John Stainton OBE
@johnniebgoode.bsky.social
Living with Primary Progressive Multiple Sclerosis
Medically retired but finding new roles after diagnosis in May 2022
Music fan
Medically retired but finding new roles after diagnosis in May 2022
Music fan
www.youtube.com/watch?v=F4PT...
Please share with your networks. Let's raise money for essential research.
Please share with your networks. Let's raise money for essential research.
MS Letters | Stop MS Winter 2025
YouTube video by MS Society UK
www.youtube.com
November 3, 2025 at 1:20 PM
www.youtube.com/watch?v=F4PT...
Please share with your networks. Let's raise money for essential research.
Please share with your networks. Let's raise money for essential research.
Saw The Last Dinner Party last week. They were excellent.
October 31, 2025 at 8:32 PM
Saw The Last Dinner Party last week. They were excellent.
Saw A Void as support to Ugly Ozo this week. Excellent.
October 31, 2025 at 8:29 PM
Saw A Void as support to Ugly Ozo this week. Excellent.
Saw Ugly Ozo this week
October 31, 2025 at 8:27 PM
Saw Ugly Ozo this week
Saw The Last Dinner Party last night. Quite brilliant.
October 20, 2025 at 8:09 AM
Saw The Last Dinner Party last night. Quite brilliant.
My new tattoo. Damaged myelin on a nerve.
July 24, 2025 at 8:53 PM
My new tattoo. Damaged myelin on a nerve.
I am sailing stormy waters to be near you.
July 24, 2025 at 8:51 PM
I am sailing stormy waters to be near you.
From Jessica Winter's in store appearance at Vinilo Records Southampton.
July 24, 2025 at 8:49 PM
From Jessica Winter's in store appearance at Vinilo Records Southampton.
From Panic Shack's in̈ store appearance at Vinilo Records Southampton.
July 24, 2025 at 8:46 PM
From Panic Shack's in̈ store appearance at Vinilo Records Southampton.
Jessica Winter made an in store appearance at Vinilo Records in Southampton̈ last night
July 18, 2025 at 4:17 AM
Jessica Winter made an in store appearance at Vinilo Records in Southampton̈ last night
www.youtube.com/watch?v=2CI1... My debut on YouTube,
What social security really means - from someone living with MS
YouTube video by Amnesty International UK
www.youtube.com
April 25, 2025 at 4:41 PM
www.youtube.com/watch?v=2CI1... My debut on YouTube,
Another great night at Vinilo Records Southampton and an in store appearance by Those Damn Crows. #livemusic #disability #multiplesclerosis #thosedamncrows
April 14, 2025 at 7:10 AM
Another great night at Vinilo Records Southampton and an in store appearance by Those Damn Crows. #livemusic #disability #multiplesclerosis #thosedamncrows
Record Store Day at Vinilo Records Southampton, They had sold out of the 7 inch single Come up and see me (Make me smile) originally released 50 years ago and one of the first singles I ever bought.
April 12, 2025 at 2:35 PM
Record Store Day at Vinilo Records Southampton, They had sold out of the 7 inch single Come up and see me (Make me smile) originally released 50 years ago and one of the first singles I ever bought.
Saw the great Better Joy last night, They were very good. Support Harvey Jay Dodgson an unexpected bonus. #betterjoy #livemusic
April 6, 2025 at 5:35 PM
Saw the great Better Joy last night, They were very good. Support Harvey Jay Dodgson an unexpected bonus. #betterjoy #livemusic
Went tp see the wonderful Thea Gilmore last night. My first time but I have been a fan for 30 years. Spoke to her after the show and apologised for being late to the party. She is such a nice person. #TheaGilmore #livemusic #Papillon
April 2, 2025 at 7:21 AM
Went tp see the wonderful Thea Gilmore last night. My first time but I have been a fan for 30 years. Spoke to her after the show and apologised for being late to the party. She is such a nice person. #TheaGilmore #livemusic #Papillon
One wonders whether the irony of hiding and interview with a campaigner who is concerned and reduced welfare behind a paywall is lost in the i. Very pleased with the quote that those living with MS are not wastrels or ne'er-do-wells. #disability #multiplesclerosis #PIP
March 29, 2025 at 9:52 PM
One wonders whether the irony of hiding and interview with a campaigner who is concerned and reduced welfare behind a paywall is lost in the i. Very pleased with the quote that those living with MS are not wastrels or ne'er-do-wells. #disability #multiplesclerosis #PIP
www.bbc.co.uk/iplayer/epis... Available (in the UK only) for 23 days. #disability #multiplesclerosis #PIP
Politics South - 23/03/2025
Peter Henley with the latest political news, interviews and debate.
