author newsletter is posted. I’ve taken a lot of chances in life and I’m embracing the rewards! Happy New Year to all! ⭐️ kathysewardmackay.substack.com/p/musings-on...
December 29, 2024 at 3:34 PM
Cyber Monday Discount! open.substack.com/pub/kathleen...
Cyber Monday Discount!
Yearly subscriptions at a 20% discount!
open.substack.com
December 2, 2024 at 10:43 PM
WORLD AIDS DAY— December 1:
It’s hard to believe Dave has been gone for 27 years. Our sons are grown and thriving. We have a granddaughter on the way. Today, I honor those we lost, the survivors, and those who have worked tirelessly to stop the spread of AIDS and find a cure.
December 1, 2024 at 3:36 PM
World AIDS Day: Today, I honor the lives lost & impacted by HIV/AIDS, including my hubby, Dave, who died from tainted blood products. In this 1996 shot in the NH mountains, we didn't know he'd be gone in a year. He'd once asked me to tell the story of hemophilia & AIDS. I'm now honoring his wish.
December 1, 2024 at 5:49 AM