IPOPI
@ipopi.bsky.social
IPOPI, International Patient Organisation for Primary Immunodeficiencies, is a non-profit international organisation and the leading advocate for primary immunodeficiency (PID) patients worldwide
💙 The #IPIC2025 Congress Dinner brought together our global PID community for an evening filled with laughter, friendship, and celebration.
Thank you to everyone who joined us — your energy and smiles made this night truly special! 🌍
Find all the pictures here: web.facebook.com/media/set/?v...
Thank you to everyone who joined us — your energy and smiles made this night truly special! 🌍
Find all the pictures here: web.facebook.com/media/set/?v...
November 13, 2025 at 1:40 PM
💙 The #IPIC2025 Congress Dinner brought together our global PID community for an evening filled with laughter, friendship, and celebration.
Thank you to everyone who joined us — your energy and smiles made this night truly special! 🌍
Find all the pictures here: web.facebook.com/media/set/?v...
Thank you to everyone who joined us — your energy and smiles made this night truly special! 🌍
Find all the pictures here: web.facebook.com/media/set/?v...
Can the new Critical Medicines Act (CMA) truly make a difference for patients?
At IPOPI, we believe the CMA’s success must be measured by one simple criterion:
👉 the real, positive impact it delivers for patients who rely on critical medicines every day.
www.euractiv.com/opinion/the-...
At IPOPI, we believe the CMA’s success must be measured by one simple criterion:
👉 the real, positive impact it delivers for patients who rely on critical medicines every day.
www.euractiv.com/opinion/the-...
The Critical Medicines Act Must Deliver for Patients Who Depend on Plasma | Euractiv
The Critical Medicines Act (CMA) is an opportunity to address Europe’s medicine shortages, particularly for patients relying on plasma-derived therapies. It must ensure resilient plasma supply chains,...
www.euractiv.com
November 12, 2025 at 12:16 PM
Can the new Critical Medicines Act (CMA) truly make a difference for patients?
At IPOPI, we believe the CMA’s success must be measured by one simple criterion:
👉 the real, positive impact it delivers for patients who rely on critical medicines every day.
www.euractiv.com/opinion/the-...
At IPOPI, we believe the CMA’s success must be measured by one simple criterion:
👉 the real, positive impact it delivers for patients who rely on critical medicines every day.
www.euractiv.com/opinion/the-...
🧬 Join @martinepergent.bsky.social in a heartfelt conversation with Joshua Williams about his long and challenging journey with secondary immunodeficiencies (SIDs). Dr. Stephen Jolles brings the medical perspective!
🎧 Listen now: open.spotify.com/episode/2IGi...
#PIDAwareness #IPOPI
🎧 Listen now: open.spotify.com/episode/2IGi...
#PIDAwareness #IPOPI
November 10, 2025 at 4:18 PM
🧬 Join @martinepergent.bsky.social in a heartfelt conversation with Joshua Williams about his long and challenging journey with secondary immunodeficiencies (SIDs). Dr. Stephen Jolles brings the medical perspective!
🎧 Listen now: open.spotify.com/episode/2IGi...
#PIDAwareness #IPOPI
🎧 Listen now: open.spotify.com/episode/2IGi...
#PIDAwareness #IPOPI
👋 That’s a wrap on #IPIC2025!
Patricia and the IPOPI team just wanted to say a big thank you and goodbye to everyone who joined us in Prague! 💙
See you next time! ✨
#IPIC2025 #Immunology #RareDiseases #PrimaryImmunodeficiencies #TeamIPOPI
Patricia and the IPOPI team just wanted to say a big thank you and goodbye to everyone who joined us in Prague! 💙
See you next time! ✨
#IPIC2025 #Immunology #RareDiseases #PrimaryImmunodeficiencies #TeamIPOPI
November 7, 2025 at 5:05 PM
👋 That’s a wrap on #IPIC2025!
Patricia and the IPOPI team just wanted to say a big thank you and goodbye to everyone who joined us in Prague! 💙
See you next time! ✨
#IPIC2025 #Immunology #RareDiseases #PrimaryImmunodeficiencies #TeamIPOPI
Patricia and the IPOPI team just wanted to say a big thank you and goodbye to everyone who joined us in Prague! 💙
See you next time! ✨
#IPIC2025 #Immunology #RareDiseases #PrimaryImmunodeficiencies #TeamIPOPI
🌟 Final day at #IPIC2025!
