Janet Freeman-Daily
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jfreemandaily.bsky.social
Janet Freeman-Daily
@jfreemandaily.bsky.social
Lung cancer patient and research advocate. Cofounder #LCSM Chat, The ROS1ders, IASLC STARS. Also writer, retired engineer, science geek. Temporarily between feline overseers. Blog at grayconnections.net.
Reposted by Janet Freeman-Daily
I screen for #LungCancer annually. So does my kid sister. Our mother died as a result of LC treatment. Most LC is caught at an advanced stage. Catch it in time. #StayAlive #lcsm
Did you know only 1 in 10 people at higher risk for #lungcancer get screened? Lung cancer is the leading cause of cancer deaths in the United States. If caught early, lung cancer can be treated and survival rates can dramatically improve.

#fredhutch #cancerscreening #lcsm
November 10, 2025 at 7:48 PM
I'll be speaking in a webinar about ROS1+ lung cancer on November 17. Registration is FREE and available here: floridasocietyofclinicaloncologyjune152017.growthzoneapp.com/ap/Events/Re...
Hope you can join us!
November 11, 2025 at 7:47 PM
Join me at #ILCSC25 September 26-27 for breakout session w/Upal Basu Roy and rockstar @drcamidge.bsky.social. The International Lung Cancer Survivorship Conference is a free virtual conference for people w/ #lungcancer, #caregivers and #advocates. Learn more and register
here: lungevity.org/ilcsc
International Lung Cancer Survivorship Conference 2025
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lungevity.org
September 25, 2025 at 10:28 PM
A moment in my cancer history

Thirteen years ago today, I experienced a revival of hope. In mid September 2012, I had learned my cancer had grown despite two different lines of chemotherapy plus radiation. But on this date, the University of Colorado notified me that my tumor tissue tested…
A moment in my cancer history
Thirteen years ago today, I experienced a revival of hope. In mid September 2012, I had learned my cancer had grown despite two different lines of chemotherapy plus radiation. But on this date, the University of Colorado notified me that my tumor tissue tested positive for a gene rearrangement called ROS1, and I was eligible for a clinical trial of the targeted therapy pill crizotinib. I had options again! Today I'm still on the same daily pill. Cancer research is awesome.
grayconnections.net
September 25, 2025 at 3:30 PM
Chances are strong that at least one person you know and love (or even you) will have cancer at some point. Why should you care?  Because people are dying for better cancer treatments.
The End of the US War on Cancer (which isn’t over)
Chances are strong that at least one person you know and love (or even you) will have cancer at some point. Why should you care? Because people are dying for better cancer treatments. We still do not know how to cure most cancers. Now the funding that has fueled so many new discoveries in recent years—like the targeted therapy I’m taking, which has kept my cancer in check for nearly 13 years—is being throttled.
grayconnections.net
September 15, 2025 at 6:24 PM
News I did not want to hear

Dr. D Ross Camidge is many things. Today he's the source of news that broke my heart.
News I did not want to hear
Dr. D Ross Camidge is many things. Today he's the source of news that broke my heart.
grayconnections.net
September 9, 2025 at 3:00 AM
Do you assume a person had to have known they had metastatic cancer before they were diagnosed? Here are four reasons why they often don't know.
Did They Know They Had Metastatic Cancer Before Diagnosis?
Once a person is medically diagnosed with having metastatic cancer (cancer that has spread to other organs), some people accuse that person of lying when the person says they didn't know they had cancer. Because some cancers might grow for years before spreading to other organs, people think the person with cancer would had to have known they had it.
grayconnections.net
May 28, 2025 at 9:11 PM
Remembering Mount St. Helens

45 years ago today, Mount St. Helens erupted. From my home in Tacoma over 70 miles away, I could hear and feel the blast and see the plume of ash, rock, and hot gases rising into the atmosphere. Such major blasts of chaotic energy and hot gases produce extensive…
Remembering Mount St. Helens
45 years ago today, Mount St. Helens erupted. From my home in Tacoma over 70 miles away, I could hear and feel the blast and see the plume of ash, rock, and hot gases rising into the atmosphere. Such major blasts of chaotic energy and hot gases produce extensive damage. The explosion darked the skies for miles, extinguished lives, erased forests, and rearranged the landscape.
grayconnections.net
May 19, 2025 at 12:11 AM
If you're concerned about this serious security breach, which is a federal crime, TAKE ACTION! Call:

Congressman Mike Rogers (head, House Armed Services Committee)
(202) 225-3261

Senator Roger F. Wicker (head, Senate Armed Services Committee)
(202) 224-6253

www.wsj.com/politics/nat...
Top Trump Officials Debated War Plans on Unclassified Chat Shared With Journalist
The texts on the Signal encrypted messaging service revealed disagreements about whether to strike Houthis in Yemen.
www.wsj.com
March 25, 2025 at 12:19 PM
Reposted by Janet Freeman-Daily
What a great news! Finally we have a journal dedicated to liquid biopsy research! I am truly excited. 🔥
🎉🩸 Thrilled to share that the Journal of Liquid Biopsy is now officially live in PubMed and PMC! A significant step forward for JLB

Check it out here: pmc.ncbi.nlm.nih.gov/journals/?te...

