Julia Frost
@jufrost.bsky.social
Associate Professor Health Services Research, University of Exeter
Thanks to @oliwilliams.bsky.social @tomshakespeare.bsky.social and everyone else who contributed to this weeks qualtiative symposium and for giving us much to think about arc-swp.nihr.ac.uk/news/reflect...
Reflections on the Qualitative Research Symposium 2025: Innovation and Creativity for Impact - PenARC
On 25th September 2025, the University of Exeter’s Qualitative Research Reference Group (QRRG) hosted its third annual Qualitative Research Symposium, supported by PenARC. This year’s theme, Innovatio...
arc-swp.nihr.ac.uk
September 27, 2025 at 12:45 PM
Thanks to @oliwilliams.bsky.social @tomshakespeare.bsky.social and everyone else who contributed to this weeks qualtiative symposium and for giving us much to think about arc-swp.nihr.ac.uk/news/reflect...
Reposted by Julia Frost
Published in the British journal of cardiac nursing by Assoc. Prof. Julia Frost et al: Understanding the self-management experiences of people with heart failure with preserved ejection fraction (HFpEF), their caregivers and the health care professionals who support them tinyurl.com/2efewbcd
Understanding the self-management experiences of people with heart failure with preserved ejection fraction (HFpEF), their caregivers and the health care professionals who support them: Systematic rev...
The limited capacity of HCPs to support HFpEF patients and caregivers to develop effective self-management understanding and practice can lead to disempowerment and loss of control. Tailored intervent...
tinyurl.com
July 9, 2025 at 11:12 AM
Published in the British journal of cardiac nursing by Assoc. Prof. Julia Frost et al: Understanding the self-management experiences of people with heart failure with preserved ejection fraction (HFpEF), their caregivers and the health care professionals who support them tinyurl.com/2efewbcd
Great to see our collaborative work on widening patient engagement for clinical drug trials and trial design shared with patients with IPF www.actionpf.org/news/the-pow... @cjpope.bsky.social @actionpfsteve.bsky.social
The power of patient involvement in research – Action for Pulmonary Fibrosis
The power of patient involvement in research: How APF is amplifying the voices of people affected by pulmonary fibrosis and ways you can get involved.
www.actionpf.org
June 4, 2025 at 12:23 PM
Great to see our collaborative work on widening patient engagement for clinical drug trials and trial design shared with patients with IPF www.actionpf.org/news/the-pow... @cjpope.bsky.social @actionpfsteve.bsky.social
Could patient insight reports that inform clinical drug trial development better represent the needs of patients with IPF? Yes! doi.org/10.1111/hex....
Widening Patient Engagement for Rare Disease Drug Trials: The Perspectives of Patients With Idiopathic Pulmonary Fibrosis on Participating in Clinical Drug Trials and Drug Trial Design
Background Research about patient engagement for people with rare diseases has identified how the experiences of some members of the public are overlooked in relation to clinical trial design and tr...
doi.org
April 17, 2025 at 12:54 PM
Could patient insight reports that inform clinical drug trial development better represent the needs of patients with IPF? Yes! doi.org/10.1111/hex....
Reposted by Julia Frost
Great news that our CHART trial is now open to recruitment with our fab team @drandyclegg.bsky.social @jufrost.bsky.social @amandafarrin.bsky.social @janemasoli.bsky.social @emmavardy2.bsky.social and many others
PenARC & @arc-yharc.bsky.social researchers are working in partnership with older people with #heartfailure and #frailty to increase their independence.
> Learn more: tinyurl.com/4xt8f7en
@nihrarcs.bsky.social @exeter.ac.uk @universityofleeds.bsky.social @livunipress.bsky.social @nihr.bsky.social
> Learn more: tinyurl.com/4xt8f7en
@nihrarcs.bsky.social @exeter.ac.uk @universityofleeds.bsky.social @livunipress.bsky.social @nihr.bsky.social
February 13, 2025 at 12:45 PM
Great news that our CHART trial is now open to recruitment with our fab team @drandyclegg.bsky.social @jufrost.bsky.social @amandafarrin.bsky.social @janemasoli.bsky.social @emmavardy2.bsky.social and many others
Reposted by Julia Frost
Come and do a Dunhill Medical Trust #PhD with me and @jufrost.bsky.social looking at #CGA for people with #heartfailure and #frailty as part of the @nihr.bsky.social funded CHART trial and #processevaluation www.exeter.ac.uk/study/fundin...
Award details | Funding and scholarships for students | University of Exeter
www.exeter.ac.uk
December 4, 2024 at 4:20 PM
Come and do a Dunhill Medical Trust #PhD with me and @jufrost.bsky.social looking at #CGA for people with #heartfailure and #frailty as part of the @nihr.bsky.social funded CHART trial and #processevaluation www.exeter.ac.uk/study/fundin...
Great to see pharma acknowledging that patients can make such a valuable contribution to making clinical trials more accessible 1.reutersevents.com/LP=37335
September 13, 2024 at 3:04 PM
Great to see pharma acknowledging that patients can make such a valuable contribution to making clinical trials more accessible 1.reutersevents.com/LP=37335
Reposted by Julia Frost
How do you solve a problem like COREQ? A critique of Consolidated Criteria for Reporting Qualitative Research - ScienceDirect
New out (& maybe still uncorrected proofs) from @vicclarke.bsky.social and me.
Please share
www.sciencedirect.com/science/arti...
New out (& maybe still uncorrected proofs) from @vicclarke.bsky.social and me.
Please share
www.sciencedirect.com/science/arti...
How do you solve a problem like COREQ? A critique of Consolidated Criteria for Reporting Qualitative Research
In this paper, we argue that COREQ – the consolidated criteria for reporting qualitative research (Tong et al., 2007) – is a problem, and a problem in…
www.sciencedirect.com
July 28, 2024 at 8:21 PM
How do you solve a problem like COREQ? A critique of Consolidated Criteria for Reporting Qualitative Research - ScienceDirect
New out (& maybe still uncorrected proofs) from @vicclarke.bsky.social and me.
Please share
www.sciencedirect.com/science/arti...
New out (& maybe still uncorrected proofs) from @vicclarke.bsky.social and me.
Please share
www.sciencedirect.com/science/arti...