What an inspiring wrap-up to three days of science, collaboration, and innovation! From gene therapy and genomics to liver health and young investigator achievements — today had it all
A huge thank you to everyone who joined us and made this congress so special!
What an inspiring wrap-up to three days of science, collaboration, and innovation! From gene therapy and genomics to liver health and young investigator achievements — today had it all
A huge thank you to everyone who joined us and made this congress so special!
November 7, 2025 at 5:04 PM
🌟 Final day at #IPIC2025!
What an inspiring wrap-up to three days of science, collaboration, and innovation! From gene therapy and genomics to liver health and young investigator achievements — today had it all
A huge thank you to everyone who joined us and made this congress so special!
What an inspiring wrap-up to three days of science, collaboration, and innovation! From gene therapy and genomics to liver health and young investigator achievements — today had it all
A huge thank you to everyone who joined us and made this congress so special!
✨ Another fantastic day at #IPIC2025!
From complex infections to cutting-edge global updates, today’s sessions brought powerful insights, inspiring discussions, and incredible learning moments from experts around the world 🌍
The spirit of collaboration and innovation was truly on display!
From complex infections to cutting-edge global updates, today’s sessions brought powerful insights, inspiring discussions, and incredible learning moments from experts around the world 🌍
The spirit of collaboration and innovation was truly on display!
November 6, 2025 at 5:02 PM
✨ Another fantastic day at #IPIC2025!
From complex infections to cutting-edge global updates, today’s sessions brought powerful insights, inspiring discussions, and incredible learning moments from experts around the world 🌍
The spirit of collaboration and innovation was truly on display!
From complex infections to cutting-edge global updates, today’s sessions brought powerful insights, inspiring discussions, and incredible learning moments from experts around the world 🌍
The spirit of collaboration and innovation was truly on display!
🎓 Don’t let your CME credits play hide and seek!
Scan your badge at the auditorium entrance 👀 and head to the registration area to claim them.
#IPIC2025 #Prague #cmecredits
Scan your badge at the auditorium entrance 👀 and head to the registration area to claim them.
#IPIC2025 #Prague #cmecredits
November 6, 2025 at 3:52 PM
🎓 Don’t let your CME credits play hide and seek!
Scan your badge at the auditorium entrance 👀 and head to the registration area to claim them.
#IPIC2025 #Prague #cmecredits
Scan your badge at the auditorium entrance 👀 and head to the registration area to claim them.
#IPIC2025 #Prague #cmecredits
🌞 Good morning from #IPIC2025!
Day 2 kicks off with AI-powered poster walks, and inspiring talks on targeted therapies and secondary immunodeficiencies 💡
Coffee’s ready ☕, minds are sharp 🧠 — let’s dive into another day of science, collaboration, and patient-centered innovation! 💙
Day 2 kicks off with AI-powered poster walks, and inspiring talks on targeted therapies and secondary immunodeficiencies 💡
Coffee’s ready ☕, minds are sharp 🧠 — let’s dive into another day of science, collaboration, and patient-centered innovation! 💙
November 6, 2025 at 11:20 AM
🌞 Good morning from #IPIC2025!
Day 2 kicks off with AI-powered poster walks, and inspiring talks on targeted therapies and secondary immunodeficiencies 💡
Coffee’s ready ☕, minds are sharp 🧠 — let’s dive into another day of science, collaboration, and patient-centered innovation! 💙
Day 2 kicks off with AI-powered poster walks, and inspiring talks on targeted therapies and secondary immunodeficiencies 💡
Coffee’s ready ☕, minds are sharp 🧠 — let’s dive into another day of science, collaboration, and patient-centered innovation! 💙
#IPIC2025 kicked off with great energy! 🙌
From check-in to the first sessions, the enthusiasm was contagious.
Here are some of our favourite shots from Day 1 📸
From check-in to the first sessions, the enthusiasm was contagious.
Here are some of our favourite shots from Day 1 📸
November 5, 2025 at 11:32 PM
#IPIC2025 kicked off with great energy! 🙌
From check-in to the first sessions, the enthusiasm was contagious.
Here are some of our favourite shots from Day 1 📸
From check-in to the first sessions, the enthusiasm was contagious.
Here are some of our favourite shots from Day 1 📸
🚀 Only 1 day left! What are you looking forward to the most at #IPIC2025?
#IPIC2025 #1DayToGo #CountdownToIPIC
#IPIC2025 #1DayToGo #CountdownToIPIC
November 4, 2025 at 10:51 AM
🚀 Only 1 day left! What are you looking forward to the most at #IPIC2025?