#LiquidBiopsy #PubMed @christianrolfo.bsky.social @yukselurun.bsky.social @eloisajantus.bsky.social
March 18, 2025 at 4:22 PM
Erasing unique accomplishments as DEI

If anyone is still inclined to think the government's efforts to delete "DEI" hires are aimed at people hired for reasons other than their skills, consider the case of the Navajo Code Talkers. Pages about them have been removed from DOD websites and replaced…
Erasing unique accomplishments as DEI
If anyone is still inclined to think the government's efforts to delete "DEI" hires are aimed at people hired for reasons other than their skills, consider the case of the Navajo Code Talkers. Pages about them have been removed from DOD websites and replaced with "DEI." These Americans had a unique skill that no one else possessed. Their ability to speak in Navajo during WWII created a code that no enemy ever broke.
grayconnections.net
March 18, 2025 at 3:47 PM
Updated @ascocancer.bsky.social living guidelines for NSCLC are out! Participating on the Expert Panel not only gives me hope to see so many new treatments, it also reminds me how challenging it must be for clinicians to keep up.

ascopubs.org/doi/10.1200/...
ascopubs.org/doi/10.1200/...
Therapy for Stage IV Non–Small Cell Lung Cancer Without Driver Alterations: ASCO Living Guideline, Version 2024.3
Living guidelines are developed for selected topic areas with rapidly evolving evidence that drives frequent change in recommended clinical practice. Living guidelines are updated on a regular schedul...
ascopubs.org
March 2, 2025 at 4:27 AM
I was working as an engineer at Boeing when the company offered early retirement benefits in 1995 to workers 55 and older. It was offered in part to avoid layoffs. www.nytimes.com/1995/03/25/b... 1/4
Boeing Offers Retirement Incentives to Cut 7,000 Jobs (Published 1995)
www.nytimes.com
February 24, 2025 at 5:38 PM
February 23, 2025 at 8:41 PM
Rewriting journal articles to eliminate the forbidden words research, woman, female, systemic, bias, diversity:

Our [research] analysis considered a group of people treated with a [systemic] cancer drug which travels throughout the body. 1/3
February 17, 2025 at 9:39 PM
A thoughtful perspective on the importance of government-supported research infrastructure. It's not perfect, and could use reform. But you can't reform something that's disappeared due to lack of funding for labs, support staff, equipment and office space.

www.nytimes.com/2025/02/14/o...
Opinion | American Science is Under Attack (Gift Article)
The Trump administration hobbles research and endangers the public health.
www.nytimes.com
February 15, 2025 at 10:53 AM
Reposted by Janet Freeman-Daily
🚨 Applications Open! The 2025 #IASLC STARS PRA & Scholar Program empowers lung cancer advocates to drive patient-centered research & scientific progress.

📅 Apply by March 14, 2025
🔗 Learn more & apply: www.iaslc-stars.org

Make a difference! #LungCancerAdvocacy #IASLCSTARS
February 3, 2025 at 7:41 PM
Amp up your lung cancer patient advocacy! Apply for the STARS Program

Take steps to amp up your lung cancer patient advocacy! Applications are now open for the 2025 IASLC STARS PRA & Scholar Programs. STARS (Supportive Training for Advocates on Research and Science) can help you develop and…
Amp up your lung cancer patient advocacy! Apply for the STARS Program
Take steps to amp up your lung cancer patient advocacy! Applications are now open for the 2025 IASLC STARS PRA & Scholar Programs. STARS (Supportive Training for Advocates on Research and Science) can help you develop and enhance research advocacy skills needed to provide a patient perspective to research. If you or a loved one has been affected by lung cancer, and you are an active lung cancer patient advocate, you are eligible to apply. Learn more on the STARS website.
grayconnections.net
February 4, 2025 at 5:42 PM
Reposted by Janet Freeman-Daily
@jfreemandaily.bsky.social our first #ayacsm #OncSky #MedSky #SkyChat is tomorrow! Please follow back and spread the word! #Rebuilding
February 3, 2025 at 8:52 PM
DEI is not the same as diversity in clinical trials.

Diversity in clinical trials aims to test new drugs in a wide variety of people, because response to some medicines can vary by gender, age, ethnicity, and genetics.
www.statnews.com/2025/01/23/f...
FDA purges material on clinical trial diversity from its site, showing stakes of Trump DEI ban
Following the Trump administration's DEI ban, the FDA's move to scrub webpages has ensnared many pages focused on ensuring diversity in drug trials.
www.statnews.com
January 25, 2025 at 6:55 PM
Science alert:
new administration is imposing wide range of restrictions on NIH, "including the abrupt cancellation of meetings such as grant review panels. Officials have also ordered a communications pause, a freeze on hiring, and an indefinite ban on travel."

www.science.org/content/arti...
Trump hits NIH with ‘devastating’ freezes on meetings, travel, communications, and hiring
Researchers facing
www.science.org
January 23, 2025 at 2:31 AM
Reposted by Janet Freeman-Daily
Biomarker testing can help identify actionable mutations in patients with SqNSCLC, especially in those without a history of smoking. Testing is not performed consistently in this setting. #LCSM #lungcancer

www.sciencedirect.com/science/arti...
Comprehensive molecular profiling of squamous non-small cell lung cancer reveals high incidence of actionable genomic alterations among patients with no history of smoking
Next-generation sequencing (NGS) to detect actionable genomic driver alterations (AGAs) is critical to appropriate management of non-small cell lung c…
www.sciencedirect.com
January 19, 2025 at 3:58 PM
I feel seen.
January 3, 2025 at 2:02 PM
Thanks for the laugh, @joehaldeman.bsky.social . "Kyloren syndrome" for the win!
December 31, 2024 at 5:49 PM
Reposted by Janet Freeman-Daily
. @jfreemandaily.bsky.social The example in this article of how AI in healthcare could help empower cancer patients made me think of you. www.liebertpub.com/doi/full/10....
"...predicts that institutional health care will focus on adopting AI for incremental operational improvements..."
The Most Disruptive Near-Term Use of AI in Cancer Care: Patient Empowerment Through Software Agents | AI in Precision Oncology
Cancer care often involves making complex medical decisions within a challenging environment: a balkanized medical system of many specialists, information overload and obsolescence, limited time with ...
www.liebertpub.com
December 30, 2024 at 2:42 AM