www.bbc.co.uk
March 29, 2025 at 9:46 PM
www.bbc.co.uk/iplayer/epis... Available (in the UK only) for 23 days. #disability #multiplesclerosis #PIP
www.eastleighnews.co.uk/2025/03/chan... For the third time this week I am in the news. This time as a champion of the Wessex Secure Data Environment. I do like the photo from 12-12 years ago, above Afghanistan. #research #improvedhealthoutcomes #multiplesclerosis #disability
Chandler’s Ford MS campaigner joins NHS research project | Eastleigh News
A Chandler’s Ford man who was diagnosed with multiple sclerosis three years ago has been selected to help shape a major new NHS project
www.eastleighnews.co.uk
March 29, 2025 at 9:41 PM
www.eastleighnews.co.uk/2025/03/chan... For the third time this week I am in the news. This time as a champion of the Wessex Secure Data Environment. I do like the photo from 12-12 years ago, above Afghanistan. #research #improvedhealthoutcomes #multiplesclerosis #disability
March 26, 2025 at 8:03 PM
Saw and met Welly (well 60% of them) at the Vinilo Record Store on Tuesday night.
March 26, 2025 at 8:01 PM
Saw and met Welly (well 60% of them) at the Vinilo Record Store on Tuesday night.
www.youtube.com/watch?v=1G7a...
Without the support of people like you the revolution will not start (at closing time - far fans of punk band Serious Drinking - or any other time.) #multiplesclerosis #stopMS #disability #research
Without the support of people like you the revolution will not start (at closing time - far fans of punk band Serious Drinking - or any other time.) #multiplesclerosis #stopMS #disability #research
Join the MS treatment revolution | Stop MS Spring 2025
YouTube video by MS Society UK
www.youtube.com
March 26, 2025 at 7:57 PM
www.youtube.com/watch?v=1G7a...
Without the support of people like you the revolution will not start (at closing time - far fans of punk band Serious Drinking - or any other time.) #multiplesclerosis #stopMS #disability #research
Without the support of people like you the revolution will not start (at closing time - far fans of punk band Serious Drinking - or any other time.) #multiplesclerosis #stopMS #disability #research
www.bbc.co.uk/iplayer/epis... Watch from 6 minutes to see my friend Phoebe Day and I talk about PIP. #disability #multiplesclerosis #benefits
Politics South - 23/03/2025
Peter Henley with the latest political news, interviews and debate.
www.bbc.co.uk
March 23, 2025 at 11:55 AM
www.bbc.co.uk/iplayer/epis... Watch from 6 minutes to see my friend Phoebe Day and I talk about PIP. #disability #multiplesclerosis #benefits
Caught HotWax making an instore appearance at Vinilo Records last night. The NME describe their new album as a blistering debut from future rock titans and they are not wrong. #livemusic
March 13, 2025 at 8:15 AM
Caught HotWax making an instore appearance at Vinilo Records last night. The NME describe their new album as a blistering debut from future rock titans and they are not wrong. #livemusic
Chuck Prophet on Tuesday night #livemusic
March 6, 2025 at 9:19 PM
Chuck Prophet on Tuesday night #livemusic
Listen from 13:37 to hear a text from John in Southampton (I wonder who that is?) who updates the nation on both a Chuck Prophet gig he attended and say that as he has Multiple Sclerosis he is resting up. MS mentioned on national radio. #multiplesclerosis #disability #invisibledisability #livemusic
5 Live Breakfast - 05/03/2025 - BBC Sounds
Rachel Burden and Rick Edwards with unique stories, and the biggest news and sport.
www.bbc.co.uk
March 6, 2025 at 10:56 AM
Listen from 13:37 to hear a text from John in Southampton (I wonder who that is?) who updates the nation on both a Chuck Prophet gig he attended and say that as he has Multiple Sclerosis he is resting up. MS mentioned on national radio. #multiplesclerosis #disability #invisibledisability #livemusic