#IPIC2025 #1DayToGo #CountdownToIPIC
#IPIC2025 #1DayToGo #CountdownToIPIC
At IPIC2025, we are honoured to have Dr Martin Zach as our opening session keynote speaker. Join us as he delves into "Boundaries of immunity and where to find them". Mark your calendar for this enlightening start to the congress! 📅
🔗 www.ipic2025.com
#IPIC2025 #ScientificProgramme #KeynoteSpeaker
🔗 www.ipic2025.com
#IPIC2025 #ScientificProgramme #KeynoteSpeaker
November 3, 2025 at 2:43 PM
At IPIC2025, we are honoured to have Dr Martin Zach as our opening session keynote speaker. Join us as he delves into "Boundaries of immunity and where to find them". Mark your calendar for this enlightening start to the congress! 📅
🔗 www.ipic2025.com
#IPIC2025 #ScientificProgramme #KeynoteSpeaker
🔗 www.ipic2025.com
#IPIC2025 #ScientificProgramme #KeynoteSpeaker
🚀 Get ready for IPIC2025! Download the congress app for easy access to the scientific programme, speaker info, floor plans, and more.
Search for IPIC2025 on the App Store and Google Play! 📲
Search for IPIC2025 on the App Store and Google Play! 📲
November 1, 2025 at 2:58 PM
🚀 Get ready for IPIC2025! Download the congress app for easy access to the scientific programme, speaker info, floor plans, and more.
Search for IPIC2025 on the App Store and Google Play! 📲
Search for IPIC2025 on the App Store and Google Play! 📲
🎧 Have you listened yet?
If you missed it when it first came out, now’s the perfect time to catch up!
🎙️ Listen and follow our podcast: open.spotify.com/episode/2Mxk...
If you missed it when it first came out, now’s the perfect time to catch up!
🎙️ Listen and follow our podcast: open.spotify.com/episode/2Mxk...
October 31, 2025 at 4:44 PM
🎧 Have you listened yet?
If you missed it when it first came out, now’s the perfect time to catch up!
🎙️ Listen and follow our podcast: open.spotify.com/episode/2Mxk...
If you missed it when it first came out, now’s the perfect time to catch up!
🎙️ Listen and follow our podcast: open.spotify.com/episode/2Mxk...
🎥 You can now watch the full recording of our latest IPOPI Hard Talks on Clinical Application of Calculated Globulin Screening — featuring insights from Prof. Stephen Jolles and Dr. Cecilia Poli.
▶️ Watch now on YouTube: youtu.be/t43ldp0LsTU
Webinar supported by CSL.
▶️ Watch now on YouTube: youtu.be/t43ldp0LsTU
Webinar supported by CSL.
IPOPI Hard Talks: Clinical Application of Calculated Globulin Screening
YouTube video by IPOPI
youtu.be
October 31, 2025 at 2:55 PM
🎥 You can now watch the full recording of our latest IPOPI Hard Talks on Clinical Application of Calculated Globulin Screening — featuring insights from Prof. Stephen Jolles and Dr. Cecilia Poli.
▶️ Watch now on YouTube: youtu.be/t43ldp0LsTU
Webinar supported by CSL.
▶️ Watch now on YouTube: youtu.be/t43ldp0LsTU
Webinar supported by CSL.
🎉 IPOPI is thrilled to announce that the IPIC2025 Scientific Committee has approved a record-breaking 258 abstracts, showcasing cutting-edge research in the field of PIDs.
🏅 Three winners have been selected—curious who they are?
🔗 Visit our website ipic2025.com
#IPIC2025 #AbstractWinners
🏅 Three winners have been selected—curious who they are?
🔗 Visit our website ipic2025.com
#IPIC2025 #AbstractWinners
October 31, 2025 at 2:01 PM
🎉 IPOPI is thrilled to announce that the IPIC2025 Scientific Committee has approved a record-breaking 258 abstracts, showcasing cutting-edge research in the field of PIDs.
🏅 Three winners have been selected—curious who they are?
🔗 Visit our website ipic2025.com
#IPIC2025 #AbstractWinners
🏅 Three winners have been selected—curious who they are?
🔗 Visit our website ipic2025.com
#IPIC2025 #AbstractWinners
✨ Free Public Transport in Prague!
IPIC2025 delegates get a complimentary pass for unlimited metro, tram & bus rides from Nov 5 to Nov 7.
Available only for delegates registered by 30 October.
