Therealjd.life.with.fnd
@jdlifewithfnd.bsky.social
Supporting life with FND, seizures & epilepsy through resilience & shared laughter. Rachel's FND journey inspires authentic stories & community resources.
2025-05-07
September 16, 2025 at 1:03 PM
2025-05-07
They said it was all in my head. Turns out, they were right—just not in the way they meant. Functional Neurological Disorder (FND) affects how the brain sends signals to the body. It doesn’t show up on scans—but it shows up in our lives, our losses, our daily battles. For anyone still doubting
September 16, 2025 at 1:28 AM
They said it was all in my head. Turns out, they were right—just not in the way they meant. Functional Neurological Disorder (FND) affects how the brain sends signals to the body. It doesn’t show up on scans—but it shows up in our lives, our losses, our daily battles. For anyone still doubting
She looked straight into the camera… waiting for me to say something. But I wasn’t there.
September 15, 2025 at 10:11 PM
She looked straight into the camera… waiting for me to say something. But I wasn’t there.
Fall into my arms and I will catch you #fnd
September 15, 2025 at 7:14 PM
Fall into my arms and I will catch you #fnd
She had no idea where she was… but her dog knew exactly how to bring her home during a functional seizure with preserved motor output.
September 15, 2025 at 4:15 PM
She had no idea where she was… but her dog knew exactly how to bring her home during a functional seizure with preserved motor output.
I don’t know who needs to hear this…. But there is hope and there are people out here fighting for you.
September 15, 2025 at 1:11 PM
I don’t know who needs to hear this…. But there is hope and there are people out here fighting for you.
Multiple functional drop attacks + dissociative episodes in-store. The rain + sound triggered her. I used grounding (spray + thump) to help bring her back. #FND #SeizureAwareness #FunctionalSeizures
September 15, 2025 at 1:15 AM
Multiple functional drop attacks + dissociative episodes in-store. The rain + sound triggered her. I used grounding (spray + thump) to help bring her back. #FND #SeizureAwareness #FunctionalSeizures
Rachel has Functional Neurological Disorder. Tonight, her legs stopped working. Our daughter stepped in to help. This is our real life. No filters. #fnd
September 14, 2025 at 10:10 PM
Rachel has Functional Neurological Disorder. Tonight, her legs stopped working. Our daughter stepped in to help. This is our real life. No filters. #fnd
This is Functional Neurological Disorder (FND). What you’re seeing is a mix of a functional seizure and a focal impaired awareness episode followed by a drop seizure. Our son has learned to recognize the signs when Rachel starts to fade. He gave her a sharp tap something we learned to help re-sync
September 14, 2025 at 7:18 PM
This is Functional Neurological Disorder (FND). What you’re seeing is a mix of a functional seizure and a focal impaired awareness episode followed by a drop seizure. Our son has learned to recognize the signs when Rachel starts to fade. He gave her a sharp tap something we learned to help re-sync
This is what an absence seizure looks like when it turns into something deeper. Rachel was just talking with her friend and me and then everything changed. When I sprayed cold water to ground her, her tic blurted out ‘I hate you.’ She didn’t mean it. But the guilt she felt afterward—that’s what
September 14, 2025 at 4:19 PM
This is what an absence seizure looks like when it turns into something deeper. Rachel was just talking with her friend and me and then everything changed. When I sprayed cold water to ground her, her tic blurted out ‘I hate you.’ She didn’t mean it. But the guilt she felt afterward—that’s what
She was enjoying life. Then came the seizure. And somehow… she finds her way back to laughter. This is Functional Neurological Disorder. It doesn’t steal her joy it just pauses it. We don’t just cope. We come back stronger. #fnd #invisibleillness #youarenotalone #reallife
September 14, 2025 at 1:14 PM
She was enjoying life. Then came the seizure. And somehow… she finds her way back to laughter. This is Functional Neurological Disorder. It doesn’t steal her joy it just pauses it. We don’t just cope. We come back stronger. #fnd #invisibleillness #youarenotalone #reallife
Every FND episode is different. We share moments like this to help others understand for awareness and insight not medical advice. #FNDawareness #CaregiverLife #InformationalOnly #RealNotAdvice
September 14, 2025 at 1:04 AM
Every FND episode is different. We share moments like this to help others understand for awareness and insight not medical advice. #FNDawareness #CaregiverLife #InformationalOnly #RealNotAdvice
Most people don't see what goes into "stepping away" when you're a caregiver. It's not guilt. It's not fear. It's presence even when you're away. To every caregiver who packs peace in one hand and anxiety in the other you're not alone. #FNDawareness #CaregiverLife
September 13, 2025 at 10:17 PM
Most people don't see what goes into "stepping away" when you're a caregiver. It's not guilt. It's not fear. It's presence even when you're away. To every caregiver who packs peace in one hand and anxiety in the other you're not alone. #FNDawareness #CaregiverLife
No one’s ever ready for moments like this. Rachel was fine one second smiling, talking… and then it happened. But what makes this one different is what happened after. Our daughter picked up the phone and reminded us that love, even in the hardest moments, still finds its voice. #fndawareness
September 13, 2025 at 7:18 PM
No one’s ever ready for moments like this. Rachel was fine one second smiling, talking… and then it happened. But what makes this one different is what happened after. Our daughter picked up the phone and reminded us that love, even in the hardest moments, still finds its voice. #fndawareness
Happy Memorial Day weekend!