➡️ Read More: lnkd.in/dBFM9gr4
#IPIC2025
IPIC2025 delegates get a complimentary pass for unlimited metro, tram & bus rides from Nov 5 to Nov 7.
Available only for delegates registered by 30 October.
➡️ Read More: lnkd.in/dBFM9gr4
#IPIC2025
October 30, 2025 at 5:25 PM
✨ Free Public Transport in Prague!
IPIC2025 delegates get a complimentary pass for unlimited metro, tram & bus rides from Nov 5 to Nov 7.
Available only for delegates registered by 30 October.
➡️ Read More: lnkd.in/dBFM9gr4
#IPIC2025
IPIC2025 delegates get a complimentary pass for unlimited metro, tram & bus rides from Nov 5 to Nov 7.
Available only for delegates registered by 30 October.
➡️ Read More: lnkd.in/dBFM9gr4
#IPIC2025
The IPOPI Jose Drabwell Research Grant Programme is supporting 4 innovative projects with 2 years of funding to advance scientific and clinical research in Primary Immunodeficiencies (PID). 🧬
👏 We celebrate these brilliant minds driving hope and progress in the PID community!
👏 We celebrate these brilliant minds driving hope and progress in the PID community!
October 30, 2025 at 11:03 AM
The IPOPI Jose Drabwell Research Grant Programme is supporting 4 innovative projects with 2 years of funding to advance scientific and clinical research in Primary Immunodeficiencies (PID). 🧬
👏 We celebrate these brilliant minds driving hope and progress in the PID community!
👏 We celebrate these brilliant minds driving hope and progress in the PID community!
🚀 The final countdown begins! ⏳ Just 1 week until IPIC2025 Congress!
Are you ready for a week filled with innovation, insights, and inspiration?
👉 ipic2025.com
#IPOPI #IPIC2025
Are you ready for a week filled with innovation, insights, and inspiration?
👉 ipic2025.com
#IPOPI #IPIC2025
October 29, 2025 at 3:28 PM
🚀 The final countdown begins! ⏳ Just 1 week until IPIC2025 Congress!
Are you ready for a week filled with innovation, insights, and inspiration?
👉 ipic2025.com
#IPOPI #IPIC2025
Are you ready for a week filled with innovation, insights, and inspiration?
👉 ipic2025.com
#IPOPI #IPIC2025
🫱🏻🫲🏿 Martine Pergent, IPOPI President, participated in the TRANSFORM Alliance meeting, addressing access to Advanced Therapy Medicinal Products (ATMPs) for rare disease patients.
Martine’s intervention was a strong call for equitable and timely access to transformative therapies.
Martine’s intervention was a strong call for equitable and timely access to transformative therapies.
October 27, 2025 at 10:07 AM
🫱🏻🫲🏿 Martine Pergent, IPOPI President, participated in the TRANSFORM Alliance meeting, addressing access to Advanced Therapy Medicinal Products (ATMPs) for rare disease patients.
Martine’s intervention was a strong call for equitable and timely access to transformative therapies.
Martine’s intervention was a strong call for equitable and timely access to transformative therapies.
📢 The IPOPI 2024 Annual Review Report is now live!
Explore the key moments, global events, and new initiatives that helped IPOPI grow stronger in supporting people with primary immunodeficiencies worldwide.
👉 Read the full review here: ipopi.org/2024-annual-...
#IPOPI #AnnualReview
Explore the key moments, global events, and new initiatives that helped IPOPI grow stronger in supporting people with primary immunodeficiencies worldwide.
👉 Read the full review here: ipopi.org/2024-annual-...
#IPOPI #AnnualReview
October 23, 2025 at 3:48 PM
📢 The IPOPI 2024 Annual Review Report is now live!
Explore the key moments, global events, and new initiatives that helped IPOPI grow stronger in supporting people with primary immunodeficiencies worldwide.
👉 Read the full review here: ipopi.org/2024-annual-...
#IPOPI #AnnualReview
Explore the key moments, global events, and new initiatives that helped IPOPI grow stronger in supporting people with primary immunodeficiencies worldwide.
👉 Read the full review here: ipopi.org/2024-annual-...
#IPOPI #AnnualReview
🧬 IPOPI Hard Talks is next week!
Register here: app.livestorm.co/ipopi/ipopi-...
Join us for an insightful session on the Clinical Application of Calculated Globulin Screening, featuring Prof Stephen Jolles and Dr Cecilia Poli, both experts in primary and secondary immunodeficiency management.
Register here: app.livestorm.co/ipopi/ipopi-...
Join us for an insightful session on the Clinical Application of Calculated Globulin Screening, featuring Prof Stephen Jolles and Dr Cecilia Poli, both experts in primary and secondary immunodeficiency management.
October 23, 2025 at 2:43 PM
🧬 IPOPI Hard Talks is next week!
Register here: app.livestorm.co/ipopi/ipopi-...
Join us for an insightful session on the Clinical Application of Calculated Globulin Screening, featuring Prof Stephen Jolles and Dr Cecilia Poli, both experts in primary and secondary immunodeficiency management.
Register here: app.livestorm.co/ipopi/ipopi-...
Join us for an insightful session on the Clinical Application of Calculated Globulin Screening, featuring Prof Stephen Jolles and Dr Cecilia Poli, both experts in primary and secondary immunodeficiency management.
🌍 IPIC2025 is almost here! Join healthcare professionals, researchers, and patient advocates in Prague for the leading international congress on Primary Immunodeficiencies.
👉 Register now: ipic2025.com
#IPIC2025 #Prague2025
👉 Register now: ipic2025.com
#IPIC2025 #Prague2025
October 22, 2025 at 3:59 PM
🌍 IPIC2025 is almost here! Join healthcare professionals, researchers, and patient advocates in Prague for the leading international congress on Primary Immunodeficiencies.
👉 Register now: ipic2025.com
#IPIC2025 #Prague2025
👉 Register now: ipic2025.com
#IPIC2025 #Prague2025
🌍 IPOPI visited the Vall d'Hebron Maternity and Children Hospital in Barcelona.
It was a great opportunity to learn more about their work in PIDs and explore ways to continue strengthening collaboration in the field.
We thank Dr. Soler-Palacín and the Vall d’Hebron team for their warm welcome! 💙
It was a great opportunity to learn more about their work in PIDs and explore ways to continue strengthening collaboration in the field.
We thank Dr. Soler-Palacín and the Vall d’Hebron team for their warm welcome! 💙
October 21, 2025 at 10:15 AM
🌍 IPOPI visited the Vall d'Hebron Maternity and Children Hospital in Barcelona.
It was a great opportunity to learn more about their work in PIDs and explore ways to continue strengthening collaboration in the field.
We thank Dr. Soler-Palacín and the Vall d’Hebron team for their warm welcome! 💙
It was a great opportunity to learn more about their work in PIDs and explore ways to continue strengthening collaboration in the field.
We thank Dr. Soler-Palacín and the Vall d’Hebron team for their warm welcome! 💙
🍂 Your autumn update is here: the IPOPI Newsletter!
Stay informed this season: IPIC2025 is approaching, celebrate the Jose Drabwell Research Grant winners, hear WPIW’s global initiatives, tune into our new podcast and more.
📬 Don’t miss out: e-news.ipopi.org
#IPOPI #AutumnNewsletter
Stay informed this season: IPIC2025 is approaching, celebrate the Jose Drabwell Research Grant winners, hear WPIW’s global initiatives, tune into our new podcast and more.
📬 Don’t miss out: e-news.ipopi.org
#IPOPI #AutumnNewsletter
October 20, 2025 at 2:23 PM
🍂 Your autumn update is here: the IPOPI Newsletter!
Stay informed this season: IPIC2025 is approaching, celebrate the Jose Drabwell Research Grant winners, hear WPIW’s global initiatives, tune into our new podcast and more.
📬 Don’t miss out: e-news.ipopi.org
#IPOPI #AutumnNewsletter
Stay informed this season: IPIC2025 is approaching, celebrate the Jose Drabwell Research Grant winners, hear WPIW’s global initiatives, tune into our new podcast and more.
📬 Don’t miss out: e-news.ipopi.org
#IPOPI #AutumnNewsletter
Reposted by IPOPI
It was great to join my colleague Dr Jacques Rivière at the EAPS Congress in Lisbon during a session on patient engagement in scientific research to talk about @ipopi.bsky.social extensive experience on this topic, highlighting challenges & opportunities!
#ESID #ERNRITA
#ESID #ERNRITA
October 19, 2025 at 2:13 PM
It was great to join my colleague Dr Jacques Rivière at the EAPS Congress in Lisbon during a session on patient engagement in scientific research to talk about @ipopi.bsky.social extensive experience on this topic, highlighting challenges & opportunities!
#ESID #ERNRITA
#ESID #ERNRITA