September 13, 2025 at 4:18 PM
Happy Memorial Day weekend!
FND didn’t erase her—it just asked her to meet herself again. #FNDawareness #FND
September 13, 2025 at 1:14 PM
FND didn’t erase her—it just asked her to meet herself again. #FNDawareness #FND
#creatorsearchinsights #FNDawareness #invisibleillness
September 13, 2025 at 1:02 AM
#creatorsearchinsights #FNDawareness #invisibleillness
FND is exhausting. But explaining it to people who don’t believe you? That’s a trigger too. #fndawareness
September 12, 2025 at 10:16 PM
FND is exhausting. But explaining it to people who don’t believe you? That’s a trigger too. #fndawareness
Sometimes silence on this app isn’t about quitting. It’s about being pushed out. Let’s remind the algorithm: we are still here!#fnd #fndawareness
September 12, 2025 at 7:18 PM
Sometimes silence on this app isn’t about quitting. It’s about being pushed out. Let’s remind the algorithm: we are still here!#fnd #fndawareness
One second we’re ranking jellybeans in Costco… the next, my wife hits the floor mid-seizure. This is what living with Functional Neurological Disorder actually looks like—raw, unscripted, and somehow still filled with love (and chaos). #fndawareness
September 12, 2025 at 4:16 PM
One second we’re ranking jellybeans in Costco… the next, my wife hits the floor mid-seizure. This is what living with Functional Neurological Disorder actually looks like—raw, unscripted, and somehow still filled with love (and chaos). #fndawareness
She once ran these stairs effortlessly. Today, climbing them is a monumental victory. Living with Functional Neurological Disorder (FND) has transformed our journey, but not our determination. Every step symbolizes strength, resilience, and hope. Let's shine a light on FND and support each other's
September 12, 2025 at 1:16 PM
She once ran these stairs effortlessly. Today, climbing them is a monumental victory. Living with Functional Neurological Disorder (FND) has transformed our journey, but not our determination. Every step symbolizes strength, resilience, and hope. Let's shine a light on FND and support each other's
Breaking the cycle: when a generation of black sheep raise black sheep book club tonight at 8pm est link will be posted in the cycle breakers fb group.
September 12, 2025 at 12:40 PM
Breaking the cycle: when a generation of black sheep raise black sheep book club tonight at 8pm est link will be posted in the cycle breakers fb group.
She was fine minutes before this. Laughing. Living. Being present. But FND doesn’t care about good days. One spike of pain, and her body shut down. She went into a functional seizure right as she sat down—and like always, the first thing she said was “I’m sorry.” Then “I’m fine.” But she’s not
September 12, 2025 at 1:08 AM
She was fine minutes before this. Laughing. Living. Being present. But FND doesn’t care about good days. One spike of pain, and her body shut down. She went into a functional seizure right as she sat down—and like always, the first thing she said was “I’m sorry.” Then “I’m fine.” But she’s not
New support group on facebook Life with FND: strength through Support if you have FND or are a caregiver for someone who does, we can’t wait to see you there #FND
September 11, 2025 at 10:15 PM
New support group on facebook Life with FND: strength through Support if you have FND or are a caregiver for someone who does, we can’t wait to see you there #FND
FND is real. What the world calls fake… we call misunderstood. And we wear this truth on our chest. #fnd #fndawareness
September 11, 2025 at 7:18 PM
FND is real. What the world calls fake… we call misunderstood. And we wear this truth on our chest. #fnd #fndawareness